CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Hugs all around and a group cry sounds really good.
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Hugs to all!!!!!!!!!!!!!!!
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Group hug, cry and support with friends who know what this is like! You are the best! Insurance issues, every doctor seems to have their own twist on the monitoring plans. New lumps, bumps and shadows. It goes on and on. Thanks for all of the comments! I love that I can go back and reread them when I need to!
That school shooting is horrible. The abusive, murderer's house is about 3 miles from my house. Police helicopter, SWAT teams, police everywhere. And the little boys were taken to the medical center where I go for my treatment and follow ups. Excellent facility, excellent people. I feel for all of the families.
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I went for my ultrasound today. the tech was really nice and thorough because of my history. She could feel the lump, but nothing came up on the ultrasound. the dr. who read the images said nothing looks out of the ordinary, however, my surgeon could send me for an MRI.
The tech said I have a lot of scar tissue, which makes it difficult to see things on the ultrasound. I texted my surgeon and she's putting in the referral for the MRI tomorrow. Better to be safe.
I had a lump come back after one year after the mastectomy, so I know anything is possible.
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{{{{Poppy}}}}
So sad about the school shooting.
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Hugs to all!!!!!
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I'm doing the happy dance! My MO kicked me out of the nest yesterday. He said he doesn't do continued scans etc in cases like mine as I've had a DBMX and there's nothing there to scan? He'll monitor the Tamoxifen effects but not sure how often those checks are. I won't get my script for Tamoxifen until my skin heals from radiation and I'm scheduled to go back in 6 weeks for a skin check. My chemo brain was alive and well yesterday and I never asked my MO how often he does the Tamoxifen checks? Duh! I guess I can ask when I get my blood work done this morning.
Poppy, big hugs. It's a shame what people do to others! Praying for everyone involved and all of LA and the rest of the world!
Unbreakable, I'll be praying your MRI reveals only scar tissue. I'll be in your pocket.
Mommy, how are you feeling? Hugs!
Octogirl, praying you get the results from your skin biopsy and that it's B9. I'm sorry to hear you are having family issues and that your sister feels better soon! Sometimes we don't have the advice to offer our friends when they are having issues. I always tell anyone asking me for advice (especially my kiddos) is that I don't offer advice. I'll make a suggestion, that way if they use my suggestion they can't blame me if it doesn't work out. "This is what I'd do, but I'm not you" kinda thing.
Cubbie, I'm glad everything went ok for you.
A big hello and hugs to everyone I missed. I'll be back to catch up later.
Healing hugs to All 🤗
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morning all, i have a routine answer for for folks who tell me they are having a scare or a diagnosi ask if they are comfortanle with their doc as it will be a real relationship. If they say they are cool then i tell them to do what the doc tells them. If they need a referal for a doc or center, then i will give them my docs names. I have this memory of stupid comments that were hurtful as gee sounds like you were misdiagnoses, thzt froma person who knew nothing of my treatment
Today i have an appt with nuerologist as i have ongoing lo level headaches since my hydrocephelus so want to see why. Course stress of new cancer diagnosis sure could be a factor
So trip to nyc, i sweari just want to sleep today but maybe tomorrow
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Iris, big gentle hugs. I'm praying your neurologist finds what's going on but I also hope it's nothing serious. {{{{{Iris}}}}}
All of my blood work came back normal this morning. My MO said he'd see me in 6 weeks and we'll make a game plan from there but he doesn't see me having to have scans and such on the "regular cancer schedule" but we'll revisit my treatment as time goes by. He went over both of my path reports and said they don't show any info (size, type, location) that would lead him to believe it'll return. I asked about other "cancers" popping up? He said we will go over that more at my 6 week follow up. For now I'm going to try to live my life and I'll be here to offer continued support in any way that I can be of help.
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well back from nuero visit, she says she thinks i am doing fine
I confessednto her that my nifty new cancer med says one side effect is headaches, funny as this morning i had no headache and i usually do have one in morn. , but she gave me script for followup mri but it sounded like just routine
Ok, home and listening tp birds chirping, feeling ok now
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Iris, YAY! Great news! The birds are singing just for you! My Papa Goose went on a run with me when I got home from getting blood work done. Ok, so it wasn't much of a run with me as it was me running away from him!! He seems to be more protective this year as he usually runs away when I come out. Makes me wonder if it's the same pair? Gentle hugs my dear friend!
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Watch out for that goose! I have had my ankles nipped by them.
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my neighborhood has more than a normal amount of bunnies and squirrels so always acyive
Told my nuero about the wierd comments from my pal......basically she is telling me it is sort of my fabult that i got cancer. She sort of shook her head and said some folks do get wierd about cancer or stuff
So been thinking, maybe i take this crazy pal to my next onco visit, let her ask onco if it is my fault that i got cancer!
Slo thinking
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Group hugs and tears, and we'll all be tearing each others pockets wide open, as we all try to squeeze in! We are such a close group that I think we really do feel each others pains and tears and fears, but you know, at least we do have each other! If I was a single woman, I would take a year off from everything~ I mean, everything I do at home in my little nest, and travel around the country, and yes, to Australia too, Miss Cubby! And spend a week or so with each one of you, telling our stories, and shedding tears and having hugs and cake~ and stronger stuff like a stiff drink or ativan when needed. That would be an IDEAL vacation to me, one I would never forget.
But that would mean also that I could be trying to run away from my own life, and I thank the Godess every day, that I have such a sweet and accommodating gentle easily pleased man. He doesn't demand too much from me, sometimes only a little food on a plate, or a little interest shown in whatever is captivating his own mind and heart that day... I love him so much and i am so grateful we share this life. That's not the part of my life that I would run away from. That part would be the part where my family of origin is just making me CRAZEEEE!!!! Hmmmmm, it could be that that is part of the reason I chose a partner who lived far away from where he found me, so i could escape them. (And the whole time, I thought he chose me because if it didn't work out with us and I went back towards where the aforementioned family of mine resided, he wouldn't ever accidentally have to see me anywhere! Or have a stalker!!!).
My sister has a brand new expensive car that her good husband bought her when he inherited some money when his father passed. and, my sister gets in that car after smoking so much pot, that her eyes are red and looks crazy. I am not talking a little puff or two, to ease the pains and sorrows of the day. I mean, she takes a piece that is bigger than your two thumbs, and hoovers on it for a half hour at a time! I mean, she keeps relighting it, until it is mere ashes.... and then gets into that car, and doesn't put on her seatbelt. Yeah. I reminded her that she has a son and a daughter to live for, but she insisted that she is a good person, and that God will take care of her. So, she asked if I minded if we stopped at the store two blocks away from where we were at the time n I said of course not. So then, she ducked her head down to where her purse was by her feet and the brake and the gas pedal. Taking her eyes off the road. I said what are you doing?!? She said I need to text my daughter to see if she needs me to pick up anything..this was TWO BLOCKS from the parking lot of the store where she wanted to stop..Can't she wait till we get there to text her?!? She then told me I worried too much??? She has always had a bad habit of taking her eyes off the road when driving so she could see whoever she was talking to in the back seat, and it always pissed me off. That is not taking care of the peoples lives that are in your hands, not to mention innocent oncoming traffic lives! At this point, we reached the intersection where there was a red light. I opened the door of the car, and told her I would see her later.... and I had no idea where I was, and it was really windy! It took a couple hours, but a friend of my mothers had texted me earlier because she was going to visit my mother in the hospital, and was able to get me... SHEESH! And that was where my sister and I were going, after the store. So my sister texted me and told me I was feeble, and looked just like mom! WOW!! (she easily weighs twice as much as me, that would put her at 250 pounds. Also, she hates that car, because it is not the car she would have picked herself. And she had also started to tell me that she was thinking of divorcing her husband, before he spends all that money, and then he walked into the room, because he had gotten back early from work... and she just said hi honey, but with a panicked look on her face like she wondered how much did he hear? Oh, my.
There's more, but anyway, I hope this took your mind off your troubles, it sure did me. Wait until the next installment, where I tell you how she feels about mammograms.
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Tomboy, I am thankful you lived through the short drive. Good grief! Your guy sounds wonderful.
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oh tomboy, that is more than a tad distressing. I think i would have gotten out of the car as i would bee wierded out.
Well got my expensive med worked out for this month. This is a lot of work, cost would have been 1700 copay but i was able to get the grant worked out so no cost. It really does take time and effort to track all of this. I wonder how some less than with it folks could do this.
Oh well, bought myself a recliner and they called me to say it is ready early so my gift to me comes tomorrow, fun
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Tomboy: you did the right thing getting out of the car. So sorry about that. Heck, I would have driven up and gotten you. and I have just two words for you now that I am retiring soon: road trip! :-) I am glad to hear from you even if all is crazy; heard some Leonard Cohen on the radio....made me think of you and miss you!!
Proud, glad the meds got worked out for this month, but geez: are they going to make you do this again every month?
My sister is apparently a little better though they don't know what caused two trips to the ER, and she is having to take lots of tests. I am probably going to go see her (she lives several hours drive from me) next week. She has her hubby but not a lot of other support where she lives. and since she also has had bc she is probably in CT right now herself with unexplained symptoms.
As for me, I'm ok except for this urge to cry over little things (and big things) and feeling like stress has taken over my life. Some of it is unnecessary: yesterday's annoyance: I supervise about five staff, the part of my job I like the least. So yesterday, some of them, normally great people to work with, starting ganging up on the new person who just started a few weeks ago. I just felt like shouting: 'really? do we all have to act like kids?' and of course then the new person doesn't feel welcomed to the team. These are all folks with advanced degrees, not that that makes any real difference in behavior in my experience. I wouldn't even care so much if they worked out their differences themselves but no, of course I have to hear about it from all sides in great detail. Reason # 10 on a long list as to why I am really looking forward to July and retirement.....meanwhile, however, my boss appears to be in denial about my leaving and the process for picking my successor has stalled (I suspect in part because they've realized that I am replaceable but that it will cost them more than I make...)...and a difficult project that I really wanted to leave in good shape is in danger of falling apart without me to shepard it after I go...especially since I will be gone most of June on a pre-retirement vacation that will include a visit to Australia and Lucy!! (yay for that!) .it is almost enough to make me want to postpone my retirement a few months until they do get my replacement on board....please crazies...talk me out of that dumb move of staying on longer...
Hugs to all!
Octogirl
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Hi all, blood pressure was OK yesterday. I've got a few days break from doctor appointments before my MO appointment next week.
Octo, we watched a video at work where a management guru talked about how chickens gang up on and peck one member of the flock, and how their behaviour relates to the type of behaviour you are seeing in the workplace. It was funny (in a sad way) afterwards because we only made it one day before everybody was right back at it again! I joked that the chicken training didn't take. The only thing on your list that would make me hesitate to retire is the project that is not where you want it. The rest is management's problems, and they may not face the fact that they need to replace you until you're gone. I've seen it happen before. If you put off retiring, they may just put off finding your replacement.
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octo , i remember as i was approaching retirement, my clients kept asking me who would be my replacement and who would be their contact. All i could say is i am sure they will have someone but honestly, i left and they were still adrift. Course the company was in financial trouble and sold the company right after i left
So you retire and just leave
So this crazy insurance thing is something that should not happen again, my grant covers about 3 months but also, i did not read the letter carefully enough. So hopefully will be easy going forward. Course it is still dependent on funds available. But hey, anything is a help
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Octo, just retire. If you don't they will continue to just defer the inevitible .
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Tomboy, yikes! So glad you got out of the car.
What is it with Leonard Cohen, anyway? I've been listening to him non-stop since November.
Octo, keep your eyes on the retirement prize. I know, it is easy for us to say don't stress out, but you're so close! Could you announce that your retirement date is firm, but you'd be happy to handle the difficult project on a freelance basis?
Heading on the road in a few days for the boy to revisit a few colleges. Ducky, one of them is outside of Philly--I'll wave (metaphorically) as we drive by!
A happy weekend for all, whether you celebrate Easter or just like chocolate eggs....
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Hi and thanks all for the encouragement about retirement! Rain, it is a good suggestion about handling just the special project but fortunately or unfortunately depending upon one's point of view my employer (which is a public entity and thus has some rather stringent rules on such things) has a rule that one cannot consult for them for at least six (and in some instances 12) months after retirement....of course, if the project still isn't resolved by then that is a possibility....but yeah, I just need to get outta there and let them moved on. I'd feel better about leaving it all in my staff's hands if it wasn't for all the silly sniping back and forth...they may all be stressed about my leaving...
anyway, just got back from ortho, who confirmed what I already knew: both knees need to be replaced. Basically there is almost no cartilage left. so more surgery is in my future, probably for the fall. In the meantime, he is going to shoot me up with cortisone before my big trip, which should help some....but isn't a long term solution of course. Sigh.
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Rainy, where you heated..........which college........
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Ok that was headed, not heated.....LOL.Heated is what you will be here if you come on Sunday.....85 degrees.
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Hi duckyb!! Sitting in the waiting room at the dermatologist with yucky Crap on my face waiting to be tortured by the UV light
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Molly..I had a Derm appt....2 weeks ago.....have had a few things removed...but the last visit was about scalp psorisis...ugh.....I got a script which was sent electronically......it was for a type of mousse that you put on.....and a shampoo which is what should get rid of it.....well when I went to pick up both....the shampoo was a $5.00 co-pay......the mousse was $100.00 co pay....guess who left without the mousse.....LOL......imagine that...........one of my sons had a melanoma on his calf.....they removed it and he has to go every 3 months to be checked.....he loved the sun.......good luck with your procedure....hugs
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Oh and Molly........it wasn't a can like you get at the beauty supply........it was a tiny thing that would have run out in no time......LO
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Tomboy, WOW! What a ride you had! I'm glad you survived and I would have gotten out of the car too! Shhheessh
Octo, I'd keep your retirement date. It's not your responsibility to fill your own shoes after all. Your pre-retirement vacation sounds wonderful! I've got to make sure I'm up to a trip that far so I have no idea when we'll be heading to Australia. A knee replacement doesn't sound like much fun ☹️
Ducky, $100 co-pay for a small can be mousse? What was in it? Gold flecks?
Molly, sitting with crap on your face waiting to be tortured doesn't sound like a fun activity! Ouchy!
Iris, I'm so happy things worked out for your meds/treatments.
Waving hello to anyone I missed! DH wants to watch a movie. I'll be back soon
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Ducky: Haverford. But not on Sunday, thank goodness. Too hot!
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I love reading everyone's updates.
Tomboy, Wow! I'm glad you got out of the car. I always worry about impaired drivers.
Octogirl, I hate it when grownups act like mean, petty children. I encourage you to not put off retirement. You've earned some time to do whatever interests you. It's hard not to worry about unfinished projects, but it gets easier as time passes. My mother in law had a knee replacement. Once she recovered a bit, she said she wished she had done it sooner.
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