Stage IV MBC Fitness
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Z~ what is the most bothersome about those darn hematomas are that they take forever to breakdown. I had mine around 6months before I could barely feel it anymore and then it was absorbed but my body. Those stinkers can hurt for a little while. I used to soft tissue massage it. Just small circle strokes to break it up, very limited pressure! I hope you feel better soon. Power on ladies. Don't think I'll be doing too much running this week. My nerves are shot. Mentioning scanning. And I return to my worm hole. Prayers for allas always. ~M~
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Thank you for your ideas. I'm going to look at a personal trainer, treat myself. Maybe in a private gym so that I can excercise without my wig!!! It does get really hot.
Haematomas can be big and painful Z, when you get them post op I'm sure that Physio's use Ultra Sound to help dissipate them. My nursing practice is very dated so there are probably better treatments available now.
I like it here...everyone is so upbeat and motivated.
Brilliant group 😊👏🏻
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Heidhill,
Thank you for the info, I plan on looking into this. As for Zometa infusion, I did have them do 40 minutes. Still I had se. I also tried taking the arimidex generic and that gave me a lot of se, my pa told me to check with the drug store to see if my insurance would pay for brand name, said no so now I don't know what to do. My pa said I am only er weak + so said doesn't know if Ai would help me taxotere 6 times and am on h and p right now.
Can't really afford to go to Mayo right now, but I plan on asking a lot of questions when I see my onc in a few weeks. Thank God for you girls! I am off to walk now, thx again, Paul
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Forced myself out of my worm hole and forced myself to run/walk for 38 mins. It helped a little,am still on the count down for the freaking scan on Friday. PTSD,is real and it leaves you almost breathless. I don't even really want to go. I usually have to wait a week for results till I see my onc. Annoying. But one of my best nurses told me she would grab them for me. That brings me a little more comfort, then I only have to play the waiting game A few days because scanning on Fridays sucks! I hate you cancer. Prayers to all! ~M~
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SO happy it's May. April just sucked. I just started moving my body again, working out, feeling good, feeling motivated. My favorite yoga on the beach istomorrow. Yay May!!
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Great job Gracie! I had my first over 10K steps last week, your right whew that is a lot of steps!
Ronnie
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Paula, at the end of your post, hit the space bar one more time and the a in your name should stay, then hit preview to double check, that should end the last letter drop off problem.
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Congrats Ronnie on the 10k 😊
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hello all! I'm still here - walking, running (verrrrryyyyyy slow), and doing some yoga. But mostly just enjoying keeping up with my kids the most for exercise! Thankful for sunshine and nice weather here. Chemo tomorrow - I'm strong and ready!
You ladies are continual inspiration to help me keep moving and do whatever I can!
Keep it up
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Stefajoy, glad you got out.
M, I am sorry scans are causing you so much stress. I have mine middle of this month too. I just keep going. Not sure why I am not fearful, but I wish that the stress was not so harsh for others. Great job today.
Echo for me then off to the gym. Did some HIIT with about 30 secs of steep incline and 2 mins of flat. Fun to do. Tomorrow will do some Leslie Sansone. 30 mins at the gym.
Great job Livebig, love your attitude. Kudos on moving so much as you do. Exercise of any sort, moving the body is another part of our treatment.
Have a good night all.
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Tank you Mara, it does throw me for a loop! I have always known i could cry at the opening of a Kmart, but throw in a cancer diagnosis and the mention of scans and i should have stock in puffs plus with lotion. I just hate them! Not to mention the hand lotion that you have to drink. Gag! Always keeping you ladies close in prayer ~M~
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Thank you lllimae
Paula
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Stefajoy. Yes, there are weeks and months we should just cross off. I am so glad your April is over ... sounds like things have turned the corner for you. May is looking good for me too.
>Z<
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Stefajoy, way to get back on track.
livebig, good luck on chemo day. Each cycle we get through is a BIG win against cancer.
Micmel, I used to have nightmares before each scan. It is PTSD as you said. In my case worsened by claustrophobia. I can only last about 10 minutes in that donut before a panic attack comes on. Fortunately they are done before I am at the end of my rope ready to get up and jump off the gurney.
Walked in the woods with a friend this morning. Tango tonight.
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Heidi~ yes my dear it is. I hate it, almost as much as I hate cancer. It makes me so angry. What it does to us. And we just have to sit back and take it without any defenses.
I don't like you cancer, you make me sick, I would almost go as far as to say,I think youre a dic*! You torture my friends and scare my family, while all the while, I lay in agony. You think you can win over anyone or anything. I walk to the hospital for a shot to combat you, yeah I feel that sting. I'm not giving up and Either are my friends. Were going to battle you mister cancer, right until the end!!!!
Prayers for everyone. That's my fight poem. ~M~
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My schedule is just about a month behind you all on scans. First week in June. I do not sleep at all before scans. Just can't do it, even though I try and also take sleeping aids. I hate the anxiety and it can't be good for any of us.
I have a good friend, Bob, who is in the last stages of lung cancer. Please say a prayer for him and his poor wife who is just almost despondent. She can't even talk about it at this point. I'm very concerned about her as well
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oh Gracie~ I am so sorry honey. That makes me feel so sad. Your person is your person the thought of losing your person 💔 Breaks my heart! That poor family and couple. I don't just understand life sometimes. I will gladly add them to my prayer list. I will send them strength through prayer. For some sort of clarity and guidance. What a sad thing. My heart feels so heavy for them. I'm sorry for you too honey. Gentle hugs. ~M~
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Gracies - Prayers going out to Bob.
>Z<
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Gracie, bless you for supporting Bob and his wife in the midst of your own trouble. I hope they have hospice people providing support, too? Stefajoy, yoga at the beach sounds lovely. Do you do it with a class? Heidihill, I want to walk in the woods, too! I want to tango, too! My good thoughts to all who are stressing about scans. Funny, for me the worst times are right after the scan or the blood test, waiting for results. Wiegp22, the other solution is to change your name to Paul. Micmel, great fight poem. I have to say my favorite part is the rhyme with "sick".
I want to double my exercise for the next four weeks.That means like two things per day instead of one. My TMs have one month to shape up -- I should say down -- and then I will have to do some other treatment. That's the word from my onc and I agree.Today I did yoga and walked.
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Hello Ladies,
Went for a mile walk this morning, cooked and washed my bedding. Now I have 7 hours of bartending to look forward to. Just 😩 dont know why, but all of a sudd n have no energy at all. I quess just have to push myself as u ladies do, thank God I have you all for incentive. Oh yes Shetland pony I think I figured out my name, haha
Hugs to all,
Paula
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Hello Ladies,
Went for a mile walk this morning, cooked and washed my bedding. Now I have 7 hours of bartending to look forward to. Just 😩 dont know why, but all of a sudd n have no energy at all. I quess just have to push myself as u ladies do, thank God I have you all for incentive. Oh yes Shetland pony I think I figured out my name, haha
Hugs to all,
Paula
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You are doing great Paula. Keep in mind that many of us do not work. Just one day of 7 hours of bar tending would kill me.
>Z<
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Z~ thank you for the kind words scanning sucks! I have to agree Paula, with Z. .I also do not work, just couldn't do it. 7 hours of anything would be bad bad for me. I need to rest when i need to rest! I don't have the choice. It's gotten better but not this week I am failing miserably at excersise! I caught my DH's awful cold and I am down and out along with some joyful side effects of the XGeva shot on Wednesday. This week hasn't been a great one! Keeping all in prayer!! ~M~
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Hi Paula,
I tried to go back to work after short term disability and it became way to much. It takes all I have to take care of myself. If you have the option to go on disability you might want to consider it.
Ronnie
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Thinking of everyone tonight.
It was a post scan week. It was a good scan but one of my doctors is worried about some things showing up in my diagnostics ... some equivocal blood work and a pesky sternum met that keeps lighting up in PET scans. The sternum met is barely visible or not visible in CT depending on the radiologist you ask ... but I can't quite relax. One of my TM markers rose, maybe. Meeting with a couple more doctors next week. Wish this was just over, but it will never be over ... til its over, I guess.
I guess I am saying that you can get through scans, get a pretty good result and still be kinda tired and depressed. Your stories and strategies and routines kept me moving this week despite the head games.
Keep moving ...
>Z<
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I know, Z, it's hard to be excited about fairly good results because somewhere inside I am waiting for NED, for a cure, for things to go back to normal. So it is kind of depressing to be reminded that it will never be over. Well, not until. And equivocal, ambiguous, conflicting results are too common, and stressful. So, back to the moment.
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Z~I think we all know how you feel. I sit and wait for my results and hate everything. I am trying to think about other things and honestly,this cold I'm fighting has slightly taken my mind off of the darn scan. But it lingers. As does mr cancer. And I think to myself everyday. Hw exhausted I am and how tired of feeling this way I am. I realize how much longer on this medicine you have been on it than I have, and I think your amazing. I hope these doctors will answer some of your questions, i know that for me,I never seem to get a straight answer and I guess it's because they just don't know. I will and am sending tons of prayers for all of us. To hear the words shetland mentioned. Cured,or ned! Hugs ~M~
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Thank you girls for all the kind words, but I have to work in order to pay my bills, plus alot of you have families to take care of, my children are grown and don't live by me, I soon will visit my daughter in Utah, she is a packaging engineer for Young Living Essential Oils, do any of you use these? like Frankincense is supppose to help cancer. Plus Michel it seems like you have good doctors and get scanned often, I live in in a small area and don't get this kind of help, was on the after 6 times on taxotere only left on hp and shot of Zometa for bone mets, I had to ask for that after reading your posts and then I tried generic for arimidex and had bad se, they won't give me brand name. I have only had one scan and that just showed that liver mets shrunk, since I have been off chemo, I feel that everything is growing
Thanks for all of your support, Paula
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Paula - I am pretty deep into complementary oncology with several naturopathic oncologists, each with a long successful track record advising me. They have science based approaches that actually work. Essential oils do not make the cut. There is no evidence essential oils do anything.
If you want to do something beyond the standard of care to help manage your cancer, optimize your diet, exercise and stress level. I believe 80% of the benefit of complementary approaches is in lifestyle improvements. If you have all that going for you, see a really well trained and experience complementary onc for supplements. None of us have the resources to waste on things that don't work.
>Z<
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Thanks Z, that is good to know so I won't waste my time on essential oils. I know that there has some research at Sloan Kettering about this. Thx Paula.
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