Unfortunately things are going downhill

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Comments

  • tina2
    tina2 Member Posts: 758
    edited August 2017

    Kandy,

    So happy you're home!

    Tina

  • tina2
    tina2 Member Posts: 758
    edited August 2017

    Kandy,

    So happy you're home!

    Tina

  • lulubee
    lulubee Member Posts: 903
    edited August 2017

    Thankful you are home, Kandy. What an ordeal. Please rest!

  • Kandy
    Kandy Member Posts: 424
    edited August 2017

    I hope everyone is enjoying their day. I went to see MO this morning. His thoughts were that the chemo was causing me to get pneumonia, so moving on. He also thought I was having progression so it didn't matter. We are moving onto Halaven. I asked him if he didn't think I could try Ibrance, he doesn't think I have enough time to try it. He's afraid that by the time he finds out it's not working, my liver will be shot. He really wants my liver in a better spot before trying hormonals again. So Halaven it is. Pray that this one will do some good. I also told him I wanted my liver biopsied, he put the order in for them to do it Thursday, I will have to wait for scheduling to call to see if that will happen then. Feeling pretty good today, except terribly exhausted. Im trying to stay positive that surely we are going to find something that works. Praying for each of you

  • zarovka
    zarovka Member Posts: 2,959
    edited August 2017

    Thank you for your prayers Kandy. Like the way your MO thinks. I am glad you are in such good hands. Line up the Halavan and then focus on Harper. So glad you are home and feeling well.

    >Z<

  • sadiesservant
    sadiesservant Member Posts: 1,875
    edited August 2017

    I agree with Zarovka, your MO is a keeper. Glad you continue to improve Kandy and hope the Halovan does the trick so that you can join us on the Ibrance thread. Take good care of yourself.

  • AnimalCrackers
    AnimalCrackers Member Posts: 542
    edited August 2017

    Thinking of you Kandy.  glad you are home and feeling better.  Good luck with the liver biopsy.  It's important to see if you are dealing with something different in the liver.  Keep us posted.  ((HUGS))

  • Kandy
    Kandy Member Posts: 424
    edited August 2017

    It's not looking like I will have the biopsy tomorrow, I have still not heard from scheduling. I called them around 1, they said insurance still hadn't approved it and they would call me back. Of course they hadn't. I'll let y'all know when I hear something. I have been exhausted today. Can't stay awake. I wake up, then fall right back asleep. Pretty much slept all day. Keep enjoying the moment, ladies. Lifting you up in prayers.

  • sandibeach57
    sandibeach57 Member Posts: 1,387
    edited August 2017

    Kandy, you are one amazing woman. You are always thinking of us with that last sentence in almost all of your posts. Yes, get that liver under control with the fast chemotherapy. I will check in on you on the Halavan site. I was placed on AC to stabilize my liver mets..then went to Ibrance and Letrozole. So look forward to seeing you on Ibrance site in the future.

  • Kandy
    Kandy Member Posts: 424
    edited August 2017

    SandiBeach, thanks for your kind words. I really do think about each one of you, and do pray for y'all. I certainly don't mean to offend anyone and hopefully I don't. I realize a forum and religion can be a tricky subject. But it is who I am, rather people believe or not doesn't stop me from praying for them. I know we are all in this together and I want the best for everyone. Everyone enjoy the moment and I will continue to lift each of you up in prayer

  • artistatheart
    artistatheart Member Posts: 1,437
    edited August 2017

    Kandy, You always lift us up even in your worst moments. Prayers back at you. I think of you daily. Hope the Halaven is not too tough.

  • PattyPeppermint
    PattyPeppermint Member Posts: 8,950
    edited August 2017

    kandy. Glad you are home. Sorry to not working. Will be praying that this one will stop cancer growth. How's the family handling everything ? Much live

  • kjones13
    kjones13 Member Posts: 662
    edited August 2017

    kandy--crossing my fingers and toes that this is the med for you!! Will be praying for you! Loves ❤️

  • Noni
    Noni Member Posts: 74
    edited August 2017

    Kandy, I am so glad to hear that you are home. I just finished getting caught up on your thread, as I hadn't checked in for a while. Happy belated anniversary and bless your husband for getting the family together for fame night at the hospital.

    Can I offer a little hope from hospice? I have been doing terrible since last winter, with nothing but progression and dangerous chemo side effects. One of my MOs warned that if I stopped all treatment that I'd probably only have a couple months. Well, it's been three months since my last infusion and I must say I haven't felt better since I started treatment in December 2015.

    If you and your MO want to switch to hormonals but fear that you're not strong enough for the 3 month clean out period, it might be wise to have a little faith. You are the master at bouncing back and who knows, your body could blossom during that time without outside toxins beating it up.

    This cancer business is wicked hard to track. There's no way of truly knowing what the heck it's going to do.

    Praying that you remain strong and healthy, and out of the hospital.

  • Lita57
    Lita57 Member Posts: 2,338
    edited August 2017

    Another 2 cents worth...I was at one of my live support groups on Tuesday, and a woman said that about 5% of cancer patients go into spontaneous remission at some point, and the MO's don't have an answer for it.

    Faith?

    Prayer?

    Who knows? We can all hope. I know a few people who went on hospice and they actually had several fairly decent months.


  • Kandy
    Kandy Member Posts: 424
    edited August 2017

    Hello ladies, I hope everyone is enjoying the moment today. I'm feeling some better, maybe a little stronger everyday. I finally got my biopsy scheduled for Monday morning. They decided to do it under ultrasound instead of CT. I've had a couple biopsy for bone, is going into the liver any different? It's so funny how the more you have done, the less nervous you become. It's like just something else to go through. I start Halaven on Tuesday. Keep praying ladies, I'm not even sure what I want thie results of this biopsy to be. Lifting each of you up in prayer, asking for pain free days and lots of healing

  • cure-ious
    cure-ious Member Posts: 2,891
    edited August 2017

    Hi Kandy,

    I get too tired of the stressing and second-guessing, you know? You pretty much just want the information from the biopsy, whatever it is, and then figure out what's best from there. Everyone says Halaven is tops for liver mets, so take plenty of hope and confidence in that treatment working, and from there its just figuring how to get your hi-quality life back again once everything settles down


    Do you have any hobbies? I took up batiks and Kaffe Fausset fabrics after my mets diagnosis, and have made so many gorgeous baby quilts and sofa quilts, I'm running out of babies and sofas to give them to! Read lotsa murder mysteries, and drink wine with your hot cookies...

  • Freya
    Freya Member Posts: 329
    edited August 2017

    .

  • LindaE54
    LindaE54 Member Posts: 1,379
    edited August 2017

    Hey Kandy, glad you got that biopsy scheduled. I had mine done on Thursday, it was ultrasound guided. They gave me local anesthetic and took five samples. Procedure went well, slightly uncomfortable but that's it. Had to lie on my poked side for 2 hours and another 2 hours in bed after that. Take the meds prescribed for when the anesthetic wears off. Like you, I'm not sure what I want this biopsy to show but maybe it will give me answers as to why I don't respond like I should to Taxol. Good luck, I'll be thinking of you!

  • Kandy
    Kandy Member Posts: 424
    edited August 2017

    Thanks Linda, can you tell me how long you were at the hospital that day. I'm trying to make arrangements for DD2 that has Downs. Trying to figure out how I will be that day. Thanks.

  • LindaE54
    LindaE54 Member Posts: 1,379
    edited August 2017

    They started the biopsy around 11:00 am and I left at 4:00 pm. You also have to fast before and a bit after the procedure.

  • PattyPeppermint
    PattyPeppermint Member Posts: 8,950
    edited August 2017

    who helps with dd2 when you have appointments ?

    Thinking of you


  • Kandy
    Kandy Member Posts: 424
    edited August 2017

    Patty, the majority of the time she goes with me to everything. She is very well behaved and I trust her in the waiting room if she isn't going to be there forever alone. Everyone at the cancer center now knows her and everyone comes to see her and talk to her. She is quite popular, lol. She goes back to the chemo room with me. My DH will take off of work if he needs to, but I have so many appointments that he can't take off all the time or he would lose his job. So most of the time it's me and Krista. She never complains about having to sit there. Probably on Monday she will go to my sisters house. My sister works but her DH is retired, so he will keep her. They kept her while I was in the hospital. Glad to see you checking in more, Patty. I'm thinking and praying for you.

    Thanks Linda, that is very helpful to know. My biopsy starts at 10, so I guess I will be out around 3.

    All the other ladies, thanks for following me and caring. I'm thinking and praying for each of you. Keep enjoying the moment, it's all we are promised.

  • AnimalCrackers
    AnimalCrackers Member Posts: 542
    edited August 2017

    Hi Kandy - when I had my liver biopsies I had more than local anesthetic.  I was also given Versed (I think) which is what they use for conscious sedation.  So I had to have someone drive me home.  I'd say you'll be there about 4 or 5 hours.  Good luck and try not to worry.  

  • AmyJM
    AmyJM Member Posts: 134
    edited August 2017

    Kandy,

    I haven't been on the site for awhile, so just got caught up with all that's been happening with you lately. Even when I'm not here, you are in my prayers, though. So sorry for all you've been through lately, with the progression, and all that led to the hospital stay. I'm glad you are home again. I'm also glad you have a loving family and friends for support. How special to have the family night anyway, while in the hospital, and to have a friend like Michelle, who can visit in person! And, of course, you know you have the love, support and friendship of all of your bco sisters too. My prayers will be with you on Monday, for the biopsy and I hope the Havalen works really well for you! Sending love, hugs and lots of prayers your way.

    Amy

  • BabyRuth
    BabyRuth Member Posts: 107
    edited August 2017

    I also had Versed and had to have some one to drive me home. The procedure and recovery took about 4 hours before I was released. I had a CT guided biopsy and it was easy for me to tolerate. After resting that evening, I felt good the next day. Prayers that your procedure will be easy to tolerate. Keep the faith Kandy!

  • Kandy
    Kandy Member Posts: 424
    edited August 2017

    Good afternoon ladies, wanted to check in to let you know I had my liver biopsy this morning. Everything went very well. They gave me versed and fentanyl, so to say the least, I don't remember a thing about it. Been home napping for the afternoon. They said it would take a couple days to get the report. Tomorrow I go back to the cancer center to start Halaven. I am praying that this might be my lucky drug. I hope everyone has enjoyed their day, praying for healing for each of you. Take care ladies.

  • PattyPeppermint
    PattyPeppermint Member Posts: 8,950
    edited August 2017

    kandy. I'll agree in your prayer that this Rx might be the lucky one. Glad the biopsy went well and glad you gave help around if needed

  • 50sgirl
    50sgirl Member Posts: 2,071
    edited August 2017

    Kandy, I am glad that the biopsy was not difficult for you. I am praying that Halavan knocks out those ugly little cells causing so many problems for you. I will be thinking about you tomorrow as you start your new treatment.

    Hugs from, Lynne


  • Southernsurvivor
    Southernsurvivor Member Posts: 569
    edited August 2017

    Kandy, so glad your biopsy was uneventful and went well. I hope Halaven is the lucky drug for both of us! Prayers for all of usas we continue to try to kick our cancer cells to the curb.