My Husband, My Life, My Love, My Family, My Cancer
Comments
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@candy-678 I am sorry you are dealing with the BIGD but glad you are able to find a system for you. In my case, without the digestive enzymes and immodium before meals, BIG D would be a constant visitor too.
I did enjoy the movie for sure, next time, think popcorn could stay off menu as I could not finish it all. I like being in the theatre but if another movie I want to see comes out, might stick to a burger meal at my burger joint which would be cheaper. I am not a person who would sneak in candy. My folding cane fit in my bag, just a wee bit shorter even at full height.
Cancelled all streaming channels except you tube. Realized I can watch any show next day free that I usually watch, not many others I CBS too. Youtube stays as that is mostly what I like to watch.
Laundry on go now, floors can happen later. Decided to invest in a flat mop with separate water to keep the clean one clean and can wipe down walls, they would be a good way to clean out the tub, just need to move washers out and get it done. It is coming this afternoon. It gets the dirty water coming out of washers. I am excited to get a flat mop because no spray needed and uses small bucket.
In the kitchen, drawer is hanging off the edge as one side came apart. I will suss out how to attach it again, for now screw is on the counter. It closes but the opening is not great. If all else fails, get someone to come and repair it for me. Might also leave open when possible. Could move stuff out and put in different container til repair can happen. EDIT on the drawer, used command strips with velcro, applied to both sides. Held in place so I could attach painters tape, used that because it comes off so there is some painters tape on the face of the drawer but it is working as it should. I am not offended by some tape on front of drawer if drawer is working which it is. Can report for repair but if working, I am fine with that.
Beans, lentils and more of the mexican rice I am still working on. Same routine, prepare rice portion first, probably 1/3 cup worth, add the cheesy seasonings, I love the cheesy popcorn seasonings to the water and get flavoured pasta or rice. Still have the seasoning pack that came with as well. I figure I could treat Kraft Dinner the same way, keep noodles in container, no need to eat whole box. No need to be limited to the cheese, I used to buy sour cream and onion flavour KD, could make again. I will post food later. I also need to finish up eggs so could decide to have eggs, lentils, beans and beefless ground. If do all that together. Other option for an egg could be little butter, cheesy or sour cream and onion seasoning, whisk in small bowl then put into the mini griddle, favourite way to eat an egg. Does not require chopping at all.
The meal I made did not please me at all, do not think lentils lend themselves all the time and was not at all pleased with the meal, threw out the rest. Need to make smaller side dishes
Enough verbal salad coming out, I hope all have a good day, again if anything is really good like meals or the new mop will certainly update. As usual, I am in all your pockets.
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@mara51506 So glad you enjoyed the movie!
@threetree sorry you are dealing with dizziness., that’s certainly not fun! I definitely have more headaches my week on xeloda some weeks are worse than others. Hope your dizziness subsides soon. Also, thank you for your kind words.❤️
@eleanora Sorry to hear that you are having a treatment change. Thank you for your kinds words too, very sweet. My Xeloda journey hasn’t always been pretty but I have learned how to manage things my biggest issues have always been my hands and feet, but they have gotten much better over the years, especially now that I’m on a lower dose. My skin is very sensitive on my hands and feet and I can’t walk barefoot in the sand. When I did ,my feet flared up the next day. Anything that causes friction on the skin when you walk is never good.. Even if my foot slides around in my sneakers it’s an issue. But as you know, everyone experiences different symptoms. HFS is a common one. I also do watch my folic acid intake as that can flare up hands and feet too. Overall X has been one of the most manageable chemo’s that I’ve been on. All about Xelada is a great theead here too.Hope X treats you well🤞🏻Are you fron South Jersey also?😊
@candy-678 Well I’m glad you found changing the time you take it helps you manage the situation a bit easier. I wish you weren’t even dealing with the bigD at all!! Hugs
@tanya_djamila Yep going to two treatment centers in a day is too much! Nobody should ever have to be in that situation and it breaks my heart to hear this. Sending you strength and hugs.
Thinking of all who are struggling, may tomorrow be a better day❌⭕️
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Good morning all, shorter night of sleep, decided to have a late snack and that pushed out the bedtime further. Woke up before alarm went off, have to book ride for Herceptin on Wednesday but that is fine. If weather improves, may book ride to Walmart to get a few things, I will have to see or take trip to No Frills to look for canned lentils, Walmart is out of stock, I do not really like the dry ones. I did find out that I can coordinate a multi trip in the day meaning, go from home to Walmart and then book Walmart to another place or store or burger joint and finally wind up going from burger joint back home, require an hour between all trips. I may try to put that together to happen after Herceptin. If I could do multi trips in same day, don't need to book one trip 3 days in advance.
My repair job on the drawer in kitchen that was practically falling off on one side is holding up, I know it may have been able to be screwed in but side of drawer falling off is awkward. Putting command strips and painters tape seems to have worked for the moment.
Got a fair amount of laundry to get started, first cycle done, handwashed my delicates and already hung them to dry on the shower rod. Got a lot of stuff on the agenda, few boxes to breakdown and send out for recycling pick up this week. I did a lot of the work on that yesterday. I also made good use of my new OCedar mop. It does not need electricity, When dip the mop, picks up clean water, if it is made too wet you can take it and push it down to remove some of the excess. I have had 3 spraying mops fail on me so I figure a manual system with the ability to keep mop cleaner with a separate clean water chamber means nothing to wear out and less water used. Will keep wet jet bottles as I can use those as well. Use my non spraying mops to follow up on floor to dry if necessary. Not getting rid of everything. Hoping the new mop lasts a while. Did notice the pad has little prickly things on it, seems to pickup cat fur better. Need to check if other mops pads are compatible as well, if not, no problem.
Both cats have had a belly ache, I am suspicious of fast eating so am using bigger plates to feed them to slow down, don't want to keep buying a bunch of stuff at this point like slow feeders etc so can just do small portions spaced a good amount of space apart which will slow them down a bit.
Nothing else on agenda beyond figuring out meals. I have random bits of food that can be cobbled together. I've tired of a lot of usual meals so not sure what I am wanting, thinking to kill a couple stones at once take an egg, whisk with bit ofmayo and one of the cheesy option of dry seasoning and heat on the mini griddle I think. I have two of the griddles unsure why but whatever, can use both a same time since each are only 3 to 400 watts. I will see, also found hashbrowns that could be used up as well. I will post what I ultimately decide on having. The egg, beefless ground with cheese and a few lentils is another idea.
MEAL 1 All done in the air fryer, started with rest of mexican rice, added water, heated in there and then strained out water, put back in the air fryer. Added few lentils, beefless ground, some spicier queso, cheese seasoning, bit of mayo to keep it less spicy and some cheesy popcorn seasoning. Shredded cheese was represented too. It was DELICIOUS, the rice turned out as well, nothing stuck to a steel pot. I loved it all. A very mexican inspired meal. I chose well.
MEAL 2 will be anglish muffin buttered, toasted in Breville oven, cooled off then a TON of peanut butter on top. MMMMMM
I do hope all are having a good day, In pockets for everyone sending support to anyone needing it.
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Hi, haven't posted in a while. Taxol every week, Keytruda every 3 weeks, gcsf shots for 3 days after each treatment... I'm pretty burned out. Treatment Tuesday, PET CT Wednesday this week.
We got to go camping in June but this last month has been too hot and smoky. Here are some of the wildflowers and the beautiful buck deer. I've started trying to sketch every day, drew my cat and birds. A kestrel of course 💜.
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Thanks for the comments regarding the beach and the cautions. Wondering if wearing water shoes would help. I begin treatment this Thursday and will see how things go. Hoping to get to the beach for a few days in mid-September when it should be a bit cooler.
Sorry to hear about your issues with diarrhea. I haven't taken Verzenio (yet), but just completed more than 4 years on Kisqali and my biggest problem was cramping and diarrhea. If you have palliative care available, I found them to be really helpful. There are prescription anti-diarrheal meds which are stronger than immodium. I also relied on Bentyl, which is a med taken every day by those with IBS. It controls cramping and I used at as a rescue med when the pain escalated.
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Those cat pictures are just lovely,
Have Herceptin on Wednesday and an ambitious day on Thursday. Wanted to try going on multiple trips . I booked first trip from my place to Walmart, then second trip from Walmart to No Frills, 3rd trip from No Frills to home. 4 Then Home to the burger joint for dinner, last trip from burger joint to home. Only thing was I had to give 90 minutes between trips. Just an experiment and a way to stay busy. Will need to ensure anything picked up at grocery stores are not super heavy. Trips have already been confirmed. I really want to keep these trips so it will be easier to go extra places without having to book 3 days apart. Filled up my bus card so I have enough rides. No frills has the cleaner I LOVE the smell and it is available at No Frills, I use it as main cleaner floors, walls and sink and hoping canned lentils are available there. Looking forward to a cheap burger meal too without paying delivery.
Meals are easy, air fryer for all including either rice or part of a pasta package, need to open lentils or beans, might do some quinoa and soaked chia seeds, will decide but want to do all in air fryer, it was easy to add a bit of water yesterday for the last bit of mexican rice. Nothing burned up which was good then can just add other ingredients to the top. Might put an egg in all that. I will post meals as I have them. Kraft dinner as a part of a meal would be good, good fancy up the cheese as well.
MEAL 1 Made a burrito with beefless ground with diced potatoes and frozen peppers. Cheese seasoning and mayo with queso as binders. Will go back to microwave for burrito. No more frozen peppers, they made the dish taste off, most tasted good but the peppers ruined it for me, tossed about 1/3 meal out. Oh well, I am honest about all meals good or bad. This was more bad than good.
Started laundry which is good, keeping up on it as well. More boxes to break down today.
Hope all have a good day, In pockets for everyone, me included. It is a lot of trips to have but some good walking around stores, plenty of spots to pop a squat and breaks between the different trips as well. I really do not wish to cancel any of them. I most likely would not attempt this much over the winter but this is a good time to try it out. I don't have anything to do today or tomorrow and only days I am busy so that should be fine for me.
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@mkestrel Lovely pictures. You are a good artist. My school kids used to laugh at my stick figures lol
@mara51506 I love that you are getting out and about. Yes, enjoy your outings before winter hits.
@eleanora Somehow I didn't realize you were on Taxol too. I am on two weeks on and one week off. My onc agreed that I could focus on quality of life. I may not last as long, but it works for me. Actually, I have been struggling even on this dose. I had to have a transfusion Saturday and passed out again on Sunday morning. Fortunately my DD was home and helped me. It is what I do sometimes and is why I broke my leg last time when I fell. The Taxol is working as things are either disappearing or slightly getting smaller, so we are keeping this beast under control for a bit. I agree that this whole thing is fatiguing.
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@eleanora Yes water shoes or sandals etc should help. I always have something on and have used both water shoes and sandal without an issue. Good luck starting Thursday sending positive thought to you for minimal side effect and a good outcome from X.
@mkestrel Hi it's good to see you here! Sorry to hear you have been having been feeling a bit burned out, we totally understand! Glad you were able to travel in June and hope once the weather cools down you can enjoy more outdoor time. Your pics and sketches are great, you have a gift for sure!
@intolight Glad Taxol is holding the "beast" back! Passing out again ..how awful and scary. Do they know why you're having episodes of this? Is it related to your treatment, BP dropping?
@mara51506 Glad you're planning your week out to stay busy. Hope the weather cooperates for you, we're back to swamp city here lol. Although we have a day of nice weather which is tomorrow. Which I am very happy about because we have a family outing to the Phila Phillies game and I didn't want to sit and roast! Looking forward to it there's 18 of us going so it will be fun! Catching up on housework today , taco's for dinner..yum.
Hi to all here , in your pocket for all appointment and struggles.
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@eleanora and @cookie54 I have made a busy day on Thursday for sure but the plus side is there is somewhere to sit in both locations. I will be looking for canned lentils at no frills after Walmart as I find it highly doubtful I will find them there. They seem to be out of stock at Walmart and I do prefer the canned variety. Will still need to tell myself NOT to cancel trips. By the end of trips most end up enjoyable but in the lead up, anxiety creeps in requiring deep breaths before I leave, even the hospital ones. I have not fallen for a couple of years now, I do exercises to improve balance in bed including ankle rotations both ways and back and forth, lift knees to chest and stretch legs, basically spread them wide and finally the bridge pose. Cannot see ankles folding under with the daily exercises.
Not sure on food right now, probably frozen mini pizza, thinking microwave 60 seconds then transfer to the air fryer. Putting lentils and cheese on top of it. Getting hungry so will likely make it up shortly. Already defrost first, in the air fryer with lentils and cheese.
EDIT 1 Meal, I did take a frozen pizza, I did defrost over a minute to ensure inside of pizza got heated in air fryer. I did take lentils to cover top of pizza and put a generous amount of cheese on top, put in air fryer, took 7 mins and came out crispy, not burnt. Some cheese was definitely stuck to edge of air fryer pan, don't care not much. No seasonings except bit of salt put on top, it was perfect, no binders needed either. Enjoyable meal.
Floors will be done soon, snacks can include 1/2 english muffins, garlic and cheese variety or simple butter and peanut butter. I will see what I may want to have.
I do hope all have a good day, in pockets for appointments, scan results or side effects from drugs or surgery.
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Good morning and hi to all my ladies here in Mel’s living room and also bone met forum & liver met forum where many from this living room commented also because of progressions so many of you all whom I have share here with and all of you have been on this Stage IV difficult path.
@threetree @candy-678 @tougholdcrow @tanya_djamila @goldensrbest @cookie54 @irishlove @intolight @mara51506 @chicagoan @intolight @gailmary @brutersmom @elderberry @eleanora @emac877 @going2beatthis @illimae @norah2024 @rlschaller @seeq @mkestrel……..🌷
Yesterday day I had my follow-up pulmonologist appointment who wants me to have another chest non contrast CT, because I am still coughing at night and not sleeping since my Hemorragic Pneumonia in May and all the complications since. After my visit with him I had my monthly follow-up with my Oncology, Labs, and treatment injections of Xgeva & Falsodex injections. During my followup I discussed how miserable I’ve been these past months with coughing, nausea trouble swallowing when I eat, pain behind my sternum and the new infectious inflamatory node in my upper lung. My oncologist expressed a lot of concern over my continued rise in Calcium Levels in my metabolic blood test. Because it went up to 11.5 which is dangerously high. Now I have to have a visit with an oncological endocrinologist to see why, and how serious the hi calcium is. I’ve been researching and found that it could be hypercalcimia which is caused by hyperthyroidism caused by a benign tumor on the thyroid gland which needs to be removed, I am so freaked out inside by all this all of a sudden. I’m so weary of Dr. appointments and blood tests and all the esophageal pain when I eat.. I started reading about all of the symptoms of hyperthyroidism and I have them all including significant weight loss since May. At least I did not cough Last night. My pulmonologist prescribed pills to stop the cough instead of the horrible cough medicine, I just have one question, has anyone here gone through extreme rise in calcium in their labs?
Thank you for listening everyone.🌷🩵💕
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- it is probably actually the parathyroids they were talking about. I had the surgery shortly after I was dx'd, and it was a very easy surgery. I went to Norman Parathyroid Center in Tampa. They reviewed my records and made a determination before I traveled there, so we were just there overnight. I had two parathyroids (out of 4) and part of my thymus removed. They actually test each parathyroid's function during the surgery.
You can check them out at Parathyroid.com
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@seeq Hi girl, thank you for sharing your experience with high Calcium levels relating to parathyroid issues. I’m going to make an appointment with the oncological Endocrinologist and find out why the rise in Calcium in metabolic blood labs.I’m hoping this will resolve before my next onc followup next month. I am also wondering why it jumped so high suddenly to 11.5 and was steadily Normal range and wonder if my pulmonary issues have more to do with it and being on steroid med packs, & steroid inhaler, as well as the steroids given in the Radio Frequency injections in my cervical neck spine in C/4 C/5 /6 & C/7 in the both sides o the facet bones. I read that steroids can raise calcium levels with th hormone Cortisone. It seems everything is inter related in Stage IV ith the testing and treatments. It’s frustrating. I’m sorry you went thru it. But if I do have hypercalcimia because of my parathyroid glands in my neck, surgery is the only option. Just another thing to deal with with metastatic breast cancer.🙄🫤
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I have Herceptin today, woke a bit earlier but slept just fine.
Got laundry on the go now would like in the dryer before needing to leave. Will have a smaller meal before leaving, always have cheese, gingerale and digestive cookies. Figure out meal once I get back. Planning early bed time. Got 8 rides tomorrow starting at 2pm. In own pocket not to wimp out of the trip as well. Way is set up at 90 mins between trips should mean only charged 4trips as there is a free transfer trip. Trip 1 Home to Walmart, Trip 2 Walmart to No Frills, Trip 3 No Frills back home and Trip 4 Home to burger joint for supper and finally burger joint to home. 8 rides total, 90 minutes between each so not a rush, bit of long day.
I am thinking could have an egg and mini pot pie possibly and some lentils, I will see what I decide and post later if remembering to.Turne
MEAL 1 2 eggs with cheese dry seasoning, sour cream and onion seasoning, spoonful garlic spread. Added a burrito on top of egg mix and some canned lentil and dry lentils. 5 min 30 seconds in microwave, mixed all up. Turned out very good.
I hope all have a good day, in pockets for everyone, support on appointments, feel ill or whatever you need.
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Today I made an appointment with an Endocrinology Group and they work with my oncologist at the John Theurer Cancer Center in Hackensack, NJ.. I went to the website you recommended and just reading and watching there video on HyperParathyroid, I learned a lot and It inspired me to get that Endocrinologist appointment asap. Hopefully I’ll Have some answers and before my next Oncology appointment. I will keep you updated, and again thanks so much!
@mara51506 Wow 😮 what a long day you had. You planned it so well including your meals. You are amazing‼️, now take caare of yourself and get some rest🥰
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@shanagirl Yesterday was just Herceptin, today are the multi trips. I slept pretty well so not too worried about that. Take quick walk around mall and Walmart, on to No Frills grocery store, look for a couple of lentils, walk up and down aisles, go home for a bit and then visit joint for dinner, should be good. Not leaving til 2pm and there is an hour and a half between trips.
I feel like I can convince myself I am more exhausted than I am. Would I do this kind of trip all the time, no but is good to get out of the house and walk around in places I can since I faint outdoors no matter the weather, hot or cold. It will be stormy today but luckily I do not require an outside wait for rides.
In the meantime, laundry, floors, cat area etc can be done. Need to figure out morning meal. I want to include eggs, lentils and a couple mini pot pies. I will have that later. I will be careful of not overloading myself when shopping since going two places. Probably take bigger knapsack and one of my billion shopping bags. I will see. I was able to do floors in living room from my seat on couch since the vacuum sweeper, Ocedar mop and the swiffer floor sweeper all have long handles. Got living room welldone.
I do hope all have a good day, @shanagirl I will look forward to your updates. To everybody and myself in pockets for all.
EDIT2 Using same large sprayed bowl, used 1/3 cup rice, 1/3 cup lentils, 2/3 cup water, I did add some garlic spread and cheese popcorn seasoning and 1 mini pot pie, ran microwave for 5 mins on high, there was a fair amount of water in there so took shredded cheese and stirred it up to melting. Water content disappeared as did the meat pie, it disappeared into the rice and lentils. Put more cheese seasoning. It was flipping good. I skipped the eggs as I thought I would get overly full.
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good morning ladies
I pulled something in my neck back shoulder. Yesterday on heating pad patches and pain medicine. I’m going to repeat for awhile today but will go to say goodbye to GS who’s off to school tomorrow:
Mara I hope your rides all synced up perfectly today.
@shanagirl youve had a battle since your last travels. I hope this thyroid calcium thing is the last of it.
@seeq thanks so much for helping Shana. This community is amazing and always helpful.
Take care all
Big hugs 🫂
Tanya
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@tanya_djamila Ooohhhh Tanya, I feel your pain as I am very familiar with the neck cervica spine issues with includeded shoulder pain. The heating pad is my friend when that starts. I’m hoping you feel better in a day or 2 and keep taking your antiinflammatories.💕In my pocket today. Dearest Amazing @mara51506 . Wishing you a good day with your planned rides. You already in my heart today🩵🌷
And also sweet girl @seeq , I agree with @tanya_djamila 😊in saying Thank you so much for your help🩷
So I’m off to go for my chest CT here in the next Town at Ocean University medical Center. So glad it’s only a 10 minute drive😉
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You didn't miss anything. I just started Xeloda, not Taxol, although I'm on the same schedule as you -2 weeks on, 1 week off. Totally agree with you on the QOL issue, and I hope Taxol gives you a good long run. So sorry you are passing out, but glad your DD is available to help. The change of treatment after 4 years on Kisqali has motivated me to be more involved in the experience. I have joined 2 different virtual support groups for people with MBC for a total of 8 meetings a month. The members are a great source of helpful, practical tips. I kept requesting a dietitian/nutrition consultation until the cancer center finally gave me one. Based on the helpful comments from those here already taking Xeloda (thank you @cookie54 and @threetree ) I'm hoping to get advice on the folate issue with Xeloda as well as recommendations for getting enough nutrition as the medications have reduced my appetite. I also pressed for an orthopedic evaluation, as the progression was all bone mets. Will be happy to share anything I learn from these consults. Thank you especially @cookie54 for the positive comments about water shoes. The thought of being deprived of the beach, even if only for a short visit, was making me cry.😔
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I completed one of my trips, unfortunately bought so much that it was awkward to get around. Cancelled my No frills and burger joint trips. Walmart trip was just fine though and the driver of Paratransit kindly dropped me at home since stop after was a couple doors down.
I got too much stuff so it was awkward getting around. Next time, will just have it delivered.
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@tanya_djamila Ugh sorry to hear you’re dealing with spinal pain now! I hope between the heat abd pain meds you got a good jump on it and it doesn’t linger🤞🏻hugs.
@mara51506 Sounds like you had a good full day! Oh its so easy to over buy at Walmart.. isn’t it? Glad the driver was sweet and dropped you off at your door. Well I know you use online ordering with Walmart so maybe next trip can be a light shop and browse.Most importantly you made a day of it and enjoyed yourself being out and about!
@shanagirl Hope CT went smoothly and yields good results🤞🏻
Well back to the swamp here with ungodly humidity, will make the best of it, We’re having friends down this weekend to boat so it will be fun regardless! Blessed and grateful for sure and glad it’s my week off Xeloda!
Continued prayers for all here dealing with side effects and pain. May today be better than yesterday ❌⭕️5 -
@mara sorry you canceled part of your trip but you made it! The driver was kind to let you out by your door.
Thanks everyone for neck shoulder back pain. It did subside of two days. I took everything I had and wrapped the heating pad around my neck. I am moving gingerly but glad the horrible pain is gone.
@cookie54 im glad you feel well enough to boat with friends. It’s amazing how things like that force you to make the best of it.
Waving hello to everyone.Tanya
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I’m so sorry you’re going through all of this. I truly hope you find the answers soon and that your calcium levels can be treated quickly. I also hope your suffering with hospitals, appointments, tests, and treatments comes to an end soon. That’s the part I hate the most too. Wishing you strength, comfort, and a full recovery. Take good care of yourself. ❤️🌷
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@tanya_djamila Glad your pain has improved. Hopefully it will continue to improve throughout the day.
@mara51506 So sorry you had to cut your trip short. I am sure it was good to get out and find some goodies to take home.
@cookie54 Enjoy your treatment off week and boating with your friends.
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@cookie54 Yesterday was a full day, learned pushing a heavy thing like the cart does wear me out, I was able to go home and skip the other two trips. . Got a delivery coming from no Frills coming, may book one trip to No frills as I have 20 buck piled up in there now from paying bills. I got more canned lentils, sausage patties, chick peas and some hash browns. That order is coming shortly, so will be using up some canned lentils, vegan beef burgers.
Groceries are arriving next few minutes, thinking of dry and canned lentils together, put in a burger patty and a possible hash brown, I will see. I do have a beyond beef burger, two of the tiny hashbrowns as well. Once they are done, will add shredded cheese along with the cheese seasoning I have. Rice and lentils will be done in microwave separately and everything is brought together. I may delete the rice and just put lentils in with the food as the canned does not require a cook as I am a starving Marvin. Later when decide want to use up my free 20.00 credit, I will ride to the store to take advantage.
Meal 1, no rice but two mini hashbrowns and a beefless burger done in the air fryer, hash brown was perfect as was the burger. I took lentils and cheese added to the precooked hashbrowns and beefless burger, microwaved for 2 mins to melt shredded cheese. Stirred everything together, a spoonful of Tostitos queso and spoonful of Mayonnaise. It was delicious.
Beyond that, just taking it easy today. My cat Tigger still has an upset stomach no matter how little at a time he is fed, took away water too to avoid him overfilling. He gets water back half an hour after the meal. Once he has had water, take it away half an hour before feeding. I also bought a bag of Purina sensitive stomach stuff that arrives tomorrow.
Supper for me I am not sure about yet, there is stuff in the fridge I need to work through but will post if is good.
EDIT2 Had an english muffin, loads of butter and peanut butter one they cooled after toasting, use the breville for that. Delicious.
I am late in posting this but hope the day went well for everyone, in pockets for everyone, especially those dealing with pain and SE from their drugs.
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Good early morning everyone. Sorry that I have been MIA for about a week. Just caught up on the postings that I missed. Forgive me for lack of memory to respond to everyone (my brain, she are no good) but I wanted to say I'm in each in everyone's pockets for improvements and life in general.
This computer is acting up and it's upsetting. The posts just disappear. I believe it occurs if I rest my hand or bump the board, so back to typing with fingers only and no resting my hands.
Today the hot and humid weather finally broke. I was able to lay some pea gravel in the garden and water the plants early. The passion flower has really taken off. It's traveled all around garden fencing and gate. I had to redirect it's efforts. No flowers or fruit yet on the vine. The gardenia plant out back is struggling as it's in direct sunlight many hours of the day. The new one out front is thriving and even has buds on it again. Very unusual to bloom after May. The Night blooming Jasmine has a few flowers and I'm training it to grow over the trellis that covers the swing set.
Minnie Mouse, our beloved 12 yr. old terrier mix (and Pigeon's Mom), is not doing well at all. The volunteer with the Humane Society that took such good care of Buddy, mentioned that she would be in danger of passing shortly after Pigeon. She is grieving. She no longer chases her tennis ball, or goes for walks. She has put on weight, even though we monitor her food intake. DH and I make it a point of giving her all the love we can.
Wishing for better days and less doctor visits for all my sweet friends here. I might want to mention, less requests for follow up surveys or interviews after medical contact of any kind. It's become overwhelming and ridiculous.
Irishlove
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@irishlove I am sorry to hear that your dog is not doing well after the loss of another furry family member, in your pocket sending love your way. Glad you are able to get some gardening done, that is the best.
Also @irishlove and anyone having trouble losing posts, if doing a post on a device that gives you sticky notes, type it out on the sticky whether on a tablet, phone or computer. Not so easy to lose, copy note once done, paste it here and hit post. Should make life easier.
Slept OK, not hot but we are definitely muggy but that is not unusual for this time of year. I've been posting a lot on frugal this, one of the questions was can a family of five live on 50 bucks a week groceries. I offered what I thought which was yes. If there are picky eaters chop stuff small. Rice, lentils or beans are a complete protein, lots of different seasonings to make food flavourful. Diced potatoes really fill out a meal. Fresh veggies could be an option for a couple of meals and did recommend youtubes' Julia Pacheco and Southern Frugal Momma to give good ideas. Also recommended Manwich sauce, taco seasoning with bit of water while cooking to give anything a mexican type flavour and self rising flour and put water in to make tortillas or bread. It can be done for sure. I will let Facebook respond or not to the comment, I just think people need to know they can eat well but less expensive.
I have nothing on the agenda, Tigger is getting his sensitive stomach meal, they are eating small amounts almost every half hour. I give the tiniest bit of water in each meal and give proper water a half hour post food, they do not eat again til half hour after water. Gives tummies a chance to digest more of the foods. Now furballs and such are expected but do not happen often. I want food to stay in the belly. Not hard to clean it up but they need it.
I am washing stuff currently, stuff I forgot to finish so starting over, shorter cycles, I spin everything twice, seems to make stuff dry faster in the regular dryer. I have also decided to change what is going in the O Cedar mop, I had thought to use the regular cleaner I love the smell of but think will keep it for sinks, toilets and whatever, just use water mostly and a squirt of dish soap, be the most natural cleaner to use. I will decide, if need a nice smell, perhaps using an enzyme smell would be better. Just trying to make stuff less toxic on cats. I will see. Don't need a decision right now. I still have 3 failed spray mop 2 swiffers and one vileda, all spray nozzles broke but they are usable to dry the floor and have reusable mop heads to us
I have a lot of food to choose from so meals will feature hashbrowns, rice or part of a Kraft Dinner pack of noodles, keep cheese as additional seasoning, I do not not need whole box and can use the popcorn seasonings to makeup different seasonings. I do like how the Kraft noodle pasta thickens up a bit, 1/4 or 1/2 would be plenty. I have also considered using vienna sausages in combo meals, cheap and could be chopped up to pair with chopped beans and cheese for a good meal. I will post later on meals.
Hope all have a good day and in pockets for all SE, pain they are dealing with, pets getting older which does scare me as well.
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@irishlove Good morning Sweet Girl. You don’t have to say “Im sorry for being MIA. You’ve had a lot to deal with over the last few months and everyone here I know, totally gets it….I just hit Select-All and Copy after the first few sentences. And if your post suddenly disappears, like happens to me all the time, Just go to the top of the comment space and hit Paste, the your post will come back exactly where you left off😉.
@irishlove I feel your sadness for Minnie Mouse seeming to grieve over Pigeon.. I know how a dog dies of a broken heart over loss of a sibling. I went through it once with my 3 pugs. My 17 yr girl who was always stong like a puppy suddenly stopped eating and couln’ t walk with outnumber wimpering in pain. We brought her to the vet and she just kept crying and wimpering, I think she was so scared. then the Vet gave her a sedative to calm her and she just continued to wimpwe andd cry softly. it broke my heart as she continued when they gave her the drug to put her to sleep. my heart still hurts over it. we had 2 other pugs one 13, and one 10, who passed a year later. the 10 year old was such a loss because we did not expect it. the Vet on his well visit said his organs were shutting down which is why he stopped eating. I never expected lit black pug Mikki to die so young. it was soon after 13 yr old Raliegh passed the same way……. So a month later we came home with little Black Samuel and Fawn colored Ollie 8 weeks old pugs. they were such a joy and it was so healing to have them after The loss we went thru. Now as always they are still inseperable. They are inseperable and love each other. I always tell DH they would grieve hard with any loss of one of them….then I just put it out of my mind because it’s too painful to think of them suffering in that way for each other… My Oliver grieved when I went down to Florida for a week with the Great Grand Kids in May. for a week, and then when I came home and suddenly got so sick with the hemorrhagic pneumonia and was in the hospital for another week, he’s become so clinging to now that I’m home. He does not leave my side, it’s Been a tough summer for Oliver because with m constantly going for appointments and treatments and being obviously weakened and tired, and still coughing,; and also the constant fireworksgoing off down here, he is just not a confident dog lately..So our fur babies do feel loss, and our hearts break for them.💔So @irishlove , Have a day with your Minnie Mouse andI know you both need that right now, so don’t worry about MIA. take good care of you and your Minnie. We are all here for you, when you post again🩵🌷
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@irishlove - I too am very sorry to hear that Minnie is not doing real well right now. I haven't had a pet in a long time now, and part of the reason is just what you and @shanagirl have been describing. I just don't know if I could go through that kind of stuff anymore. Also, I don't know of course, just how long I'll be here, and I simply cannot leave an animal with no one. I hope Minnie can pull through this and find some comfort and happiness in life without Pigeon. She does have you and your family, and that should help her a lot.
I also understand about getting behind with these posts and then not being able to respond back to people personally in the way we would really like to. I've been finding myself in that situation more often these days. I think it's the Xeloda, and I am weighing the idea of taking the dose recduction my onc has offered. I'm just scared that if I take the reduction, I will progress and blame myself terribly.
Re losing posts: After they changed to this new format, I kept losing posts all the time - almost to the point that I considered not bothering to post anymore. Somebody else on here (wish I could remember who) told me about a year or so ago, to try "save draft" as I typed. I did, and it has been working like a charm ever since. I don't think I've lost a post since I started doing that. Just every few sentences or every paragraph I hit "save draft", and then if anything does happen, everything I had written to that point will show up in my draft folder, but even that rarely happens now. I really encourage you to try the "save draft" option.
Irish, I am still amazed at all the different flora and fauna you have there in Florida. So different from mine. I'm also amazed at what a trooper you are, and how much you get done and are able to enjoy life, in spite of all the challenges you have. You really are an inspiration to us all! Gald that you posted, as I was beginning to wonder a little. Have a great week-end!
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@irishlove I will join the others in the sadness over seeing pets struggle, and I will keep your sweet Minnie Mouse in my thoughts today. They are such a huge part of our lives and give so much. And all of us here understand about times when we don't respond as often as we would like, or as specific. When I first started on this website I tried to keep notes about everyone so I could respond well, but I don't have the energy for that anymore. I know we all understand this. It is not that we don't care, it is just another piece of the load we all carry.
@shanagirl Yes, and thank you for responding about copy and paste. Sometimes control Z (undo) reverses whatever happened for notes to disappear and it all comes back. I have used both with success. I pray you will feel better today with less cough and pain. You are in my daily prayers.
I pray we all have a better day today. When I woke at 7:00 this morning it was already 80° which is hot for us. Our high may be a record today. I know some of you are used to this, but I complain because it is too hot to sit out on our deck. I need to be thankful I can even get around. I am amazed my leg seems to be healing well with just a boot or a brace. It was a clear, obvious break. My bone dexa this week also showed in the normal range so again I am thankful. I must have really fallen hard but I don't know because I was unconscious. Anyway, we may venture out late this afternoon for an early dinner since my DD is off work tonight. We can celebrate the first week of school for my DGD. We want her middle school years to be a good experience so we are trying to do extra things. She is a social butterfly and takes friendships very seriously.
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