My Husband, My Life, My Love, My Family, My Cancer

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  • mara51506
    mara51506 Posts: 7,235

    @shanagirl, agree, if my cats would have used the litter robot which I had purchased for the townhouse back in the day, I would not be having the problem but they would not use it despite following all written advice, cleaned and sold it below cost. Went back to steel boxes, now that I know how much litter actually needs to be in the box, it should keep from letting urine flow to bottom, same as you I scoop everytime used unless not around. Oh well, got stuff on the way, will thoroughly get everything scooped out, no way to really hose it out so need paper towel to wipe out first and then wipe out, prevents most of the litter getting in the washer. That will be done as a vacuum of litter area as well. SIL was smart to add my vacuum sweeper back there. I will also employ that and broom get up the kicked out litter and dispose of those. Am planning to put my wee garbage can outside in my corner with lid and toss litter stuff outside in the corner. Works to go out the back door, open bin and toss stuff in there then can take over to the trash when I am able too but have a place outside for that kind of stuff. Big note on lid with my apartment number on and should I be told I can't, just put up my mobility issues preventing stair use and inablity to drag stuff in that huge can myself.

  • xsuzx
    xsuzx Posts: 40

    shanagirl thank you for thinking of me. 5 down……6 to go!❤️

  • shanagirl
    shanagirl Posts: 593

    @xsuzx Oh that’s sounds great! And it will go fast. I went 10 days and it went so fast. I actually have a follow-up with Rad Onc tomorrow morning at 11:30.

    Have a great evening girl sending you peaceful vibes tonight 😊🩵🌷

  • irishlove
    irishlove Posts: 713

    @mara51506 I used baking soda and covered the bottom of the pan. It worked well and is reasonably priced. Thing of you and I know you will meet your goals, in healing and coming home.

    @shanagirl Oh my goodness I cried reading your story. The compassion shown to you was nothing short of extraordinary. You are so sweet that I imagine people are very sweet in return.

    Thank each and everyone of you for the thoughtful birthday wishes. It was a quiet day, which is fine by me. DD was sick, so I baked my own cupcakes. Turned out pretty good, love chocolate with whipped chocolate cream on top and some marshmallows. We had the tree taken down last night by son-in-law. He bought the tree and decorated with his own items. It was great not having all that work. The pine tree is still in great shape, so I bungee chorded it to the crepe myrtle and put popcorn on it. The smell is so beautiful and takes me back to Christmas past. Family finally vacated tonight after DH spoke to son-in-law and DD. They had been here since Thanksgiving. Now I can get in that bedroom and really clean and sort clothing to take to resale store. So many beautiful little girl dresses she never wore. I know you don't make much money doing this, but I'll give it to DGD for her piggy bank.

    Deep in pockets for those in need.

    Laurel

  • chicagoan
    chicagoan Posts: 1,414

    Happy Birthday, Irishlove. Sounds like it was a very nice day.

  • chicagoan
    chicagoan Posts: 1,414

    Mara-I know that conversations between siblings can be frank. I would say things to my brothers that I wouldn't say to other people if I was concerned about them. But your brother's remarks seem pretty cruel, especially if you do brush your teeth twice a day. I hate how he and SIL seem to think that they have the right to shame you, just because you need their help with certain things. This is a vulnerable time for you and I hope you don't get hung up on your teeth. I go to the dentist twice a year, as is customary in the US. Even though I try to take very good care of my teeth, they always look better after getting the professional cleaning. My new dentist advised me to switch to an electric tooth brush and water pik, plus regular flossing. I had tried them years ago but tried them again upon her recommendation. My teeth do feel cleaner with this new routine and I've gotten used to having the devices in my mouth. That's what I hated the first time. Hope that you have peace of mind today as you see your oncologist and get everything set for surgery.

  • mara51506
    mara51506 Posts: 7,235
    edited January 6

    @irishlove My family is helpful for the important stuff. I need to shake it off, listen to advice, take what works for me out of said advice and go and ignore the blunt stuff. Life would be much better.

    Seems we are the night owls, I was too busy doing other stuff. I tend to start eating, gets me through a sleepless day. Saw this dude on youtube talking about air fryer hacks. One involved hard boiled eggs, just pop eggs in, put in cold water after, using a frozen meal in the cold water to act as ice as I do not have any ice, posting when I find out. I know that it is perfectly safe for a frozen meal or meat to be put in cold water so might as well. Eggs are done at 140 Celsius for 15 m. Once done with the cool bath, planning to take out the frozen meal if possible, if not defrost in microwave a bit and dump the veggie stir fry in the air fryer. and have the eggs as a side dish, we will see.. My plan is to defrost the veggie stir fry, by adding some garlic and sour cream powder, cook for 15 mins at 140 stirring every few minutes, not looking for super crispy, just a different way to do it.

    Addition, I did have success making the hard boiled eggs, two of them, same instructions as above, cooled in cold water with a frozen meal making the water even colder due to no ice cubes. The frozen meal became thawed though had a lot of water, had to strain the stirfry and heat about 5 mins at 140 first to remove most of the water content and did spend 15 mins heating through. For the last part, took the hardboiled eggs, peeled pretty easily and I just wound up tearing them apart and putting in the fryer with the stirfry. Liberal garlic flavour, used some caesar bacon dressing as binding and some crushed up great value cheddar rice cakes as well. It was really good. Just another weird thing to eat. All dishes soaking for limit of 30 mins. I also boil some water to add to a sink soak just so stuff is easy to come off.

  • eleanora
    eleanora Posts: 489

    @goldensrbest

    Oh poor you! We do our best to protect ourselves, but the invisible nasties still find us. Glad to hear there's some improvement in counts. Hopefully the fatigue will ease as the antibiotics kick in, although some of the stronger ones cause fatigue. I was on IV ertapenem for two weeks and had to nap every afternoon. Just give in to it and sleep as your body demands it.

    @irishlove

    So happy you and DH have finally gotten peace and solitude! I think it was a medical necessity for you. Too much of your stamina was being drained by DD and DGD. I think the hardest thing is to allow adult children to lead their own lives, even when we see them heading down what we believe is the wrong path. You and DH have been incredibly kind and generous to them, but for your own sake (and health) you need to detach.

    @mara51506

    Squeezed into a tiny corner in one of your pockets through surgery and recovery. Surrounding you with love and healing thoughts.

  • cookie54
    cookie54 Posts: 1,248

    @goldensrbest Ugh so sorry you wound up in the hospital! Glad you're getting the medical attention you need. Sending hugs and healing vibes your way.

    @mara51506 As usual you have a great attitude with your DB and SIL. Yep you take what advice that's useful and discard the rest! I will be thinking of you all day tomorrow and praying for a successful smooth surgery. Know that we are always here to support you.I wish it was in person but I hope you feel all the love for you here❣️

    @irishlove I think I missed your bday! Wishing you all the best in the year ahead and always🌺💗

  • chicagoan
    chicagoan Posts: 1,414

    @goldensrbest Sorry to hear you are in the hospital. That flu bug this year is really nasty. Hope you feel much better and are back at home soon.

  • intolight
    intolight Posts: 2,893

    @goldensrbest Joining with the others with empathy for your flu bug. I fear getting it and have been a recluse lately. We have the air purifiers going in the house and I plan on wearing a mask at the hospital tomorrow. My DD, who is a night ER nurse at a children's hospital, says they have patients everywhere and struggle to clear the waiting room. She says almost 100% of children who are there have flu A along with whatever else they are there for. My DGD went back to school today and I will avoid her too as much as possible since my immunity will tank today. Sigh.

    @irishlove I know you are torn between seeing your DD and having them leave, but you are right, it is best. I hope you take this time to rest and recover. You deserve some peace.

    @mara51506 Continued prayers my friend for your surgery tomorrow. May the outcome and recovery have the utmost results.

  • mara51506
    mara51506 Posts: 7,235

    @goldensrbest I am so sorry you got hit with that flu, I had that same type almost three years ago and it caused 3 falls for me with a fever, no antibiotics for me but I survived and it sounds like you are coming out of yours just fine. I can imagine the joy of coming home.

    Yes, getting close to surgery time. I've been up all night, that is OK, not surprised I am, I have kept meals up, found my instructions for surgery, I had wrong info given to me by SIL and the neurosugeon office. Instructions stated I need to stop eating by midnight and cut off water at the 12 hour mark. Now I may follow that the original 12 hour thing, I will have to see. I did manage to sleep through cardboard pick up so stuck with extra cardboard, my solution will be to cut down the amazon type cardboard to smaller pieces using my newer exacto knives, store them in a blue bag and put in a pretty shopping bag til I want to take it all out.I can hang the bag up on one of my 2000 hooks around the house and that would be less obvious. I have the lilac container in front of the closet I have also been squishing all packaging stuff with hands and putting into garbage in the kitchen, got a little composter, thought would hold litter but decided when get out of hospital will hang up that container, add compost bags for the food garbage, like just be for tea bags as I tear the used ones up to make more room, was using that for deodorizing drain but do not like the idea of those not going down the drain. Just tear apart and put in composter once I have the right size bag for composting. This will be after I get out of hospital.

    Left some instructions for SIL for what to do whilst I am in hospital, big one is to not worry about sorting anything or heavy cleaning. I can take care of that, myself. I will let them know the compost container is to be ignored as well. I had it by the litter genie but my bags do not fit it so need compost bags, separate food scraps from regular garbage, would hang in front and I can break up tea bags or scoop any leftovers as well. Supposed to be odour free. Ordered the Walmart compost bags, should fit my container, can hang off the kitchen cabinet, use bag for organic stuff. Thinking tea bags and such. I usually break up the used bag which takes up a bunch of room, can store grounds in there or any food item, egg shells whatever. Tea grounds as I learned can clog up drains. Used to put them down the drain but no longer gonna do it. Moving the container to hang off door.

  • mara51506
    mara51506 Posts: 7,235

    Got some immodium, bringing that and enzymes because when exit hospital, assuming all goes well, I will be HUNGRY. Cannot take in hospital I don't think but when released, assuming things went well, I will be wanting food.

    Few chats with SIL, productive. My social worker called and we chatted possible services and that my surgery hospital will advise on that, gave her that info as well and she is bringing some stuff for me to have. Need more undergarments she is picking some up. I handwash on the daily which meant I only had need for a couple pair but more would be better.

    Got beefless ground, will have some with a meal, may airfry lentils from fridge first, get them crispy and add some beefless ground, queso and taco seasoning, might add some frozen peppers as well. Next while, will work to sweep and mop the litter area, set up the air purifier, crack window some as well. Should be hunky dory. Laundry needs some doing too. If missed above the air fryer hard boiled eggs here actually really good and easy to make them using the air fryer.

    Hope all have a good day, in pockets for all who need me, if hospital allows it, will post. Mute device and run on do not disturb. Last time was able to use phones with ear buds. Don't see it would be an issue, just need to not disturb others, they will certainly let me know. May also bring tablet with movies on it or just watch you tube there. Got two phones, one for online stuff and one to listen to music with, check tablets as well. Bring charger IF there is no available charger there, I am sure there is but still. Resist urge to overpack stuff to but group items together.

  • threetree
    threetree Posts: 2,450

    @irishlove - I'm another one chiming in here with belated birthday wishes. I hope you had a wonderful day and have many, many more! (I've been kind of a mess lately both mentally and physically, so there's so much here that I would like to respond to, but just wind up not doing anything - ugh! )

    @goldensrbest - So awful that you got the flu, and so bad too - even after getting the shot! Wow, I hope you don't have to stay in the hospital for too long. I guess this current flu going around, is really something and I've heard before too, that this years vaccine wasn't a good match for what we got. I am really pulling for you and in your pocket.

    @mara51506 - I am so in your pocket for tomorrow! I will absolutely be thinking of and rooting for you all day long! I'm going to fit myself way down in one of those corners of your pocket, like someone else here said, as you will have a very overflowing pocket for the next while for sure. Hugs too!

  • irishlove
    irishlove Posts: 713

    Lost my post. grrrr…. Checking in on our sweet Mara. Anyone hear from her family? She certainly maintains a great attitude and I admire her so much. @goldensrbest I hope you are beginning to shake the flu. This one is for the ages. My go-round with it took close to 7 days, with mostly fatigue the last day or two. And I'm talking bone busting fatigue. Keep the tea ready and get better soon.

    Watching the weather forecast for the nation. Rough beginning with ice and snow to 2026. Back in 1997 winter, we had just moved to Valle Crucis, NC., just down the road from Boone. The forecasters called for 8 inches of snow. By the end of the storm it was 4 ft. in our neighborhood. We bought a generator for the next year. What saved us is we had a wood burning fireplace, gas cooking and 7 dogs curled up in bed at night. Plus we had Grandmas wool Hudson bay blankets. What a challenge and we were young, dumb and enjoyed it because time stood still for a brief while.

    Here in your pocket, whomever may need me. Stay warm and safe and away from ice skating with your car.

    Laurel

  • micmel
    micmel Posts: 10,112

    checking in on Goldens best! I hope you’re feeling better soon. Someone said January was diagnosis month. I am Jan 22 2016. So I agree there. Just wanted to catch up on everyone. I think of you all daily. I had heard ebernix girl had passed. The one that had the other stage four thread? Please tell me that it wasn’t her. I heard wrong? Does anyone know? Thanks

  • micmel
    micmel Posts: 10,112

    cannot forget Mara. You’ll be in my thoughts constantly and sending blessings. Hugs my dear sweet sister.

  • aj
    aj Posts: 410

    @mara51506 , good luck with your surgery!

  • seeq
    seeq Posts: 1,269

    @mara51506 - in your pocket for the next several days. Sending positive, healing thoughts your way.

    @goldensrbest - sorry to hear you're in hospital and hope you jailbreak soon. The flu is no joke this year.

  • seeq
    seeq Posts: 1,269

    @micmel ‐ yes, exbrnxgirl had the "Life oies not end with a State IV diagnosis" thread. Too much sadness.