Stage IV MBC Fitness
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1/3 mile swim this afternoon. Constant headache since the MRI. Trying to keep a few muscles... bruises from labs and contrast...bruises from drunken walking...stitches from precancerous surgery on arm and then the crepe...ugh. I need one of the old time swim costumes. Maybe a rash guard and board shorts.
Hope the weather is nice and everyone can be outside this weekend
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lwrite - 3 cheers for getting your cancer warrior body to the pool. I had to steel myself to go on my daughters field trip today with no hair. Every time I interact with a new group since my hair fell out from chemo, it's the whole "I didn't know you were going through this" thing. All kindness, no one says anything stupid, I'm just not particularly interested in talking about cancer with people who don't have cancer.
Walking, but not getting my yoga practice in. After I got back from Mayo I got really focused on cooking healthy food for my family. This is absorbing my discretionary time. Somewhat obsessed with this at the moment, but making progress on getting more vegetables into my kids . My younger daughter said "Mom, I love roasted cauliflower. Can we have that again." I nearly fell over. The problem is that it is hit or miss ... I make bean dip one way, huge success. I make it slightly different, total fail. And do I remember how I made it the first time? No I do not. And of course DD1 will eat green beans this way but not that way, the other is the opposite. One has an egg/poultry allergy, the other a tomato allergy and so on. They each need their own separate meals. But glad to be finally getting them back on track nutrition wise. I've been distracted ...
>Z<
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I love cauliflower! So many things to can do with it, cauliflower hash with onions and garlic as a breakfast side and cauliflower Mac n cheese with dinner, yum!
I’m taking it easy, I fell on Tuesday (not cancer related, just clumsy) and banged up my knee. Maybe swimming later or light weights.
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Z- Cooking is amazing therapy IMHO. Getting veges into kids is miraculous and roasted and grilled ones taste sooo good.
Illimae- Glad you are healing from the fall! I am beginning to think walking is a combat sport...sheesh.
Back to the pool today. It feels so Zen while swimming I don’t know why it’s so hard to get there 🙃.
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Thanks, Kathryn, for talking about swimming. I used to love that, but seldom think to do it. I just lost most of my hair, as well, Z, and can relate strongly to the way it feels in public. No longer quite so able to "pass" as cancer-free. I am finding myself sharing more about my situation now, since people who bring it up are usually interested. I remember being very eager to hear what cancer patients really felt and experienced, but being afraid to ask.
I got myself back to walking fast on our hilly road this past week. On Gemzar now, my stamina is crappy but its been good to get out and move. I did three walks, a 2.5 and two 1.5 milers. Yay for legs! Yay for neighbors who walk! Hugs, Mame
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Go MamaMe!
6000 steps hiking.
4000 steps shopping for cooking and cooking.
Still can't remember how I made those green beans the first time. Driving me crazy.
>Z<
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Now that my gigantic blisters on my feet have passed the tender and painful part, back to activity. I was in the back yard tending to my beds. It really felt good to get outside in the sunshine and be able to do something. It is good for the soul. Tomorrow is the first game of pickleball in about a month. I am looking forward to it. Then next is walking the dog. Getting back at it and loving it.
Thanks for sharing your activities. You all inspire me! Z, you rock!
Therese
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Hope your knee is better, Illimae. Iwrite, love that you are feeling so zen when swimming. Z, now you know how I get my non-hiking and non-dancing steps in. Celebrate, have fun at your pickleball game! MameMe, double yay for legs!
Danced the night away at a garden party this weekend. Still exhausted.
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Good morning everyone, headed off for a short hike with DH this morning. Getting the hikes pretty regularly. Yoga is not happening. Need to work on that.
>Z<
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Hi Ladies! You all are inspiring me!
I am off to the pool for a half mile swim. DH went with me to yoga in the Park event yesterday. It is HOT! Grateful we got AC yesterday as it isn’t cooling off in the evenings.
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Great weekend in the North woods with kayaking on Lake Superior and about 50,000 steps of hiking over three days. Being in the forest brings me energy. Back to work tomorrow but now I need tofigure out how to live up there full time and still keep my job!
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Go DGHoff. Where there is a will there is a way. My husband visited NM 20 years ago and decided we had to figure out how to live here. Somehow made it happen. Now if they only had decent medical care ...
>Z<
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Good almost afternoon everyone!
I spent three days in Brooklyn, NY walking around a lot which I am telling myself was a great substitute for my typical 30 minutes of cardio/strength-training daily workout. Now back in Philly and drinking coffee and working my way to do the 30 minute workout and take a long walk to a special pharmacy to pick up some cream to help hopefully with vaginal dryness issues - getting a two for one outta this! A walk AND some meds - Double Bonus!! Hoping the cream works.
You all help inspire me to get it together and get exercising. It is truly the one thing that keeps me from feeling the deep Ibrance/Letrazole fatigue and other fun side effects!
Hugs to all!
Brenda
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Good Morning. They are closing the Santa Fe National Forest which abuts my property at 8am this morning due to extreme fire hazard. That's where I hike every morning ... getting out for my hike today before 8am before it's against the law.
If it's not one thing, its another but find a way and keep moving ladies!!
>Z<
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Great reminders about exercise! You'll find a route to hike if the park stays closed.
For years I walked 1 to 3 miles a day until last summer when I began to feel bad. I miss it. I've been on oxygen since Jan and was barely able to get to the bathroom for a few months. I am a little stronger now and use light weights with my good arm and gently with my bad lymphedema hand and arm. I walk back and forth in the hall and sometimes a short distance in the yard. I just want to put on the headphones and stride powerfully along the road as before. I hope I'll eventually get there. It's important now because I've gained some weight due to my medicine and/or my returning appetite. I want it gone!
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Imagine them, losing your own private hiking zone just for some measly little wildfires.... pah! who needs it!? Jeez. So sorry, Z, and wish you the best in adapting. Hope the smoke blows away from your home.
I walked a whole 2 miles just now, up from .75 and 1.25 the last two days. After a month off because of sulking and feeling lousy on Gemzar, its becoming possible to exert myself again. Once the chemo was reduced, and the schedule changed to every two weeks, I have felt better. I sure hope it works to stop mets, too. On this routine, I can count on more than a week of feeling ok. Like hitting the jackpot. I can have a summer!
Love hearing about the city walking, kayaking and hiking, ladies. Super inspiring. 💃🏻💃🏻💃🏻
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MamaMe- The exercise is going to help the chemo and manage side effects and allow you to continue the treatment longer. I am glad they lowered dose. I expect it will tip the balance in your favor.
>Z<
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I hiked up 'Moose Mountain' to the overlook yesterday....great view! Round trip close to 4 miles, good that I took a patient friend with me because it took more time than expected.
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i love moose mountain. Thanks for the pics!
Z
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Took a walk in the park, forgot my Fitbit at home 😔
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Illimae- It still counts!Did 1.5 easy miles at a city park with six survivors. More walking planned for tomorrow
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Hiked the foothills of Sandia Peak in Albuquerque, NM today with the lovely lwrite (Kathryn) this morning on my way to Mayo Rochester. Ladies, I just want you to know that lwrite is real! She is as funny and smart and feisty in person as she is in the forums.
Doing well on Abraxane. Still jogging in place during IV's and hiking for a couple hours immediately after to get the drug to the target. Also still fasting before and after. Liver markers almost normal last week, liver soft and greatly reduced in size, feeling pretty awesome most of the time. Better than before cancer diagnosis sometimes. Definitely better than hormone suppression. I mention that for those of you on hormone suppression who see a QOL cliff ahead. It is not the case for me. Scans on Tuesday.
Last fast was a tough. The IV was the day after my birthday. My husband returned from a trip on the day of the IV and presents me with a box of chocolates from Italy ... I'm 3 days into 4 day fast. One of his charms is being totally obtuse at moments ... I banished the chocolate to the basement but we took it out and celebrated yesterday.
>Z<
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Will be thinking of you! You are just amazing to me! I don’t think I could do that fast... very hard to do even a day!!!
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Happy belated birthday Z! I should have brought cake to the hike
So glad we met and hiked the forbidden trails yesterday. (They told us the trails were closed due to fire hazards...like we worry about THAT.) Posting our selfie here as our meetup counted as exercise. Z slowed down a bit so I could keep up. You continue to inspire us all!
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Beautiful!!!!
Belated Happy Birthday, Z!
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Nice to see you Kathryn and Zarovka. You both look great.
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Wow! Great pic! You are such troopers, and I am so inspired.
Definitely happy birthday wishes to you, Z.
I have walked the last four days, and yesterday finally hit my normal stride. Its been months since I have been able to move riht along like that and not get wiped out. Its encouraging.
Funny you should mention hormone suppression, Z. I have been thinking maybe I need to try that class of meds again. I do lose a week out of two when using Gemzar. I tried several AI's over the years, but never lasted more than a month. I thought that I felt awful on them, but that in retrospect, it might be better than the chemo. There are fewer options left for me, and I am definitely thinking about stopping treatment. Maybe I need to expand my options.
Kathryn, its good to have some walking pals, isn't it? You, too, have a wonderful way about you, and I appreciate that you share that here. Hugs all around.
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I usually hike alone so it was nice to have someone there to share
. Went to a level 1 yoga class last night. (Level 1 for healthy 20 something’s 😳). At least I forced myself to get out and do it.
Off for a thyroid ultrasound now...yep new nodules on the last scan. always something! Have a good day friends
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Great picture and sounds like a great hike!
Happy birthday Z!
In Houston and found a great group of ladies to play pickleball with. So good for body, mind and soul.
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Love the photo of Iwrite and >Z<! I'm afraid I haven't accomplished much in the realm of exercise the past week. Too much going on.
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