Fill Out Your Profile to share more about you. Learn more...

Share Your TNBC Story

Options
13567

Comments

  • Joy777
    Joy777 Member Posts: 12
    edited June 2016
    Options

    Hello!

    I'm 28 years old. First, sorry for my english, but I am not a native speaker.

    My story begins with a lump felt in the left breast, on 22 March 2016. It was the size of a plum and it appeared overnight. The next day I went to have an ultrasound and the doctor said it was a fibroadenoma, and to go back home, take Progestogel and that we shall see eachother in 3 months. I didn't trust him and I went to another doctor to have an ultrasound, and he sent me to have a mammogram which said the result was inconclusive. So, my second doctor, having the ultrasound and the mammogram, said it is 99% a fibroadenoma, but just to be sure let's have an IRM.

    I made an appointment for the MRI and before that I spoke with the doctor who reads MRIs, he looked over the US and mamogram and said I could stay chill, it's benign, but if I really want to have an MRI for me to calm down, I could have it.

    Ok, on 18 April 2016 I had the MRI (just to calm down, I was sure it was something benign). I saw the results online, which said BIRADS 4c/5 and I knew that wasn't ok. I went to talk to the doctor (veeery nice and good doctor) and he said he was so sorry, but the MRI showed something verry different, and it appears to be a carcinoma. He recommended surgery to see what it is.

    The same day I went to another city, where I knew my aunt's doctors (she had ovarian cancer 3 years ago), I saw an oncologyst who sent me to a surgeon. The surgeon said "what fibroadenoma? this is stage 2 malignant!". I tried to "negociate" with him the date of the surgery, but he said that the Easter is next week and after that he is full, so he would want to make the surgery on friday (this was on wednesday). Ok, but... I'm not prepared, I don't have my clothes, my things, I came here just for an opinion...

    Long story short... The surgery was on friday and the result from the histopathology during the surgery was that it's malignant. Then the surgeon cut until he had clear margins and he got out the lymph nodes too, 26 of them. None of the lyph nodes were affected. After that I waited for the result from IHC.

    Until the results from IHC I managed to stay very optimistic, I knew tons of women with BC who are alive and well. But then the results came and it was triple negative, whith a KI67 of 90%. And then the nightmare began.

    I went to an oncologyst who is the best in breast cancer in Germany, before I had the IHC results, he said whatever those results were we shall start with 4xEC followed by 12 Paclitaxel. After that I went in Milan, Italy, at the European Institute of Oncology, again, to a very good doctor, the chief of european breast cancer programme. Here I already had the results from IHC. They said triple negative and medullary. The oncologyst in Milan said that he doubts that it is medullary, because he haven't seen a pure medullary since 1986 and he wants the parrafin to be retested in Milan. Long story short, it is not medullary (that would have been a verry good subtype of ductal). In Milan they said the same treatment: 4xEC + 12 Paclitaxel.

    Sooo... I came back to my country, had our wedding on 28 May (it was scheduled since last year), canceled the honeymoon, and on 30 May I started the first round of chemo.

    I pray to God and hope everything will be ok. This should have been the time for honeymoon and for making babies, not for chemo, but... I just hope it will be ok eventually. I was verry ok with chemo, no major side effects, no nausea... but that's not my problem. I can handle chemo, I can handle everything, as long as in the end I get to have a normal life and to live.


  • moderators
    moderators Posts: 7,966
    edited June 2016
    Options

    Dear Joy777 - Welcome to Breastcancer.org. We are so glad you are here with us! But we hate the reason... so sorry about your recent diagnosis.

    Thank you for sharing your story. You'll find support and encouragement here, so please spend some time getting to know some of our other members. There are other threads that you may be interested in also, like Young With Breast Cancer or the Triple-Negative Breast Cancer forums.

    PD: If you could send us a picture to go along with your story that would be great!

    Again, welcome!

    The Mods

  • Mymom5101
    Mymom5101 Member Posts: 4
    edited June 2016
    Options

    My mom was dx with triple negative in December by way of a biopsy. First surgery was lumpectomy to remove tumor was January 5th. Margins were not clear. Also traces in sentinel node. Second surgery was to remove tissue from around where the lump was removed. That came back clear.

    She was referred to oncologist and her first treatment was scheduled February 12. Cytoxan. One week later she was a mess. Explosive diarrhea and just sick as a dog, no nausea though.

    She is 82 with underlying health conditions.

    I rushed her to ER where she was dx with cdiff and bladder infection, bone pain, you name it.

    We put her in a nursing facility three weeks later as she was so weak and need skilled nursing. Three weeks later she was sick again with black stools. ER and hospitalized for bleeding ulcers.

    One week later returns home still having cdiff. But she was on the mend.

    She had already decided not to pursue chemo again. Talk to oncologist and he recommended rads. Talk with radiation onx and he told us that it treats local area only.

    My question is with her health and age and no guarantee that cancer won't come back, if she can't do chemo what good is rads?

    I don't know what to tell her to do! She literally almost died from one chemo treatment


  • moderators
    moderators Posts: 7,966
    edited June 2016
    Options

    Mymom-

    We're so sorry to hear of the struggles your mom is having; treatment is never easy, but can be so hard to tolerate for people with underlying health and age concerns. Have you read through our chemo forum? Lots of info there, and we're sure some of our knowledgeable members may be able to offer you some advice on how to proceed. You can find that here: https://community.breastcancer.org/forum/69.

    We hope things get easier for your mom, she's in our thoughts!

    The Mods

  • Numb
    Numb Member Posts: 307
    edited June 2016
    Options

    MYMOM5101 - Sorry to hear about your Mom. Chemo can be very harsh. Your best bet would be to discuss her treatment with her Oncologist. Yes, radiation would be local only, but as her Sentinel node had traces this means the cancer could have travelled to other parts of the body, but I would think that even if it did it could take 5 years or more to materialize and it might never do that. I don't think that putting her through all this harsh treatment would be achieving much at her age. To me quality of life would be paramount at her age, however, really her Oncologist is the only person who could offer you the best advice.

  • Mymom5101
    Mymom5101 Member Posts: 4
    edited June 2016
    Options

    Thank You Numb for replying.

    I think like you do about the possibility it will not come back.

    I really love and respect her oncologist. When we shared our concerns with him as to her continuing chemo, he talked about reducing the strength of the treatment due to his concerns about her age and health.

    I asked him point blank if reducing the potency of the chemo would achieve the same effect as full strength. Would it keep it from recurring like the full treatment. He was very honest and said even the strongest chemo has no guarantee that cancer won't return in breast or some other area of the body.

    I asked him another very hard question. Would it be likely that your body becomes so sick from chemo that it provides a better environment for cancer to grow. He said, we don't know going in how your cancer and your body will react. Every cancer is different. Every cancer reacts differently to chemo.

    He really is up front and honest. He wanted her to think about rads.

    In my mind it's a numbers game. The radiology oncologist said that they could reduce the odds of "local" recurrence to 10%. She just doesn't want to do it.


    Thank you so much for the support

  • Cathytoo
    Cathytoo Member Posts: 394
    edited June 2016
    Options

    Mymom5101...I am sorry that you are dealing with such a difficult decision concerning your mom. I had the same issues when my mother got cancer at 82. She decided that the quality of her life was more important than treating a cancer that may or may not spread. I was given a TN diagnosis last year. I was very hesitant to do chemo. Ultimately, I did six treatments and did very well. But, in the end, it's all a guessing game. I have friends who are 30 years past a very bad breastcancer diagnosis and are doing fine. And, I have two friends who had their breast cancer come back after 25 years. In the end, it's your mother who should make decision based upon the professional information and guidance she is given. I wish you both the best of luck and many more good years ahead for your mom.

  • Mymom5101
    Mymom5101 Member Posts: 4
    edited June 2016
    Options

    Cathytoo, thank you so much for the encouragement. I agree it is her choice and I support her decisions whatever they may be.

    I am trying to make sense out of all of it and it is quite overwhelming. I know if I am overwhelmed what she and other sufferers must be going through.

    I hate regrets and that is my only concern but I keep her in reality as much as I am able. Her oncologist has done the same by telling her the odds.

    Thank you again and best wishes to you

  • Mymom5101
    Mymom5101 Member Posts: 4
    edited June 2016
    Options

    Thank you so much for your reply. I wasn't sure I should be posting on this thread. I will definitely ck out the chemo pages and thank you

  • yodez75
    yodez75 Member Posts: 7
    edited June 2016
    Options

    Hi everyone,

    In August 2015 I had a diagnostic mammo and ultrasound for a self detected lump in my lower outer left breast. Everything came back normal and showed fibrocystic changes. Fast forward 10 months, I'm sitting in my chair 1 night and notice my breast is tender in the lower outer left side of my left breast. I checked and I found a firm, mobile, tender lump. I decided to watch it for a week until my period was done. It didn't change, so i made an appt with obgyn and the rest....

    I am 40 yrs old and was diagnosed on 6/6/16 with IDC, Grade 3, TN, Stage 2. My ki-67 is 95. I've been looking for others that have a high ki-67 and thought maybe I was the only 1 out here! I had a total left mastectomy on 6/21, negative lymph nodes. I'll find out in 2 weeks what my chemo plans are.

  • JanetCO
    JanetCO Member Posts: 11
    edited July 2016
    Options

    Hugs and prayers!

  • Deidre18
    Deidre18 Member Posts: 1
    edited July 2016
    Options

    After lumpectomy and SNB, I was diagnosed with TNBC, Grade 3, Stage IA, 4cm, 5 benign lymph nodes. I went to a local West Breast Cancer Center that specializes in breast cancer. However, the oncologist that my surgeon is sending me to has only been with this center a couple of years, moving from California to Tennessee. I'm worried because I'm not sure how much experience he has, since he graduated in 2008. I don't think he's board certified. I haven't been able to find much about him. know there are some excellent breast oncologists at this clinic, so don't know why she would send me to one so new. Her quote "I would send my own mother to him" doesn't sit too well with me. I tried calling the patient navigator, but got voice mail that stated she is no longer with the center and the alternate PN is on vacation through July 4th! I called my primary physician and now have an appointment with another oncologist with 30+ years of experience for a second opinion, but he is not associated with the West cancer center. He is in "family practice", so I'm not sure how much experience he has with TNBC. Am I just too anxious or should I be concerned? I feel like my time is running out.

  • moderators
    moderators Posts: 7,966
    edited July 2016
    Options

    Hi Deidre1 - We want to welcome you to our community here at BCO. We know you're scared and going through an uncertain time right now, but things will settle down once you have a treatment plan in place and a medical team you trust. In the main Breastcancer.org site you'll find an article about why and when to get a second opinion that may be of help to you.

    Best wishes! Please let us know how you're doing, we're thinking of you!

    The Mods

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 526
    edited July 2016
    Options

    Deidre, those are questions you should ask any prospective oncologist. How many patients do they treat a year, and how many of them are TN? I based my decision on that answer (the first one I interviewed only treated 5 TN cases a year). You're early stage and have had your surgery, so you're well on your way. Go where you feel good about going for treatment.

  • FredFights
    FredFights Member Posts: 3
    edited July 2016
    Options

    Hi -

    This is my first post, but I've been reading a lot since the Triple-Negative diagnosis came last week. I was diagnosed with Breast Cancer on 06/20/2016.

    I'm a 42-year-old wife and mother, and a pretty busy professional. Last year's mammogram was clean.

    Within the last couple of months I noticed a hard lump in my left breast. It was larger and painful. As many of you know, that usually is the sign of a cyst and most women are advised to watch the lump over a cycle or two, as hormones may alter the size.

    I did that. It didn't change.

    I called the general surgeon I had seen a long time ago for another issue and asked if he would be willing to look at it/aspirate it. He agreed with me. Just a cyst. Then, when he couldn't get fluid from it, the thought was a fibroid. I was due for my annual mammogram, but we decided to hold with the mammo until pathology could be done on the core sample he obtained.

    Pathology came back - infiltrating ductal cacinoma, grade 3.

    Follow-up imaging:

    On the mammogram in the left breast at the 4:00 position 5 cm from the nipple there is a 3.8 x 2.8 x 4.0 cm mass which is increased in density with interim development of diffuse thickening of the adjacent stromal elements. Evaluation of the left axilla demonstrates 2 lymph nodes which demonstrate eccentric thickening of the cortex measuring up to 8 mm. The lymph nodes do, however, maintain their normal fatty hila.

    Pathologic proven infiltrative ductal carcinoma of the left breast with what likely represents a hematoma just above and lateral to it secondary to recent breast biopsy. Given the recent biopsy in the diffuse prominence of the structural elements of the breast surrounding the mass as well as the abnormal axillary lymph nodes could be secondary to the biopsy and secondary hematoma although lymphatic spread of tumor is an alternative possibility.

    We scheduled surgery - a lumpectomy. Then path reports started bringing in more data and my surgeon reached out to the oncologists to see if surgery was the first option we still should follow.

    Hep2 was undetermined and then negative.

    Then, negative on the hormone receptors.

    I'm due to meet with the oncologist to determine genetic testing and chemotherapy this week.

    Although I've worked in healthcare/health insurance for 15+ years (not a medical professional, but a professional on the team), including directly with cancer center communications in the past, I'm at a loss as I figure out what this looks like as I move forward.

    As much as I am not eager for the many side-effects from treatment, I am in fight or flight mode and need to be doing something to begin killing this thing.

    Thank you for all of the stories here that make the statistics slightly less scary. I'm not certain what to expect.

    image

    (My son and I earlier this year.)


  • moderators
    moderators Posts: 7,966
    edited July 2016
    Options

    Hi FredFights and welcome to Breastcancer.org!

    We're sorry you have to be here, but really glad you found us. You're sure to find lots of support and encouragement in our amazing Community!

    Thank you for sharing your story and your photo -- it's always nice to put a face with a username. We understand everything seems overwhelming right now, but as you learn more about your diagnosis and treatment plan, we know you'll feel more confident that you will conquer this!

    Please don't be a stranger -- come back often, ask lots of questions, share in the support and we'll all be right here for you. We look forward to hearing more from you!

    --The Mods

  • alogsdon
    alogsdon Member Posts: 1
    edited July 2016
    Options

    Hello all

    In 2012 I was dx w/ DCIS in my left breast. It was caught as a change on my mammogram, boy did I feel lucky at the time. I opted for a Right mastectomy w/ reconstruction and implant. I started on tamoxifen Dec 2012. I have gone to all my f/u appts and mammograms. I was only getting a yearly mammogram, but was a little skeptical and even questioned why I wasn't getting checked every 3 months ( I also had very dense breast). So with a hx of breast cancer and dense breast - the standard recommendation was yearly mammograms. At the time of discussion with breast surgeon, I wanted to get a dble mastectomy, as I didn't want to leave any doubt or chance of coming back. My breast surgery told my it was not necessary as my DCIS was not invasive and I had the gene testing done - BRAC1/2 were negative. I was the 7 female on my fathers side to be diagnosed with breast cancer. Jump to June 30 2016, I found a lump in my left breast. I discovered while lying in bed. I did do my self breast exams in the shower quite often, but this could not be felt while I was standing. The next morning July 1, I call my breast surgeon to get an appt that day. No appts available until Tues 7/5. I see breast dr, she does exam while I'm sitting up and I informed her you could not feel while sitting up, needed to lye down. She stated she was going to do exam both ways. She felt lump when I was lying down, sent for immediate mammogram and ultrasound. Immediately after mammogram, Radiologist came in and said they are going to go ahead and do an ultrasound biopsy. I knew then what it was. I knew every time she clicked her computer, she was measuring something and I knew it was normal. I asked the radiologist how my lymph nodes looked and he said something like 1 axillary node is nondescriptive - probably meaning it will be positive. I had to wait until 7/8 to get my results, which came back invasive ductal carcinoma. The receptor test was not back yet. I finally received a call on 7/11 at 5pm with the results that I was triple negative. Very devastating news. I have seen a new oncologist on 7/13 and I'm seeking a 2nd opinion from another on 7/18. The plan at this point is chemo first - 4 rounds of AC, followed by 12 rounds of Taxel every 2weeks. Surgery - mastectomy followed by radiation. I believe I am stage 2 grade 3 triple negative... I would really like to hear some positive stories as I'm really having a hard time dealing with this news....

  • moderators
    moderators Posts: 7,966
    edited July 2016
    Options

    Hi alogsdon, and welcome to Breastcancer.org!

    We're sorry to hear your story, but really glad you found us. You're sure to find great support here!

    You may want to check out and post in the inspirational threads here in the Triple Negative forum:

    For some positive stories from others who have been where you are and are thriving today!

    There's also a great discussion and a blog to read on the thread Breastcancer.org Blog: You CAN Survive Triple Negative Breast Cancer.

    As well. you may want to join the Anyone Starting Chemo July 2016 thread, to meet others going through chemo at the same time as you. It's a great support system!

    We hope this helps! Please keep us posted with how you're doing; we look forward to hearing more from you!

    --The Mods

  • kcan
    kcan Member Posts: 19
    edited July 2016
    Options

    Hello all!

    My mom was diagnosed with IDC june 8th 2016, she is 59, right around the corner from her 60th birthday. She had a lumpectomy and the sentinal lymph node removal. We just found out today that her cancer is triple negative with lymph node involvement, I believe the size of the cancer in the lymph node itself is 4mm. I apologize for my lack of details, we are still trying to put all the pieces together. Our next step is a bone scan to check for possible metastasis. If there is no sign of metastasis she will have the auxiliary lymph node removal followed by chemo and rads...Am I getting bigger or is the room getting smaller?? My mom is my best friend.This feels like a whole new ballgame. Going through the pathology report is like trying to read a map without a legend, thank goodness for google!

    so thankful there is a great support system here with plenty of information and knowledgeable/kind/open people. I agree with alogsdon...positive stories/ experiences would be greatly appreciated, because this sucks.

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 526
    edited July 2016
    Options

    Kcan, 4mm is pretty small, but sorry about the nodes. Hope the bone scan is negative. Feel free to join any of the other boards (like the TN one) for more support and answers.

    Alogsdon, I'm stage 2a, grade 3 also. I had the same chemo treatment you are facing. So glad to be done with that. Just take things one step at a time.

  • moderators
    moderators Posts: 7,966
    edited July 2016
    Options

    Hello Kcan, and welcome! We're sorry for your mom's diagnosis, but glad you decided to join us!

    We understand how you're feeling. The first days and weeks after diagnosis are filled with questions, and all kinds of emotions, but we're sure you'll find great support here to help deal with it all, and maybe your mom too!

    In the following sections of our main site you can read more about your mom's diagnosis and about what the pathology report is likely to include and what the information means:


    We hope this helps! Good luck with bone scan, please let everybody know here how it goes!

    The Mods

  • Lovebird65
    Lovebird65 Member Posts: 2
    edited July 2016
    Options

    My story began in November 2011 when I was diagnosed with Right breast DCIS, ER-, PR+ AND HER2NU negative. I underwent two lumpectomies a week apart as the margins were too close followed by 26 radiation treatments. Because it was such a tiny cancer and the only other cancer in the family was my mom at age 80 who had a simple mastectomy, gene testing was not recommended and would not have been paid for by insurance. I would be 5 years cancer free this December.

    But May 2, 2016, two days after my mother died peacefully at my house I found a lump in my left breast. Off to radiology with bilateral mammograms and then bilateral sonograms right away. I knew it was cancer due to the unbelievable stress during the 5 years. Sure enough, triple negative. Before I left to see my daughter for 10 days I had an MRI and PET CT scan with tracer to look for mets. The good news was no mets found. I went off for my daughter visit for 10 days.

    The day after I returned I had a power port put in on Monday and started 12 weeks of chemo on Thursday, June 22nd with carboplatin and Taxol. The first two chemos were without side effects. After #2 my hair started falling out in clumps so I had my head shaved. It is so much cooler not having hair here in the Arizona summer. I don't miss it at all; wear hats in cold air conditioning and nothing other times. No one stares anymore and I cannot believe how many people are touched by breast cancer.

    After week 4 genetic testing came back positive for ATM gene mutation, so it's genetic. Now I have to see a genetic counselor and I had to tell my daughter as well as my nieces and nephews to be tested. There is a 2- to 4-fold increase in breast cancer and also pancreas cancer so my nephews need testing as well. My mom and dad are deceased and one brother as well, so it is not possible to determine the source, paternal or maternal.

    My white count fell dramatically after week 3 and I had to get shots, Zarxio, to build up my bone marrow (they usually come in sets of 3). My counts came back up quickly. The only side effects for me were diarrhea and lots of bone pain. I have fibromyalgia so the shots aggravate the fibro pain. I look at it as a good pain because it means my marrow is working hard. Unfortunately, the counts fall after every chemo. I was down in the critical zone last week with a white count of 1.6 and only 0.5 of neutrophils, so got two more shots.

    This will be week 6 of chemo with Taxol and carboplatin with 6 to go. Then I have 2 cycles of Adriamycin and Cytoxan every other week. After I recover from that they are talking about bilateral mastectomy with sentinel lymph node biopsy on the left, since I already had it on the right and was negative.

    There are many questions I want answers to from the genetic counselor and studies to date of survival rates for those with my particular circumstances. I am 65 years old. They say 5-year survival is great but recurrence seems pretty high from what I've researched so far. Don't know what my final decision will be but I am not going down without getting some of my bucket list items checked off. I transcribed for 30 years, lots of NIH clinical trials, Mayo clinical trials and TGEN trials so I have a higher knowledge base than some. Will try and post weekly, and so far hanging in there. But I am going to take some time to do things if I only have 5-7 years old; 72 is fine with me, but only God knows.

  • kathseward
    kathseward Member Posts: 377
    edited July 2016
    Options

    Hi Ive just been diagnosed as a triple neg on 6th July and it has rocked my world! A routine mammogram picked up a non palpable lump at 11mm (stage 2) and it was completely excised with good margins and the other breast clear. I had a sentinel node biopsy where two were removed and they were both clear. I'm currently awaiting chemo and radio. I have been told by my oncologist that I have a 90 % chance of it not re occurring so I should be thanking my lucky stars. Instead its like I'm paralysed with fear and I can get the info about poor prognosis for this type of disease out of my head. I'm making my family's life a misery and I hate it! How do I get my head around this and learn to live with the fear? I also would like info on PARP inhibitors so I can talk to my oncologist about using them as well but I don't know where to look

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 526
    edited July 2016
    Options

    Here is a short article on PARP inhibitors: http://www.breastcancer.org/symptoms/diagnosis/trip_neg/new_research

  • Truvy_Annelle
    Truvy_Annelle Member Posts: 3
    edited August 2016
    Options

    Hi, Rhiannon. I hope by now you've gotten whatever it takes to give you peace of mind. I am going through a similar experience. I had a small troublesome area on my PET-CT in May of this year. It was/is in an area where I'd had mets before. My oncologist suggested going to a major medical center for a second opinion. He expected me to go in about three weeks.

    Long story short, it took two months and I am just now getting my consult notes from the second doctor. I am not sure I've learned much yet. It is now time for another PET-CT. So, I have basically waited 3 months anyway.

    Much of the delay was due to my local providers' slow response to medical record requests. That part was very stressful for me.

    So, what would I say to someone considering a second opinion? If you can get something done quickly or have easier access to a major cancer center, I would say go for it. If not, certainly another set of eyes could not hurt and it would at least help you feel like you've done everything you can do.

    All the best to you.

  • iwillbeatthis
    iwillbeatthis Member Posts: 1
    edited August 2016
    Options

    Hello everyone. I was just recently diagnosed with Triple Negative Breast Cancer and I feel like my world has just been turned upside down. Breast cancer has been my biggest fear. My mom died from breast cancer when I was 19 years old and here I am at 32 with a 2 year old son and I am terrified I will face the same fate as my mother. I am hoping to hear from other women going through this and survivors who have been through this to give me hope during the times I can't seem to find it.

    A little about myself. I was going through fertility treatments to try for a second child when I noticed I had a very sharp pain in the top of my breast on July 10, 2016. I felt that area and felt a very large, hard, flat lump. Immediately, deep inside I knew this was cancer, but tried to reason with myself that it was probably due to the hormones I had been using. I called my OB the very next day and was seen by them. They felt it was a fibroadenoma because it was so large, but ordered a diagnostic mammogram and ultrasound because of my family history and also referred me to a breast surgeon. I live in a small community, and the radiologist at my local hospital told me that it was just a dense cluster of tissue and to come back in 3 months. The breast surgeon recommended I get a 3D mammogram because my breasts are so dense. So I went to a different hospital for the 3D testing. While I was there, they repeated my ultrasound on that breast and also looked in my armpit as well. I was then told I had a "messy" looking lymph node under that arm and I needed to have an MRI. My MRI was not read for a week (how absolutely frustrating!) and then I was told I needed a biopsy. Flash forward 1 week, I am on a family vacation at the beach and I get the call that I have breast cancer (IDC). I knew it was cancer and I tried to prepare myself for the news, but nothing could have prepared me for it. It was the single most awful day of my life.

    I decided to get treated at a larger hospital in a city about an hour from me. They enrolled me in a comprehensive breast cancer program there where I met with a surgical oncologist, medical oncologist, and genetic counselor. During those appointments I found out that I have Triple Negative Breast Cancer ( so shocked it was hormone positive due to it being found while I was taking hormones), it's a 8 cm mass (was told initially it was 3 cm), and it appears to be in more than just one lymph node under my arm, and its proliferation rate is 98%. Stage 3a is what I am believed to be staged at now. I felt like I was handed a death sentence. It was a dark day full of lots of tears and questions.

    I will start chemo next week. 4 rounds of A/C then 12 weeks of taxol. Hoping I have a great response since my cancer is so fast growing.

    A few days out from this, I am in a better place. I am staying positive. I will beat this, I will live to see my son grow up. I will not leave my husband alone to raise him. I am surrounding myself with good people who love me and will keep me strong. But I need to hear stories of other people who have met this awful fate like me and are survivors and can give me strength, so please share!

  • moderators
    moderators Posts: 7,966
    edited August 2016
    Options

    Dearest IWillBeatThis,

    First, welcome to the place no one wants to be. We're sorry you have to be here, but we are really glad you found us. We just know you'll find the information, support, and inspiration you need here!

    There's some wonderful threads here that will surely uplift you:

    We hope this helps! We're all here for you -- don't be a stranger. Stop by often, ask lots of questions, and we'll all be here to support you through this.

    Looking forward to hearing more from you!

    --The Mods

  • ShaunaW
    ShaunaW Member Posts: 2
    edited October 2016
    Options

    I am still pretty new to this, and depressed by my research. I was diagnosed in May with TNBC in right breast. I went halfway through chemo, and am having mastectomy in a few weeks with no reconstruction. I was just contacted by the ACS Outreach member who is a TNBC survivor. It scared me even more. Everything I read about has happened to her, even her kids are positive for BRCA genes. I haven't told my family how bad my type of cancer is, since I don't live close to any of them. Wondering if it's even worth fighting now. I have over 10 illnesses and conditions that have disabled me since 1995. That's why I couldn't continue with the taxotere in chemo, it accelerated my neuropathy, and I don't want to lose my sense of touch. I also don't want this thing to metastacize and harm me. Don't know what to expect after surgery as we don't know how many lymph nodes are impacted. I may go from stage II to stage III instantly. Guess this isn't the type of story you want, I am not able to encourage anyone else while feeling so doomed myself. I'll understand if you don't want to post this.

  • ShaunaW
    ShaunaW Member Posts: 2
    edited October 2016
    Options

    Dear "IWillBeatThis": I had a tumor that was large as a lemon, and painful. I thought it was a pulled muscle, but I think it was just attached to a muscle. It took 7 weeks to get into chemotherapy, with docetaxel (Taxotere) and cytoxan. After the first treatment the pain stopped. After 3 treatments the tumor had shrunk to the size of a peanut. It seems everyone has a different experience with chemo, just do what works for you. I have a "magic" puke bucket that I got ahead of time at the 99cent store. As long as it's within reach when I get nauseous I don't throw up. If the bucket is in a different room, I gotta go worship at the porceline god. Like I said, whatever works for you. I wish you well!

  • 2016Aug
    2016Aug Member Posts: 1
    edited November 2016
    Options

    diagnosed end Aug w TNBC-lumpectomy end Sept -port in end Oct-1st chemo treatment end Nov-actually tomorrow-scared read so much info on line -confused. 1st thought tumor removed not in 2 lymph nodes why put poison in body I should be cancer free..right? Evidently nice thought but incorrect so biting the bullet & doing chemo & radiation & believing 'if God brings me to it-He will bring me thru it. Amazed at # of people I connect with thru business, I sell then build S/W, D/W & Modular homes for people for a Nat'l Co in NC, know someone w BC. So scarey as have been so Blessed not to need or take any meds for my 64 yrs & now hear will Have to have them for rest of life-got herbal book with claims of some smoothies boosting blood count so as not to go low. Vit D bit low & put on 50,000IU 1 a wk for 4 wks. Then Dr sd continue to take D over counter brand. Any tips on Natural ways to stay healthy?