CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • chisandy
    chisandy Member Posts: 11,408
    edited July 2018

    Octo, Jazzy over on the Drinking thread is in NM—Albuquerque or Santa Fe, I think.

  • TaRenee
    TaRenee Member Posts: 406
    edited July 2018

    A few weeks ago I had my 3 month check and bloodwork with my MO. Most everything looks pretty good. I’m on low end of normal on iron so we are keeping an eye on that. But what freaked me out completely was my tumor marker went from an 8 (in April) to a 13. He says not to worry. Yeah, right. This is only my second check. Is that normal?

  • april1964
    april1964 Member Posts: 153
    edited July 2018

    My oncologist doesn’t do tumor markers... is that customary? Should I ask him to do them?


  • cubbie2015
    cubbie2015 Member Posts: 773
    edited July 2018

    Mommy, in your pocket for your CT Scan!

    Sandy, that cast sounds a lot more manageable than the old fashioned ones.O

    Octo, in your pocket for your hubby's biopsy. Hopefully it's just one of those moles that decides to go a bit wonky as we get older. And congrats on the job!

    Renee, tumor markers can go up and down because they also indicate inflammation. If your MO isn't worried, I would try to relax.

    April, some doctors do tumor markers, some don't, and it also depends on your original diagnosis. I have a local support group friend who gets tumor markers, but she had some fairly advanced uterine cancer, which is why she gets the markers. And even then she had to switch oncologists to find one who would do the test.

    I had my annual ophthalmologist appointment today, and tomorrow it's off to the MO for the six month checkup. This is not a fun time of year.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited July 2018

    Chi Sandy.....yes he is getting big.....and such a sweetheart....thank

  • TaRenee
    TaRenee Member Posts: 406
    edited July 2018

    Cubbie, Thank you. I don’t want to freak out and worry if there is no need. It caught me by surprise tho.

  • chisandy
    chisandy Member Posts: 11,408
    edited July 2018

    april, my MO doesn't do tumor markers for early-stage patients with negative followup mammos in the absence of symptoms, either.

  • april1964
    april1964 Member Posts: 153
    edited July 2018

    ChiSandy, it’s interesting how doctors seem to differ with this. I can understand not doing the markers for early stages. Apparently other factors can influence the results as well.

  • chisandy
    chisandy Member Posts: 11,408
    edited July 2018

    Had my cast re-molded today to give me an opposable thumb again. Makes driving & dressing easier, though bras are still frustrating.

    My visit to CT is dental--over the past week I seem to have developed some sensitivity in the second incisors/cuspids on top, & bottom molars, L side. The spot behind my L upper incisor where the gum meets the hard palate is sore and feels boggy--and if I happen to be chewing and I bite down on on even a small piece of meat, veggie or Cheerio at that spot, it's exquisitely painful. Might tag along with Bob to his dental appt. tomorrow morning...but it's sooo early. And he parks several blocks away (I usually Uber it down if I'm in a hurry, or take the train if I'm not). I'm terrified I might be getting ONJ. Of course, the left nostril is stuffy, and the pollen & mold counts are high, so it could be sinus congestion. (No sign of bacterial infection). Gonna put some liquid benzocaine on it when I go to bed (brushed twice already with Sensodyne), maybe swish some Peridex first.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited July 2018

    My doctor does the tumour markers , and I HATE it ...!!!!

    Here's a photo of my new little poodle playing with my grand-daugter's teddy..,Her name is Honey ...We picked her up yesterday ...she is 8 weeks old ...I love her already 🤗

    image


  • proudtospin
    proudtospin Member Posts: 4,671
    edited July 2018

    lucy, your dog and the toy look absolutely adorable! Wonder if my alergies would let me have a dog? Do have fun with him.

    Feeling pretty good since my doc reduced my pills, also i was able to see my last reports on the online portal, it takes 3 days, well they are all showing improvement! Yahoo

  • Molly50
    Molly50 Member Posts: 3,008
    edited July 2018

    Octogirl, wow what a shock! Must be the shortest retirement on record! Congratulations on your new job. M0mmy, I hope the scan went well. Sandy, good news on the new cast and use of your thumb. My NP from dermatology called. It was a blue nevus on my eyelid. So nothing to worry about!

  • octogirl
    octogirl Member Posts: 2,434
    edited July 2018

    yay for nothing to worry about Mollie! and yeah, I know, friends have been teasing me..though it has been a year... :-)

    Tomorrow is my 3-D mammogram. At 7:30 in the am! In a town 50 miles away!! It was the only time that they had available given my crazy move schedule and I wanted it done before my MO apt week after next...sigh. trying to keep my mind off of it.

    Honey is adorable!!!

    Hugs and cheers to all;

    Octogirl

  • cubbie2015
    cubbie2015 Member Posts: 773
    edited July 2018

    Yay for good results, Molly!

    Sandy, glad to hear you have an opposable thumb again. You didn't poke yourself in the roof of the mouth with something, did you? That bump I had on the roof of my mouth after I poked myself with a tortilla chip was like that, and the dentist described it as "boggy". It finally did go down completely.

    Lucy, the toy is almost as big as Honey!

    Octo, in your pocket for your mammogram!

    I saw my MO today, and everything looks fine. Ophthalmologist appointment was fine, too. Now I just have the annual GYN in early August to still get through.

  • chisandy
    chisandy Member Posts: 11,408
    edited July 2018

    Cubbie, it could very well have been a tortilla-chip or airline-pretzel incident. (Or a hard piece of pizza crust after having first burned the spot with molten cheese on Thurs. night--but dang, it was good pizza).

  • proudtospin
    proudtospin Member Posts: 4,671
    edited July 2018

    Sandy, dang but i always seem to burn the roof of my mouth on pizza!

    Crazy weather, they keep saying rain but this scattered shower business is not helping my contractor and window replacement, sigh, delay delay

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited July 2018

    Octo ..in your pocket for your mammogram !!!

    Iris ...hope the Sun comes out and your window can be replaced soon !!!

    Cubbie ..glad to hear your doctor visits went well

    I cooked a ham , cheese and tomato toastie for lunch yesterday ...burnt the roof of my mouth with the hot melted cheese too ..!!!!

    Hubby has a bad cold ...you know , The Man Flu ...ugh ..he's not coping at all well with being sick ..now I'm just waiting to get it :-(


  • octogirl
    octogirl Member Posts: 2,434
    edited July 2018

    wish it would rain here! We sooo need it with the hot weather and the fires. The closest one to me, the Ferguson fire, is really playing havoc: visitors to Yosemite Valley were evacuated, etc., but isn't really having much of an impact on air quality here in the Central Valley, thanks to the wind direction. Keeping the firefighters in my thoughts....

    Well mammogram itself went fine. However, for some reason, they had me scheduled at 7:30 am, and the clinic is an hour's drive away! I think I did that because it was so hard to find a date that worked before my MO apt, as I wanted him to review results also....so argghhh...I was up at five, out the door a bit after six...then of course, I was done by 8 am, and the radiologist wasn't in yet to review it. So, I get a card in the mail in the few days (I hope). In the past they've been able to tell me results right then and there. They offered to do that this time if I was willing to sit around and wait an hour till the doc got in...Ummm no. I will try not to go crazy till I hear back.

    So, I indulged in my favorite guilty pleasure (McDonalds #1 breakfast, with an unsweetened latte, the only thing I ever order there), and then drove home, rested and then dealt with getting moving quotes most of the day.

    Today is hubby's birthday so I am making his favorite dinner (lamb chops marinated in garlic, rosemary and red wine and then grilled, roasted potatoes, brussel sprouts, chocolate cake, and raspberries. Served with a nice California red, of course). They had a little retirement party/birthday party at work today, and some friends are giving him a surprise retirement dinner tomorrow...I just have to figure out how to get him to the restaurant without him getting suspicious: which won't be easy since a.) he doesn't usually like to go out to dinner on a work night and b.) he isn't overly fond of the restaurant they chose (but of course I'd never tell them that since they are hosting..) So shhhhh.

    Hugs to all!

    Octogirl

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited July 2018

    Octo ...A big Happy Birthday to your Hubby 🎉🎊🍰🎈..I hope he enjoys his special birthday dinner ...also hope you can get him off to his suprise farewell without him knowing...!!!..and you hoping you get great results from the mammogram !


  • sweetp6217
    sweetp6217 Member Posts: 120
    edited July 2018

    Proudtospin: Poodles don't have fur, they have hair. In any case poodles and a few other breeds are (for the most part) allergy friendly. My dear Mother was allergic to dogs, but when we got a poodle, she couldn't be separated from her.

  • m0mmyof3
    m0mmyof3 Member Posts: 9,758
    edited July 2018

    Had the CT Scan yesterday and got the results back last night. Spot where the cancer had showed up last year is gone and the spots on my lungs are stable and small.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited July 2018

    Mommy ..yay for great results !!

  • m0mmyof3
    m0mmyof3 Member Posts: 9,758
    edited July 2018

    thanks Lucy

  • chisandy
    chisandy Member Posts: 11,408
    edited July 2018

    Congrats!

  • octogirl
    octogirl Member Posts: 2,434
    edited July 2018

    Yay, M0mmy..., congrats!

    Just got my mammo results: all clear, so yay for that too!

    Octogirl

  • sweetp6217
    sweetp6217 Member Posts: 120
    edited July 2018

    Congratulations MOmmyof2 & octogirl!

    Mine was negative too this month.

  • chisandy
    chisandy Member Posts: 11,408
    edited July 2018

    Fantastic, you three!

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited July 2018

    Octo and Sweetp...wonderful news !!!!

  • TaRenee
    TaRenee Member Posts: 406
    edited July 2018

    Congrats on good news!!!!

  • chisandy
    chisandy Member Posts: 11,408
    edited July 2018

    Well, I am heading back into CrazyTown. Was able to see inside my mouth with a pair of mirrors, and that painful swelling on my hard palate ridge doesn't look like an abscess, but it looks like a canker sore yet doesn't feel like one (not a sharp pain like a canker sore but rather a bruise-type pain when something hard, even a Cheerio or grain of rice, hits it)--then it throbs like blood is pulsing through it, and so do my teeth around it (which feel like they're loosening). Not delicate enough to be a blister either (which would have healed by now). Everything I've read and images I've seen lead me to believe that squamous cell carcinoma can't be ruled out. (The one promising sign is that oral cancer usually doesn't appear so suddenly--the sore is less than 2 wks. old and the loosening only about 3--and is usually painless to the touch, whereas this is quite painful). Suddenly, ONJ may be a lesser worry...and preferable: at least it would neither kill nor maim me. I'm hoping all I'll need are root canal(s) and antibiotics, but that is looking more and more like wishful thinking.

    Not going to sleep well tonight, seeing as how I need to be in an Uber by 9 am to be at the dentist by 9:40 (he moved down into the Loop from my neighborhood, where I'd been able to walk there in 15 minutes). Doing one last saltwater and Listerine Sensitive rinse before the Tylenol #3 kicks in.

    It's so unfair--I take good care of my teeth, have never smoked, and drink very moderately (usually no more than a couple of ounces of wine a day...and not every day).