CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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Comments

  • m0mmyof3
    m0mmyof3 Member Posts: 9,769
    edited May 2017

    Hugs to all who need one!!!!

  • Molly50
    Molly50 Member Posts: 3,008
    edited May 2017

    Iris, I am so sorry. Definitely praying for you.

  • Artista928
    Artista928 Member Posts: 1,458
    edited May 2017

    For those needing help, like rides to appts, check out cancer.org.

    https://www.cancer.org/treatment/support-programs-and-services.html

  • chisandy
    chisandy Member Posts: 11,408
    edited May 2017

    Iris, remember that any transportation expenses (fares, mileage, parking, even lodging& meals if you can’t commute from home) you incur during treatment are tax-deductible (unless you either don’t itemize or have such a high income that your medical expenses are too small a percentage of it). Car service sounds like a great idea. Do you have an Uber or Lyft account?

  • proudtospin
    proudtospin Member Posts: 4,671
    edited May 2017

    sandy, yeap i do keep track of my commuting to appts. Funny, last year the cpa who did my taxes was surprised at thed at the details

  • proudtospin
    proudtospin Member Posts: 4,671
    edited May 2017

    i have a limo guy who drove me to my hydrocephalus doc visits, he is close and i may just call him.

  • WenchLori
    WenchLori Member Posts: 1,027
    edited May 2017

    Iris, what a wonderful way to travel to your appointments! By limo!

    Molly, how is Wyatt doing? Any improvement? He's always on my mind and on my prayer list 🙏


  • m0mmyof3
    m0mmyof3 Member Posts: 9,769
    edited May 2017

    Hugs

  • Tomboy
    Tomboy Member Posts: 2,700
    edited May 2017

    My mom passed yesterday, & it's a long and ugly story... I have been p'mming to Sandy for her lawyerly and doctorly knowledge and abilities... Mom did not get to go at home as she wanted, because my sibs, who were very cruel to her for most of her life because my mom was so wrapped up in my stepfather, and yeah, my mom wasn't the best of mothers, but definitely not the worst either, everybody was too busy... really they just couldn't be bothered.... and so, just grow the fuck up. They still blame their problems with life and with people on other people, mostly mom. Who is the scapegoat now I wonder? I am thinking it's me.They started taking apart her house and going through things to, as they say, get ready to sell it to pay for her care.And they all have $$$. They did this the day after I came home to go to dr's appointments, that i'd already rescheduled twice before to go there when she ended up in hospital. My plan for us to share caring for her at home, hiring extra help, went unheeded. I do feel bad though because I did have money sat aside for the dying me..eventually. At the time I left last time, she was mostly fine, but it is really a long story, and today I have got to go to a bone scan myself, that I've put off twice now. Saturday night, she went from a skilled nursing facility, into a board and care place that I urged my niece(who is a good young woman, and who genuinely loved her gramma,)to get hospice for her. well, but that SNF did not order her meds and she went without them for a long 10 hours while she was being transferred!!! before anyone thought to call me so I could tell them to ASK HOSPICE to do that. Then , my sister decided to send me a film on the phone of my mom's death rattle. yeah, air hunger, and still karolyn didn't know mom was dying. and then a picture of her after. Nice eh. And couldn't understand why I was not overjoyed to see that. I am the only kid who called her mom every day, besides my older brother who passed from a cancer 10 years ago. And so, I am released now from having to do ANYTHING with those people. I had found that my mom had given me DPOA just a few days before, I mean, I found out that she had. it was in an envelope that she sent me after chemo, during rads, while my good friend and neighbor lois was dying from a recurrance of breast cancer, 25 years later. a lot of stuff. I thought she had told me it was to add me on her bank account. i sent her $ every month. and was getting ready to go there when I found out the very same day, that my brother had her sign a new one, but she was definitely not okay enough to sign a legal document, if he even told her what it was. She did not want services, but they probably ignore that desire of hers too. her favorite 3 books in the whole wide world are 'Les Miserables', Jane Eyre, and gone with the wind. All being about love for your fellows, and justice. Yeah

  • Tomboy
    Tomboy Member Posts: 2,700
    edited May 2017

    She punished herself in subtle ways that they could not see: her hairbrush was worn to the shape of her head because she would not buy herself a new one as if she did not deserve it.

    She never bought herself a new anything, and I would send her favorite coffee beans and goodies, because i knew she wouldn't return them..

    When I sent her money, it was to help her get her teeth fixed, but she would give it to an even poorer friend of hers... but she told me she had $600 put away for her teeth, bet that disapeared from her top drawer.

    i could tell you more stories about it, but i think you get the picture.

    Love to you all, I love that you & I play nice

  • Tomboy
    Tomboy Member Posts: 2,700
    edited May 2017

    n i am the 'starving artist', n my mom knows me, n i know my mom.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited May 2017

    Kathy..so sorry about your Mom......those stories sadden me so much and it is probably because I have reached that age too, and I know my time is coming......you have to take solice in the fact you were a loving daughter, and did whatever you could to make your Mom's life a little happier.....I know you for the person you are over the years, and your a giving, loving, compassionate woman, and I am honored to have met someone like you......

    Mom is at peace now......my son-in-law is going through something similar right now....long story so I won't bore anyone, but sometimes things get ugly.....once the children grow up get a mind of their own...their own interests, friends, wife, husband etc.........we in a way do lose those little darlings we gave birth too......time can be ugly.............just know you were one of the good ones.....hugs sweetie

  • robinlk
    robinlk Member Posts: 363
    edited May 2017

    Oh Kathy this breaks my heart. Hugs to you. I am so sorry

  • Molly50
    Molly50 Member Posts: 3,008
    edited May 2017

    Kathy, I am heartbroken for you. Mostly because I know how much you were truly there for your mom. I hope you can take comfort in that. I had a similar experience when my mom left my dad and married my step father. She was so wrapped up in what he wanted and my siblings are pretty bitter still. Mom is at least home while dying and my step dad did take good care of her to ensure she can stay home. Unfortunately she lives 10 minutes from me and I hardly see her due to the tension with her husband. Big, big hugs dear one. You are definitely one of the good ones like Ducky said! Heart

  • chisandy
    chisandy Member Posts: 11,408
    edited May 2017

    Oh, Kathy, I am so sorry! If there is comfort to be taken, it is that you loved her and she knew that. May her memory be for a blessing, and “in your pocket” for that bone scan.

  • octogirl
    octogirl Member Posts: 2,434
    edited May 2017

    What everyone else said, K. Love you and in your pocket.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited May 2017

    (( Kathy ))..so sorry ..gosh you've been through too much ..try to feel at peace ..your mum knew you were different from the others ..the one who cared ..

    Thinking of you today and hoping for great results from your bone scan .




  • celiac
    celiac Member Posts: 1,260
    edited May 2017

    Kathy - Deepest sympathies, but know that you did your best for Mom. Seems like you are fighting a number of battles. Sending you encouraging thoughts & hoping these help to bolster your spirit. Hoping your bone scan results provide some good news.

  • WenchLori
    WenchLori Member Posts: 1,027
    edited May 2017

    Kathy, I concur with everyone else. All we can do is give our Moms the best care we can. She knew how much you loved and cared for her. Siblings can make everyone miserable if they don't get their way. Prayers for peace at this difficult time. I'll also be in your pocket for your bone scan and praying for good results 🙏💜


  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited May 2017

    Oh, Tomboy/Kath I fold you into my heart and I carry you forward with me into our shared future.....

  • m0mmyof3
    m0mmyof3 Member Posts: 9,769
    edited May 2017

    Tomboy, am so sorry to hear of all this. My heart goes out to you with an extra special hug!!!

  • rainnyc
    rainnyc Member Posts: 801
    edited May 2017

    Kathy, I can't say anything to improve on the wisdom already expressed here. You improved your mother's life to the best of your ability, and I'm sure she was grateful. Echoing Sandy, may her memory be a blessing to you.

  • PoppyK
    PoppyK Member Posts: 1,275
    edited May 2017

    Checking in. I've been off in the real world for a bit. I was one of the chaperones for my son's middle school music program (choir, 2 bands, orchestra) field trip to San Diego this past weekend. Over 130 middle schoolers...... what was I thinking! LOL

    Tomboy, I'm sorry. More sorry than I can express in words. I hope you can feel the love and support being sent to you from CrazyTown.

    Molly, I hope Wyatt is doing better.

    Love and hugs to all!

  • Molly50
    Molly50 Member Posts: 3,008
    edited May 2017

    Hello Crazies (and welcome back Poppy!), Wyatt has had 2 good days in a row. I will take two good days anytime! His teacher was very excited that Wyatt was happy and interactive yesterday. :)

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited May 2017

    Molly.......so happy....we will take 2 good days right.........and hope and pray for a few more.......God is good....hugs Sweetie....

  • pennsygal
    pennsygal Member Posts: 264
    edited May 2017

    Tomboy/Kathy - I'm so sorry to hear about your mom. Thinking of you with good thoughts for the scan.

  • WenchLori
    WenchLori Member Posts: 1,027
    edited May 2017

    Molly, I'm happy to hear Wyatt has had 2 good days! Praying he has continues to have good days. Hugs 🤗


  • Lucy55
    Lucy55 Member Posts: 2,703
    edited May 2017

    Molly ..so happy that Wyatt is doing well !

    Poppy sounds like you've been very busy !

    Kathy ..thinking of you ..


  • proudtospin
    proudtospin Member Posts: 4,671
    edited May 2017

    well tomorrow is first appt for planning with the radiaton doc

    Can you say how much i will need everyone in my pocket?

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited May 2017

    Iris/Proud: how big are your gussets? Come back and let us know how things went?