January 2017 Surgery Group
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BEAUTIFUL sketches!
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Good luck Sarovzky! Hope it goes as smooth as mine went
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Annoyingboob, I still need to have Herceptin infusions every 3 weeks until September. I know it's not that long, but I really can't wait to have my port and tissue expanders removed so that everything can go back to some semblance of normalcy!
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oh, that is a long haul, im sorry. talk about frustrating, but you have such a good attitude and happy aura, about you. baby steps - September will zoom up on you in the blink of an eye, then you will be turning heads right and left when you walk down the street with catcalls and the works!! who is that hot mama!!we will have a big party for you in sept to celebrate everything you accomplished!!
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I have no drains! I don't have to wear my camisole anymore! I can wear something I can put over my head and not have buttons! I can actually take a shower tonight! I can drive! It is a beautiful day ladies :-)
Congrats to everyone who got great news today. And continued prayers for those who had surgery today. Ithas been a very long month for us all!
I met with my plastic surgeon and my breast surgeon today. Had a referral for a medical oncologist and a radiation oncologist, and a naturopath oncologist. Looks like I will be busy with appointments for the forseeable future! But I don't care because I don't have drains now
And oh my gosh you guys. Today the plastic surgeons office they wanted to know if I want the extended warranty on my foobs. I seriously started laughing. Like what does that cover - blowouts? Is this discount tire or a plastic surgeon's office? This is now part of my life - extended warranties on foobs. Wow. You can't make this stuff up.
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yay!!! look at how happy you are - congratulations!!!! you earned this new freedom!!!
ps - loving the tile backsplash!!
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DCISinAZ, awesome!!! I'm soooo looking forward to a shower. You look great!
A lot of great results today, keep them coming!
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DCISinAZ- you look so happy! You had a big day! Draims removed, you can drive and take a shower! Enjoy your evening!
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Congrats DcisinAZ. You look FABULOUS!
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congrats to everyone today! So much good news! I'm still awaiting pathology report, but genetic testing came back negative! So I'm keeping the boobs for now 👍 We too had to cancel major plans because of all of this. Three days before we were hitting the road for a month long RV trip, I got my dx. But all we can do is roll with the punches. And my hubs and I try to keep our sense of humor about it. The other night he busted out with "we could be in warm AZ right now" and I replied "but noooo, I had to go and get breast cancer " and yes we both laughed hysterically. It's the little things. (Or we are just crazy and manic, who knows
Dcisinaz, you look beautiful! fabulous foobs! And what an amazing kitchen!
Vargadoll, I love that "my boobs are fake" pic!
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Great news.. you look fabulous. I bet you feel liberated beyond belief! It's been a long road and tough month, but we have arrived are justcwaiting for everyone to retreat to the cabanas for a huge celebration . 😆💗💪🏻
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I hear you ladies on the postponing of Vacations and such! I was diagnosed just after our 25th anniversary and the cruise we were planning got postponed indefinitely! Once I get through the radiation portion of my treatment, I guess I'll be able to think about planning it again. Or maybe we'll wait until Sept after I finish the Herceptin to celebrate having my port removed! Thinking of a quick Vegas trip soon though as a mental break!
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How do I join the group officially?
And please ask for advice/help if it's okay. My surgery date is set for 2/27.
Went for 2nd opinion at MD Anderson last week (I have to now really support getting 2nd O's, folks) and my path. was reread as IDC instead of ILC -- with the bonus of LCIS added to the mix in some small way. Also, MDA reread my MRI and noticed another small area of concern (7mm estimated), same breast. 10/11 o'clock vs. noon for original. However, after 2 rounds of ultrasounds with my fav. MDA tech and radiologist, they could find nada on the other spot. Not seen on 2nd set of very comprehensive mammos at MDA, either. Got a call from the BS nurse who said pretty much: we can do an MRI-guided biopsy to figure this out or you can mast. that breast in 3 weeks. I was like: thanks for making that decision easier: MX. Lump was not rec'd because of my small breasts anyway. See ya'.
So -- I'm really agonizing over trying to decide between MX or BMX. Planning reconstruction either way. Nipple/skin-sparing approved. I wanted direct-to-implant, which two PS's have not advised: they said they cannot go much bigger than my current AA/A, but the MDA PS said she would do it if I really wanted to try. On operating table may have to change plan due to circulation issues. And out of this, I may as well have a little bigger boob (small B great). I really want the MX so I can heal faster and have some mobility on one side. And to balance out the TE bullsh*t. I'm not afraid of another surgery down the road for other side. Which I may be after going through it once.
My question: has anyone done MX and waited on path. and just taken time to figure this all out then gone other breast later? Maybe yr/two? Does insurance (I have good private) cover then? I know about symetrics argument for all. I may do implant on "good" side when exchange surgery occurs. That was also discussed. Too many f-ing options!!! I have family history (BRCA neg though) and have genetics in motion as we speak -- which could make the argument.
Thanks for help.
Any advice appreciated.
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Alright tomorrow is the big day for me. 8:45 call time. Feeling realitively calm right now and hopefully that lasts and I can get a good nights sleep. I made sure I Had a great weekend, a fun girls night with some of my closest friends and some quality time with family. Spends lots of time today snuggling and holding my 10 months old niece since I won't be able to pick her up for a few weeks. Praying for a smooth surgery and looking forward to getting this cancer out of my body! Eviction notice has been sent...time for it to go
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lraystar, get some sleep, you have an eviction tomorrow! Good for you, tell 'em not to let the door hit them in the butt on the way out.
sarovsky hi and good luck!
dani, glad for your genetic results and dcbc and elem yay good news!
lasstra, you're an awesome artist!
dcisinaz, you look great. "Blowouts" made me laugh! And arg, how did you get the shirt over your head??? Totally jealous of your flexible arm status.
Welcome eastcoast, I haven't got any great advice to you. I was like, "off with their heads", and that was it. But everybody is different and you'll get lots of good perspective here.
elem I love to see you here and feeling better than before.
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Thank you Jinmo.
I too am happy to be less stressed and borderline depressing. I think the anxiety of it all really takes a toll on our entire life . Turning our whole world upside down . I believe this has been the hardest month and a half of my life.
I am very happy to see so many with good news today . DCISinAz wow you look great!
Good luck mombytheriver ,abjclan and iraystar. Tomorrow you ladies will rock the OR and we'll be waiting for you and cheering you on .
Hope all went well for goingon75 , vicwytch and Shellybeans.
I am going to get a good nights sleep and without worrying about tomorrow for ,"the first time in forever," .. like that disney song from Frozen !
Love to you all and WELCOME new girls . So happy you found this wonderful support group . They are #1.
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Aww! Thank you Elem!
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Okay ladies,
Can someone please refer me to a page where it has ALL the medical acronyms. I feel so lost when Im reading posts and come across 2 letter words (ex. BMX/MX or BS/MS) and Im like "huh" Somebody help! I need to be educated. Thanks
*giving shuga*
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try this -
https://community.breastcancer.org/forum/131/topic...
mx - mastectomy
bmx - bilateral mastectomy
bs - breast surgeon
ro, mo - radiation oncologist and medical oncologist
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not sure if link working, so I'm just cutting and pasting here - sorry so long:
Topic: Discussion Board Abbreviation Key
Forum: Info & Resources for New Patients & Members - Please No Posts! —New Members, start here first for How-to Tips, Community Rules, and What to Do if You've Just Been Diagnosed. MODS and ADMINS only topics here. Please see all the other forums below to post. Thanks.
Posted on: Aug 26, 2011 09:56AM - edited Apr 21, 2015 08:29PM by Moderators
Joined: Sep 2007Posts: 16,635Moderators wrote:
This is a culmination of submissions of abbreviations seen throughout the boards, with links to further information on the main Breastcancer.org site. Thanks to all the members who have contributed; please PM the Mods with any additions and we'll add them to the list. Hope this helps and happy posting!
Abbreviations below are for informational purposes only as taken from posts or submitted by your fellow sisters and brothers. Your medical team is the final authority on any and all information contained in your personal medical records.
AC - doxorubicin (brand name: Adriamycin) and cyclophosphamide (brand name: Cytoxan), a common chemotherapy combination. There are more common chemotherapy combinations listed on the main Breastcancer.org site.
AI - aromatase inhibitors
ADH - atypical ductal hyperplasia
AKA - also known as
ALH - atypical lobular hyperplasia
ALND/AND - axillary lymph node dissection/axillary node dissection
APBI - Accelerated Partial Breast Irradiation
AWS - Axillary Web Syndrome
B9 - benign
BART - BRAC Analysis Rearrengement Test
BC - breast cancer
Bi-Lat - bilateral (eg. bilateral mastectomy is the removal of both breasts)
BIRADS - Breast Imaging Reporting and Data System score
BM or BMX - bilateral mastectomy
BS - breast specialist/surgeon
BTW - by the way
Bump - written to bubble a thread up in the forum
BWT - but what the ____!
C. diff - Clostridium difficile, often called C. difficile or C. diff, is a bacterium that can cause symptoms ranging from diarrhea to life-threatening inflammation of the colon.
CC - capsular contraction
CEA - Carcinoembryonic Antigen
CHF - congestive heart failure
CMF - cyclophosphamide (brand name: Cytoxan), methotrexate (brand names: Amethopterin, Mexate, Folex), fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil), a common chemotherapy combination. There are more common chemotherapy
combinations listed on the main Breastcancer.org site.CT scan - computerized tornography scan
DCIS - ductal carcinoma in situ
DD - dose dense, or dear daughter
DH - dear husband
DIEP - deep inferior epigastric perforator flap breast reconstruction
DIL - daughter-in-law
DP - dear partner
DS - dear son
Dx - diagnosis
DW - dear wife
ER+/- - estrogen receptor positive (+) or negative (-)
FEC - fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil), epirubicin
(brand name: Ellence), cyclophosphamide (brand name: Cytoxan), a common chemotherapy combination. There are more common chemotherapy combinations listed on the main Breastcancer.org site.FG - Fat Graft
FIL - father-in-law
FNA - fine needle aspiration
FWIW - for what it's worth
GCM - Glucosamine Chondroitin with MSM (for joint pain relief)
HER2 +/ - - human epidermal growth factor receptor 2 positive (+) or negative (-). Read more on HER2 status.
HT - hormonal therapy
HRT - hormone replacement
therapyHx - history
IBC - inflammatory breast cancer
IDC - invasive ductal carcinoma
IDK - I don't know
IGAP - Flap Inferior Gluteal Artery Perforator Flap
ILC - invasive lobular carcinoma
IMF - infra-mammary fold (the crease/fold under the breast)
IMHO - in my humble opinion
IMO - in my opinion
IORT - intraoperative radiation therapy
KWIM - know what I mean
LAVH - laparoscropic assisted vaginal hysterectomy
LCIS - lobular carcinoma in situ
LD flap - latissimus dorsi flap breast reconstruction
LE - lymphedema
Lump - lumpectomy
Lt - left
LVI - lymphatic/vascular invasion
Mast - mastectomy
Med Onc - medical oncologist
Mets - metastasis
MIL - mother-in-law
MLD - manual lymph drainage
MO - medical oncologist
Mojo - sex, or lack of; libido
MPBC - metaplastic breast cancer
MRA - Magnetic Resonance Angiogram
MRI - Magnetic Resonance Imaging
MRSA - Methicillin-resistant Staphylococcus aureus infection
MX - mastectomy
NAC - nipple-areolar complex, a term used in nipple-sparing surgery
NB - Navelbine (chemical name: vinorelbine)
NED - no evidence of disease
NP - nurse practitioner
NSM - nipple-sparing mastectomy
ODAAT - one day at a time
ONC - oncologist
Ooph - oophorectomy or ovary removal
PAP Flap - Profunda Artery Perforator Flap
Path - pathology
PASH - Pseudoangiomatous stromal hyperplasia
PBM - prophylactic bilateral mastectomy
PCC - Penguin cold caps
PCP - primary care physician
pCR - Pathological Complete Response
PE - pleural effusion or pulmonary embolism
PET scan - Positron Emission Tomography scan
PET-CT scan - a combination of PET and CT scans
PFC - perfluorinated compounds
PFC- post final chemo
PICC - peripherally inserted central catheter, sometimes called an arm port
PILC - pleomorphic invasive lobular carcinoma
PM - private message
PPI - proton pump inhibitor
PR +/- - progesterone receptor positive (+) or negative (-)
PS - plastic surgeon
QOL - quality of life
RADS - radiation therapy or radiotherapy
Rad onc - radiation oncologist
RO - radiation oncologist
RS - recurrent score
ROFLOL - rolling on floor laughing out loud
Rx - prescription
Rt - right
SCF - supraclavicular fossa
SE - side effects
SERMs - Selective Estrogen Receptor Modulators
SGAP Flap - Superior Gluteal Artery Perforator Flap
SIL - Sister-in-law
SNB - sentinel node biopsy
SOB - short of breath
SOH - sense of humor
SX - surgery or symptoms
SP - status post
TAH-BSO - Total Abdominal Hysterectomy - Bilateral Salingo Oopherectomy
TCH - taxotere (chemical name: docetaxel), carboplatin (brand name: Paraplatin), herceptin (chemical name: trastuzumab)
TE - temporary expanders or tissue expanders
TIA - thanks in advance
TM - tumor markers
TN - triple negative (eg. negative status for ER, PR, and HER2)
TMI - too much information
TRAM flap - transverse rectus abdominis myocutaneous
flapTX - treatment
WBC - white blood count
WBR - whole brain radiotherapy
WNL - within normal limits
XRT - x-ray therapy
To send a Private Message to the Mods: community.breastcancer.org/mem...
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it is almost 5 a.m. and I had a reasonably good night. I think I got out of recovery about 4:30 or 5 yesterday. BMX was completed but not able to save nipple. Fine with me. I have not seen doctor yet but he apparently told my daughter they feel they got all the cancer and no sign of it in lymph nodes. Have been up once to go to bathroom and did get very nauseated but that passed. I have two drains that have been emptied once. I have not had anything else for pain but think that is about to change. I am beginning to feel pain when I move. Just looking forward to getting on with my day which includes plans to go home. Learned one thing yesterday from anaesthetiologist. When answering questions in the affirmative, always say yes or correct. Saying "right" might result in unwanted results. Praying my surgery partnerso from yesterday are doing well. I will sign off for now and probably not check back in until I am home and enjoying ice cream and coke floats.
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Hi ladies. I'm in my room. Got out of recovery around 6 or 7. Pain has been manageable but I vomited all over myself and bed. Jus could not stop. So that was. fun. I
I can't get a straight answer on my lymph nodes. Sounds like they found it in at least one. I think my family doesn't want to tell me. Very sad about that but nothing I can do about it. Will see BS and PS before I leave. Incisions look ok - actually pretty good. My PS mimics an augmentation so it's vertical.
Drugs are kicking in so time to sleep. .
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hey ladies - been mia the past few weeks getting ready...but now the day is here, all checked in and not gonna lie. Totally emotional. A little more than I expected...and feel like i want to be sick.
No regrets - I want to get this done & over, but wow...
Inspired by all your collective strength and wisdom...good luck to anyone else making the journey today!!! See you on the other side...<3
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For all the girls going today.. thinking of you! The drinks will be at the bar and we all will be waiting. For yesterday's girls still lifting you up!
My pre-op is this afternoon at 1. I'm open for suggestions on things I should ask! You ladies that have forged the path for me are my guiding light. As I have read on here before. .shit about to be real!
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best of luck to all who are going today and those who are in recovery. On the way to the hospital for my stage 2! Nervous and excited. Enjoy the day!
Patti
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goingon75, glad to hear that you're out of surgery and that it went well. Enjoy your coke floats when you get home, my first little bit of caffeine (tea) late on the afternoon of surgery tasted heavenly. Ha ha for the saying "right" to the anesthesiologist thing. I had some surgery on my left leg, long long ago and the anesthesiologist had to correct me on that exact point during the pre-op phase.
shelly, you're out! Boo on the vomiting, that sucks and I'm sorry it happened to you. I'm glad the surgeons will see you before you go, so you can get your lymph node questions answered.
brca2, mombytheriver good luck today!
vargadoll, at pre-admit one of the people you will probably talk to is the anesthesiologist's assistant. Ask to be given anti nausea meds. The assistant asked me maybe 5 or 6 easy health history questions, made a note and voila when I arrived for the procedure they were ready to give them to me. Props to either hsant or ksusan elsewhere on the board, one of them told me to do this, I can't remember which.
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Loving all the good news! dcbc & Elem.....happy dancing for you...Whoo hoo!!!
FightingGMA & Fightingirl: I'm in the waiting room too. I have the oncologist appt next Wed. I'm going to be so annoyed if my MammaPrint results aren't back by then. I've already cancelled a trip to FL but NO WAY am I missing my cruise at the end of May...so there!
Worked a half-day yesterday...utterly exhausting but it was great seeing my friends & getting out of the house..
Seeing the PS today, he's always so positive it's always a good visit for me. Of course we won't be able to make any plans because we don't know if I'll need chemo yet...maybe he'll tell me I don't have to keep wearing a bra 24/7..something to hope for! LOL
I'll be at the cabana with drinks waiting for those going today! You've got this!!
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Hi Ladies- thought i'd do a quick check in, waiting at home right now (without coffee and the driest skin!) before heading off to the hospital. Like BRCA chick, I'm more emotional than I expected. I'm not scared, not really worried, not mourning the loss of my A's, it's just a melancholy feeling...sadness that i have to do this and won't be able to do things for a while and what will life be like afterwards. My daughter was a little emotional last night which wasn't like her either.
I love the pictures! It's hard to stay up as this board is huge......thanks for the support!
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Goingon75- good to hear from you! Hope you are home soon! Thanks for the yes and correct!
Shellybeans- sorry you puked! Hopefully that's all behind you now! Praying for clean nodes to.
Pugsmama - glad you got a half day in at work and got to see your friends! Rest now!
Jinmo- thank you for the info for my pre-op appointment. I will be sure to ask ;o)
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DCISinAZ: you look gorgeous! No drains, normal clothes, driving & showers! Whoo hoo! I'm hysterical over the extended warranty!
Shellybeans, hope the nausea has passed. Praying for good lymph node news for you...
TO THOSE HAVING SURGERY: All of you will meet the anesthesiologist before surgery. Tell him or her you get nauseous very easily (even if you don't) & that you want as much anti-nausea medicine as possible. I made such a stink about it because I once vomited after surgery for days, that my anesthesiologist switched me to propofol during the surgery when my BS was done & the PS took over so I wouldn't have as much heavy anesthesia in my body...
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