My Husband, My Life, My Love, My Family, My Cancer
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thinking about you and loving you Grannax,Shelia Marie, Lynnwood. Tanya ..Muddling.... Daniel & Leslie ...Gracie....Chelle...Bigbhome...Minnie...Pots....Parry.........Patty...missing my friends Keetmom and Robin..... Magda...Runor....JKL...Miss Bianca...footprints angel....Daywalker...The Lynne's...MJH...Mae.... my sweet friend.!! Divine......Iwrite ...Joyner safe on her trip! sometimes I think my brain is mush. If I forget anyone at all I'll be back!!
Love you ladies and Leslie's Daniel!! ~M~
another rainy morning! Sleepytime!
Has anyone seen Freya spring anywhere? Haven’t seen her either.
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Hoping everyone has a wonderful 3 day weekend.
I’m at acupuncture bright and early. I always feel better after vitamin b-12 shots.
Gracie praying for great results for you.
It’s not raining here yet but should be by this after noon. Waving through raindrops
50s girl Lynwood grannax Runor muddling Magda Daniel for Leslie Mae Micmel leapfrog Minnie MJH Big B Sheila and Lynwood NH Ms Divine
Anyone I forgot here’s a wetwave.
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Thank you ladies. I am already leaning on you for support, I'm sure I will need you even more as I go through the dreaded progression.
I do get to go on my trips, so there's that to keep me busy. I know there are good options out there. I'm still trying to absorb and figure out where to put this new development.
I'm hanging on to nothing is really going to happen for a month. Except going off Ibrance and letrozole. It's scary to be off any treatment for a month, though. So mixed emotions about that.
I do have to wait for IR opinion etc. I also have to wait for Afinitor approval etc. Pray that funding will be available for me. I've heard that some ladies have not been able to get it because of cost.
I've done this liver thing before, I can do it again. But, right now I HATE MY LIVER. 💞
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Grannax~Well I love you and your liver! It can be driven back. I just hate for you to have to go through anything else, except popping that ibrance pill along with the letrozole. Kinda scares me right along with you darlin. I am starting my 21 month on ibrance and I believe you and I were walking together on that one. I wanted you to have years and years and years on that! I'm awfully nervous myself about the next scan because I have read the median that ibrance Works till all too many times. I am thinking of you as always, we are here ! I had my initial tumor cut out of liver. Liver resection. If it is caught quickly then they should be able To intervene. That's what I am focusing on. Oh and your trips of course. That's important stuff here! Wrapping you in much love. ~M~
Shout out to Elle on wheels and Blueshine. Who we haven't seen. Holmes. Linda Lou...Chicagoan....Edwards...Egads..Miss Bianca.. I still feel like I should be seeing keetmom posting about Emma and Delaney. I don't even know how they are.
I'm watching John McCain's service in Washington DC. I am so saddened seeing this great man leave our senate. We need him now more than ever. Rest In Peace you fighter, father, country server,husband, friend, role model, hero, fantastic human being. I think it was amazing that bush and Obama spoke back to back... at his request showing unity until his death...YES total unity is what we need. Please.
What a great man. We have lost. So sad. Cancer you're a real dick. You hide in places, strike young down as children, ruin lovely devoted families, take good woman and men away from those they love. You're a coward, Cancer, pure and simple. ~M~
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Micmel. Actually my doc said Ibrance was still working for me in my lung and chest mets. Part of me would like to keep taking it this month. I was at 20 months but during that time I took about two months off. It never worked on my liver. I'm praying, focusing on local treatment, too. That's what kept my liver mets quiet for over a year.💞
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Then I don't see why they would allow you to not keep taking it.? Especially while you wait out the clearance for the other medicines. Ugh!!!! makes me so mad! I am hugging you tight. Reminding you you're not alone. ❤️~M~
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Grannax, sorry to hear your news. Praying for successful treatment for you.
Scan for me this week, results on 11th. We are going on a Mediterranean Cruise on 27th, so please, please, just stay stable, please. It's only a weeks holiday, and I am looking forward to it!
Sending ❤️ to all our ladies, I think of you all, and I'm sure like everyone, dread anyone having bad news.
Night night from hot Spain
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Minnie~I hope you have a big pocket. You’ll Need a lot of room in there for us. You are on my mind and I am sending hugs and strength across the miles! Endless support and love~M~
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Grannax, I have decided to love my liver. It has continued to function well in spite of being invaded by tumors. It was able to fight back the mets that were discovered two years ago and, with the help of Faslodex and Ibrance, the mets disappeared and then stayed away until recently. I do, however, hate cancer. I have nothing good to say about it. I am about two months ahead of you in this second bout of liver mets. I am scheduled to have scans on September 11 to see if my current treatment is working. If it is, woohoo, if not, I will move to something else. We can get through this together. Your genetic testing indicated that A/A will probably provide a good response for you, right? I have heard that Affinitor is expensive, just like Ibrance, but hopefully there is assistance available. It is crazy that treatments remain unaffordable for many people. I won't get started on that.
Minnie, Good luck with your scans. I hope you see stable results or even better. The cruise sounds wonderful.
I hope everyone is doing well.
Hugs and prayers from, Lynne
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No, my genomic testing only showed ESR1. I get the part about Targeted drug having to be prescribed with anti estrogen. My MO does not think faslodex is better for me than than aromasin. She won't budge on that.
I know Affinitor is an m tor inhibitor. She seems to focus on the fact that my body hasn't seen this drug before, therefore the tumors might respond. I'm willing to try it but reluctantly. Lulubee did get 18 months on AA. That's the longest I have read about on the AA thread.
Lynn of course I hate cancer. I'm hoping my liver will respond but it's just so stubborn and such a perfect environment for my cancer.
Micmel I think my MO doesn't want me to stay on Ibrance this month so my blood reserves will be in the best shape possible before I start AA.💞
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My liver hasn't responded to anything except y90. I'm just mad at it, I'll move on at some point.💞
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Grannax~Makes sense about the blood work. Hoping Y90 kicks some real rear end. Much love ~M~
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Grannax, I'm Sorry to hear your news. That just sucks. I wasn't on I/F as long as you but I did have a similar issue. I/F kept the abdominal tumour stable but didn't stop/slow the growth of the lung nodules. It felt very weird to not have any treatment for the month that I was off. By the end of the month, I felt like a ticking time bomb...I was so relieved to start chemo. Crazy how this disease/treatment plays with our mind.
Tonight I’m living the dream and the reason why we moved back to the west coast....I’m babysitting my grandson! I got to play with him, bathe him, read him stories and put him to bed all on my own. He’s 11 months old now and absolutely precious.
I’m still exhausted from packing up the old house. I got the keys to the new place yesterday. My body is screaming at me to stop, rest more; my brain is busy planning where the furniture will go, what art will look nice on the wall, how on earth am I going to clean this place...it desperately needs a deep clean, what plants would look nice in my new to me plant pots. And on it goes.
Micmel, I love your saying about being in our pockets when we have something scary, nasty, worrying going on. It warms my heart. I meet the new MO on Tuesday for a consult so please come along in my pocket. I don’t know my way around the cancer care system here so it will all be new. I’m hoping she also has the rest of the CT results from 2 weeks ago.
Be well.
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Hello Pots~ I absolutely don’t mind coming along for the pocket ride. I Always find that if I know someone is with me that knows what it feels like. I don’t like the noise my oncologist doctors Cart makes. He rolls around always with the darn cart. Drive ya out of your mind.
Thinking of Grannax. And of course Shelia. Lynnwood..Minnie.....Hello to Tanya. 🌷
Hoping Leslie is recovering well sometimes the second day is the worst for surgeries. I remember it was for me. But we are thinking of her and Daniel and family! Rest up strong woman. 🌷🌷...MJH... the Lynne’s...Runor....JKL..Holmes....Divine....Parry...........Patty.(Thinking of you everyday in hospice. Love you friend).....Bigbhome....Blueshine... Elle on wheels...Miss Bianca.... Footprints angel thank you for everything you do for all the ladies. And Mae.... Chicagoan...Iwrite....Bliss...
my friend GP is away for a few weeks. Travel
Safely my friend. Enjoy every second.
NO1...Hope all is well. Scwilly,Hope you’re well!
I realized we haven’t seen Taraheelmichelle lately. Concerns me.
Gracie...Hope you’re feeling well and adjusting to the adjustments your onc made for you!
Muddling.... 🌷🌷for you sweet friend! I really tried to get everyone. But if I forgot anyone I’ll be back! For sure. Going to bed, much love gn ~M~0 -
grannax I'm so sorry for your progression. I hope they are able to find a treatment that zaps the Mets.
pots- isn't it great spending time with the grandchildren? I think this is what has helped me.
I get my first pet scan since starting treatment Wednesday and see the doctor on the 14th. I know that it will probably be posted earlier but I think I might fight the urge to look because when I was first diagnosed I looked up the results before I went to the doctor and scared myself to death.but I am type A so knowing me I will look. Please keep me in your prayers.
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Holmes~ my sweet friend. You're always in my thoughts and every night when I go to bed, I think of all of my sisters here. I name you all in my head. I'm Not overally religious but do feel good vibes and sending out ones. I adore you my sister and I will keep you in my mind
Hugs to you ~M~
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Micmel thanks for the flowers. Here's a party balloon as you all get ready for a reception party.🎈
Quiet weekend here and I hope it stays that way! Tennis to watch today and race to watch tonight! (Rafa💖) I love to watch live sports. Football season is just about here but I haven't watched it much the last few seasons. My teams have not been so good.
Wishing everyone a calm weekend to do just what you want to do.
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Hey everyone!
I am starting to think this surgery was a bad idea. I am usually pretty optimistic (some would say in denial LOL) but I am worried sick. Leslie's blood pressure and hemoglobin levels are not recovering from the operation and they are about to give her a blood transfusion. The literature I found in the past warns against blood transfusions in cancer patients and I am sitting here thinking of fast progression right after. Maybe I have been at the hospital for too many days now, I guess I might not be thinking straight.
Daniel
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Daniel, I don’t know anything about that but will be praying for her recuperation
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Daniel~take a deep breath, I have known several Women who have had transfusions. If it's going to be a one time thing , maybe it will give her the boost needed.... to recover quickly. I would definitely be upset. Of course you've been in the hospital too long. But just remember, it's for Leslie.. so ask those questions... make sure you know why? Make sure you know the risks. Be her protector and ask the questions she cannot even think about now. How fast will this help her ? Is there anything else that can be done before? Ask until you can't ask anymore. There is nothing wrong with questioning the experts. We are sending you hugs and hugs of strength. If they are suggesting this. There is a reason. Just make sure you understand the reason. You have too much running through your head right now. Walk through the outside corridor and get some air. Then tuck your head down and ask everything and take notes if you have too, get the answers you need to feel ok with this. How is she responding to you? Overally tired? Her pain?? Good ? Controlled? Speaking to you well?
We love you guys. Hugs hugs and endless support! ~M~
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Daniel, I know of several patients who’ve had blood transfusions over a period of years and suspect the link to poor prognosis is due to uncontrolled progression and chemo delays because of problems with blood counts, not in relation to surgery itself. I would ask why she needs it, what to expect from this in the short term and if there is any impact to overall survival.
We are wishing you both well in care and recovery
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Daniel is anyone there with you from time to time? You may to tap out and regroup. We’re all praying fo you guys
Grannax and Lynn 50s I hope your new treatments do the work needed on your livers
Everyone going for scans treatment or results stay strong deep breaths. My after surgery MRI is Thursday.
Take care
Tanya
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Thanks everybody. 50'' We are in the a similar spot. I guess I'm just in my bad attitude/ anger phase. I know I'll move out of it, I'm not sharing this phase with my family and friends. Trying to put on a good front for them. That's what I do. So, where do I let loose? Here, because it's safe. Thank God again for this thread.
Tomorrow my family is coming over. Eight years ago tomorrow my husband, their father and Grandfather died. We always put flowers on his grave every year on this anniversary of his death. It's become not sad, it's become a tradition, sharing happy memories. A showing of respect. We know he's not there, We know where he is and that we'll see him again.💞
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Daniel, we are all with you, thinking of Leslie. Keep strong xx
Grannax and Lynne, hope your treatment works out. My scan is for liver mainly, been stable for 18 months, so fingers crossed. I will wear something with big pockets on Wednesday.
Micmel, when is your party, must be coming up soon?
Tanya, hope the MRI results are good.
Much love everyone xx
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Grannax~ that was a well said post. I'm sorry about your losses on the same day? Just let out what you need to here and we can hug it out. I won't even say anything if we spike the coffee! It is however our local comforting place to be. Sending you sweet hugs
Tanya~I am thinking of your after surgery scan to some great news. We need everyone back or to stay the course. I have your backs. I'll be in your pockets. I wish I could take it all away.
Waving hello to Mae and Daniel and Leslie. Thinking of you guys. Hoping you're ok. 💙
Much love ~M~
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Thank you for the support gals. I really appreciate your kind words of wisdom. I know I should know better than freaking out but sometime you just cant avoid it (even though it's just in the inside). I got explanations from the doctor about the whole ordeal and Leslie is definitely doing better after a couple of bags of blood. On a side note, we found out tonight her blood type is 0 negative, which is the rarest kind. Some say it belongs to our alien ancestors. Maybe her alien side will help us through this
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Daniel~So very glad that Leslie is doing better after some fuel...let's say! I've been checking to see an update about her progress. Very glad to hear she's better. I don't even know my blood type honestly. I guess that's something I should know, we all should. I already knew that Leslie was a perfect specimen. All you had to do was look at her smile ! Please give her a hug for us. Much love. And keep us posted. Good to hear you have gotten some answers! ~M~
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My husband who was my children's father and my grandchildren's grandfather. So just one person, Bob. Sorry for the confusion.💞
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Minnie good luck on your scans results and I pray your Meditteranean cruise is wonderful. You have to share pictures. Now I’m looking forward to it also
Daniel and Leslie things sound better. Rest easy
Tanya
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Tanya~Hello lovely. Hope you're feeling well. I am so busy with reception, I looked up and realized I only have one more weekend to really kick butt, I'm trying to get things done at an even pace. I'll wear myself out.
I think i have like over 25 linens To iron. Good thing my DH is amazing at it and does it really quickly! So I am less stressing about it all. But that doesn't include 50 chair socks. But soon it will be all over. I'm really getting excited now. Now to figure out my make up. Won't be long before I will be flat on back from exhaustion. But to see the smile on my daughters face. Like I did with the shower. Good or bad. We have gotten past it. !
Minnie~ thinking of you darling and wow on the Mediterranean cruise. I can't believe here I am ready to start Putting my little reception in our little local town redone train station together.... all that planning ahead of time was a good idea. I don't know what I would have done otherwise..I hope we get good pictures. I hope you get some also to share. Yay. Be safe. We will miss you lots. Much love ~M~
Going to bed soon my favorite time of the day.
Hope Leslie has a comfortable nights rest. You too Daniel!
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