My Husband, My Life, My Love, My Family, My Cancer
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BooBoo~I'm sorry you got what sounds like the tummy flu! 😞 like we need that. I made sure this year to get my flu shot. The past two years I paid the hard price of not doing it. I'm scared to get it again. It kicks major ass. I hope you continue to feel better. I go back on my week off Ibrance The week of goes too quick, but it goes quickly While I'm off of Ibrance, compared to on weeks. What we go through.
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Rosie~Loving that picture! Somedays I’d love to be so far away from my reality, I’ll be living through you! It’s always nice to see you sweet woman! Travel safely. And sending hugs to you! As always. Welcome back !
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Daniel and Leslie????? Haven’t seen anything from you guys!!!!?? Worry when I don’t see my peeps.
Muddling, thinking of you and Marianneelizabeth.
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Micmel, I'm here just so weak. I check in when I can :-[
What's going on with M.E.?
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hi honey, love seeing your name. Glad to hear from you. She just decided to have some hospice enter the picture for some pain management. She's havinga hard time. Keeping her pain under control. you're in my heart everyday and wanted you to know.
love you sister. 🌹0 -
Reporting for pocket duty!
Booboo hope you are feeling better. I have been hearing about the stomach virus going around and people needing to go to the ER because of dehydration. Let us know how you are doing.
Well I have spent basically the whole day in bed! I guess I’m paying for my energy output this past weekend. Slight headache too. Need to drink more water. I slept almost 12 hours last night and took a nap today. And I am writing from bed. Feels soooo good in here! Zumba starts in 15 minutes and I don’t think I can rally!
Thinking about everyone and sending lots of love and hugs.
Philly
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Ugh, so far behind...
Beautiful dress, enjoy the show 😀
Great costume Philly, looks like s fun party!
Ran errands today and packed for my quick trip to San Diego. DH is still on tour, so my older brother is meeting me for lunch and the concert.
November is looking busy with the MD Anderson Boot Walk to end cancer on 11/9 (walking for the advanced breast cancer clinic), scans on 11/14, off to the cabin 11/22-11/29, then thanksgiving when we return 11/30.
Today is an odd anniversary of sorts, I found the lump 3 years ago tomorrow, so 3 years ago today was the last time I lived in blissful ignorance, expecting to retire in my late 50’s and planning for the next 30-40 years. I am still happy and grateful but man, what a gift it is to think anything and everything is possible.
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Ladies I am home from my MO appt. Went well. I was her last appt of the day so not rushed. I will have to remember to schedule later appts from now on. I posted on the Liver Met Thread, the Bone Met Thread, and the Ibrance Thread with specifics but long story short.... Ordering PET to look at slight increase in liver met size. Ordering Bone Scan for increased spinal pain and CT said no change in bone mets. Of course, IF insurance will agree to the scans. We then discussed the possible next treatment for me (PARP), but not changing treatments yet.
And we discussed using my pain pills she prescribed last time (Tramadol) that I have not used yet for fear it will worsen the constipation I already deal with. She said I should not hurt if I don't need to.
She even talked to me about the autoimmune disorder I have just been diagnosed with and that she REFUSED to discuss before. I think I posted about that here, but I know I posted about it on the BC and Autoimmune Diseases Thread.
So all and all a "good" appt and now more testing to do. Whoopie.
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Candy, I'm so happy you had a good appointment with your MO. It sounds like you have a good plan in place. You also sound confident in the plan, which is good. I just knew you would handle this appointment beautifully!
I'm having to take an extra week off my Kisqali due to a slight rise in my creatine level. I wonder what they will do if it doesn't decrease. I didn't think to ask. I go on Wednesday for bloodwork so I guess I'll find out then.
Hope everyone is doing ok!
Laine
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Booboo1 I am very glad you are feeling better. That sounds awful but it's good you are on the mend and can start P soon.
Candy I'm happy to hear that you can stay on Ibrance another three months! I miss Ibrance! What's funny is my number one ongoing side effect for six months of Ibrance was hair loss. I lost a lot of hair. Luckily I had a lot to start with but I've been off ibrance now for almost three weeks and my hair is still coming out fast! Ack!
Doing okay on the new treatment so far. Some foods taste weird. Fatigue starting up a bit. The usual AI aches. I don't need to lose any weight but I it's hard to eat when things taste weird!
One of my support group ladies did a Norwex party for the group today. It was soooo much fun. Lots of great food and laughs. We see each other once a week with additional adventures such as lunches, or walks and some even go fishing! It was a beautiful sunny fall day. One of the group is two months into Ibrance and her tumor markers dropped fifty percent. I had a hard time not feeling a little jealous about that but there we all celebrated her good news. Another two are facing tough surgeries and scans coming up. It's a really great group with concentration on living while we're going through good and bad times. I wish all of you were there!
DH is carving pumpkins this evening. He is into his pumpkin art. HaHa!
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Philly~I can imagine why you would be exhausted! I was tired just looking at you!!! Seemed like there was a lot of people at the boat party. I always think it’s so funny how Halloween is an excuse to have your butt hanging out, and it’s just perfectly fine to do. (Not your birthday obviously lol). But seriously, some women and men find it a green light to dress really risky and provocatively. (Again not you). Younger generations primarily (older teens young twenties). Not to mention that there is a good chance it will be cold out and the tricker treaters freeze their little selves.. hope
You’re rested up. You looked so adorable. 😁🤗🌹
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Mae, Our correspondent is jetting off to another destination... unbelievable you are woman! I am astonished there is no packing montage for us to view of selected corresponding outfits. Considering you're the best suitcase packer I've ever known. Not to mention you're always doing something pretty damn cool. Have a safe trip. Report in when you can. Hugs sweet woman.
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Candy~I am glad overall you’re feeling good about your MO appointment. That’s important.... glad they addressed your concerns. That another important thing. Nothing like an MO that listens to you. Don’t we always have to have more testing. Then more waiting. But if we get the response we deserve it’s better than waiting forever for attention or results when you’re crawling the walls ! Sending you hugs. 🌹🌹🤗
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wonder where Mara is today? Hope you're ok hon!
Laine~Hello sweety! Hope that level Comes down. They will most likely wait for it to drop. It could be a side effect of the new treatment. Our bodies need to adjust what we can take, or not! I hope you're ok.
Hope the next blood work is a ok!!! 🌺.
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Moomala~ i totally agree with the taste issues. I have the same problem after 37 cycles of Ibrance. My tastebuds sure burned off long ago. Constant sore mouth pain. It just never leaves. I hope you adjust beautifully to the new treatment. I honestly think we’ve all been through quite enough. Post some Pics of the awesome carvings. I love that stuff! Halloween is awesome. 👻🎃. And it’s Thursday already! Hope it doesn’t rain for the little kids.
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Tanya, thanks for your response.
Grannax, thank you too. So upsetting that Xeloda failed you as did the latest treatment. I kind of assume that we should get a run on every treatment, but after my Aromosin and IBRANCE, the Faslodex and the subsequent AIs.
Would love to hear from others that have had a long run with Xeloda.
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Dorimak, I did 14 months on Xeloda. When I started, my liver was 70% mets in 2016. By my 3-month PET scan, tumors were there but shrinking and 100% metabolically inactive. They remained metabolically inactive and continued to shrink the entire time I was on Xeloda (until I had progression). I love it. My "favorite" treatment to date. I would be fine staying on it for life. My liver mets have never been as aggressive since then. I have continued to fail treatments over the years after periods of them working but my liver has never been close to the state it was in before Xeloda. In fact, I am considering Xeloda combined with a second drug as my next treatment. There are a few on here who have lasted over 4 years on Xeloda (Goldie and I think the other was Lulubee?).
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Mel, I am here. Did not do a whole bunch today, just walked on my treadmill and went to the grocery store. Did some laundry. Have to get less tired after a grocery shopping trip. Getting there by foot is no problem, getting home, even with just 2L of milk which is only about half a gallon and spinach was enough to tire me out. I collapsed on the couch before putting things away. Going to have to make more trips to the grocery store as I like having to walk. I don't like delivery service because a good portion of the time, they mess up the order and grab the wrong thing. Still training on the treadmill with a 2L carton of milk filled with water in the knapsack. Maybe will just take longer to get used to it. I don't like the grocery carts as it hurts my arm pulling it along and you cant really use it in winter. Outside of this, my day was pretty good.
Mae, wonderful you get to keep travelling.
Moomala, the Norwex party sounds like a lot of fun.
Muddling, thinking of you as well.
My cat wants to say goodnight to everyone. This is Tigger.
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Gosh thanks JFL. Just heading to bed and decideded ri check the boards. I know we’re all different but your story made my night
I wish you success with your treatments. 0 -
JFL~Hello there stranger. Always good to see you here. I always hope things are going well for you. Sending you hugs.....
dorimak~Welcome back as well. I've known a lot of people who got years out of xeloda and many reach NEAD. It's all individual as we know. I am wishing you years and years on this treatment. I know by onc said it's in the arsenal. But not next, which I thought was interesting. I have extreme fatigue from Ibrance cycle #37, with a three month break in treatment. Which sometimes we really need to heal some. He's tweaked my medicine to one week on one week off... how will taking xeloda for you work ? And how many MGs are you starting on ? I know they tweak xeloda to meet your tolerable needs. Good luck !!!!!
Mara~ I love your kitty cat! He's a big cat! I had three catsgrowing up I loved them. But later found out I was always sick because I was allergic to the cats. Made me sad. Now I can only have dogs. Which is ok... but I miss the cuddles. Good to know you're ok!
Much love ~M~
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hahaha about the referee butt in the photo! Missed commenting on that!
All I can say is, this is Philly. Philly style is all over the place and many women love the freedom of self-expression and sexuality and any excuse to bring that out. I love it!! If they are feeling sexy, then I cheer them on!i am so grateful to live in country allows us the freedom to show our butts and boobs!!
There were TONS of sexy costumes at that party. My costume was soooo conservative in comparison to most of the women’s costumes. At one point, some guy had completely pulled his pants down for some reason in the middle of the dance floor! 😂 it was pretty funny to see. People go bananas when they have the opportunity!
Here’s one more, with my two favorite costumes of the night!
Mara I LOVE your kitty Tigger!! What a gorgeous cat!! I love orange tabby’s! He looks sooo intelligent and sweet!!!! I want to pet him!!!
I spent basically the whole day in bed yesterday. Today I am going to lunch, the gym and then a massage. Tonight I am going to check out a class called Intro to Mussar.
Happy rainy Monday to all
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Thanks Philly and Mel for the cat complements. He is a good cat 98 per cent of the time, when I am upset and go to bed in the daytime, he always comes to snuggle up on my chest, both cats do actually which is nice.
I also agree with you Philly about the right to show whatever bodyparts you wish, especially at a halloween party. That person in the background obviously has a lot of confidence and that should be celebrated since so many of us don't necessarily feel that way.
It has gone gray and depressing outside today so will probably stay in. Not sure what I wish to do. I feel a cold coming on so I think I will drink a lot of water, take lots of ibuprofen and Buckleys for cough and cold. That menthol is so gross tasting, but really clears everything out. My niece recently had pneumonia so I want to be careful not to let anything brew in there long. My chest is also sore so I think I should take precautions.
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Philly~ I have always felt, you only Live once. I think it’s great all Of the costumes, and variety clever choices and personal views of expression. To me anything could be a costume. It’s a time to let loose and be someone else sometimes. I think that woman knew she could pull it off fine! And so she did..... I remember evenings in Philly. I did always have fun, but there were hairy areas as well. Especially for women as beautiful as you. So just be careful! You looked lovely. Your costume was so elegant. Just like you are. And lol at those other costumes. Perfect example of creativity!!!! Thank you for the smile !! Hugs sweetheart. Anytime you find yourself in doylestown. You let me know. I’ll drive there. For sure! Hugs ~M~0 -
Mara~I had always loved my cats behavior. They loved to lay at my feet and stay there for hours. They loved to lay on the bed. Together. Cats, just like Dogs Form a bond. It’s quite amazing! I’m worried about my Deeohgee, when something happens to his pal of 11 years leaves us. He’s just getting so old. I give him his joint medicine. It seems to be helping. I hope that’s a good sign and it’s not my imagination playing tricks on me. Cloudy and raining here too my errands are done and my sister is coming for a visit. Which I love. I’m so happy to have her back In my Everyday. Makes sh Co a difference in my life. The estrangement lasted too long. We should have spoken sooner. Lost time. Again, just lke my father. I feel maybe a nap on tap after. A short one only. I need to sleep tonight... have a good day lovely !
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Treatment started today with the first goserelin injection. Lovely nurses on the floor, including the one from the first attempt and she remembered me. After the punch biopsies this was a piece of cake!
Had a few wobbles the last day or two with all the greatest hits including: I wish I wasn't sick/can't this all go away/why is this happening to me/what did I do wrong/Im gonna die tomorrow. I've got to get this hip/hip flexor/low back issue under control because nothing makes you feel worse than being unable to move like a normal person. Im working from home tomorrow so will take a walk to the GPs about getting an appointment to deal with this or a referral. Frankly I think its the illiopsoas muscle causing all the problems, along with super tight hips from shuffling along. My chiro was making excellent progress three weeks ago and then I had to stop until the spine scans were read.
Also saw my fabulous dentist today for an 'all clear' check. I wish my MO had his easy bedside manner and informational approach! Thankfully my teeth/gums look fantastic, other than the one filling he put in last year, no areas of concern. He was absolutely on top of the drugs and potential impacts,didn't have to look anything up. I complemented him on his new hair highlights too.
Currently weighing up flying my parents over for Thanksgiving/early Xmas. Our house is tiny and its a tight fit, and who knows how many more holidays there could be. But it will also be around the start of my Ibrance and I don't want to be even more weepy (or deal with my mother being weepy/businesslike) in front of them. Mom watched her own mother die a really rough death from experimental MS drugs, her father from melanoma, and then spent 30 years keeping my father patched together and not dying from blood clots so she tends to go into just-the-facts-hospital-mode when faced with serious medical concerns. But if I can't be there for them in the future it would be nice to treat them now and maybe get some better communication happening too.
Damn, this was a downer of a post. One good thing - the office is really cold right now due to a lot of construction going on so a plus in the days to come????
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Mara- Your cat is BEAUTIFUL. My cat is my baby. They are wonderful to have in our lives. Mine sits on my lap when I read or watch TV and sleeps next to me every night.
Hoping everyone is having a good day.
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Re:cats - I need to post a photo I took last night of our girl Midge luxuriating in the new marshmallow cat bed we bought for her and brother Martin to share. She looks like she is at the spa waiting for her nails to be done.
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Mel, our pet family are just as important to us as our human family. It hurts just as much when they are in pain, suffer and/or pass away. I have had many cats in my life and they all have meant a lot to me. I even had a cat dippy who died of breast cancer believe it or not. I was gutted with each of their deaths BUT always found a new family member to help me remember them and create new memories with the new member of the family. I can't imagine a life without them.
This is Ava, my other cat taken just a couple of minutes ago. She answers me when I whistle and will come sit all the time. Only time she is scared is when my phone rings because I have to let delivery people or visitors into my building. She will run away.
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Beautiful Cat! I love how they listen and watch us. Love the eyes. Miss owning one, sometimes my hound dog bellow so loudly. It makes your ears ring.
I actually scrubbed two full bathroom upstairs today! I did the showers the toilets and sinks. It felt so good to have done something. Tomorrow I plan on tackling the vacuuming and downstairs bathroom. Then I'll move onto the kitchen. It makes me feel like I contribute to the house. My DH just can't do it all and drive up here each Friday night. No way. I have to force myself, especially with this adderall, I want to be more productive! But I will admit I am tired. But I enjoy clean things around me I call them visual vitamins Makes me feel better mentally!
Holmes ~ 💞 great words of wisdom. Grannax~0 -
Hi All, just catching up.
Mae, 3 years ago for me too, although I had been through BC in 2006. Glad to be here!
Marianelizabeth, hope you are doing ok, sending love.
My love to everyone else. Every day is special
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