CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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yay for good news Molly!
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octogirl- I am so glad everything is coming together with your new house. Good luck with the move
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Molly ..wonderful news !
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Any time I see a title beginning "The Truth About..." I know it's going to be alterna-woo. And didn't Ty Bollinger go to prison, or at least get fined a whopping amount, for financial shenanigans? One of the reasons our support group fell apart (after our beloved facilitator died soon after being diagnosed with an unrelated cancer) was that it was dominated by two patients who kept railing against the "cancer industry" (mind you, we were meeting in a cancer center); one--a multiple myeloma survivor and Stage IIA patient who had lumpectomy & rads, didn't need chemo, but refused endocrine therapy--kept sneering at "AMA medicine," as if the AMA were the governing body of all physicians & surgeons, a kind of medical Vatican that excommunicates the heretics who dare question conventional medicine. It's a professional affinity and advocacy group, no more, no less--just like the ABA (to which I don't belong) is for lawyers. It publishes a medical journal (with articles that often contradict each other) but mandates or prohibits nothing. It doesn't certify or accredit anybody. Membership is optional and voluntary--in fact, Bob refused to join back when they lobbied against universal health care (and now that they've "done a 180," he says we've still got better and more enjoyable uses for that dues money).
The other patient, diagnosed as Stage IIB triple-positive, spurned not only chemo (after one cycle), targeted, and endocrine therapy--she refused surgery, preferring to use her observations of the behavior of her tumor as a barometer of her health (she claimed it waxes & wanes). She went on a bean-based extremely restrictive vegan diet and was a devotee (and long-distance telemedicine patient) of super-quack Dr. Gonzales, who died of a heart attack (not unusual at his age), but she remained convinced he was murdered by "the cancer industry."
The new facilitator went on maternity leave; the three of us remaining were unable to coordinate travel & performance schedules--and find a sufficiently kosher restaurant at which one very observant member could have anything besides black coffee or tea.
Molly, congrats on the good scan results! Rain, what a joy to find your mom's piano and be able to play it! And eggroll, is the saga of the lakeside neighbor-from-Hell finally behind you?
Octo, we've twice been in the limbo between movers coming and then actually moving to the new location. Quite the challenge, but not so bad in retrospect. When we moved from Seattle to Chicago 41 yrs. ago, we even had the movers drive our little Datsun on to the van--rented a car, slept on a sheet on the bed that came with our student apt., ate cold food or dined out, lived out of a few suitcases and finally--after watching the last game of the NBA finals at our fsvorite pub--drove to the rental return at Sea-Tac, dropped off the car, checked in for our red-eye, and waved goodbye to Seattle. And we discovered after our first intra-Chicago move to a new apt., that it was much easier to get the moving done the day before, spend the night in a nice cat-friendly hotel (with a fine dinner out) and then saunter into our new digs the next morning. Second move, our new friends pitched in with the move and then took us out for pizza. By the time we moved from our last apt. to our house one neighborhood north, we moved our clothes/kitchen stuff/light furniture in dribs & drabs (with our car and assistance of friends & neighbors), had new major furniture delivered to & carpeting installed in the house, broom-cleaned the apt. and on moving day, had friends cat-sit while we supervised the movers.
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Looking deeper into the Bollinger's "Christianity", affinity fraud, and other characteristics, I'm willing to speculate some more about them. Saw talk about coffee enemas a number of years ago on boards relating to religious fraud. To be believable, any complex lie has to have some truth about it. On the other hand, sometimes it is not worth the time.
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A century and a half ago, John Harvey Kellogg advocated oatmeal-and-yogurt enemas at his spas. How'd that work out?
Sometimes bullsh*t doesn't smell the way one would think. But nonsense is still nonsense no matter how one tarts it up.
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hi all, been missing in action due to the BIG family wedding! I managed to find a pal to drive me up to the wedding, in a small town south of Boston. The bride was lovely and my nephew was tall and handsome.my family was overwelmed by the much larger bridal family . Not sure how many in her family but lots!
Managed to get some good fresh seafood while there
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Great news Molly.
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iris- I'm so happy to hear you made it to the wedding and had a wonderful time. I'm sure your nephew looked very handsome. You must have been exhausted. At my niece's wedding last weekend our large Irish American family made up 75% of the guests. Most of the older individuals, including myself, left the reception at 1:30 am. The younger ones stayed until 4 a.m. They had such a great time. It was beautiful . Weddings and funerals are the two things that seems to bring most families together. Oh, what fun when it is a wedding!
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Popping in to CrazyTown for a visit--hope it's only a visit. Back strains (right side) have morphed into constant stiffness & soreness, and nothing--heat, muscle relaxer, stretching, CBD, Celebrex, or Tylenol--is making it go away. I've had several X-rays over the past few months that say no lesions or fracture, but "degenerative disk changes." Last week my PCP's PA says I likelh have a disc that is herniating, but something tells me it's time for a more advanced scan.
And this morning I woke up and nearly fainted: the lower part of my L palm was covered in stains that looked like I'd been playing with Betadine, rust, or self-tanner. Couldn't scrub or soak it off. Spread to a few knuckles, my index and part of my pinky. Also have a smaller spot on my R hand. Did some reading and found it could be some of my hemoglobin breaking down and leaching into my tissues--permanent but usually harmless; however, there might be ominous causes (venous insufficiency, which could explain why my R ankle swelling is back; or lymphoma). So I sent a message to my PCP and his PA.
My L foot blisters (over the big toe and bunion calluses) aren't going away--and one popped.
And on the non-medical front, the Brazilian Blowout Zero keratin treatment I had last week didn't "take:" still getting frizzies, especially after my first shampoo (using the BB brand stuff the stylist gave me) since the treatment. (Woke up the first morning with a "bed-head" wave in front, just like if I never had the treatment or didn't clip my hair up at night--but when I clip it up I get a "ridge" in back that I have to keep flat-ironing). Wondering if my head & neck sweat so much that the salt is dissolving the stuff--but if so, why is my front hair also frizzy? Gonna have to go back and get the regular version (or accept that I will have to live with frizzies so long as I have hair). The whole point of keratin straightening/smoothing treatment is to have wash-&-wear hair and not have to use hot tools or clip it up.
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Yikes, Sandy, hope your medical mysteries get solved with good news. Could there be any connection to your recent travels?
On my side, I had a three month checkup with my BS today which not at all exciting, just the way I like it.
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sandy- it must have been horrifying to wake up and see staining on your palms. Hopefully a more detailed scan will provide more information. Best of luck to you.
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It seems to be fading about halfway. I'm beginning to think it might be connected to the carrots & red peppers I had at various meals over the past couple of days (caroteinoids?). But it was still sorta scary, as if I'd touched wet deck stain. At any rate, I've been back from Israel now for over 2 weeks, so that can't have been it.
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Sandy, that does sound scary! Hope it turns out to be something easy to fix, or nothing, and keep us posted! In your pocket.
Iris, the wedding sounds wonderful...and getting good seafood while you are there: a real bonus!
Hugs to all;
Octogirl
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Iris ..so glad you enjoyed the wedding and the seafood !!!
Sandy ..gosh ! Hope it continues to fade , and your back feels better soon .
Jo ..yes ..weddings and funerals are when most extended families tend to get together these days ..and how much happier to be off to a wedding !!!
Beaverntx..great to hear your BS appointment was unexciting !!!
Hugs to all xx
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The wedding was fun, even though i did not do the driving, i was totaly exhousted. The brides family is from Cambodia and Esters parents do not speak any English, but it was so sweet seeing all the little brides maids, adorable. Of course my sister and i both expect a baby within the next year, now that will be special!
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iris- was it a traditional American Wedding or Cambodian ceremony?
My 5 month old great niece, Serenity. She has brought so much joy to our lives.
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aaahhhhh....Serenity is a doll baby!!!!
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jo6359 Serenity is beautiful!
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Gorgeous photo Jo 🤗
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I finished chemo on March 27th 2018 I'm now on Femara. I switched to Taxotere for a short while and after a break but went back on Femara. About 2 wks in Femara for the second time, I started having migraines. I have them 5-7 times a wk for the last month. I had chronic daily migraines before my diagnosis but they resolved w chemo. Now almost a year later they have started again. My MO has ordered a MRI for me Saturday. I'm in a total painic. I'm so anxious. Any advice or help
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Migraines usually have no diagnosable underlying cause--usually hereditary. Hope yours resolve.
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jo....the wedding was traditional american but the dancing during reception had some unusual dances. Really, all of Esthers generation is very american, Esther only speaks a few words of cambodian, just enough to communicate with her parents..
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KRose, chemo does weird things to your immune system. I've had lifelong seasonal allergies, but during the time that I was on chemo, I had no allergies at all. Not a sneeze. The following season, when I'd been off chemo for a few months, the allergies started right up again. In any case, I hope they go away soon!
I'm back in Crazytown because of what else, insurance. Got the scan results yesterday for the extra PET scan that my MO ordered: clean as a whistle. Big whew. Happiness for about 16 hours after I got the call.
But.... I also heard this morning that our insurance plan is no more. We buy Affordable Care Act plans, which are generally decent in New York, but they are income-based. Husband and I are self-employed, so our income varies a lot, and unfortunately it is up, which mean we have just gotten kicked off the very good plan we were on. So the excellent subsidy went away, and we're now paying $1000 more/month. Starting, you guessed it, now.
Can't wait for Medicare. Assuming it's still here when we are ready for it.
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rainny, so sorry about your insurance. Have to say, medicare hax been great, paid everything for my hydrocephelus surgery and has paid all for my cancer treatment. Hang in lady
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Krose...welcome ..sorry you are having the migraines .Hope you get great results after the MRI .
Rainny ..great news about the scan being clean ! Not so great about the insurance though !
Hubby and I are off to our table tennis 🏓 group this morning...it's such fun ..lovely group of people , and we get to burn a bit of energy as well.
Hugs to all
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Hang in there, rain--hope 65 comes soon (or that universal health care comes along before that). My son's ACA-compliant individual plan wasn't very good, but once he stopped freelancing and became a full-time salaried employee he got a much better policy (BCBS PPO) at a lower premium. For us, becoming Medicare-eligible felt like catching the last helicopter out of Saigon in 1975.
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Thanks everyone for the encouragement. I had my brain scan yesterday. My MO was kind enough to email me this morning l, that my scan looks great with no evidence of cancer. I'm greatly relieved. Now it's time to see what I can do about these migraines. Best wishes to everyone awaiting a scan.
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yay for good results Krose!
ok, there is probably a better place to post this, but I think the crazies will understand...I was driving on the interstate and noticed a huge, new billboard. The focus of the billboard was on a head shot of a gorgeous woman, perhaps in her late thirties, smiling broadly, flipping her hair back: next to text that read "We are always welcoming new patients" as an ad for a regional cancer center.
Really? Oh, I get wanting to welcome new patients, but in the context of someone looking very happy to welcome you to the cancer world? or is she a new cancer patient, just thrilled to be there? Is it a great thing that the center has a steady stream of business?
Um, no. I wish hospital marketing departments were required to vet ads with actual patients....
Octogirl
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