patty
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Beautiful Patty. I'm holding you in the light, hoping you find relief. I wish that we could all take a piece of your pain, so it would help you feel a little lighter. I know the women here would do it. ❤️❤️0
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Holding you close inmy thoughts sweet Patty.
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Good Morning my sweet friend. I am here for my morning visit. Hoping you're in way less pain and they have that figured out. I am thinking about you and am never far from your pocket.. I am sending love across the miles. Two words: always friends. Much love ~M~
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I would take part of your pain! Together we can all help each other. Prayers for relief and knowledge for your decisions on the days ahead.
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thanks so much for the support. It truly changes my attitude when I come here. Much happier less stress
So yesterday hospice switched up some of my pain meds and doseage and I got some peaceful sleep last night. Yea. Finally. Rested and although not pain free , def it is a manageable pain. But a different hospice nurse just left and they wanna switch pain meds dose again. NO !!!!!!!! So waiting on hospice dr to come by and discuss options
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Patty - So relieved you got some sleep! Have a great day and praying whatever new meds you will be on will even be better!
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For over a year now, maybe a year and a half, I have been following, without commenting the struggles of Patty, Kandy, Kaayborg and Lita. Since then Kandy and Kaayborg have died. Now I find Patty is in Hospice. I am so depressed. My wife has an upcoming PET/CT scan and I'm terrified. She's been on Xeloda and it has been keeping her cancer at bay, however, recently she's had new aches and pains. Over a yearago her ER+ turned triple negative with numerous mets to the spine. I see some 126 pages and close to 500 studies of triple negative going on yet nothing? As best as I can determine we've only gotten 2 new treatments in the last 2 years, Ibrance and Keytruda. Sorry to rant.
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Sending peaceful views of the Pacific dear Patty and lots of hugsp
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oh Patty...I hate this! I can’t even imagine the emotional roller coaster you have been on. I’m so sorry the pain is so unbearable. Hopefully hospice will get you on some good stuff and keep you comfortable. Holy moly, this is just mind blowing...sending lots of love and gentle hugs!
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glad u got some much needed rest, take care
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Wish you were sitting with me by the river playing word games.
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mike. Rant on. I have read many of your posts. I applaud you for sticking in there. Many spouses can't handle it all and leave, including my exspouse. Got divorced last year after 27 years. Never would I have dreamed or nightmared that would happen. Stay strong
Love all the water pics. So beautiful. Takes my mind away from these 4 walls that feel like they r closing in on me.
I waited all day yesterday for hospice nurse to call or come back to hospital to discuss their new ideas for pain meds. I know I won't be discharged until the pain is manageable for at least 24 hours. So that hasn't even started yet. I want to go home so bad. Would like to up and leave the hospital but that becomes a problem with hospice and not following recommended dr orders.
A few days ago the room next to me was s 23 years young lady. Found lump 6 months ago. No family history. Dr said to young for bc come back 1 year. No mammogram, no ultrasound. Forward 6 months health declining goes to er for Short of breath to find cancer was everywhere. Sent her home in hospice and she lived less then24 hours. So trying to keep my situation in perspective. I have been stage IV for 5 years at the end of this month and I have gotten since 2001 since original dx. I need to be grateful for my dss to be 5 years older and that I got to be a mom. Gotta keep reminding myself of that.
My nose has been bleeding for a few weeks. Don't mind the trickle too much. It's that I wake at least once daily ( from my many naps due to exhaustion and pain) with muchblood on pillow and sheets. Disgusting. That's what I am doing up now at 4 am. Grr. With the shortness of breath to even walk to bathroom it doesn’t help not being able to breath thru nose.
Hugs and thanks so very much for the support.
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Patty~ my sweet friend. I am reading this like a zombie filled with a rotting heart. numb and I cannot figure anything out, but I know that Cancer is constantly making me sad. The same exact story happened to me with my”cyst”. The ole careful watch and wait. I love you my friend. I am here for my morning visit. Whatever little breaks you get to Rest. Rest! I know your way sick of only resting, but it will keep your mind as clear as possible. I am in your pocket and you’re in my heart. Love you lots : Rest easy. See you soon beautiful!
Love ~M~
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Just checking in Patty. I’m sorry that others can’t get their act together in order to get you home. Stay on them for adequate pain relief, although this should not be your job. Sometimes the squeaky wheel gets the oil. You have been through so much, time for you now to get adequate pain relief and spend time with your boys.0
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Patty could the nosebleeds be from the treatment you were on? That's what happened to Dani, among all the storm even when she could rest she had to deal with the nosebleeds, docs did not take her seriously, but i found out in BCO that many ppl get it. Would they cauterize it for you? Would it help? If you are in the Hospital already, would they send a ENT to look at it?
They better get a move on it and get Hospice on schedule. Maybe if you know the name of the HOspice you could give them a call and ask when they will be coming? I know you have so much on your plate, but it's possible if you do it they will respond to you.Is there anyone close to your heart that are looking in on you? You had more balls than tonz of ppl, how you decided that it would be better for all of you if you go your separate ways, and you started a new chapter, that's big! You taught your boys so much, by the actions you took. And yes, you were able to be a mama for them all this time. Priceless!!
Re: these good for nothing ignoramus doctors, Dani was 25, she went to her OBGYN he refuse to give her a prescription for a mammo, she was too young to have a/t, although it was hard/palpable, he said its probably a Fibroadenoma (Which im finding out that in itself could hide the real cancer), anyway, we paid out of pocket and she was dx with a very aggressive cancer. I try so hard to tell e/o I meet - see something say something. You hear these stories all the time.
Keep the strength you have a guardian angel looking over you.
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Patty, You are a special person. It is so "Patty" of you to think of that young patient while you are going through your own challenges. Your compassion never stops. It is sad to think of that young women who was lost so soon. It is a tragic case of assuming that MBC can't happen to someone so young. While it is rare, doctors should never become complacent. If this disease has taught me anything, it is that every person is different and every case of MBC is unique. I hope that your hospice team members get their act together and present their plan to you today. Maybe they have been putting their heads together to make sure that the new plan is truly the best one for you. I know you want to get home, and I understand why you want to get out of that darn hospital. You are in my thoughts and prayers, dear Patty.
Hugs and prayers from, Lynne
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Hi Patty!
There are many of us who have been following you without commenting. We're all praying for you and have great admiration for how bravely you struggle with this horrible disease.
It's discouraging that our 'great' medical system cannot even relieve your pain adequately. This is just unacceptable, but I'll save that rant for later. Right now I just want you to know that many of us, more than you know, are thinking about you and praying for you to get the medical attention you need and deserve.
Bless you Patty!
Meg
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💖💖💖💖💖💖💖💖💖
❤❤❤❤❤❤❤❤❤
🙏🙏🙏🙏🙏🙏🙏🙏🙏
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Patty, you have a giant fan club. Your tenacity and generosity are an inspiration to us all. I too am touched that amidst your own pain you show compassion for the young woman next to you and for dear husbands like Mike. We so much want you to find comfort and relief.
I wish I lived closer to you so I could bring you flowers from my garden.
We are all thinking of you and sending you love. ❤️❤️❤️.
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Patty, flowers for you from mine too.
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Something I ran across:
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Dear Patty,
Sending much love ❤️ love 💕 love 💗 and prayers 🙏🏻 for you, dear friend.
Sending special prayers for pain control.
Madelyn
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Patty, praying for you. Hope they’ve hit the right cocktail for your pain
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Amen
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hope today is a better day. Hugs
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Patty- catching up on your thread here. I am so sorry to hear about everything you have been going through. I hope the Hospice team can work with you as you return home and to help manage your pain. Sending you much love and will keep tabs here more regularly.
Something from my garden too. Bottom is claret cup cactus and top is mexican primrose
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looks beautiful. Thanks all
Momatt I will ask dr about nose carterized
Well today is tues night and the hospice program still haven’t made a clear decision on where to even start my pain control at home. Not only are they having a hard time no one even had the decency to call me and let me know they need more time. The dr who runs it was at the lake fri-mon and would not return calls to his nurses. That scares me for when I get home. What if I have a problem? Will I have to wait 4 days for any response. So I quit them and talked to another hospice home health and hospice house when necessary. I only talked to them around 1 today and they already have a pain plan , they have already received my medical records and reviewed them. However they don’t use this Nea hospital or drs. They are across town. So the 1st hospice came in at 5:39 saying they heard I wanted to quit them. I gave all the reasons and they didn’t have a single reason why or apology. So I filled out their paperwork to quit and then am told that they would have to release me home tonight and I can call the other hospice company tomorrow morning to get set up. Wanting to send me home on meds I already took at home and it wasn’t working for this darn liver pain. I feel like they waited til after 5. On purpose knowing I couldn’t get anything done today. I gave them hell. Which isn’t usually me by any means. I am a don’t rock the boat kinda woman. Well two hospital nurses from here that I know well we’re able to get ahold of my mo after hours. He said to tell me to call anytime. He will still help whatever way possible. So only by paperwork. They had to discharged me from the first hospice and this hospital stay and readily mr under my original mo. Tomorrow morning the second hospice group will be here before lunch and show the new pain relief plan. I don’t have to wait 24 hours before going home. Looking like will be home tomorrow evening. So very excited.
Hugs
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new hat. So warm. Was trying to decide a couple hats out of 15 hope circle provides
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Patty - What a day. So happy you will finally get to go home. Big hugs and lots of prayers your way.
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my bestie is close friends with her gp. I used to work for him back in college. She told him my situation and then on my bucket list I wanna ride in convertible top down nice ride. The gp just happens to have a new convertible and said let him know when I get out and he will take us both for a ride where we can stand up in back let my baldness feel the wind. With the radio blasting. Woohoo.
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