January 2017 Surgery Group
Comments
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These are a couple I took tonight.
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Love the pictures of your 4 legged babies Cowboy-up. I know my dogs are my everything
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Love the pictures of your 4 legged babies Cowboy-up. I know my dogs are my everything
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what a beautiful horse. So happy for you Cowboyup. It must have been so wonderful to see them .
Good luck to everyone waiting for their next phases . It is frustrating not to have clear pic of the next step.
Welcome new girls
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so gorgeous (all 3 of you!!) thank you!! my dream is to have a farm with lots of animals - horses, goats, pigs, hedgehogs, turtles, and dogs dogs dogs! this whole dx makes me think 'what am I waiting for?' so maybe ill get on that sooner rather than later!!
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Hi Girls - it has been a long time since I typed a response but I have been keeping up on all of you!
3bears, i wanted particularly to respond to you. I had two lumpectomies in Dec (2nd to clear the nodes and put in a port) I had 1/3 nodes affected....so I just had my 2nd chemo last Friday. I am in a wonderful FB chemo page that is so full of info and help, let me know if you want in on it and I will give you the leaders name.... but really, these days chemo is not that bad... yes, you will probably lose your hair, and your energy will be a little less some days, but really there is not much sickness at all and you will feel strong and in control....so if the dr suggests it, go for it, it isn't bad and you will be so happy to kick cancers butt out even more...
I'm so proud of the rest of you, with all your stories, encouragement and support for each other..... this truly is a place to laugh and cry together!
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So I'm about 10 hours post-op and yeah, feeling like a truck ran over me. Just got more meds, hopefully they kick. Suprised by how much my arms hurt...didnt expect that.
Got a peek at the reconstruction and so far so good. Doc did well by me and I'm relieved. Right side basically looks the same, will have to wait and see in the left. Happy with my choice to do natural reconstruction even with the longer surgery.
Curious how everyone else is doing???
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3bears, I had 6 cycles of TCHP every 3 weeks before my BMX. My last chemo was 3 weeks before my surgery. I scheduled my treatments on Fridays so that I would have the weekends to recover, but someone on the September chemo page had a better idea - chemo on Thursday because you really don't start to feel the effects until day 2 or 3. That way if you're working, you can miss Thursday, work Friday and have the rest of the weekend to recover. I was able to work during chemo but with a bit of a reduced schedule (6 to 7 hours a day rather than 8). You can do this. It can suck some days and depending on what kind of chemo you get your hair will fall out. There are cooling caps that can help minimize hair loss you should look into it. Accept all offers of help - meals cooked, cleaning, etc. You will be surprised by the outpouring of support and prayers.
Finally, the 3 months really do fly by. BeachbabyK and I still have to complete one year of the Herceptin infusions every three weeks to complete the year of chemo as we are both HER2 positive. This too will fly by, I'm sure. My hair is growing back now. I'm using Rogaine and it seems to get longer overnight!!
A little eye candy to start your day!
Angie
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Love the eye candy Docmama!
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Cowboyup! You have beautiful horses! I'm in a rush this morning I deliver Meals on Wheels on Wednesday and Thursday ( same route for 11 years now) I love my people they are my therapy...back later...love to the tough girls crew!
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Hey Shuga Dumplins!
I strongly agree with Pugsmama. When I went in for my initial BMX the anesthesiologist didnt give me much anti nausea meds, which I was fine after surgery just a lil nautious when I got up to pee the 1st night after sugery. Now when I went into surgery a 2nd time (for margins) I had a diff anesthesiologist and told her I get nauseated sista girl hooked me up, I woke up and was good!
So before you go under, TELL THEM, SPEAK UP its your body and you want the best comfort after surgery!!!
"Tell your storm how big your GOD is!"
*givin shuga*
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Oh my gosh!! All your words of love and support and encouragement made me cry!
AnnoyingBoob-Thank you for saying that you all love me. I always hope that there is a kindness inside of me that shows through to others. The picture of the bears is so cute! I ❤them.
Fightingirl -- you are good with love and support too, I know I can always count on you.
PugsMama -- you're right. Chemo begins and chemo ends. Praise God! I'm looking forward to the end and I haven't even started yet.
Cowboyup-- I hope you won't need chemo but if you do, I'll be here with advice and support for you.
BeachBabyK- thank you for your advice and help. You are our chemo pioneer as PugsMama says.
Thank you RoseRN1, Bevmomduck,GT1965.
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Docmama-- Thank you too! The eye candy was funny! Sometimes I don't see all the posts until I come back on. Yes you are experienced in this. Unfortunately. But you do a great job of helping us newbies out. It's good to know what to expect. It takes some of the fear away. And this is very scary.
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Got an appt . With RO today . Not quite sure what to expect . I get real nervous during each phase . I am taking the hubs for support and an extra set of ears.
I always get a stomach ache before entering new territory! I think its due to my mental state of anxiety! But you ladies are so much stronger and I admire that so much . I come here and instant relief ! You rock this cancer thing.
Been on a couple of other boards and none compare to this one! Lucky.. hell to the yes!
Have a beautiful day everyone of you amazing mamas ! 💗💗💗🌸
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Hi everyone - so good to see so many positive reports - and he horses == What beauties. I'm dong just ok. Was discharged yesterday afternoon. i am having a hard time focusing ant typing so this will be short Taking Percocet and a muscle relaxer. My mom is taking care of me. Very sore throat sore and extremely tired.
I'll catch up later. Thanks for the cabanas - they were my final thoughts as I want under.
Gentle (non foob touching) hugs to all
Pathology tomorrow or fFrdiy Chemo likely due to positive nodes,
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3bears - I just went back to the report from my cyst aspiration biopsy and it says nuclear grade 3. Is that the same as your grade 3? Now I'm wondering if even after total bmx that means I'll need chemo, too? And the size is 9x6x8 mm. Now I'm thinking back to my primary care and oncology surgeon referring to my 'treatment' as opposed to just 'surgery'. But oncologist said BMX and done! Ack!
I suppose we can only absorb so much at a time....of course nothing will be real until after Feb 16 for me
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Elem- It's always good to take someone with you! Glad Hubby is going! I always got my stomach a bit twisted in anticipation of the news. Just remember no matter what the news is, there are plenty of us here that understand and will help you through it!
Shelleybeans - Rest & recover! And give Mom a big hug!
Bevmomduck - We opened up a "Waiting Cabana" It has all of the ammenties and a full bar!
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Shellybeans, I'm in the same boat as you. I'm waiting on the final pathology report this Friday. I'm assuming radation, and chemo. I'm anxiously waiting. But I think I'm ready to hit this hard and heavy. We will do this!
My throat was very sore for 4 days. Rest, rest, and rest. Elevate your node arm with pillow, this helps.
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Shelleybeans: good to hear from you. Was wondering About your path report...rest up! Don't know yet if I'll be having chemo but a few of the gals just found out they are also & we've got docmama & BeachBabyK blazing the way...& bccpa just started her treatment. We'll all be here to support you!
Cowboy-up: thanks for posting pics of your horses. They're beautiful...I love seeing everyone's fur-babies!
Elem: good luck at your appt. just think, when radiation is over, you'll be DONE! Whoo hoo!
I'll be in the waiting cabana if anyone's looking for me lol!
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Well guys, I just got back from physical therapy and indeed I do have cording. They are concerned about development of lymphadema because my left arm is bigger than my right arm (only by a cm, so they will be keeping an eye on that) I will be a busy girl with doctors. 3 times a week for PT and somehow work that around my radiation treatments twice a day the next couple weeks. I know this is not the worst thing in the world and it will get worked out but I just cried when I left. She said "for the rest of your life, you will need to wear a compression sleeve when you fly, for the rest of your life nobody can take blood from that arm, give you a shot, or take blood pressure from that arm." My head says this isn't a big deal but as always when I leave a doctor office with all this info it gets me emotional. So many changes and decisions for the rest of my life. I have a full time job too...I just don't know how to keep all the balls in the air these days. Sorry guys...I'm having a mini-meltdown
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Fightingirl, breaks my heart what you said, "for the rest of your life". I hear you, and I'm with you.
We all need to keep the faith.
Love
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fightingirl: you're entitled to a mini-meltdown! This cancer BS sucks!! Giving you a big virtual hug...we'll get through this like everything else, one day at a time, together...
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Fightingirl - Your post made me want to cry! The only thing I ever want to hear from a Dr with the words "for the rest of your life" is "I never need to see you again". This damn disease! So many people believe it to be a temporary thing; have surgery, maybe chemo & radiation and then you are done! Boom! Get over it. Never realizing that for the rest of your life, in the back of your mind, you will worry. Every pain, every check up, not only for yourself, but for your children, your sister, etc.
We get it!
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Lisabekind:
Thanks for the shout-out. You're close by - I'm in Charlotte.
Get the 2nd opinion. It's a good feeling to have more information, at least it was for me. And my path. changed! Not to mention the missed spot of indeterminate nature on the MRI (which pushed me into at last UMX land). 0 -
fightingirl, I hope the pt really helps the cording. Even though it's for the rest of your life, here's hoping there are things you CAN do to improve the pain and cording. I wish we had encouraged you to see someone sooner, although not sure it would have made a difference. Sending loving thoughts and a big right arm hug your way!!
I'm in the ro waiting room, literally, and I love reading this thread to get my mind off myself.
All my best wishes to all you lovelies!! Group hug!!!!
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Thanks Beachbabyk and Pugsmama you are always so encouraging and upbeatvin the face of all these crazy dilemmas we go through.
Fightingirl , my heart broke to hear those words and although probably not that bad in reality , its just losing everything we know as normal and take for granted that hits so hard on an emotional level! Mini meltdowns are necessary and healthy during this whirlwind of conflict in our lives. I am right there with you . Ibfeel so tired even though I have not yet received any treatment! It is a mental drain!
Love you all .. i am down for a nap!
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Fightengirl, I hope the physical therapy helps and you do not have lymphodema.
I'm having a bit of a pity party today too. First, I had to go to the orthodontist. It isn't bad enough to be the 46 year old in braces but to be the 46 year old who they ask a trillion questions about my cancer. I know they mean well but I know when I go, I can't escape it. Add to that my daughter has a bad tire and needs all new tires and then some service lights came on in my truck for some stability things. Don't need this with all the medical bills. I might just need to have a glass of wine tonight. Anyone not on pain meds want one join me
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cowboy-up: I'm in!
elem & a-boob: how did your RO appts. go?
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Cowboy-up...toooooo funny!! I'm 43 in braces and my next appt today at 4pm my time is the good ole orthodontist who I see every 3 weeks! I'm so in for the glass of wine...bought a giant bottle at Costco yesterday.
Thank you all for the love and support...I will be okay and reading your words helped so much. I know we are all going to have our trials and our celebrations together and I'm so lucky to have you all to share them with. Yes, all the changes since dx and now knowing so much is for the rest of your life is exactly what got to me. I knew I would never be the same person in many ways but I hope that would be more in the "life" way...live it better, enjoy the small things more, be more present, love harder...you know that kind of warm and fuzzy stuff...No way around it for any of us...we must go through.
Annoyingboob, you are sweet but it probably wouldn't have made a difference...I had that seroma in my armpit and I really thought that's what was causing the pain so it was just one of those things that I woke up Saturday AM and I just knew something was different...I could not move my arm the same way I could just the day before. It seemed to happen that fast. For sure going forward if any ladies think something is up we will tell them to go get it looked at. The therapists did tell me, I should have seen you like yesterday!
Love you all so much!!!
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Good evening,
Received my path report not the best margin clear but 6/15 nodes positive. Therefore radiation a must. Had visit with the PS, 2 of three drains still in and some filling in my TE today. Now lots of pain on my left side
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