CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Sula- Hope you feel better soon.
You are always missed when you are quiet.
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SlowDeep...I'm fine and thanks for caring. I guess I get into my feelings when no one responds to my post. Because I am crazy...I tend to get my feelings hurt when it seems like no one cares. But I did have a good visit on Friday with my MO...she is the best. Blood tests were all great!!!
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Shorfi-So glad the blood tests came back good and you had a good meeting with your MO-and you LIKE her! That is so important. I'm sorry I overlooked a post. I notice sometimes we are all posting so fast I miss some. But even when that happens it doesn't mean we don't care.
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Good Morning CRAZIES!
I'm back and thank you all for sending cyber hugs and advice when I was down the other day. I know a few suggested it might be the Tamox.... weirdly I feel REALLY well emotionally on the stuff. I think it was more being homesick after having been away on our magical Martha's Vineyard trip and then doing a fast turnaround to go to this conference with a really unknown group of people. I am really a one on one type of person so new groups of people/energy have always felt a little overwhelming for me. The next morning I felt much more at ease. I kept up with you fantastic ladies in spirit, but for a lot of reasons I didn't check in.... I really didn't have my phone with me or on much of the weekend- which was AMAZING! Actually the whole weekend was amazing and I want to share some of it with you all as time goes on..... for now here was the topic
DIGESTING THE UNIVERSE: A Revolutionary Framework for Healthy Metabolism Function
The tag line was : EAT ALL YOU CAN
More on that later ( I'm still digesting)
OK CRAZIES back to you all as best I can catch up with this breathless thread!
OK I've been quiet on the food porn front so I'm gonna jump in soon, not that I will ever scale the heights of Sula's desserts and Indian delights.
QMC- I'm glad you are out of the 'spa' (we wish) and I think keeping the tubes in place is the right call, though I really hope none of us or anyone has to visit the "spa' anytime soon.
Duky-Makayla is lovely and that is also such a beautiful name. Beauty and a good head! You must be very proud.
Jewel58- A belated hello and welcome. Slow sends the best welcome kits. I hope you are finding comfort here. this really is the best thread on BCO, for me anyway.
Pennsygal how is your recovery progressing? I hope you are feeling good.
Tomboy that sounded like a yummy food shop and locally made apricot yogurt sounds amazing!
Octo- great mom story and although I'm sorry you had a fitful night the bud cure sounds perfect. I'm hooking up with some of that green medicine later this week. Just to have in hand.
Lucy 55 the beach picture is so amazing. Can you walk to the beach?
Sula 'like killing you with food poisoning bad' OMG I was rolling around with laughter at that - You turned that ship around with great gusto and finesse!
Rain you also said that you and your sisters became fine cooks because of you mom's lack of kitchen skills right? How are you feeling these days? are you done with the antibiotics? Also I forgot if I mentioned this but you were talking about yogurt..... for the good bacteria and I also wondered if you have had Hawthorne Valley lacto- fermented vegetables? They are amazing.
Katy- you have been so busy in the kitchen as well- your food projects look great and after this next work trip I am really looking forward to nesting for a while and resuming my kitchen lab projects. re 2 ice cream bowls in the freezer- amazing. I have one but I actually think I'm going to get the attachment for my mix master to make ice cream so i can liberate some freezer space.
It is really amazing how much everyone here is in to food!
Mommy thank you for your ongoing morning hugs!
PTS- I'm glad you went back to heat! please forgive my insistence ( and this is for everyone!) DO NOT put ice on that kind of pain!!!!!! it only numbs it and aggravates it. Ice is for inflammation directly after and injury and in other specific instances. Warmth is what's required to disperse pain.....
Slow how is your knee rehab going? Have you been biking?
I'm thinking of all of you. Have herceptin and a meet with the MO later today. Really prefer the early morning appointments. Sula you mentioned nausea and the big D.... was that a cumulative response? Just curious. i, so far, mainly feel a little woozy and sleepy the day of..... Feeling a little nervous because my treatment is at 3 and I have a quick turnaround to go out of town on a cooking job tomorrow morning....
ANYWAY I love all of you and KATY! I think we should really consider a way to make a CT meetup a reality. Seriously!
EDITED TO SAY: shorfi- this thread moves so fast so I am sorry if I have skipped saying hello or commenting on your posts. Slow keeps the spreadsheets, so I think sometimes it's hard to'catch' what everyone is saying. But once you've posted in CT I really think everyone energetically has you held. thinking of you and glad all your blood work was great!
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The freezer
The bones
Bread
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wow, well now I know that ice for my long ago injury was wrong, dang am I in pain, Switched back to heating pad and also called my physical therapist guy and told him what happened and asked if it would be OK to do acupuncture. He said yes and gave me the name of the person at his place to ask for. Was scared to ask anyone else as worried I would get wrong info. Going over later today. Only reason I stopped the PT was medicare was maxed out for PT but acupuncture is not covered anyway. Actually took pills for muscle spasms the last couple of nights.
crazy town is me today
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Gaia....I am very proud of her.........
Shorfi...........soemtimes I think we read so much we miss some of the things that are said.......or maybe its because we "say so much we all can't keep up"...............
Hope your doing ok.......remember your my City of Brotherly Love Sister............hugs
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Good Morning Wonderful Crazies,
Oh Shorfi, I really must apologize. I DID have you on the list for an MO appointment on Friday, and it was MY MISTAKE that I didn't send you good vibes from all of us!!!! I had some family issues this weekend, and my Verizon Wireless account was hacked right before the weekend, and I'm afraid I was a bit distracted and didn't keep up like I normally do. This thread moves so FAST! No excuse though, just wanted you to know why the appointment fell through the cracks.
That is awesome news about the blood test results!!! I'm going to do a special happy dance for you!!!
You are VERY MUCH cared about here!! Please don't ever forget that!! You're special and you are appreciated!! I'd also like to send you some flowers for my blunder!!!
I will try and keep up better in the future!!!
Now I must go back and read, and make sure I didn't miss anyone else!!!!
Love to all....quiet crazies too!!
BBLEFT
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Thanks so much ladies. I was so afraid i had stomach cancer because I look like I am 6 months pregnant. My lovely MO assured that I didn't, and I asked her to order a scan. See said to tell my husband that she shares his sentiments...I told her that my husband thinks I am crazy...lol. I go on to tell her that I have not gained any weight in the last year or so, but my belly and waist are expanding. She said a scan is not necessary, but did ask me "what are you throwing in your mouth?"...I had to even laugh...lol
Slow...thanks for the beautiful flowers.
Ducky...Hi to my neighbor. I also enjoy seeing the pictures of your grandchildren.
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shorfi, how scary that must have been for you. I don't know about you, but I'm sensitive to every little change in my body and I'm always convinced it's some new cancer. I have a very big belly too, and wondered how it could be getting so huge. Then I have to remind myself that I've gained 50 pounds since treatment started!! hahahaha
Gaia, Welcome back!! Your freezer looks so organized. The bread looks yummy!! I DH is the bread maker in the family. I've hit a bump in the road on the knee rehab. Thanks for asking. Humidity and RA don't mix too well, so I try and rest more when I'm having a flare. I'm not giving up though - small baby steps. I will get back on that bike someday!! Happy to hear the conference was amazing and glad you're home to regroup.
Italy, those cartoons cracked me up!!
Sula, I'm glad you were able to take it easy this weekend. You're like the energizer bunny.
Poppy, What's going on with you? When is the colonoscopy?? I may be coming in your direction next week. They've been trying to get me in for my echo in Corona, but it looks like I may have to go to Riverside. I'll send you a PM when I know more and maybe we can get together if the timing works for you. You've been quiet here....I hope all is well.
Queen, Hope you're resting up from your hospital stay and feeling much better.
Tomboy, I sent you a text. Thinking of you. Your story gave me a good belly laugh!! hahahaha....The doctor is probably peering out her windows, ducking when someone walks by!!! Checking for followers!!! How odd that must have been to run into your BS in the store!!! Your dishes sound lovely too!!! I'm not very good at cooking anything outside of Italian food. I'm not very creative like so many of the wonderful ladies here. I'm more of a computer nerd. The apricot yogurt sounds so good!! I haven't been much of a fan of apricots, but I've found when I hear about all the dishes, even if I don't necessarily like the ingredients, they all sounds SO good!!
Ducky, Any bites on the shore house? You've been on my mind this weekend. You're having issues similar to my sister and this wasn't the best weekend for her.
Lucy, Hi!! One of these days, I would love to come to Australia. I would have to do it by ship though - I don't fly. I have a half niece that I've never met that lives in Australia.
PTS, Hope the back is better today!!
Octo, Chemo next Tuesday??? I always felt my best the last week before chemo. Are you doing four or six chemos??
Katy, I love your fantasy!!! We really should all get together sometime. We would have a blast!! I like when you post how vegetables should look!! haha...I've got such a brown thumb. I want to grow things so badly, but with the water restrictions and my brown thumb....I just enjoy all the pictures!! I have an ice cream maker I've never used. It was given to me by my home nurse that came when I had NF. She was such a sweetheart and we became friends when she was tending to me. She was here so often, she was like a part of the family. She brought me the ice cream maker for Christmas.
Littleblue, NO!! No age restrictions here in CT. Wow, you're so young. I think you may have stolen the youngest title from M0mmy!! You really are our "littleblueflower." Please stay with us!!
Mommy, How are you this morning?? Sending you hugs like you do for everyone else!!
I'm a bit emotionally worn out from the weekend, but slowly coming back to life!! haha I've got some family stuff happening and we all know how draining those things can be.
I've got one more upcoming date on my spreadsheet. Eggroll's SNB on the 22nd of this month. If there are any other dates I'm missing, please let me know. I went back a ways on the thread, and I didn't see any. But we all know I live up to my name....SLOW...haha....I don't always see everything I should.
For all the Crazy Town residents I didn't mention individually, here is a shout out to you all!!
TangandChris, SusanHG123, dsgirl, sewingnut, rleepac, Kathy7, Beatmom, Jackbirdie, 2TA, JAN69,AmyQ, IamNancy, pennsygal, Booklady, RainNyc, SuzyBlue, rosesrx, Huronite74, clarrn, ErenTo, Colleenmck, Sapphire, MinusTwo, ells, Tresjoli, staynsane, Chloesmom, Wendy3, koshka, Luvmygoats, mommato3, mysunshine48, zjrosenthal, eggroll, Mulligan, HomeMom, yogamama, Westphal107, Positive_spirit, momwriter, Maggie57 and Coloradogirl.
One you've posted in CT, you're always a part of us.EFT
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A few more to catch up on.......
ColoradoGal, Thinking of you. Hope all went well with your mammogram and US. Please update us when you get a chance.
Rose, How is the AI treating you so far??
ErenTo, I think you should be all finished with rads now. How did your skin hold up?? Just checking in on you!!
rleepac, How are you?? You've been quiet since your last post. Don't you have another surgery coming up?
littleblue, I forgot to ask.....Aren't you close to being done with rads???? Let us know so we can celebrate!! I'm always looking for a reason to do a happy dance!!
Alyson, Are you enjoying your trip so far??!! Safe travels to you. I hope you're able to post some pictures of your trip!! Are you and Ducky getting together??
clarrn, You probably don't check in too much since you've gone back to work, but just want you to know we are thinking of you!!
Colleenmck, How are your knees? Noticed you haven't been on for awhile.
ells37, How is your mom doing??
I know life can get busy and not all have time to post. Just know we are all thinking of you.
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Shorfi- your DH and MO may be ganging up on you, but you have all if Crazytown behind you!
Christine- what an immaculate freezer! I see you have the same ice cream vessel! I only keep one in there, but as soon as it comes out to make something, the other goes in. I stick to mostly vanilla bean, especially in the colder months, as my ice cream eating and serving dwindles to say, an adornment on a rustic apple tart.
What was funny yesterday is when I opened my freezer I was so disgusted I ended up going through my fridge too. I found some pretty tired peppers, but thought I could salvage a soup out of them with the help of my bone broth and some onions, garlic, shallots, a tired old carrot and apple. Some leftover boiled potatoes. Again, my mom's story of the stone soup came up.
Although my mother came from quite a wealthy family, when she married my father, they had four (Catholic) babies in succession, and he quite often escaped (with the paycheck) to the yacht club bar. It was a serious enough problem that she tells of a time when she scrounged around for enough soda cans to redeem to buy a $.37 can of tuna to make dinner. She had absolutely no money in the house. First of all, when was tuna ever 37 cents! Anyway, she learned to stretch a dollar. She loved to tell the story of "Stone Soup".
In a small, very poor mountain village, everybody was hungry. One woman wailed, I haven't got any money! All I could make is stone soup! So she fills her soup kettle with water, starts a fire, and throws in a stone, bitterly. Pretty soon another villager passes by and asks what is the matter? After the situation is explained, she says she is too poor to make soup too. But after a while she comes back with a tired old onion. They peel and quarter it and the boiling stone water starts to smell like something good. Another crone passes by. Nods knowingly and returns shortly with an old gnarled potato and chops it up and throws it in. Pretty soon the other villagers hear about the stone soup and line up with their bits and toss them in. A glorious soup is achieved and the entire village is fed.
I tell this story for three reasons:
1) it may be the origin of the now popular term, "it takes a village" haha.
2) Beppy you may keep the spreadsheet, but we are all responsible for caring for one another. You should take no blame. But as Gaia has said, once connected, even if not always mentioned, we have each others' backs. We are under this red/tent big top together, and all have something to give to make our communal sharing more emotionally nutritious.
3) My final reason is so I could share my pictures of what I found in my fridge and turned into a kind of stone soup.
The final step of blending the cooked ingredients and topping with a dollop of creme Fraíche will be completed today. But it is pretty and I wanted to share.
All of my tired vegetables above
The making of the creme Fraíche below.
In the pot with the stone:
Anyone hungry?
Gaia- we are going to be needing that rustic bread you shared..
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Jackbirdie...I used to read that short story book to my son when he was a little boy. He loved to share that book during "show and tell" when he was in 1st grade. Brings back memories. BTW...your veggies look good to me. Yea, I agree, the hubby and MO are both ganging up on me...lol.
SlowDeepBreaths...My MO is going to do a research trial very soon on why most women gain weight after chemo treatment. Honestly, I have changed my eating habits a LOT, try to eat more clean foods. But she was very serious when she was talking about it to me. She has noticed that most of her patients has gained weight significantly even just a couple years after chemo. She in laughter said that I could blame my weight gain on chemo. But being the crazy woman that I am, I seriously thought I had stomach cancer.
Sula...hoping that you are starting to feel better.
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SDB, I admire your ability to even partially keep up with this thread! So much going on! And HUGS to you for having to deal with family issues and your cell being hacked!
I wish chemo was not until Tuesday, but no, next round is Monday the 19th. Third of four. I can't wait to be done!
Octogirl
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Shorfi.. So glad your tests came back great.. I understand totally how you feel if no one replies.. It's just a fast thread, and probably most people skim through..because there's so much to try and read it all.!!
Gaia..No.. I don't walk to the beach I go to is a 5 minute drive.. But we'll worth it !
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Octo, I remember that anticipation of wanting it over. I was on my way to my 4th and final chemo when I got the call telling me my EF was too low on my echo. It had dropped to 51, so they put off my final chemo for a week. I was so disappointed. I did go on to do the Herceptin, but having the yucky part behind me was so great. We will celebrate when you're finished!!!
Katy, I'm on my way over. I love soup. It was always so comforting to me growing up. Love the stone soup story!! I have that same book stored away in one of my closets. Your mom story sounds very much like my childhood. We always had plenty of food, but my parents didn't have much money, and I found ways to make money at a very young age. Painted and sold shells, babysat, delivered newspapers and so many other things.
Shorfi, I have always been a healthy weight except when I had baby weight to lose. I always tried to eat well and get as much exercise as possible between flares. My BMI was always in normal range. I think when I was diagnosed with BC, food equaled comfort. I wish I could blame it all on BC treatment, but I have to take responsibility for all the food I was eating. When I got my taste back after chemo, I went crazy!! hahaha....Plus, a small part of me was irritated that I ate so well and I still got the beast. Now I'm finding it much more difficult to lose than I have in the past. I guess that part I can attribute to BC treatment.
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Slow.. Hop on that boat to Australia right now .. I have a bed here for you and your family! Where does your niece live.?
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Lucy, I'm embarrassed to say I don't know. I didn't find out I had two half sisters until I was an adult. So I wasn't raised with them, and have only seen my half sisters a handful of times. They came to visit several years ago and I met my nephew. I really must remedy that.
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Before I was even started on treatment, my place asked me to be part of a "metabolic syndrome study", most of which is done by answering a series of questions by mail, at regular intervals. And then meet up with the person handling it once a year. And they were very disturbed by my weight gain, and so am I! My whole adult life, wavered between 118-124. (depending on holidays/winter, and a more active salad filled summer?) I gained a few lbs during and after chemo, but it is ridiculous, and most disturbing that I now weigh 145-150. It does NOT look good on me, and I have some nice clothes that I would like to wear again. If it would cool down, I would like to start walking in my 'hood again!! Am doing hand weights, and I do a ton of stairs everyday. You kind of have to be a mountain-goat to get around in my sort of tree-house. (lots of stairs, and I am up and down em all day... I am heartily sick of it, and need to read and try the Atkins books I bought for this very reason.
Once, in my 20's, some friends and I built a sweat lodge near a mountain creek. I remember thinking as I was gathering stones for the fire, I clearly saw and felt what even 10 more pounds felt like: I could barely hop from boulder to boulder! I swore I would never get fat, if that's what it felt like! My agility was really affected! We can do this, Bep.
Shorfi! Yikes! Sorry about somehow missing your post, welcome to c-town, where the citizens are all cancerous! In various places.. mostly in our heads. We must have all had invisible post cancer that day.
Ok, tomorrow, I am going to see a pain management doctor. Because I am living with pain every day, we are going to talk about this anyway. My BS said he likes to do nerve blocks, I don't think I will like to do nerve blocks! Needles in my spine? I will listen to him anyway. I think my pain is too wide spread, they would have to block my whole body! And the left side of my head!
Oh Bep, if you can talk your husband into going to Australia, I would love to get on a boat and go there with you guys! I want to dig up my own opals! And adopt a three toe'd sloth!
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tomboy just quickly the weekend conference was exactly about looking at metabolic syndrome through the lens of traditional Chinese medicine and the five element system.
I'm still digesting a lot of it but will be happy to share insights as I process the information.
Just left infusion land. MO did more comprehensive blood to check tumor markers so of course I am in ct starting now.
I also notice I feel emotional after the herceptin. It's just this feeling of having my organism violated being hooked up to that bag and all. I have to work on my perspective.
More later crazies. Such gratitude for this thread
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oh dear, sounds like we all could benefit from some Oriental medicine? I am just back from my very first acupuncture for my dumb achie back. First rule I learned is ice is not for an old injury but heat is best, so back to sitting on my heating pad. The acupuncture person says it will feel better over time (not right away) but that I should likely do more sessions. I do feel dif~~~sort of more at peace? still pain but it does not feel as tight. Trying to decide if I will do more but waiting on tomorrow. Think if I feel better then I will, even if only a tad better
Love the stone soup story, in my family grammy always made super veggie soup that she started with beef bones for the broth and the veggies were just a bag of mixed frozen veggies but she was well known in town for that soup.
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Iris- I'm so sorry you are back in so much pain. I hope you continue to feel that peace, or feeling that you have? I don't know if it is a viable long-term option for you, but I hope you can try it more than just once to get some synergy going. My 50-cent word of the day.
I myself am quite fond of my heating pad. In fact I am on it right now, having a bit of a down day for reasons I do not understand....maybe I have contracted pink cancer. I have absolutely turned myself inside out writing letters. And getting some really stupid responses...a downer.
But I wanted to show you that I have a very large heating pad because I have to share.
That's all 3 of us on the heating pad. Me, looking like I'm highlighting my stomach cancer, Jack, therapy dog extraordinaire, and HRT (Tutti, Tutti Frutti, official name Her Royal Tuttiness)
Sometimes I feel very alone, but knowing you are all out there keeps me going until my natural buoyancy brings me back up to the surface. Thank you all for that.
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Jack--on my heating pad now, could not live without it! I like Tutti and Jack and keep daydreaming about adopting a cat from the shelter.....thinking on it and always sigh when I see someone else's animals
was planning on chicken with sage, lemon and garlic but since back is not happy it may just be pasta with cherry tomatoes and garlic
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Katy...that pink cancer is definitely the worst! But you have Jack, and Tutti, and all of us! Sending love and hugs!
Octogirl
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Now that I'm home with my cookbooks, I'm contemplating recipes. Chicken with sage and lemon sounds lovely.
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QMC, my sage is from my garden and always fry up a few leaves, almost the best part!
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Proud, what Katy said is good advice. If you can manage, try to do at least one if not 2 more sessions. The effects are cumulative. Glad you are back on the heat.
I picked up some amazing buckwheat and magical herb filled packs that I have been heating in the Microwave ( the only thing I use it for) and it has been great for any achiness.
Ok ladies packing up for tomorrow's journey and roasting some squash.
I'll be around this evening checking in in more depth later.
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gaia, are you going out of town again? Missed sometime I think....
xox
Octogirl
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Slow.......nothing with the house........ugh.......
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thanks for the advise on doing more than just one acupuncture. Did not make another apt but will tomorrow, she said she would call me in the morning to check on me but based on you and stuff I read online, gonna go for a couple more visits
I am taking the muscle relaxer tonight and they said that would be ok, I am now paranoid that using ICE instead of HEAT could have been so wrong?
debating now on ice cream or wine?
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