Lita57
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Forgive me, but what is IC?
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Not sure this is what BAU meant but it's still interesting. Hadn't heard of it.
Chemotherapy into a body cavity (Intracavitary)
Intracavitary chemotherapy means injecting chemotherapy through a tube (catheter), directly into a body cavity. It gives a very high dose of chemotherapy to the tumour, but only a very low dose to the rest of the body.
You might have intracavitary chemotherapy into:
- the bladder – intravesical
- the abdominal cavity – intra peritoneal
- the chest cavity – intrapleural
Praying for strength and peace for you and your family.
>Z<
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Praying for you Lita. Never ever count yourself out. Miracles happen!
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I mistyped. IT, not IC.
https://www.oncolink.org/cancer-treatment/chemotherapy/overview/intrathecal-chemotherapy-it-chemo
I might help your symptoms and give you more time
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I'll have to see what Kaiser's protocol is.
Watching "The Walking Dead" to take my mind off of this mess.
Of course, with my Taxol intestinal issues, I wear my shittin' pants every day now (generic Depends).
L
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Lots of hugs, Lita. I think of you every day. I grew up in Sonoma county and have spent a lot of time inn Elk, Anderson and Mendocino. Such beautiful places!
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Lita thinking of you and praying for you!
Babs
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I think what BadatUser meant was using an Omaya, it's done surgically to make it acceessible for one thing putting chemo straight to the brain, someone here had it, i'd have to look back. Best of luck today in getting your answers and plan. Ask about the Orbital area k.
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ohhhhh, I love the Shittin Pants Lita! My laugh for the day.....probably because I can SO relate! Prayers are coming your way for comfort and answers. Gentle hugs
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Lita - thinking of you.
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Lita, Thank you for making us laugh in the middle of your misery. Hoping theme pain and auras are temporary. Deep breaths.
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Thinking of you lita.
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Just received the $ breakdown for my whole brain rads today... $13,800.
How do people with crap insurance get thru this?
This does not include all the lab work every week, my infusions every week, monthly dr appts, Rx's, etc.
Cancer is a catastrophic illness that can easily bankrupt a family.
I am depressed now.
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Lita- the breakdowns are truly scary. I hope that you don't have to pay that amount! So many people chose not to have treatments because they can not afford it. There are people doing GoFundMe campaigns to pay for their deductibles. Sad and wrong.
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Thinking of you Lita! Yu can still make us laugh in the middle of your trials......The insurance thing adds so much more stress to an already unbearable situation. I hope it works itself out for you. Hugs and prayers for you every day!
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I'm so sorry, Lita. I'm hoping that $13,600 figure is a total -- NOT what you still owe. But you are so right about it being a huge financial drain, and it makes me angry that some insurance companies don't even allow some newer drugs for some patients, in favor of the older, cheaper standbys; as well as knowing of at least one beautiful younger woman here on BCO who did not have insurance and basically threw in the towel on tx, rather than bankrupt her family. We all share your feelings about these outrageous bills and the impact they have on us and our families. Hugs & prayers your WBR turns out to be well worth the cost!
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Lita, I am praying for you every day. You make me smile and laugh in the midst of all of the struggles. I love your pictures. I have spent many summers camping in the Sequoyas and Yosemite, and really want to go camping again. We are debating trying to find a cabin near enough. I don't think midnight romps to the outhouse will work for me anymore! And taking care of dirty pants in a campground? No way!!!
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I actually didn't think the $13,800 was high enough. One shot of Xgeva shows up on my BCBS supplement statement for $6500.
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My husband is retiring in a month, and our coverage is going to change...that's what is stressing me out.
No more dental or eye coverage at all, and our copays and limits on med ins will change, too.
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I was NEAD for three years. Then new insurance hurdles caused a three-week interruption of my treatment back in January, allowing MBC to migrate into my pericardium and almost kill me. That has cost the insurance company a 15-hour ER visit with multiple doctors attending, emergency heart surgery, a week in the cardiac ward, two months of home oxygen service, a year of weekly Taxol (so far), a dozen extra scans, and many additional doctor visits.
I suspect in trying to save a few bucks, insurance has wound up spending at least half a million more on my care this year. And I am worn out and bald from it and can barely walk from neuropathy... after three years of being NEAD. Makes me want to scream. The system is so broken.
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Lita, I get it. My DH is self-employed so we have had to change insurance companies every year for several years in a row now, just to keep me with the MO who has basically kept me alive for ten years. It is so nerve-wracking around year-end for us every year. There was only ONE policy available this year that would allow me to stay with my MO. I had to lose *all* my other doctors and specialists to keep her on board, and the policy is extremely expensive-- but we had no other choice! And even this one is phasing out in December. I am terrified of what we are going to find when we start looking tomorrow, when open enrollment starts. I mean, this is literally life or death stuff here, you know? Anyway, I just wanted to say that I will pray for yours as I pray over my own. God bless us all.
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Lita depressed or not you are typing away, good for you! So sorry for having these added worries, Lulubee so true for you too.
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HA! Mom, that is funny!
As they often repeated at a company where I use to work, "Money doesn't buy happiness, but it does buy you OPTIONS... and options make you happy." LOL
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Mom that was too funny. It's sad that on top of dealing with MBC we also have to deal with insurance and major $$ issues
Babs
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Lita they just want too much bloody money. I always figured greed would be the down fall of our society and big pharma and insurance companies are right up there. Eight thousand a month for 21 little pills (ibrance) is crazy. They line their pockets and we go bankrupt in the end.
I'm always thinking of you throughout my day Lita and every time I think of you I'm sending good vibes.
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Wendy, I don't know where you get/got your Ibrance, but mine is $11,264.53 right now. 21 pills. Stunning.
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Jay okay that's totally crazy I live in Canada that's one hell of a difference. I double checked the email and that's the price 7899.00. What a rip off eh
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My insurance gets billed $38,000 a month for Afinitor. 28 pills. I know they need to recoup their R&D and make some money, but good lord. If the manufacturer didn't pay most of my copay I wouldn't be able to pay for my part of it - it's more money than I bring home every month!
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jean, some people don't even bring that much home per year after taxes.
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Lita - I just browsed your CA photos, thank you for taking us there.
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