CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Iris ..I'm on my way !! I want to see that spiffed up bathroom 😃
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lucy, i will be sure to stock up on jersey specials for you! Amazing but for a tiny bath, it is all all the silly shower curtain!
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ducky, I think Iris is right that you will know when (and if) you are ready...they were very careful not to poke anything on my Lx side, but of course that just applies to stuff in the arm (blood pressure, blood draws, IV, etc). if it is your knee on the LE side, not sure they can promise nothing would happen....
But, that said, I AM SO HAPPY that I did it!!! and amazingly, things seem to be going even better than the first time (which went well) I felt strong enough to make my own lunch today, I am walking all over the house (with the walker), and took a shower today....Life is good...
Hugs to all
Octogirl
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octo, sounds like you are committed to the rehab. I watched a guy a my gym do rehab for 2 knees at one time, dang but he worked at recovery and doing fine now
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two at a time would take more guts than I have, Iris.....
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Yeah--I was amazed to see a couple of BTKR patients at my second rehab center--but they were younger & thinner than I was. Back in 2012, I had broached the subject with my surgeon, and he said he wouldn't advocate that for anyone significantly overweight or over 60--the recovery would have been too painful & arduous. Better to have a "good leg to stand on," even if that leg was nothing to write home about.
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Octo, so glad things are going well!
Ducky, I don't know. I hate it that you're living with pain.
Iris, I think a new shower curtain is one of those little gifts that are satisfying way out of proportion. I got a new one about six months ago. it still makes me happy!
C-R-A-Z-Y day. My mother is in the hospital, after a fall. Her caregiver found her on the floor this morning, called the rescue squad. Apparently no broken bones. Ten hours so far, and I'm hoping she's in a room by now; I'm about to call. One of my sisters is going out tomorrow; I've been out there the last three weekends. Every single new person I've spoken to, with the exception of one really on-the-ball nurse: "Has she had cognitive testing? Her memory...." Me: "YES! She has dementia." Emergency room sounds packed and overwhelmed, so clearly they are not reviewing charts all that carefully. I was tempted to go out there, but getting out of the city on the Friday of a holiday weekend was going to be awful, and it seemed more sensible to stay by the phone rather than be cut off while driving (I don't talk and drive).
And much earlier in the day, I saw my MO and her nurse practitioner, for the regular visit. It was nice: after the all-clear on the PET scan. They were obviously so happy for me, in a genuine way. I think about all of the times when they don't get to give good news. And I feel so fortunate.
And on that note....have a good weekend, everyone!
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(((rainnyc))). Hope your mom gets a room, and soon!
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Rainny ... Great news regarding your scan ...but so sorry to hear about your Mum..hope she is settled and comfortable now .
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falling is so scary, glad your mom is ok,
Had nasty tummy ache and of course was ready to call the mo but then when i came down this morn, i realized that i had over done some fiber crackers yesterday and i do have diverticulitis, anyone want to yell dumb at me? They were great crackers!
Rumer is snow is coming but weather map looks clear for me in nj
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Snowing like crazy here in IL so Jersey'll get it tomorrow. But then it'll warm up again, and they're calling for almost 60 and thunderstorms Mon. & Tues. No wonder my sinuses are going nuts.
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yeap, sounds like our strange weather report for nj. Snow started ladt night, this morning we have an inch or 2 and rumor is for 60 in a daiy or so, gonna watch it melt
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Philly suburbs is suppose to get 70 one day this upcoming week, and the next day 73.......”come on winter, stop teasing us”......but I’ll take it.
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RAINNY: how's your mother doing?
A brief swing through official CrazyTown when my neighbor--ninety-two--got lobbed straight back into the hospital having only just been sprung from rehab after the third hospitalization in twelve months. (Pretty much anything medical triggers me these days, not surprisingly.) Otherwise, just being driven mildly nuts by bureaucracy and paperwork with my new job tutoring at the community college I've been attending.
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Thank you all for listening. She's been in the hospital all weekend and we're hoping to spring her to rehab tomorrow. The good news: no broken bones, but the arthritis is biting deep and probably contributed to the fall. So a PT consult coming up, and we'll see what support we can put in place.
Not so good, though: she had an ultrasound due to elevated liver #s, and the result was posted today: multiple liver mets. Or, at least, that's how I'm reading it (it doesn't say that in so many words, but I'm not sure how else to read it), and the nurse who can't give an official diagnosis said to my sister, "you might want to look into palliative care." Have left messages for the oncologist, primary care doc, and geriatrician. Hoping to get them all on the same page, and we can figure out a care plan. Just to clarify: she had a PET scan last summer that indicated metastatic disease, with no clear origin. She was adamant about not treating, and at the time, the disease wasn't causing problems. The geriatrician, who's far and away the most clearsighted about the real goal, quality of life, thought things might be fine for a while, as disease progresses slowly in the very elderly. So it seems apparent we've reached a new stage, so we need to figure out how to keep her comfortable and how to meet her needs. The other good news is that she's actually not having pain, and she's eating well and seems generally in a good mood.
I'm going out Tuesday to spell my sister and will stay for a few days. Then my brother will come in for the weekend. It is an enormous help having siblings to share the burden.
And, silver lining, my own cancer experience does help one focus on the quality of life aspect. There is no way that an 86-year-old with dementia could handle chemo or radiation. So.
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rainnyc, so sorry your mom has liver mets--hoping that palliative care will make her comfortable enough to keep her spirits and (such as it is) strength up. But I agree--no adjuvant treatment.
When my mom was not quite 85 and had a CT scan for a flareup of COPD and MRSA bronchitis, they discovered a 6cm lung lesion "highly suspicious for malignancy." She absolutely refused a biopsy. "I'd rather not know. I've had a good long run and I want to enjoy what's left. No more tests, no more hospitals, no more ERs." She opted for home hospice, was discharged 6 months later because that was the limit, and lasted another month & a half--then died suddenly at 85-1/2. She had some transient short-term memory problems caused by poor oxygenation, but when she felt the slightest hint of condescension or pity would draw herself up to her full 4'11" and declare indignantly "I am NOT cognitively impaired! I do the NY Times crossword in ink." (The night before she died she called me at midnight for help with a crossword clue).
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so sorry about your mom rainny, i agree that cancer treatment is for someone her age. Mano i am just so tired of all the appts, got pt today and have to confess that i really did not practice the exercises they gave me. It is just tiring
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Rainnyc, I applaud you and your family. A choice not to go forward with invasive procedures at your mom's age is so very wise. I just lost my 85-year old father to vascular dementia three weeks ago after a long health battle. I knew how weak dad was and did not want to put him through any more pain so my main goal, as a daughter and as his healthcare surrogate, was to keep him comfortable. That was his wish as well. He said he was not afraid to die but he feared suffering. I met with resistance from several family members who wanted more invasive treatment and it was stressful. Your mom is blessed to have such a caring family.
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Rainny - thinking of you and your family today
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Also thinking of you, Rain!
hugs from Octogirl.
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(( Rainny ))..Thinking of you .
Octo ...How's the recovery going ?
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Thinking of you, rainny.
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Exciting day for us ..the Big Digger arrived today to start clearing the trees for our build ...it will take about 3 days to do , and they're digging out the pool as well ...finally , it's all starting !!!
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Trapped in Crazy Town again. Got word that my step-grandad is in the hospital. Very concerned about him.
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((( (Mommy )))....Have you had any more news ?
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Just they were running some tests today as they don't know what is wrong. Still worried and jumping every time the phone rings.
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back from visit to onco, only saw the nurse practitioner but arrived with my questions as i really can not understand the online reports. Seems some of my questions i already asked! Clearly my memory sucks but one good piece of info. Seems i am stable, i have decided to be pleased with that. Then again todays blood tests, their computer system was cranky so the Np will call me if any bad news, if no call, then all is fine for now
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Still caught in Crazy Town. Now my stepdad calls me to let me know my mom is on her way to the hospital. I'm concerned but in a way I feel as if she brought it on herself. She doesn't take her medication as she is supposed to do. Trying to figure out if I should let my older brother know while he is on vacation. I really dondon't want to spoil his vacation with this news as their relationship is very difficult.
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Iris ..yay ...Great news about being stable 😃
Mommy ..maybe you can ring and find out if your Mum is O.K ..? ..and just ring your brother if there's something he needs to know ?
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That's good news, Iris. I hope your phone does not ring!
I thought I would stop in and give an update for anyone whose MO wants to do a mammogram post-mastectomy. Yes it is possible!
I don't exactly have dog ears, but I do have some slack, for lack of a better term, under my arms at my sides. I tell people I still have a bit of side boob.
That is what they did the mammogram on. Well, that and they tried to stuff as much of my pectoral muscle just in front of the armpit as they could into the machine at the same time. They have the machine at the 45 degree angle position when they do this. Anyway, it was all clear, so I don't have to do that again for another year, and don't have to see the oncologist again until summer. I am working with another therapist on my anxiety because I am still completely certifiable, maybe even more so than when I started.
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