Unfortunately things are going downhill
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Praying for you, dearest Kandy.
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Kandy~ thinking of you and sending you thoughts of strength and support. You're a wonderfully strong beautiful woman. They'll find something to beat it back. Go Keytruda! Many hugs
~M~
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Kandy, Hope you get transfused and get out of the Big House and get home and comfy. I'm so sorry that things are going this way. Hopefully the Keytruda will be the answer. Prayers for you. Brenda
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Kandy- After a year of bouncing around I am happy to see they finally start grabbing for immunotherapy! Push him hard on what else he can add to the Keytruda regimen-Abemaciclib might be good?- it is also in clinical trials with Abraxane and with other immunotherapy drugs- those are having more toxicity, but the number of people who respond to treatment jumps up much higher. Ask and ask. In another month or so we will start hearing from the abstracts of the San Antonio Breast Cancer meeting, which is the biggest meeting in the clinical trials for breast cancer. Nothing earth-shattering for the past two years, since Ibrance really, and this year they will have Abemaciclib, but hopefully there will be some progress starting to come in with immunotherapy- stay tuned and keep in touch!!
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Adding my voice to the many prayers for you.
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Aww Kandy, so sorry to hear you're in the hospital AND with progression. That all sucks (which you know).
I'm hoping they let you out of there soon and that you can get the pain under control.
No idea what to say about the progression -- that just sucks more.
Hugs and more hugs
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Kandy - I am devastated to hear this discouraging news from your doctor but I see you have an option and a good one. I am praying for a miracle for you.
>Z<
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Hi Kandy - hope you are heading home today and have significant pain relief! Sending you love and support.
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Right now I’m getting blood, hemoglobin keeps dropping. My left arm decided to swell last night. They did a Doppler to make sure I didn’t have a clot. Thankfully it was negative so they think it’s fluid overload. I have to get everything done by 4 in order to go home today, if not, then I have to spend another night. I feel better than when I came in but definitely not great. Hopefully the blood will help with that too. Hang in there ladies and enjoy the moment. Prayers as always.
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Going home today ladies. Woohoo. Thanks for all the prayers. Your in my thoughts and
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WOOHOO for going home! I hope that you feel a bit better soon. You remain in my prayers.
Hugs and prayers from. Lynne
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Oh YAY! So glad you are going home (or are home by now)! Pain under control?
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Kandy, adding my voice to the chorus of prayers on your behalf.
Hoping you are home and comfortable by now.
Love, Madelyn
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Yeah!!!!
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Kandy- So happy that you can be home!! Sending healing thoughts your way and hoping you have pain free days...and treatment that works
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hello kandy. i am glad you are headed home.
>Z<
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Kandy, I'm just lurking on this thread but I wanted you to know you're in my prayers and I'm cheering for you. Let the transfused blood give you strength, and let being home give you happiness.
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Home Sweet Home Kandy.
Interesting I just had a doppler ultrasound to my arm for swelling. Apparently my port is blocking the flow of lymph fluid. UGH
Hope you feel better and so does your arm. I know how painful my swollen arm was. It is still swollen, but going down slowly.
Prayers for you and the next medication to be the magic one!!!
Hugs from Alabama!
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Oh good, Kandy! Rest, rest, rest. The week can only improve from here.
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Thanks ladies, I am home now, thank the lord. There really is no place like home. My left arm doesn't hurt but is swollen. Then after I got home my right leg and foot started swelling. Now it is huge. I gained 7 pounds in 5 days there and barely ate anything. I'm pretty sure they threw me into fluid overload. Hopefully my body can reabsorb some of that soon. I'm exhausted but I think that should be expected. I'm thrilled to be here and hoping I can recover from all of this soon. I'm sorta excited about my new treatment plan, hopefully the drug company will let me have it. I wish each of you the best. Lifting you up in prayer. Enjoy the moment.
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Kandy, I am glad you are home. Lifting you up in prayers also. It is a scary place to be with treatment options but it only takes one med to work . . . I pray to God every day for a miracle and will pray for a miracle for you as well.
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Kandy - wishing you the best. I just found out I am a candidate for abemaciclib which I plan to start after finishing Abraxane. Please ask your onc about this new med which can be taken solo even if you have failed Ibrance. Plus it penetrates blood/brain barrier and works super hard on pathway 4 of CDK 4/6. It may be something to consider before/after Keytruda, but it should in your your arsenal. UCLA is getting Eli Lilly to work out a low co-pay like Pfizer offers with Ibrance. Robin so happy to see you trying abemaciclib too. Good news!
(()) Claire
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Yea Kandy! home is the BEST! Rats on the progression news. I am sorry this got added to your worries. I hope keytruda kicks butt for a long stretch and then there is Abemaciclib, and by then proably a new great one in the pipeline. Rest up and pamper your self. It's time to rally again! Always in my prayers Kandy, take care.
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Kandy - thinking of you. The 7 lbs has to be fluid overload. Make sure you keep an eye on that swollen leg. Keep it elevated. Is it just the one leg? I'd report to the doctor. When do start the new treatment plan? (((Hugs)))
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saying a prayer for you and celebrating your going home!!!
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Animalcrackers, it started my left arm was swollen, then yesterday my right leg joined in. By last night the right leg was slightly swollen. This morning they had all improved. Definitely not normal but better. I'm sure they must have had me in fluid overload. I'm still not sure when I can start the new treatment. He has to get them to agree to giv it to me. He said he should know something within 2 weeks. I can't go too long without anything. It's gone crazy. I was very exhausted, I guess from my hospital stay. Ended up sleeping till 11 this morning and really haven't done anything since. I was hoping the blood would perk me up a little but it hasn't so far. I actually think my physical condition is exhausting which effects my mental condition, then that's exhausting. I am still overwhelmed at how fast things can turn. It has been so long since anything has had any effect on my cancer, it makes me wonder if there is anything. MO is amazed that it is so resistant to everything. Lucky me. I'm praying hard that God will open the right door for me and give me some more time with my family. Keeping each of you in my thoughts and prayers too. I have to admit, y'all are an awesome group of ladies. Keep enjoying every moment
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So happy you are home! Home always makes things a little better! My prayers continue for you.
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Glad to hear the swelling has improved in both your arm and leg. We are always thankful for small favors.
I can only imagine how exhausted you must feel on all fronts. It is a vicious cycle - physical feeding off emotional feeding off intellectual. This disease is exhausting enough when we're doing well. How is your pain? Is that under control?
and yes it is mind boggling how quickly things can change. But they can change for the better just as quickly!! Maybe you'll get a call tomorrow or Monday and the new treatment will be on its way! It's bull to have to wait 2 weeks. What's up with that? AARRRGGGHHH!!
Hang in there! We're here for you in a virtual chain of hugs!
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kandy—I too will be praying that this next drug will do the trick! Rest up. And know it’s ok to be blah. It is pretty amazing how the physical has such a strong pull on the emotional. Maybe some beautiful fall weather, complete with Carolina blue skies will give you a little boost! Love to you!
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Hi Kandy, have been following you from a distance since last Jan when u reported things were going down hill. I am glad u r still here. As I am too. I have been through so much in the last year. My 4th MO retired as of Sepf 1st. In July I spent a week-end in the hospital ruling out leptomeningeal brain tumor. I have had radiation to my left eye & skull. My new MO who I had high hopes for informs me he is being treated for prostate cancer. During treatment to tumor which was actually growing off my skull behind my left eye ball, I slipped on wet tile, fractured my pelvis & caused a compression fracture, making it impossible to be on my feet more that 10 min. So new MO has started me on doxorubicin, says it is not same adriamycin I had in 2009. After one dose my ribs hurt worse for a week or so. Now 2 weeks later, I actually feel better. Very confusing , but thrilled pain is better. You remain in my prayers, may God hear our pleas. Sue.
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