CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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âfternoon all, I had a dandy night last night, up all night with one of those dandy uti infections. I will say thank god for walk on clinics. Got an antibiotic so should feel better
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Rainny ...Hi ..In your pocket for your scan ..And look forward to hearing great results. !!!
Queen ..Hope the assignment goes well. !!
Molly ..Good luck with the pre -op ..Your surgery must be very close now ..It'll be good to have it all behind you .Big hug for Wyatt .
Iris ..Oh no ..Sorry you have the UTI , but it's great you got to start your antibiotics so quickly ..I hope you get to catch up on some of those missed " zzzz's " during the day .
Mommy ..Hugs right back at you. !
Octo ..Sorry you are having trouble with your knees because of the Femara .
Am geting up early this morning for a beach walk and try and beat the heat ..It is still so hot ..😵
Shorfi ..Thinking of you
Love to all xx
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lucy, crashing on sofa today but do feel much better enjoy your beach walk
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Go QMC! Iris, UTI's =no fun!
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A little food porn for you. Not as good as Sula. It is our dinner, chicken pot pie using a modified version of the Better Homes and Gardens cookbook.
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And my cookies made with cream cheese dough and boysenberry and strawberry filling
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Lucy55: at this point I"m gearing up for the midterm in the 'Routing and Switching' class. Very nervewracking, but I have a week of spring break, in which I've been given permission to play around with the equipment in the (community) college's computer lab. The teacher has laid forth the claim that there's nothing I can do that he can't fix. Sounds like a challenge, no?
Molly50: thank you! for the food porn, for starters. i'll eat your cookies any time.....
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Molly, those cookies look like kolačky—I can almost taste them through the screen!
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Sandy, I suppose that's what they are. I never had a name. Years ago I used to make Pecan tassies for my oldest. I used the extra dough for these cookies.
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Queen, that is really a challenge and shows how good your teacher really is. When I was working i had a programmer who fixed my dumb stuff and I was real good at messing up my computer
We'll I am a huge fan of the walk in clinics, without them I would still be climbing the walls with the uti. Not cured yet but tons better. Although I was hugely tired yesterday and sort of being lazy today
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Proud: my husband also figured the teacher was tossing down the gauntlet. Fun, though! (no, really) I'm looking forward to the chance to play around with the equipment all by myself--no other students or hubbub to fluster me.
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Still sick. Poo. Was getting better, then started with the sinus problems, sore throat and terrible cough continues.
Saw my MO last week, even though I was sick and could barely speak. My DH went to talk and interpret for me. MO thinks I should have the excisional biopsy to get a definitive answer. The other option would be to monitor every 6 months for 18 months. So I'm scheduled for the end of the month. My MO also discussed the option to switch to Tamoxifen to improve the issues I'm having with side effects. I told her I don't want to switch. Spent a lot of time with her. Love that she never is rushed.
Busy time for my son, Matthew, who is a high school senior. He's on the tennis team and has wind ensemble band performances. Of course, tennis matches and concerts are scheduled for the same time. My husband seems to be back to his usual self. Thank God!
Is anyone else watching April the Giraffe (who is soon giving birth) online? Giraffes are my eldest son's favorite animal. My DH and I traveled to Africa before we had kids. Giraffes are so quiet and beautiful.
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Hugs everyone!
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Had a tough time getting to sleep last night (after Bob was up past 3 am watching a movie he’d downloaded only on the upstairs DVR), with achy arm, shoulder, ankles & hips and aching sinuses. Figured it was the letrozole kicking in, and then heard the thunder. Ah, yes—here I am, the human barometer. When the air pressure drops (as when a storm front arrives), my arm and sinuses swell and my joints ache. When the storm stopped, so did the pain. Began taking Claritin in place of my usual Zyrtec, to prepare me for the possible bone-ache SE of the Prolia shot I’m getting Tuesday. Funny—I’m more nervous about the pre-shot bloodwork, because phlebotomists usually have a devil of a time drawing blood from my L arm & hand, and the blood chemistry panel includes glucose (afraid to see if the AI & weight gain have nudged me into prediabetic territory) and calcium (if my level is too low I can’t get the shot).
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Sorry to all sick, lordie but have had my share of sinus issues. I think I need to breakdown and get a humidtifier, doc has urged me too in the past but this new med means I am dryer in the past. Oh well
My neighbor called an hour or so ago, love my neighbors as they are checking on me, thanks to great neighbors I would worryaout staying in my house
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I have been reading along, and man are we all a mess! I love all of you guys, and it does make me feel somewhat like a benevolent unseen presence when I can come here to see how everyone is doing. For a little while, I was coming here and playing word games because I thought it would lighten my mood, and then for a while, I was just reading and responding to newcomer stuff. Poppy, you are constantly on my mind because it's really scary to wonder what shit is when we don't know. I feel for you girl
And ducky, I am fine and apologies for not writing pms back, remember the good ol days when stuff was fun, there may have been random scary events, but at least every one was alive then.
I miss that purple belly dancer Betty would put in to welcome women too, Chi.
Proud, you amaze me! You are made out of very strong stuff.
And where is our dear Shorfi?
Molly Molly Molly
My mom who is eighty 5? Eighty-6? Is in the hospital, I am flying thursday to be with her. My sis and niece were able to talk her into it, because she had fallen TWICE at home, and she only told me once, and really down played it. She had a UTI also, and, REALLY BAD CELLULITIS of both lower legs, and I guess it stemmed from LYMPHEDEMA because her heart was having a hard time pumping blood, because of the aorta right behind her heart, that had a small dissection that we have known about, ALSO HAS BLOOD CLOTS!!!! And, 3 weeks ago, when they took her to her primary, she was supposed to go to THE HOSPITAL THEN!!!! My fiercely stubborn red headed freckled mother said no. And so, lymph started leaking out of blisters on her legs, and so when I called her, all she wants to talk about is what I made for DINNER!!!!! I was so mad at her, because I usually call her every day. And when i would say, mom, shouldn't I come & see you? She would always say, wait till I feel better. I finally said, what if you DON"T feel better!! And not wanting to tell me the truth about her legs.....
The only reason I am waiting is because i have an appointment tomorrow with my pain doc for refills of things I take to help my pain. But, since I got shots in my foot on inauguration day, I can finally walk for the first time in over a year! It's so awesome! Limping had thrown my whole body out of whack, but it's getting better.
So I am looking forward to seeing my dysfunctional argumentative weird messy f*****d up family. my mom will probably not be able to go back home.
Plus taxes and packing.
I love you all
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Welcome back, Tomboy! Let us/me know how your mother is, if you have the time to do so.
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Tomboy, We've missed you! Yes, let us know how things go when you get there. Hang in there.
Poppy, hope you are all better soon but I am really glad your hubby seems to be better! and Iris, I am so happy that your neighbors are checking on you!
Lucy, emailing you this week about my May/June trip to Oz is on my list for this week. I promise.
Your chicken pot pie looks great Molly!
Can't remember if I posted since I got back from Boston....it was a really nice trip: there for work, but the weather was really warm (for Feb in Boston) and I got to spend time with my son. However, the long plane trip did not hep my knees.....My knee pain has gotten worse and both sitting and walking are getting really hard. I should go and get a shot of some type. I just want a break! Oh well, after I got home I snuck off to Yosemite for two days with hubby for my birthday. We had a lovely time, and below is a picture taken with my phone to prove it, other than the fact that trying to hike around made me feel very old. Didn't get very far thanks to that damned knee pain. But still, it is Yosemite...
Sending love to all!
Octogirl
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Ooooh, Yosemite—at the top of my bucket list even though I’m not much of a hiker.
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That's quite a stunning photo, octo, it's luminous! I swear, phones are taking such great pictures now. So pretty. I wanted to tell you, the shots in my phoot I almost said, I mean foot, were entirely worth it. I really couldn't walk, and not stand very well either. But it was getting to be so bad with me that even lying down was getting to be a misery that I couldn't escape the pain of. I just hate being put out, because where are you, when you're not conscious? If it was more like that lovely in between sleeping and awake state, I would take it. But I am always glad to know that at least by the time they wheel me into the procedure/surgery, that I will be done in a few seconds, all done! At least it seems like only a moment later. It did not go well for me this time though because I must have had a reaction to something, cause boy, was I pissed! And hurting! I felt like I had been wrestling demons... not fun. I don't know why I can't be awake, except I also had shots near my spine for the ongoing breast and rib pain for the second time, and it didn't work there, again.
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Hugs to all
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tomboy,suggestion for your mom.......I got one of those lifelines......help I have fallen and can't get up.
I got one as i live alone and feel more secure with it. I have one for my neck for home, then another for when I travel and a big button in my shower
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Tomboy!!! I miss you and need to see you in between our complicated schedules. I am praying for your mom. She sounds stubborn and stoic like her daughter. What great news about your foot. I hope it lasts.
Octogirl, gorgeous picture of Yosemite. Confess I have never been.
Anyone I missed, hugs.
We need some funny CT stories. I just don't have funny in me right now.0 -
Hello Crazies!
Rainny and Tomboy, great to see you posting. Poppy and Molly, thinking of you both and your upcoming surgeries.
I have had a somewhat crazy month. Around the end of rads last year, I was told I had mild lymphedma by the PT. Got a sleeve, went for MLD, etc with therapist. Got a compression pump, and told to wear the sleeve all the time. Use the pump every day. In the last few months, I noticed that my arm seemed more swollen in the sleeve, and that my breast was always swollen and tender. I was also having terrible pain in my underarm and side - couldn't lay on that side, terrible pain when coughing or sneezing. I went for one year follow up with BS and the PA suggested I may need a compression bra. Got fitted for that, but it didn't seem right - like I couldn't breathe and it was just painful. The fitter for the compression bra suggested I see the lymphedema doc at the cancer center.
Ok, I make the appointment. He examines me and says - you don't have lymphedema. You have cording in your underarm and your scars are very hard which is what is causing the pain. Do not use the pump or sleeve (except for repetitive motion/exercise) for three months. I am now having laser treatments for the scars and the cording which seem to be working after just three treatments.
I am extremely grateful that I do not have lymphedema, and that the problem seems like an easy one to resolve. But it does seem like a cautionary tale of sorts - I know that these providers are well-meaning and competent. I am puzzled as to why I was not referred to the lymphedema doc earlier in the process, and wish that I had known about him so that I could have taken the initiative to see him. In the end, all is well, but the lymphedema dx did add a lot stress and worry to a stressful, worrisome time. Rant over.
Every time I go for a medical appt in Pittsburgh, I pass a business called Happy Berry - a yogurt place. The 'r's in Berry are strawberries, and it looks like the sign says Happy Beppy. I think of her every time I pass by.
Hugs to all
Barb
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pennsygal, I love that pic! Thank you for sharing that!
It is frustrating that you weren't referred to the right doc sooner....and you live in an urban area (or at least have access to apts in one/Pittsburgh). I went through that type of crud with my vision issues (not bc related; I have been very fortunate with my bc docs for the most part, even though I am in a semi-rural area). Indeed, will be reminded of those issues Monday when I have to drive two and a half hours for my apt with my (world class, fortunately) retinal specialist. Just a check up, all should be fine there. Still a bit anxiety producing.
Molly, I wish you could get away and come visit me: I'd put you up and give you the personal tour of Yosemite. You too Sandy. It should be on everyone's bucket list. I am just lucky to live less than two hours drive away. This trip though we took the bus: it was nice not to have to deal with driving in the winter....And while I've been many times, I did cross something off my bucket list: staying at the hotel formerly known as the Ahwahnee. Pretty spectacular. Here is the view from our room...now THAT'S a room with a view!
Love to all
Octogirl
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Well, it’s getting real: my London trip next month is booked, right down to dinner reservations; and my annual trip to the SERFA folk music conference in Montreat, NC (about 45 min. e of Asheville) is also all booked (except for the hotels en route there for the 2 or 2.5 day trip, which I usually wait until a couple of days before and use Priceline to bid). Even the hotel-room “guerrilla” showcases, one per night. (Hoping to make it down to Sparta before then to finish my solo CD to hand out at the conference—it may be too much to ask my singing partner to finish writing his half of the liner notes and approve proofs in time to get our duo CD pressed in time to hand out ahead of official release. It was mastered two years ago and we keep promising it, but he keeps putting it off. I suspect that with all his solo touring, the duo’s not as big a priority for him as it used to be—though he’s booked us three nicely-paying gigs this summer in WI, I’m running up against a brick wall trying to get us bookings in Chicago; more venues are dropping live music while the competition is increasing despite audiences dwindling—I’m thinking online shows via ConcertWindow is the wave of the future). As to L.A., haven’t heard back yet whether enough award nominees will be available to be in SoCal Apr. 29—it might end up having to be July 1 instead.
And I finally had my Prolia shot this afternoon. Hurt like hell (it’s a BIG pre-filled syringe) but it was over very quickly. My bloodwork was okay—glucose was 125, but it was less than two hours post-prandial (had a substantial breakfast) so it’s still considered normal. (In the past, I’ve had post-prandials in the 140s, and while in rehab for my knee replacement surgeries, over 200 fasting)! My creatinine was 1.1, the upper end of normal—mea culpa, I don’t drink enough water and didn’t “pee pale” this morning. I switched from Zyrtec to Claritin Sunday night & last night, and will continue on Claritin through the end of the week in order to minimize bone aches. (The nurse said they’re far less likely than on Zometa, and since I’ve already had a Zometa treatment I should be fine with Prolia). Amazing how suddenly Medicare and BCBS went from “you’re on your own, pony up $5K” to “you meet all the guidelines and all it’s gonna cost you is for parking.”
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sandy,medicare continues to baffle me. Since my new script for wildly expensive but needed med has gone through, i am now in the catostophic phase. Out of the donut hole. Amazing how all this crud works, my singular was much less this time, who knew
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Yup—by last summer I was in the donut hole, but because my Ventolin, BP & GERD meds were still under patent, I climbed out into “catastrophic" for one glorious month in December, during which my Ventolin inhalers were as cheap as they are OTC in Europe. Since then, my BP med has gone generic, as has my Celebrex; but Dexilant isn't going off-patent till 2020 (and Ventolin never will, because no other company can make its environmentally-friendly propellant that all nations now require). And I was totally out-of-pocket on letrozole because the aging pharmacist was a bit, shall we say, “famisht," and kept submitting my claims to United PPO even though he had my Humana Part D card on file. His daughter discovered that in the nick of time…but that $9 a month that is my new co-pay because Humana's now covering it, that may kick me back into the donut hole again, and I might not climb out. Hopefully, I won't be taking any more Lyrica, baclofen or those pricey post-surgical eyedrops, but as of Jan. 31 I had already spent $2000 on “covered" prescriptions in a single month (thanks to Humana's ridiculously calling some of my generic drugs “preferred brands," presumably because I refuse to drive 6 miles to Wal-Mart or throw myself at the mercy of its mail-order pharmacy to buy them. Why should I, when CVS, Walgreen's and my standalone pharmacy—all of which had been “preferred" but now aren't—are within walking distance and I can get emergency refills at any CVS in the US?).
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octogirl, gorgeous view! I may take you up on your offer someday. For now my sweet boy keeps me housebound except for work. Sandy, I so enjoy your travel stories and music stories. Pennysgal, so good to hear from you. I made DGS French Toast from cinnamon bread for dinner. The privilege of being grandma.
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Well, the drug-o-sphere giveth (free Prolia!) and the drug-o-sphere taketh away. Picked up my letrozole Rx tonight along with some matzo ball soup. Good news is that my co-pay is still only nine bucks. Bad news is that my little standalone pharmacy/kosher deli could get me neither Roxane nor Teva this month—all the distributor had was Accord and Femara (with the latter most certainly costing 100x more than the generic—that’s not $100 more, but 100 times more). Not sure about others’ experiences with Accord; I guess what I’ll do is give it a week and if the SEs increase I’ll have to dip into my Canadian-purchased Novartis UK Femara stash until Roxane & Teva are available once more.
Tomorrow night’s my monthly support group meeting. Usually I’m the one who talks too much, but last month we had a new member who gave my motor mouth a much-needed rest. She bragged about her ability to squeeze a dollar till George Washington poops (my metaphor). When I got a compliment on my new blue tortoise Warby Parker glasses (photochromic), and I mentioned they were half the price of my previous less-fashionable specs with the same features at Lens Crafters, the new gal said “I can go you one better: Zenni Optical.” She pulled out a little rectangular pair of lime-green frames with faintly turquoise lenses: $6.95 including single-vision lenses plus $5 for the tint. I asked if they were progressives and she said no—but their progressives are only $30 extra. So of course, I had to check the website when I got home.
I now have three pair of cute progressives (not photochromic—it was $100 extra, just as much as at Warby Parker, and I keep pop-over shades in the car, and in my purse is a little dark-tinted insert that drops in between my eyes & my glasses, both given to me by my ophthalmologist). One each purple & green Wayfarer-shape and a cranberry cat-eye. All three combined were cheaper than a pair of progressive Warbys without photochromics. I went out and bought a covered display case tray for my wardrobe of glasses.
So it’s all the new gal’s fault.
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