My Husband, My Life, My Love, My Family, My Cancer
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Daniel, thanks to wonderful blood donors who give that rare blood for Leslie!! The little things can mean a lot! I know I'm B+ and so is my DH, so I could always get some of his, as if he doesn't do enough already 😂
Cruise isn't till 27th, may not have internet every day, but will send pics! We are in a group of 16 friends, so I know it will be fun.
Getting up time for a change!! X
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Minnie~ I agree our DH’s are amazing. I am going to find out what type of blood I have it’s important to know. As many procedures and things I have done and I still don’t know ? That’s lame!
Dannie and Leslie. Thinking of you guys!
Anyone scanning this week, make room in your pocket for me please? How else can I bring my comedy act on the road? I love you guys!!
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This precious daughter understands cancer. Yes she does. Thinking of the McCain family. Strong, United, together, like she said LOVE makes us who we are. LOVE carries us through the painful times and forces us to take that step forward every day. LOVE with your entire heart. Let no LOVE go un shown. My LOVE to you all because you understand what above means more than anyone.
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Ugh, scans tomorrow.
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Awe Mae.... I can't sleep either. I am thinking about you and I will be in your pocket, sending you good vibes and making squeaking noises and whining. I am really hoping for great results for you!! Sending love and strength. I hope you get some sleep tonight. Lately my nights have been getting later and later. Then I sleep later and later in the day. Sleep is our only peaceful time really. Ativan? Valium? Ya know ? Much love to you! ~M~
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mae- praying for great scan results today. When will you get the results?
Daniel- how is Leslie? I might have missed a couple of posts but what did the doctors say about the blood transfusion as it relates to the cancer? Praying for a full recovery.
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Mae, that's me tonight. With you all the way
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Mae, we are thinking of you. Sending positive thoughts your way.
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Minnie and Mae~ thinking of you both very much ! Love follows you wherever you go.
Waving hello to Holmes.
Daniel~ How's the lovely Leslie doing? Been sending love over the miles, to your beautiful family. Hug her for us all please!!??
I'm with you all non sleepers. Love you guys!
~M❤️~
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Illimae, good luck on your scans tomorrow! I just hate the anxiety that scans bring! You will have a pocket full of well wishers! Hi to everyone else! I’m reading but not posting much. Still in my funk and don’t want to bring everyone down.0
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Didn’t sleep either!!!! Have chemo today. 10% lower dose. Praying it helps with the side effects!
Mae, thinking of you and you will be in my
Prayers today. Praying for great scans!!!!
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Mae & Minnie~ thinking about you both today. Sending good wishes and good thoughts
Gracie~Good luck darling. Hope this round is gentler for you! Seems as if no one else slept well either. Sucks sucks!
Lynnwood~ we love you even if you’re in a funk. This is why we are here to bring you out of it. Ok imagine this. I am hoping on one foot with uneven boobs, no bra on, my hair isn’t brushed, I am barking and growling like a dog and all you can do is watch lol. I love you my friend. ~M~
Daniel. ?? How is our precious Leslie? Also, how are you holding up? Any rest for you ?
Tanya ~ waving hello!! Missing everyone else ! Divine? You ok
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My onc RN called this morning. Insurance is denying neulasta or neupogen for me at this time. I have to go in on Thursday for labs. Thursday will be day 10 following chemo. My questions... am I going to start feeling crappy again?? Is that the nadir for this chemo??
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Shelia~ your doctor should put through a prior authorization for the nulasta. That’s crazy. If he deems it medically necessary they have to pay also, most oncology departments have their ways of getting their patients the medicines they need. Don’t give up. I was on a two month break from ibrance chemo and I started to feel the fatigue even More that cancer brings. I would call them immediately, they should be able to help damn insurance companies.
Bigbhome~you doing ok honey. We love and miss you very much. Hugs to you my friend. I miss you.
Love ~M~
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Good thoughts to those having scans, treatments, surgery, and insurance problems.
I'm okay, not great but okay. Mostly I'm just a little down but I'll bounce out of it I think.
Seeing oncologist next week for regular visit. He'll be so happy to see my long list of questions,LOL. Talking to him usually does make me feel better.
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Hugs to all of you! You're all going through alot.
Some of you already did message us, but if you have tips for your caregivers, we'd love to hear them for a piece we're writing.
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I feel like cra*. My stomach feels like a very ripe watermelon. Eating very little just to be in agony for hours. Scans last week were encouraging but my stomach hurts to touch so I have been sleeping in a recliner.
See MO on Friday.
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Thanks everyone. Scans are done and I get results tomorrow afternoon. The nurse couldn’t access my port (she seemed inexperienced), so IV instead, which I absolutely hate but it’s over. Now, if my headache would just go away and the magic dishwashing fairy would arrive I’d be set for the day. Oh well, I think a nap may be in order.
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illimae so happy scans are done! And wishing you fabulous results. Hugs and take care. And the same to others going through scans.
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Hello, friends!
Add me to the funky group. Seems I'm also facing some sort of progression as my tumor markers have been rising steadily for a few months now. They suck. Will be having a PET soon to get the real story. My wonderful onc is extremely calm about it all and said he's not overly concerned...that makes one of us. Ha! We had a long discussion about treatment options and decided I'll try staying on the Ibrance and switching to a different AI. That man has the patience of Job...I asked him a million questions and he thoroughly answered every one of them. Explained the difference between the various inhibitors/AIs, the worst side effects of each etc. He gives you options and then tells you to think about it and let him know how you feel. He likes to try to get the longest time possible out of each treatment....unless, of course, things are going crazy. I concur. For now I remain in my pretty constant state of denial and keep living my life.
Micmel...busy lady!! When I was TRYING to catch up I so enjoyed looking at the shower pics. Everything looked beautiful....especially you and your daughter. Good luck with all the reception preparations. I know it will also be a huge success!
Minnie, Holmes, Mae....hoping you all get good news with the scans. Thinking of you and jumping into the pocket. I'm the one constantly singing silly show tunes...
Daniel, I'm so glad Leslie is feeling better. Make sure you're taking care of yourself too. My hubby spent many months in the hospital years ago and it is ROUGH to be on your side of things. Honestly I think it's harder at times.
Grannax, I was so sorry to read about your progression. I wouldn't be particularly happy with my liver either! Hopefully you can zap it and get everything back in line.
NO1, can you maybe move your MO appointment up a few days? Your stomach issues sound awful and I hate to think of you in agony.
Better get back to work (oops).... love to all!!!!
E
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Muddling~I think about that everyday,how I am permanently down and no matter what I'm doing, things just loom over my function. It seems like lot of us are in that super funk. It's a shit stew, but I promise you're not alone on the stirring spoon. Sending you hugs...
NO1~I am really sorry you're having gastric issues. God knows every treatment I read, mentions upset stomach. Sometimes I think mine is rotting because of all the medications I take everyday. If you're stomach hurts, it's just plain hard to function. Eating is our fuel.. not being able to eat, is a problem. I find it easier not to eat. But then the headaches appear. Doesn't feel real good after napping either. I just can't taste anything.. I honestly hope you feel better....
Mae~Waiting with you. Am trying find some fairy willing to take on those dishes. We are all here with you waiting. Hope we weren't too loud in your pocket.. wishing you nothing but the best.
Thinking of Minnie too! Holmes. As well!
Waving to Gracie!! Shelia. And Tanya, Grannax
Elle~ I am with you in the funk category I have so much to do and it takes everything I have inside me to get the simplest things done. But I'm trying. The harder part is somethings cannot be done until that day, we cannot get into the venue until Saturday around noon, but at least we can work on it then. It's really close to the house. Which is good for me, if I have to collapse.i honestly do not like getting dressed up. I never really have. But this will be special. I hope the weather is nice. I hope you're doing well Elle and your family as well. Very good to see you !
Katyk~ nice to see you and hoping all is well with you and yours. Hugs right back!
Much love ~M~
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Thank you my friends
And keep it down before 8am, ok? Ouch, who poked me? Is someone eating Cheerios?
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Thanks Micmel. I got two emails from my DS today so that perked me right up. Normally he's a texter but I don't have a phone with text unless I want to use DH's phone which I don't. Son doesn't like to email, I guess it's too old fashioned, LOL.
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Mae Minnie Gracie everyone who couldn’t sleep last night I hope you get a good nap and sleep well tonight.
Everyone with scan anxiety and result anxiety we can write a book about that alone. I love you guys in my pocket every time I go.
Checking in with the exhaustion SE today.
Hello to all
Tanya
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Mae~I love Cheerios, I honestly do! But it wasn't me this time , although I may leave a trail of granola.. waiting and holding your pocket open so we can breathe. Love you friend!
Tanya ~ I slept all day long today also. I woke up at 11:00 am and was back sleeping by 330 didn't wake up until 630 now I'm like 😳. Worried about sleeping. Again another night of counting healthy sheep.
Muddling~ I guess our children have a way of pepping up our step, even if it just for the day. We needed it! Much love ~M~
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Update: I leave on my trip tomorrow so this will be short. My IR ordered an MRI of my liver and I was able to have it done today! That's good because then he can see those results and I have a consultation next week! Things are rolling fast.💞
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Grannax~Please be safe on your trip and enjoy yourself,every moment!! I'm glad that one thing is done and you're moving along to taking care of that annoying liver met! Much love ~M~
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we finally got home y'all! Leslie is achy but happy to be back home. I, too am happy to finally sleep in a real bad. Was getting tired of the reclining chair.
Thank you for all the support! Now back to sleep.
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Hi to all. If you want me in your pocket, I'll bring my bagpipes. If you don't want me in your pocket, I'll understand.
Got the call for my 6 month mamm, to have a look at that thing in my boob that might be scar tissue but can't be ruled out as cancer. I know I shouldn't be worried. I keep reading about scanxiety, but this isn't a scan exactly. Is it? It seems that anxiety creeps up slowly while you're not looking. At first it's like, cool, mamm, knew this was coming, was expecting the call. Then it becomes, oh my god, what if they find something, what if this isn't over, what if the other boob has gone bad? There was a time I thought cancer happened to Other People. Having had that little bubble of happiness burst I live in the shadow of the Next Bad News. I can only imagine how much this compounds exponentially once you hear that you do have mets. The tension must never end and the task of living with it is Herculean!
Strength to you all.
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runor- I'm sure that all is going to be ok😊 I have a lot of scar tissue in the reconstructed breast that worried me as well but turned out to be just scar tissue. Good luck with your scan today. I know it's hard but try to think positive. I think it was 50s that said don't worry until they actually find something. Live ine
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