My Husband, My Life, My Love, My Family, My Cancer
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I wish we had a like button. That post was great Mae. The top two words definitely figure into my thoughts when angry about my own situation.
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lol @ our Mae!! I think I can handle some bad words lol. I love those things, creativity and letting it all loose! hello to all. DH is here. So busy busy watching movies!
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Enjoy the show Mel and of course your DH.
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Wow ladies what a day of posts.
Mel your manicure is perfect and that ring is gorgeous.
Mae you're a RIOT.
We changed pages now so I can't go back or I'll lose my post.
Booboo I'm glad your radiation is over. It is truly grueling by the end of it. I was burned too. Miserable.
Candy I hate anxiety and horror show fear dealing with this disease that lives unwelcome inside of us. I know how you feel. Big long hugs to you.
Grannax you are always having a project. Need some pics please.
Minnie nice to see you.
Have a good night all. I missed so many names bc on my phone.
Tanya
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HaHa Mae! I've got a potty mouth so the bad words make me giggle. Cuuuute notecards!
Mara omg spoiled milk! Yikes that would make anyone sick! Man - I am so careful with food and smell everything. DH thinks I'm ridiculous. I'm sure I am but it's one of my things. I hope that getting some new milk will diminish the GI issues a bit.
Candy how're ya doing kiddo? I wish I could go to your scan with you. I know one thing - anxiety before scans is big. I am not a fan, especially on the days where you have to have CT and Bone scans. Because I have to pre-medicate for allergies it's a really disruptive 24 hours to start with plus the anxiety of the scan.
I felt a bit better today...couple of "moments" but no crying so I think things are improving in my head. Having to let go of Ibrance after six cycles and realizing I was only having a partial response to it was so unfair. I could have stayed on that combo forever and was feeling just fine. But onward I go.
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Moomala, I was shocked too. It was not due to outdate until oct 28th. Oh well, there wasn't much left. Probably had used the spoilit milk a good few days the way it smelled. That does not happen overnight. Wasn't overly curdled so I simply didn't clue in. I am so glad you felt a bit better today. I have lots of "moments" myself and will sometimes find a lump in my throat too. I don't pay it much mind and those moments usually pass. It's too bad we cant all stay on the drugs that are the most helpful and livable.
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Good news all. Stupid insurance company finally authorized oncology--5 visits. Good grief.
It took an urgent consult from my PCM (who had already submitted one on Monday) and a ton of phone calls, but finally done. Oncologist ordered my meds this afternoon. It's going to take some time for me to calm down though. So very upsetting that everything has been so difficult.
Hope everyone has a great weekend!
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Hi there, Micmel, I’m here! SantaB, yes, we were “roll-called,” and it’s made me speechless (never, ever happens). I enjoy reading and following all of you, but I don’t feel it’s necessarily appropriate for me to horn in. Obviously I have done it on a limited basis anyway, but I was so excited to see you on tv, Tanya, that I just had to say something. And then the discussion about losing pets was something I had just experienced. I’m not necessarily good about keeping my thoughts to myself.
I do want you all to know how much I have learned from reading here. And not just about treatments and side effects, but about grit and spirit and tears and depression and joyful times too. Life. So I will keep reading because I want to know how you’re doing and what you’re doing. And occasionally I will horn in and try not to say the wrong thing.
Finally, Micmel, I love the ring and you have such beautiful nails! I’ve never been able to grow mine.
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Mae! Those are OUTSTANDING!!!
I love all of them. Thanks for sharing!
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Hi All,
Thanks to all for your kind words. Radiation is finally over! I am still a little nauseous, but the Zofran the rad onc gave me is helping a lot. I can say without a doubt that I will not have radiation to my body again. There are just some things that are not worth it to me. Hopefully, the new drug will work fast to kick the other tumors to the curb.
I am having a CT scan on Tuesday before I start Piqray; onc wants to be able to measure progress. So onward! Hoping I can get the barium down without too much trouble!
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Morning Ladies !!! No crying yet today. Woohoo.
Mara- Your idea for a burger (from your favorite burger place) and sundae are just what I meant from my post day before yesterday about doing something small, but fun. We all have those small, enjoyable things and we should seek those out and do them.
And I loved your toilet pic. Hahahaha.
Laine- I don't have many UTI's. Never have. But I have had kidney stones and I know the feeling of the bladder irritation and going frequently. Uck. Hope you feel better soon.
Edited to say-- Booboo- Glad the rad is over. Hope you get to feeling better and onward with Piqray.
I hope we all have a good day today. No promises from me on not crying today, but I will try to stay upbeat.
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Ok, so I got off track. Had to edit post and now....
Hi Moomala. Onward we go.
Moving- Glad the insurance company finally got their heads out of their a__.
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Thanks, Candy. It's a little better today. I hope you have a good day.
Mara, thanks for making me want to eat a burger today. Sounds so yummy right about now. I too love your toilet pic. Mine has seen tons and tons of pee recently. Poor toilets.
Booboo, good luck with Piqray! Hoping it is good to you for a very long time. Just saw a commercial for it yesterday.
Moomala, what is your next treatment? Did I miss that? I hope it is very kind to you for a very long time.
Mel, don't you just love it when DH comes home? Mine comes home every Friday and leaves every Sunday. I'm in Nashville and he's in Memphis during the week.
Everyone else, hoping you have a good Saturday.
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Having a quiet day here. Just working on making a little extra money on the computer. Have done a little walking. I am thinking of the burger tomorrow (if not invited anywhere) and walking up to McD's for the sundae. Would be fun to do. Saving grocery shopping until Monday or Tuesday. I also feel better physically today. Tummy still a little achy but otherwise feels pretty good as well. I am happy for this.
Candy, I am so glad you are feeling more upbeat. You more than deserve to have more happy times than sad for sure. We all do.
Laine, I enjoyed the toilet pic as well. Looked up my problem and put meme at the end of the google search and that picture came up. It was comical to me given my issue for sure.
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Booboo, glad the nausea med helped you out. That drug is the same one I am prescribed and has always worked for me.
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Hello lovelies! Relaxing day here. Went out to lunch with DH and had fun shopping athome goods. I almost felt normal. It's a good day! I got an awesome basket to tote my laundry from my dryer, to my folding area. My BFF turned 49 on the 15 and we are seeing her Tomorrow and I needed to get presents. She treats me incredible and I needed to do what I can to make it however special I can. She means the world to me.
I got her this beautiful soft baby pink pumpkin with a frosted white stalk in a ceramic look...I got that color so she could have it in her office at work all season long. I also got her two red pillows for her couches in her office, for her clients. I hope she likes them. It's hard to get someone something when they basically have whatever the heck they want. It was a great day actually. My DH is making her a cake and we are all taking it to her tomorrow at her sons hockey game. I am getting out more and I'm loving it. Adderall is the shit. I'm serious ladies. The funk buster!! Not kidding. Hugs to you all beautiful ladies/friends!0 -
I pop in/out to read but lately but life has gotten in the way of doing much posting. I restarted alpelisib (piqray) on Oct 7 and found this cycle to be going a bit smoother until.....I either picked up a bug or ate some contaminated meat last Weekend. I got violently ill throwing up and then diarrhea, the fatigue was worse and my appetite disappeared. It’s taken a week to recover and I only now am feeling more like myself.
For those of you moving to piqray, beware of the side effects. I take a Claritin daily to keep the skin rash down. Fatigue can be the worst; my tongue/taste buds are shot and nothing tastes all that great. I’ve lost weight. I often have nausea and diarrhea, the drug messes with your mucous membranes and ...if I had a better choice I would take it but I don’t. This is the best treatment option given that I acquired the P13KA Mutation after Taxol. Yup it’s been a haul lately. I sound like a Debbie downer.....lol...actually I feel like I am coming up into light again just by feeling better.
I know we all have crap happening in some fashion. I try to stay focussed on what’s important to me. Today we got outside for a walk to look at the fall colours. Absolutely glorious colours, especially the red maples.
Be well friends and remember to not let yourself get too far ahead, life is for living now.
Ann
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Pots,
I am so glad you posted. I am due to start Piqray this week, and I have seen the side effects from the brochure. I am worried about taking a drug that will compromise my QOL, but as you said, what choice is there for someone with this mutation? I didn't know that Taxol could bring on the mutation. How do you know this? I'd like to understand more....I didn't know that taking these drugs could do that.
Anyway, I hope you feel better and the drug treats you better.
Thanks again.
Laurie
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Mel,
I am SO glad you are getting out and enjoying things. It makes my heart sing to know that you are doing well. Thank you, Adderall!!!!!!!
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Hi everyone
Sorry I haven't posted in a while. "I'm still among the living but the less said about the last month the better. One word, nightmare!
I have now gone under hospice care, at home. So far it is WONDERFUL and expect it will continue.
No estimates on life expectancy except oncologist did guess 3 months, maybe a little longer."
I'm trying to read back on the thread but it's hard. Forgive me for what I missed and I'll try to do better.
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Mel, yes thank you Adderall for brightening things up.
Pots, hugs to you on your SE. Hopefully there are drugs they can give to minimize things and improve your QOL.
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MuddlingThrough....I am sorry to see that the last month has been a nightmare for you but it is good to see a post from you. You will be in my thoughts. I hope hospice continues to be good to you.
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Thanks Mara. I am better now that they've stopped zapping me!
I hope you have a great day. You deserve it. You are so supportive on this thread, and I am so glad you found us.
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Muddling,
God has you covered. I'm sending hope and peace to you. You are much loved and appreciated here. I am so glad hospice is taking good care of you. I am looking forward to the day I can stop taking these toxic drugs too. I know that sounds crazy, but I am more interested in a good QOL then hanging on in pain and illness. Sending big hugs too!
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I'm doing better today Booboo. Glad you are feeling better. Decided to take immodium after ANY bowel movements to treat any possible problems before they start. Would rather be slightly constipated than leaking. Seems to be working for me for now which is good.
Watching a movie on my treadmill, old movie with Steve Martin called "The Man with Two Brains". Rude, crude and funny. Was one of my favourite movies as a kid.
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Hi ladies
Glad to hear from you middling and comforted to hear you speak of hospice as a relief and that they are taking good care of you.
Pots thanks for sharing piqray SE’s. I’m sorry you had such a rough time last month. I’m glad you’re coming up in the light now.
I’ll be speaking at a breast cancer awareness seminar this evening. Always feel nervous about this but I want people to get checked out etc.
Booboo I’m dancing the happy radiation is over dance for you.
Mel nice that you’re out and feeling glorious.
Mara work out on that treadmill and enjoy your show
Laine candy dutchris waving hi to all.
Tanya
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Hi all.
So last night I went to see a movie with some church friends. Ate pizza and chips and talked. Had a good time. But not used to eating late and up until all hours from the heartburn!!!!
If you are into Christian Movies, we saw War Room. Good. But about a married couple and their relationship and I am single. But I focused on the aspect of the movie about ones prayer life.
Today went to church this morning and now home for the day and hopefully going to bed early since I didn't sleep well last night.
Tomorrow is CT scan. Appt with MO the next Monday, but I plan on getting my results by going to Medical Records BEFORE the appt.
So sorry to hear about Muddling and moving to Hospice. Dear God help us all.
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I really love the movie "War Room". I believe things can change with prayer but also with medication. Let's stay positive and I will be praying for your CT Scan. Trust in the Lord!
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Tanya, good luck tonight! I know you're going to do an outstanding job!! Can't wait to hear how it goes.
Candy, so glad you enjoyed your day. I haven't seen the movie but will check it out.
Mara, that movie is hilarious!! I used to have the biggest crush on Steve Martin.
Muddling, good to here hospice has been wonderful to you. You deserve the very best care.
DH just left to go back to Memphis for the week so my daughter and I are going to watch a movie and get an early dinner.
Happy Sunday to all!
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Candy,
I haven’t heard of that movie, but I will definitely check it out. I can attest that the power of prayer is completely real. I have seen it and lived it. Like Godsbaby said, trust in Him.
I’m on pocket duty with you tomorrow. Bringing caramel corn. Have a major addiction to that stuff. Have you ever had Garrett’s from Chicago? Better than anything I have ever had anywhere.
Laine, so glad you joined us. Your positive outlook is so awesome.
Tanya, I just sent a prayer up for you to just be your awesome self. Let us know how it goes.
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