Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

January 2017 Surgery Group

18687899192116

Comments

  • Pyrrh
    Pyrrh Member Posts: 89

    So regarding the Tamoxifen, I don't know how fast the SE's are supposed to kick in but I don't think I notice anything. I mean, I did get sore (but I also worked out very hard that day) .... and I woke up a couple of times one night (known to happen occasionally...) but really it's seemed a non-issue. Hoping that holds true for 5 years...


  • Leftcoastie
    Leftcoastie Member Posts: 77

    Bevmomduck - my nipple was hard and black from the dye too Wish I had taken a pic of it. Yes, I want to see. Did your PS stich you up or are you wearing a wound vac too.

    PugsMama and 3Bears yippee only 2 more. Soon it will be happy dance time!!

    Vargadoll- if anyone needs some weed for relief it's you. You have a lot going on right now! You're in my thought and prayers. You NEED to kiss and hold that sweet little Granddaughter. She is beautiful. 💞

    Well I'm still sporting the wound vac. Could be up to 4 weeks! Eeeeek I'm over it. I am healing so I have to be thankful for that. 🙂

    It has poured rain all day here. I am thankful it's winter. I know you eastcoasties are getting snow and cold. I hope you all stay safe and warm. Ah I would love some of that California sunshine

    Let's all pretend we're at the cabanas having a yummy fruity drink, it's 80, tropical music is playing, and a soft breeze is blowing our laughter down the beach. Cheers 🍹🍻🏝

    Xoxox

  • annoyingboob
    annoyingboob Member Posts: 459

    yes, time for a little visual to get everyone through the storm!!

    ive been working solid since 3 days after surgery and I want a vacation sooo bad!!!!


  • Leftcoastie
    Leftcoastie Member Posts: 77

    oh annoyingboob that looks like heaven. Yes, I need a vacation too. Thanks for the visual

  • vargadoll
    vargadoll Member Posts: 1,942

    Its 4 am and I can't go back to sleep. I was so happy to see so many post! All of you girls are always in my thoughts. We are all moving foward! Met with the MO yesterday. Got my presentation of tamoxifen odered. The pharmacy did not have it in stock. It will be ready today. I just peeked out the window and we have a blanket of snow and it's 18 degrees so who knows of I will pick it up today.

    Baby Charlee came home yesterday. I finally got my hands on her! She is so tiny! I forgot how tiny newborns really are! Her brother did not want me to hold her. He was fine with Momma holding her just not his "owa" . My heart is full!

    I'm sending good vibes, love and healing thoughts to you all!

    Now, I'm ready for a drink at the bar!


  • vargadoll
    vargadoll Member Posts: 1,942

    image

  • farmdream
    farmdream Member Posts: 74

    Vargadoll - the most beautiful news to start the morning, baby Charlee coming home Heart

  • Elem
    Elem Member Posts: 246

    What a beautiful baby . Glad she is home. Not so happy that it is so cold there. Stay safe and keep warm . I will start tamox next week . I was not given a presentation . I hope there will be no SE's. Yes everyond is moving on anx I miss you all already. But am sincerely happy every ones' progress through this major trial in our lives . Wishing the same good luck to all those who follow .

    🌸👍

  • dcbc
    dcbc Member Posts: 122

    Vargadoll -- CONGRATS!!! Love those little babies!!! Enjoy.

  • annoyingboob
    annoyingboob Member Posts: 459

    hi girls! My tshirt with the hearts on the boobs arrived and it's a wee bit small. Its size medium but when I wash it will be tight, and I typically wear things oversized. I know a lot of you are little (I'm 5.10) so if anyone wants it, I'm happy to send it to you!! I'm guessing it would do best on a b cup or small c

  • dcbc
    dcbc Member Posts: 122

    Image result for tired meme

  • Shellybeans
    Shellybeans Member Posts: 147

    Hi everyone - checking in a day after my second chemo - only two more of the AC left! And I cut my hair OFF yesterday. Haven't shaved it yet but I can pull it out pretty easily. Just wanted something to look forward to as it's growing in.

    So hopeful that this time doesn't take me down like it did two weeks ago. Just imagining all those hiding cells being obliterated.

    Vargadoll - so glad the baby is home and all are on the upside!

    To everyone weathering the storm - stay safe and warm. I had to turn on my heater for the second time this winter. It actually may be down in the high 30's tonight - in Florida! But fear not - we'll be in the 70's by Friday. Seriously - ya'll need to come down here for some vitamin sunshine!

    This is me and my best friend

    image

    Hugs to all!


  • dcbc
    dcbc Member Posts: 122

    Shelleybeans, Gorgeous! Love it!! Good luck with second round.

  • 3bears
    3bears Member Posts: 161

    Annoyingboob--my wig wearing is going good. I'm grateful I have it. I think it looks good and I always wear it when I leave the house. My daughter DID turn a corner, thankfully. I think she probably was scared in the beginning and that was how she showed it---- by acting like a snotty teenager. I think she now sees that I'm doing ok and I'm going to get through this and theend is in sight.

    I'm feeling really good. If it would just warm up I could get out for a nice dog walk.

  • vargadoll
    vargadoll Member Posts: 1,942

    shellybeans -ooh-la-la! You look amazing! Hope next tx goes well.

    Annoyingboob-dang! I wish that tshirt would fit me I would so wear it! Lol

    3bears- glad your daughter is coming around! It's so hard to have a snooty teen girl! My daughter has been amazing through this whole BC BS ( yes, breast cancer bull shit!) She is doing so good with the babies that I'm proud and very hurt at the same time. I'm sure you understand that. I need her to need me. Especially now, I have been weepy all day. I just want to run over there and help her.

    Dcbc - yes to the coffee picture! Even more since its so cold! My girl and I delivered Meals on Wheels today in the cold. It was 4 degrees with the wind chill.

    Much love to all of you. You are my lifeline all the way around!

    Baby Charlee! This was the ride home!image

  • annoyingboob
    annoyingboob Member Posts: 459

    yay shelleybeans! Round 2!! I love the haircut, but you have the face that will look good in any cut or even bald - gorgeous and symmetrical!!

    Vargadoll, don't be sad! You are the most amazing mom and grandma - you do more in a day than I do in a year!!! Take a breather and look after yourself for once!

    Dcbc, I blame it on the timechange. This week has been brutal trying to get out of bed in the morning!! I'm yawning til noon.

    Here is my dilemma: I'm off sugar but this weekend my family is having a little bd party for my dad and I've ordered dozens of mini cupcakes in all kinds of flavors. Do I let myself have just 1? Is it possible to just eat 1 mini cupcake (no)?? Or do I stick to blueberries?im worried if I indulge I'll fall down the sugarwell and start eating everything.

    Forge ahead girls, another week halfway done!!XX


  • Bevmomduck
    Bevmomduck Member Posts: 91

    Shellyb- you hair! Gorgeous! You can totally rock whatever hair look you want, you've really got the head for it!

    Varga- oh, the cuteness! We have 1 granddaughter and 6 grandsons - what I would give to dress up a little baby girl as adorable that sweet Charllee!

    3bears - so happy to hear that your wig is working for you. I'm sure it adds to your confidence to feel pretty and almost normal. ❤

    Annoying- you know I checked that ❤tshirt out, too. Sorry it didn't work for you, so cute and sassy

    So, the USA blue dye necrotic tissue - PS just cut it off and stitched the rest back together! If I didn't trust him I might be worried. There is gauze and tagaderm covering the spot so I won't see the latest changes until post opt visit Monday.

    And now my lovely ladies, I present to you the USA, as artfully intrpreted by blue methylene dye searching for cancer and getting lost on the way out.

    image

  • annoyingboob
    annoyingboob Member Posts: 459

    bevmom - pm me your address and ill send you the shirt - I think it will fit well on your frame!!! happy healing!!!

  • Alli
    Alli Member Posts: 34

    Good grief bevmomduck-so sorry about the necrotic US. Hope it will heal up quickly. Radiation does a number on us at the cellular level. Are you going to be doing more hyperbaric oxygen therapy?

    Glad it seems like the chemo gals are doing well thus far with the second rounds. Hoping it continues. You all are such amazing strong women!

    Baby Charlee just makes me smile--- I needed that tonite! So happy she's home.

    I received my knitted knockers finally but too late to use them since I have my implants now. Is there anyone in this group that could use them? I think most of you already have TE so not sure if could you use them. If you know anyone that needs them, please let me know- they are super soft.

    Hope everyone stays warm and cozy tonite and gets some restful sleep.


  • lifeb4me
    lifeb4me Member Posts: 6

    We got 15 inches in my neck of the woods. Just stayed home and "Let it snow" !

    Thanks for the advice on the sloshing. Spoke with my BS today and she said it's normal, that the body will absorb in time.

    Bevmomduck - yes, we want to see the map. Hope you're healing well.

    Vargadoll - Great news to have baby Charlee home. She is precious and that hat with the bow is something else.

    Shoregirl - Congrats on being done with your fills. Hope you get your foobs before May.

  • Elem
    Elem Member Posts: 246

    Aw Shellybeans you look great . That short hair is very becoming on you. Hope all goes well with this latest tx. Wishing you all the best always. 💗

  • docmama
    docmama Member Posts: 126

    Good morning to all the beautiful women here! Whew, I had lots of catching up to do.

    Bevmomduck, so sorry that your losing a nipple. Just remember, the area will soon be repatriated with a gorgeous new 3-D tattoo!!

    annoyingboob, you always crack me up!

    Vargadoll, Charlee is so beautiful, give her a big hug for me (and a deep sniff of all that yummy newborn baby smell)

    Shellybeans, you look great with short hair!

    leftcoastie, I wish you well with your healing

    pugsmama and 3bears, I hope you are tolerating your chemo well

    BeachBabyK, hi there! I hope your hair is growing back well. How are the Herceptin infusions? I'm not finding much in the way of SE issues, except a little fatigue day of and day after as well as a bit of insomnia. Otherwise, I'm feeling really great. I think back to the weeks/months just before my diagnosis, and I really wasn't feeling right. I knew something was wrong and I just couldn't put my finger on it. I feel better now than i have in a couple of years, a silver lining peeking through I guess?

    Love to all those I forgot to mention, you are all in my prayers every night!

    Angie

  • 3bears
    3bears Member Posts: 161

    Annoyingboob---- Yes you must have one cupcake! Eat it slow, really enjoy each bite. You'll find at the end that it was worth it but not as good as you think...meaning , you won't want five. I say it's the feeling of deprivation that makes us inhale five when no one is looking.

    Vargadoll-- I'm sorry you are feeling sad right now. Just remember you daughter does need you and always will. She just doesn't want you to know it . She's proving to herself that she can do it.

    Bevmom---that looks bad. I'm so sorry you have to go through this.

    Love to you all💕


  • BeachBabyK
    BeachBabyK Member Posts: 148

    AnnoyingBoob-- Deprivation is what usually makes you fall down the hill, so yes, one little mini cupcake is certainly okay... just don't hide in the corner and eat a dozen!

    Shelleybeans - You look GREAT! Besties are awesome!

    DocMama - The Herceptrin infusions are a cake walk compared to the "ugly" chemo!!! No real SE's... I still have a dripping nose which is quite irritating, but other than that I'm good. Sleeping has always been an issue for me, so I don't think it's fair to blame it on the drugs :-( I have a CT scan today and am drinking the nasty contrast drink as I type. Just when you think that everything is back to normal, you have a week with multiple Dr appts... ARGH! After today I will be done with 8 of 36 rads and have 13 Herceptin infusions left! I love checking off each and every one! Hope all is well with you!

  • annoyingboob
    annoyingboob Member Posts: 459

    y'all, I went to the makeover thing and got tarted up this afternoon! While in the waiting room, I mindlessly popped a jolly rancher in my mouth, as there was a whole basket just sitting on the table and I hadn't eaten lunch. Just as I was thinking 'dang, is this the best thing I have ever tasted?' I remembered I'm not supposed to be eating sugar!!!!!! Aaaarrrggghhh!!! I literally yelped out loud 'oh noooo' and almost spit the thing out. So, that's over with. I lasted 16 days, 13hours, 6min and a few seconds. Sorry, Jesus.

    Then I ended up at Costco, starving, which is never a good idea, and somehow those chocolate caramel macadamia nuts ended up in my cart alongside the blueberries and yogurt! So, I'm taking the weekend off and will decide Monday if I feel like trying again. Meanwhile, I think I'll have a beer just to solidify my depravity and lack of willpower.

    Wiping makeoff off in clockwise circles with a few chocolate crumbs mixed in,

    Ab


  • vargadoll
    vargadoll Member Posts: 1,942

    Annoyingboob - I was going to tell you to have the minicupale to. My DH is making a honest attempt to quit smoking and he always has a sweet tooth now! I had a frozen cake in tbe freezer so a few nights ago I cut into it for him. I caved in and had a small slice. I didn't even like it! If I had tried to hide and have a piece I would have eaten the while thing! I want a makeover!!! I am stuck in a yoga pants rut!

    DocMama - so good to hear from you! Baby Charlee is doing good! I got to hold her for a long time yesterday and even give her a bottle. My DD is breastfeeding and pumping. Baby Charlee is a little impatient and latches to a bottle better right now.

    Bevmomduck - USA for sure! Sorry that nipple turned on you! Our boobs or any part of them just can't be trusted!

    BeachbabyK- you have a bunch to juggle this week! Hang on the weekend is on tbe way!! Fingers crossed that all goes well for you!

    I was very bravery yesterday! I took my toddler grandson (aka the terrorist) to Target with me and my girl. So picture her on tbe Caroline cart shopping cart and the little guy in the cart, out of the cart and on my hip. I feel the best I have in weeks and am sleeping well. All this "good stuff" just in time for tamoxifen (started last night) and first RO appointment next week to get phase 3 of this party started.

    Have a beautiful day!

    Teresa

    ps..annoyingboob. ..my initial would be VD lol!

  • savvynlady
    savvynlady Member Posts: 2

    Thank you. I got diagnosed in January right after New Years, had the surgery 2/20 bilateral mastectomy with expanders. I feel like I got on helmets. I went for my third appointment yesterday and I felt wasted. I almost forgot I had Percocet in my purse, I had to ask for help to open them. I wanted to ask about going back to work since my regular oncologist felt it should be up to my surgeon. With what happened, I forgot to ask. My mom wanted to come, but I felt she wanted them to slow down my going back to work. I want a recliner so that I can sleep better but haven't found one yet. I feel better this morning just a bit sore.

  • docmama
    docmama Member Posts: 126

    Happened across these at the Wynwood Walls in Miami. Anybody lose a pair?

    My old friend Herceptin...

  • vargadoll
    vargadoll Member Posts: 1,942

    Docmama-Loopy those could be mine! My nipples point different directions!

  • Fightingirl
    Fightingirl Member Posts: 328

    Docmama, those could also be mine for the same reason as Vargadoll! I was hoping with time and healing my leftie would straighten out some but doesn't look like that will be the case! What a great pic!

    Miss all you ladies terribly and tried to get caught up on reading posts...looks like everyone is doing well and I agree with all...Shellybeans, you are gorgeous!

    Not a whole lot to report from the "other side"...I have been working my tail off. Spring is in the air (in AZ anyways) sorry for all still buried in snow! Anyways, the real estate market is popping and I run like crazy pretty much every day. Today I finally have some down time and it feels nice.

    The hubby and I have been enjoying getting some furniture and new palm trees in the back yard to spruce things up. We have a pergola being build over the firepit next week and then we are done spending money! Between that and medical bills, it's been a very expensive month!

    I have one physical therapy appt before I am discharged. I have full range of motion and only a couple places where I can still feel the cords but none that keep me from using my arm. Can you believe I still have a giant seroma in my armpit? It's been 2 1/2 months!

    Since I did opt out of taking the tamoxifen, I have decided to change my diet. I have been a pretty healthy eater most of my life but am taking it to the next level after the whole cancer thing. I am for sure vegetarian...I haven't eaten a whole lot of meat in probably over a decade now anyways so it was very easy to give up. I'm venturing over to the vegan side as soon as I clear out things I already have around that I've spent money on. This is where I'll be challenged big time...I love cheese and ice cream!! I don't necessarily believe that not eating meat or dairy products is going to be some type of cure that cancer won't recur or anything like that...I just thought since I'm not doing the tamoxifen and I don't like meat much anyways, it would be good to at least give it a try. A nice challenge for myself to see if it really does make a difference in how I feel overall and in general. My husband and I watched a couple documentaries on Netflix over the weekend and the first thing he did was go make a meat sauce for his pasta and I was still crying from what I saw in those films! I guess I won't be converting him anytime soon! I don't want to convert anybody anyways...it's more of a personal challenge and test but I'd like not have to look at him eating a cheeseburger because that is one thing I will miss as far as meat goes. Oh well...I'm going to give it my best shot!

    Congrats AB and I forgot the other who gave up sugar...I agree that you should have one of those mini cupcakes because sometimes depriving yourself ends up being the worst thing you can do. I think that is why dieting is so unsuccessful for most people...it's too restrictive. The last diet I did was counting my macros and I did lose 14 pounds to end at my goal weight...I just reached my goal weight right when I was diagnosed in fact. On that diet, I had one cheat meal a week and it kept me from getting burnt out and gave me something to look forward to. The cheat meal is a good way to throw your body off so enjoy that cupcake my friend!! Unfortunately for me, after I was diagnosed I quit going to the gym and drank far too much Prosecco and ended up with 5 pounds back on.

    So that's pretty much it...with no tamoxifen, I've added vit C, vit D3, coq10, and fish oil supplements and have changed my diet to plant based. I can only hope it helps keep cancer away but I've had so much energy I can't believe it! Actually, I started having crazy energy shortly after I finished radiation and before I started changing my diet. I really believe that cancer was sucking a lot out of me before I ever knew I had it.

    Happy Friday my friends and I hope you all have a great weekend! I am always thinking of you guys...ALWAYS...not one day doesn't go by that I'm not hoping and praying for everyone to get through this as quickly and with the least amount of side effects as possible. Love you!!!