My Husband, My Life, My Love, My Family, My Cancer

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  • mara51506
    mara51506 Member Posts: 6,498

    I too am so sorry to hear about Muddling having to move on to hospice. I take comfort for her that they will ease her suffering but have empathy toward her loved ones and her if she is not ready to go. I know that decision is hard to come to but having seen the good it did my mom, she will be well looked after. So sorry to her and her loved ones and friends. Much love going out to her. I reread her post above one of mine and can see that she is at peace with her decision. So sorry the last month was so rough on her.

    I'll also be on pocket duty Candy. I will bring movie theatre popcorn along with me as well as the Junior Mints. That was my favourite treat as a kid when I went to the movies. Yum. Also, I will check out War Room as well, see what that is all about.

    Laine, enjoy your dinner with your daughter.

    Muddling, we appreciate you looking in on us. We are all in your pocket and sending comforting thoughts your way. I hope you can feel them.

    No company for me this weekend. My adult niece has a bacterial infection in her chest and DB and SIL were worried about bringing over to me. I'd better look into getting my flu shot sometime next week. Will ask MO when I can have it or if I need to give some time from my treatment on Thursday.

    I am feeling better today. Not sure why, I went to bed super late and should be tired. Oh well, I'll take the energy as it does not come around without some effort on my part.


  • Moomala
    Moomala Member Posts: 397

    Muddling I am sure it was hard to write that post to us but I am very glad that you did. From your new signature line I'm hoping the meaning is that although none of us would choose to go through any of this, that you chose how you are moving forward and I say that with the utmost care and respect. May your days be comfortable and full of love.

  • micmel
    micmel Member Posts: 10,055

    Hello sweet ladies!!!!! A welcome to Godsbaby......hope you know it's always nice to meet a new sister !!

    Okay!!!!Muddling!!!!!!!!!♥️💗🌹hello sweetheart... I am so happy to see your name and know that you're comfortable. Hospice is amazing, I saw it with my father. I was so worried about you,we all were. Seeing your name made my day. Sending you hugs hugs. 🤗

    Hello sweet Boo Boo!

    mara~ Adderall has changed my days, honestly. I'm amazed at how it works for me. I feel Iike a different woman, I know I'm still sick for sure. And so does my body, but it's tolerable more than ever. I hope your Sunday was a good one.

    Tanya~loving the word glorious, I went to another of my bff sons hockey games actually sat through two, both sons played today so we stayed for both, it was my BFFs bday last week, so we had a celebration for her. Gifts and all. I truly enjoyed seeing her happiness, and her surprise. I know she wasn't expecting it. My DH made her a strawberry birthday cake. I put her initial and her age on the cake. It's caused some laughter 49.... I am already 49, and so is our other closest friend who was there. The three musketeers! Was fun! I find the giving. Part more fun than the receiving part!

    Lanie~ Hello there darling. Hope you're warm and not in any rain. Which the northeast has here All day! Miserable! Always nice to see your sweet smile here.

    Dutchiris~Nice to see you back here, I see you've found your chair at the bar. Hope you're having a relaxing day! 🌹

    Candy~My DH is staying here tonight and leaving for DC in the morning so I like some new ideas of things to watch. I've never heard of that. But will look into it. I'm glad you enjoyed your evening out.

    i have been getting out a lot more Doing more I just worry about getting sick... the more you do, the more you're subjected to. I did get my flu shot this year. Past two years, I haven't and I got it both years. Horribly!!!!!

    Pots😍😍~ so glad to see your name as well! I logged in and saw you and muddling and my smile was big! Two Og's coming home the same day. 🤲 couldn't ask for more. Please feel better. Hugs to you my gal!


  • Minnie31
    Minnie31 Member Posts: 494

    Muddling, sending big hugs. My thoughts are with You xxx

    Micmel, great ring, and lovely nails.

    Mae, my happiness is chocolate, dark and minty, no nuts!

    Candy, hope all goes well for you.

    Love to all xxx

  • simone60
    simone60 Member Posts: 952

    Muddling,

    It's so good to hear from you. I'm glad hospice is making you feel better. I am sorry to hear about 3 months. Hugs

  • micmel
    micmel Member Posts: 10,055

    Minnie~Hello sweety! Always a pleasure to see you home! Hope you’re doing well. Thank you for the compliment on the ring and my nails. My hair my nails are my favorite things. I do my own nails. So I have a lot of fun with hundreds of colors I own. I have every possible color and I recommend either sally Hansen gel nail polish with the top coat. Or the revlon color stay gel envy series. Works miracles honestly. When I had my horrible chemo. This stuff saved my nails. Made them strong and honestly still Does. If anyone is interested. That’s what I use and my nails are real, not acrylics. I really work hard to keep them looking healthy Ive told several People About them and they love it!!!

    Always nice to see you here. Another OG checking in tonight 🤗! ♥️🌹

    Simone~Hope you had a nice day sweetheart, for one day I haven't anything to complain about. So it’s a good day. I hope everyone has one of these days tomorrow! 😍. Much love. The one thing I’m Wrestling with is my dogs. They are aging and earlier today I found a tumor in my younger dogs mouth my deeohgee it’s sore looking and I am freaked out about it. But we know our dogs also age. Sigh the circle of life moves on.

    Muddling. ~image

    Doctors aren’t mind readers and they don’t know everything. So don’t take their 3 months to the bank. Please

  • mara51506
    mara51506 Member Posts: 6,498

    Muddling, I agree with Mel. Don't let them decide for you. You enjoy being better taken care of and more comfortable and take it for as long as you can. You don't have an expiry date no matter what. I hope you are comfortable and resting knowing you have done the best you can in life for yourself and I am sure your family as well. Bless you.

    I never did allow my team to give me how long I might have left. Realistically, I should have been dead at least 3 years ago given I have the most agressive, fast growing BC along with the Her2 protein along with likely cancer cells in my brain from the beginning. I am struggling but still here. Telling me that I would die within a couple of years would have caused me to die. I don't have an expiry date. I don't want to live with one either. I am still here, mostly healthy except for some pesky SE and am grateful for the extra time I had to be able to help look after my Mom when she was sick and tell her how much I loved her. It meant so much that she heard everything I said and I told her to stop worrying about me. Had I died earlier, she would have still been looked after but would have been heartbroken on top of ill. Life works out sometimes. I truly believe that.




  • Del13
    Del13 Member Posts: 180

    Ladies, thank you,, hugs to all,

  • sondraf
    sondraf Member Posts: 1,682

    Is this where everyone hangs out on a daily basis? Can i join?

    Its cold,wet,grey here in London this morning and while I have a ton of freedom with working from home, its not that great when there isn't much to do AND I feel like I am sitting around waiting for treatment to start. Which is tomorrow. Finally. I feel nervous about side effects and everything failing and going way way too fast. That makes me anxious sitting around at a job that pays well, is enormously flexible, won't kick me out but is so unfulfilling I don't see the point.

    This is also not a city if you have mobility problems - I've almost been knocked over twice on the tube now in a week because with the back issue I've got to take it a little slower. Thinking about a cane not for walking purposes but to make sure people can see me (not) coming. Last year at this time we were on vacation in Asia and I spent all day snorkelling or sea kayaking and this year I can't even do a normal swim workout. Im hoping if they can sort out the back stuff then I can get back to swimming.

    Ah well, the good things for today are that the new Nutribullet is showing up (so can whizz up some green juice and smoothies and get some more vitamins in my diet) and the new marshmallow cat bed. Our two have been so anxious lately we are hoping a very soft and snuggly safe spot of their very own will at least calm down the sensitive boy. Watching them try to figure it out will be enjoyable :)

  • micmel
    micmel Member Posts: 10,055

    welcome to Maggie, sending you a super hug back!

    Sondra~this is our growing family. We keep in touch daily and this is our living room where family comes and goes It would be our pleasure to carve out your own seat in our living room. We talk about everything and any thing Love, life , family, friends, anything you need to let go. Let it rip! I am welcoming you with a huge hug. Nice to have you ! ~M~

  • booboo1
    booboo1 Member Posts: 1,196

    Welcome Sondra! Glad to have you here.

    Moomala, have you started your new treatment yet? I start on Thursday. Wondering how you are doing...

  • Moomala
    Moomala Member Posts: 397

    Hi booboo1 I started Aromasin last week. So far so good. Pending labs on Thursday I will start Afinitor on Friday. I am nervous. I'll feel less so once I get started and have a few days under my belt.

    Good luck today Candy! In your pocket!!!

    Hi Sondra and Maggie! Sondra I get those nerves too. BooBoo and I are starting new treatments this week too so you arrived just in time!


  • micmel
    micmel Member Posts: 10,055

    moomala~Always good to see you beautiful! Crossing fingers for all of you and these treatments. Amazing women.
    Hi sweet BooBoo! 🌹

  • booboo1
    booboo1 Member Posts: 1,196

    Hi Sweet Mel,

    Hoping you had a fabulous time at the party. It sounded like it. How did hubby’s cake turn out? Sure sounded yummy. I am so impressed that he bakes. Love that!

    Hoping we all have a nice easy week. Smile

  • simone60
    simone60 Member Posts: 952

    Hi everyone! Welcome Sondra and Maggie. Mel, I hope you had a good time at the party. For those starting new treatments, I hope they work and give you many months of stability or better yet, get you to NED.

    I'm much better this week, I seem to have gotten rid of the funk. My brother and sister in law are visiting this week so we have a lot of activities planned. Today we're planning to rent some ATV s and go up in the mountains.

    I hope everyone has gotten rid of their funk too.

  • mara51506
    mara51506 Member Posts: 6,498

    Sondra, welcome to this group. I only recently found this group myself and it is very welcoming. I can also empathize with nerves worry about side effects and treatments for sure. Never hesitate to ask about how people may deal with certain things.

    Candy in your pocket with Junior Mints this time.

    Simone, glad you are feeling better as well.

    I am doing better the last couple of days. Went to the grocery store for milk and spincach. I find the milk heavy but at least used a knapsack to get it home so it was easier. Though got tired, felt wonderful and energetic after it was over.


  • micmel
    micmel Member Posts: 10,055

    woke up with a full blown cold. I guess that’s why I don’t like being around a lot of people Germs. Eeeekkkkk. My niece is hospitalized with sepsis, we don’t know how she got it, but they caught it. I’ll tell you if you open your eyes shit just seems to happen. It just falls at your feet. I found a lump in my Deeohgee’s mouth. It doesn’t look good. I never imagined loosing both dogs at once. Life has officially sucked for four years now. Like can I have some good luck....??? Can we all? Please ?

  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    question: I have my burial clothes ready. Actually got together last year. ANYWAY...I think I also want to add my academic master's robe and hood. Nothing for on my head. I want your honest opinion here folks. Is that the tackiest idea ever? Or okay? I know I worked two jobs with a young kid while earning it and it means a lot. Cross posted

  • micmel
    micmel Member Posts: 10,055

    Muddling honey, you do whatever you feel in your heart. Anything that makes you honor your wonderful self seems AOk to me. Whatever you want. It is however all about you. You’re amazing. Simply amazing!

  • candy-678
    candy-678 Member Posts: 4,171

    Welcome Sondra. Sorry you find yourself here, but this is the place to be if you have cancer. Good friends and comfort.

    Thank you to all that were in my pocket today for my scans. I felt all of you with me. Now the waiting. I did ask the rad tech if she could put a note in for the radiologist about my rising TM's and also the increased pain I have been having to the thoracic spine and right shoulder blade. She was totally ok with that. I told her I asked my MO's nurse if the MO talks with the radiologist and the nurse said "not usually" and the rad tech agreed that is usually correct. So she thought the added note was acceptable. This tech had cancer as a child (she told me about this before) and so she understands being on the patient side of this. I have appt with MO next Monday, but I would think I would here from her before that if things not good. And I also plan on going to Medical Records at the end of the week to get the results myself. Want to be ready with questions and/or get ideas from here.

    Dear God, Muddling. Honey, you wear want you want to wear. Who gives a crap about others. You are so strong. Bless you. Bless you.

  • candy-678
    candy-678 Member Posts: 4,171

    Grannax- In your pocket tomorrow for your PET.

  • micmel
    micmel Member Posts: 10,055

    I am bringing brownies. And spiked punch!

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

    Candy I pray you get answers that are calming and positive.

    Muddling you should wear whatever you would like.

    Boo and moomala I’m in your pocket for the start of your new treatment.

    Welcome Sandra and Maggie.

    The talk went well last night but as Micmel said being around people means germs. Don’t know what hit me but I had a lot of pain last night stomach and bones. Feel better now.

    Tanya

  • RosieRed
    RosieRed Member Posts: 209

    Muddling - Here is a thought..if you still have your degree, have the funeral director place the degree in your casket. Either on one side of you or tucked under your folded hands. You can be buried with it or they can remove it and give it to your family once the wake is over.

    May God bless you and keep you.

  • micmel
    micmel Member Posts: 10,055

    welcome Rosie!!! Hope you will pull up a chair to help honor our sisters together! We are a home here. We support and love each other. It is nice to have you here. Hoping your day is a good one!

    Muddling~♥️

    Wish we could hear from Parry.....

  • booboo1
    booboo1 Member Posts: 1,196

    Muddling,

    I agree with the others. You should have whatever you wish in your casket. I am hoping that I will be as strong and capable as you when my time comes. May God hold you in His loving arms as you transition into His kingdom.

  • micmel
    micmel Member Posts: 10,055

    Tanya~ hello beauty. You snuck in there. Love you sister.

    BooBoo~Love you too sweet friend !

  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    Thanks all. Good idea, Rosie!

    I'm with all of you in your pockets, but I might stay close to Micmel's spiked punch, LOL.


  • micmel
    micmel Member Posts: 10,055

    you can have as much as you’d like sweetheartHug♥️ Muddling.........

  • micmel
    micmel Member Posts: 10,055

    candy~ Thinking of you as well!! Sweetheart! 🌹♥️

    Mara~ hope you'll have a good day! ♥️🌹

    ~M~.