CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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I’m not on exemestane but letrozole instead. I’ve found that if I take it at night with a couple of Arthritis Tylenol and then take 200mg. celecoxib in the morning, the aches are minimal. Being on Wellbutrin also helps (Cymbalta, which is similar, has been shown to reduce joint/muscle aches in patients taking letrozole—should work with any A.I.).
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well slept better last night, sort of think it was the yoga class that caused my aches the night before.
I did take tylonel before bed, all those other things well I think Cymbalta is an nsaid and I am allergic to them
Plan on hitting the gym for a bit but no yoga class
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Cymbalta is not an NSAID. It's an SNRI antidepressant (third generation), often prescribed for fibromyalgia (especially for those who can't take NSAIDs and shouldn't take opioids or neuropathy meds such as Neurontin or Lyrica).
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Oh thought it was but good to know although not needing a pain meds now
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Iris, I hope those aches are just from starting up again with yoga! Wouldn't that be wonderful... normal human aches that will go away once you back into the swing of things.
My surgeon's scheduler called last week. They moved my surgical biopsy up to next week, February 13. Yikes! I wasn't mentally prepared for that. Rationally, I know it's no big deal. My surgery is an hour and easy to schedule in between his bigger surgeries. However, my preop appointment and tests are scheduled for Feb. 8. This is the date my high school son's marching band is performing at Disneyland. I am going with them to chaperone, but more importantly to see my kid perform! I've called her twice and left messages that the preop appointment doesn't work for me. My DH seems to think I should just back out of Disneyland (people are eager to take my place) and do the medical stuff. AND last night I had a dream which instructed me to back away from the surgery completely and wait the 6 months for more imaging to see if the area of concern has changed. Relatively minor stugg, but it doesn't take much to sent me to Crazy Town.
I miss Beppy, too.
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I miss her too. Poppy, don't back off DL. We don't want to miss important days in the lives of our children.
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Living, is about making memories, for me and my family. Go with your gut Poppy.
Much love crazies
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I agree, you need to go to Disney, it will be a bit of normalsy?
Enjoy the trip and the memories you make with your family
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Go to Disneyland Poppy. And personally I'd let your doc and the office manager know that their failure to return your calls on the scheduling issue is adding to your stress! Too aggravating!
Those memories are important. My 20 something niece, college grad and newly engaged, still talks a LOT about the time we went to see her dance at Disneyland when she was a young teenager. She remembers every detail!
Meanwhile back at the ranch: I am having some tough family issues to deal with, so if I am quiet for a few days or a bit more, keep me in your thoughts, ok crazys?
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Poppy ..Yes ..I agree with all the other ladies ! ..And I miss Beppy too ..She always came on with her wonderful , soothing wise words ..and somehow made everyone's Crazy Town situations feel a whole lot better ..
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Poppy, go to Disneyland! What is the point of all of this treatment if not to have time with those we love? That's amazing that your son's band is performing there!
Iris, thinking of you!
Sorry you're having difficult family issues, Octo. {hugs}
Love to all crazies, including our Beppy.
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octogirl, big hugs. Iris, thinking of you.
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Octo - thoughts and prayers to you and your family. Hope this brings a wee smile...
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Octo. .Thinking of you. !!! I missed your post before ..We posted at the same time ..
Robin ...Very cute 🙂
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Robin, that is the best! Love it!!!! Thanks so much to all of you....
Octogirl
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Poppy, you may get only this one chance to proudly watch your son strut his stuff at Disneyland. Preop appts. can always be shuffled.
Octo, hope your family situation can resolve tolerably, if not outright satisfactorily.
I too miss Beppy and her bellydancing .gif and reassuring soothing words.
A little minor heartache tonight. My voice teacher’s kid (who’d been Tiny Tim in the Goodman Theatre’s A Christmas Carol for the past three years but now may have grown too tall) plays the female detective’s son in the new FOX drama APB. Unfortunately, the show is getting nearly uniformly rotten reviews and none of them mention little Nate by name, only a tossaway line that his character Mateo enjoys school. I’m going to fast forward through it to see if Nate’s in tonight’s episode. At least if the series gets cancelled, he got paid for his work and has some short and Indie films in the pipeline. I will have to be extremely diplomatic at Thursday’s voice lesson.
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sandy, i I tough to make a living in theatre and hope your friend gets a new gig soon
We'll day 2 of the dreaded afinitor. Dang complicated to remember the timing on the rinse stuff but do realize it is important.
Hit home Depot yesterday as I have hated the faucet in downstairs powder room so now have to call guy to install. Decided to do some small details for myself. I know, dumb I guess
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Hi everyone
Just when I start to think on a positive note, I get something to set me back. I'm post menopause, and now have scant bleeding for a few days. Going to OB/GYN tomorrow. I know she will do a vaginal ultrasound. Could be a fibroid, I have one I know of, but good grief. Will it ever end. Trying not to go off the reservation, because the future will come no matter my outlook, but i'm really bummed out. I've had this before bc and it was nothing, possible thick uterine lining, had biopsy and everything. Funny I had no worries then, but now not so much.
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Val ..Ugh ..Seems like there's always something new popping up to scare us ...My guess , especially since this has happened to you previously is that it will be benign . .But I know it's very scary waiting to hear the doctors say those words .
At the moment Hubby and I are painting our house ..I know most people shudder at the thought ..But I find it weirdly soothing ...Good for my soul ..I love watching a beautiful new room magically appear ...So see , now you know for sure I'm a nut case. 😵
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Val, praying it's nothing new. Lucy, I love painting!! Another string of headaches. I guess it's time to call MO.
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Val, hoping it’s just post-menopausal irritation or a fibroid. (I don’t see hormonal therapy in your profile—AIs can cause vaginal bleeding too). Yet another fun feature of estrogen deprivation.
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Val - add my prayers to the list.
Crazies, thank you. I made it through my day of appts in mostly one piece. CT shows all nodules as stable as well as my "stable bone islands?" on my spine. They are in the area that was so painful on the hormonal meds...I guess that is part of an answer. CT is now extended to every 6 months from every 3. MO still wants to follow me every 3 months, she is now stating my risk of recurrence is greater than 50%, but I truly cannot tolerate those meds. I also met with nutritionist and naturopath. We added Maitake, Melatonin, Resveratrol and ground flax seed to my daily intake. All are ant-estrogenic and along with my clean eating, continued weight loss and exercise, I am doing what I can to better my odds of staying NED. My mammo was clear and my osteoporosis is now osteopenia everywhere. I fell apart at the last appt....my Prolia injection. It seems there is a dental release form for Zometa/Prolia...I don't have one on file. I was never asked for one at my other treatment facility, and i am a year into treatment. Injection was withheld. I don't have a dentist. I have an intense dental phobia. It is a well earned dread. Each time I have screwed up courage to go, something has seriously gone wrong. Broken jaw, tmj, irregular bite, molar ground to a nub.....there is more..i became extremely anxious...like back on chemo days when your counts are too low. So, long story short, received a call and about to head out for my shot. My DH does not get that even though it is not the end of the world, sometimes it feels like it. Those times I just need someone to say, I understand.
LOve you all
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Morning peeps, we'll heard from pharmacy about my afinitor. Even with my medicare part d the cost is staggering. Like 4200 per 90 days. I about hit the roof. I get very sarcastic at times and believe it came out when I heard the price. They said they would look into a grant to help pay but today's project is to make some phone calls.
Yikes, also just promised my great neighbor that I would make chicken soup for him. He sounded on the phone just now like he was headed for pneumonia. And snow is due later tonight. Fun.
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Robin ...Yay ....It's great to hear all your tests went so well ..I never enjoy trips to the dentist either ...Both Hubby and I have been going through a root canal , and we get our caps on this Friday . I'm distressed over what they are costing as well 😵
Molly so sorry you are still having the headaches .I hope that can be sorted for you quickly ...
Iris .Ugh ..The afinitor is SO expensive ..!!! I sure hope they can get thr grant for you !!! You are very kind to be making your neighbour soup !...Strange to think of you waiting for snow ......We are sweltering through one of the hottest summers ever ...Thank goodness for airconditing !!!;
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my neighbor told me to check pharmaceuticals Web site for patient assistance so did and gonna submit form at next doc visit
Cannot hurt to try and the rep said they do offer help for folks on medicare
Yeap, funky weather coming so need my pre snow trip for milk
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Good grief, Iris! That is way too much $$!. Robin, glad you are stable and sorry about the dental thing. I have been through years of getting my teeth to a point that I don't dread the dentist (as much). My now retired dentist was responsible for getting my teeth healthy and me taking good care of them. Lucy, how hot is hot? My DD wants to go to Australia next year on vacation with her BF. When she told me December I said in SUMMER? Are you crazy?
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yeah, got two feelers out for patient assistance and plan on calling g my onco tommorrow as well.
Snow due tonight which is completely obscene as it was 65 or so today and now they say we wil get like 8 or more inches......iI plan on letting it just melt
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Robin: I understand. No, scratch that WE understand. We do the best we can with what we have and are, and we all have different triggers. Falling apart when they refused the Prolia over a dental waiver after the day you had makes absolutely perfect sense, even had DH kept his yap shut
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QMC - thank you! I should have come here first. I realized it after trying to explain it to DH. I have found I fall apart quicker, post treatment, but am beginning to get over it quicker too. Bonus!!
Iris- I hope you are able to find cost assistance quickly. Please keep us updated.
We are closer to moving. We are pretty much settled on which town, now to get a realtor. We have agreed on about 6 houses to look at. Hopefully we will get inside them next week. There is one in particular we both really like. It will need some work, but we are both picturing ourselves in it. Fingers crossed that there are no major structural issues. It is a quirky house and a foreclosure. Someone started to flip it, but left a couple things to finish. Projects can be exciting!
Hugs and kisses!
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Hi, everyone. Been hiding down the rabbit hole lately.
Robin, I'm glad to hear your checkup was good. I totally understand how the dental waiver could stress you out.
Iris, I hope you can get the financial arrangements quickly. Glad to hear you are back at the gym.
Poppy, in your pocket for your surgery. I hope all goes smoothly and you can put this behind you.
Valstim, how did your OB appointment go?
Molly, let us know what the MO says about your headaches.
My blood pressure is doing better on the medication. I've even been able to get readings in the one hundred teens over 80s if I can relax. Big "if"! That's still a little high on the bottom number, but much better. And my high numbers when I'm stressed aren't as high as they were. I'm going back to the doctor today for follow up and see what he wants to do next.
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