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Starting Chemo in February 2019

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Comments

  • loiswb
    loiswb Member Posts: 86

    Pinky, so sorry you had to delay. How disappointing. I have had sore throat on and off but no cough. I am slogging through my worst day (treatment on Thursday). Should start improving tomorrow if it goes like the first two. 

  • margun
    margun Member Posts: 385

    hi Pinky,

    I saw you had ac and taxol. Which one was harder to cope?

    Thak

  • margun
    margun Member Posts: 385

    To all that had ac and taxol experiences Which one was harder to cope?

    Thak

  • margun
    margun Member Posts: 385

    my onc and Bs are going with chimo before surgery. They are saying that would help to see how chimo affects timoré which make sense. But in my recent meeting with inc to get my 3rd cycle I asked when they will do some tests to see how things are because my breast being huge and the Tumor deep I could not feel even the initial timoré. He said that will be at the end. I do not understand why you should see at the end what is going on whiteout having chance to adjust chimo before the entier 4ac and 12 taxol cycles?

    Thank

  • Mncteach
    Mncteach Member Posts: 241

    margun- I am doing the ac and taxol but post op. They don’t check in the middle of chemo usually. They can add more post op but don’t want to break up the chemo so you get the most punch out of it, at least that’s my understanding when we were in the planning phase. Do you have a breast health navigator or a nurse hotline? Both of those resources proved most helpful to me as I had questions or problems. I hope someone else can chime in who has done it preop! I know there are many of you wonderful women out there who have done this!

  • margun
    margun Member Posts: 385

    I read a lot about water fasting helps with se? I do not know what it is but my nurses emphasized that I must eat very well to recover for the next chimo. Could. You explain what this fasting is and when can be used?thak

  • margun
    margun Member Posts: 385

    I am on 2nd week of my 2nd ac I feel somewhat a blurry vision. It this normal

  • margun
    margun Member Posts: 385

    Kathy, about your blurry vision. Are you taking ac? I am on 2nd Ac and I have for e few days now blurry vision and dry cough. Is it go way?thsk

  • Kathy03
    Kathy03 Member Posts: 44

    Margun, no, I'm on TCH, not AC.  Though I know many folks have mentioned the blurry vision, so it seems to be a common occurrence.  In my case, my left eye tends to get watery and it sometimes makes my vision temporarily blurry.  Others may experience something different.  Mncteach mentioned a nurse navigator or hotline... do you have access to something like that?  I know that especially after my first treatment, it was so helpful to be able to call the nurse and explain my symptoms and get advice on what was normal vs concerning, and how to treat them.  Of course the ladies on this forum have great advice as well!

    I haven't tried any fasting, but I've seen it discussed on a couple of these forums.  I couldn't find a main thread for it, but I know there is info here about it and several who have done it.  Hopefully someone can point you to a good summary.

  • Gonnabeatthis
    Gonnabeatthis Member Posts: 57

    Kathy, I’m on TCHP and I’ve had blurry vision off and on since my last (#2 of 6) on March 12. It appears to be worse at night and when trying to read.


  • Gonnabeatthis
    Gonnabeatthis Member Posts: 57

    Kathy, I'm on TCHP and I've had blurry vision off and on since my last (#2 of 6) on March 12. It appears to be worse at night and when trying to read.


  • Kkmay
    Kkmay Member Posts: 89

    Hi Ladies!

    Today is day 8 for my mother after AC#3 she is suffering now from loss of appetite because everything tastes bitter. She lost about 16 pounds since the start of her chemo. Any advice how to incrrase her appetite?

  • santabarbarian
    santabarbarian Member Posts: 2,311

    kkmay the foods that I liked were a bit unpredictable.... but strong flavors tended to taste better. Like ginger or wasabi. Also, foods like a mashed sweet potato, which are soft, nutritious and easy to eat. Maybe a fruit smoothie? When coming out of a chemo, I was very picky about what I ate, and it was unpredictable. Sometimes a green salad tasted good, and sometimes it tasted awful...

  • Kkmay
    Kkmay Member Posts: 89

    she also says that the when she eats she feels a lot of pain in her back. Any idea what that could be

  • Mncteach
    Mncteach Member Posts: 241

    Kkmay—I also did lots of mashed potatoes and related products. Never had back pain associated with food, but did have some back pain if I wasn’t active enough. Definitely didn’t feel like moving but it was better than the pain. Her MO might suggest something for appetite such as a steroid. I got a steroid to help with nausea and that also increased my appetite and now I am above my starting weight. Of course, the fact that I’m mainly drinking soda since I can’t find much else and water is yucky, is not helping either.

  • laurencl
    laurencl Member Posts: 203

    Now even my Velcro buzz cut is shedding...

    Ugh!

    Lauren

  • margun
    margun Member Posts: 385

    my 3rd ac is scheduled this fry day, I have to take that each 3 weeks, but my dry cough persisting but only during the day. No cough when I am sleeping. I do not understand the reason.tomorrow if seeing dr. The nurse told me that he probably do X-ray. I a my svared that there's something that can inhibit my chimo? Very worried ... until now I gave veen told i have bc. But having invasive her2 positive I scared that it went to lungs?

  • loghome55
    loghome55 Member Posts: 2

    I’m starting chemo tomorrow. 3/27. Praying for limited side effects. I wasn’t told to take any meds ahead of time like some of you talked about. Hope it will be ok. Still not sure about having lumpectomy or mastectomy. Doc says I’m good candidate for lumpectomy but then I would have to have radiation. Does anyone have opinions on this?

  • Mncteach
    Mncteach Member Posts: 241

    Mangun I’ve had an on and off dry cough. Never impacted my ability to have chemo. Hopefully it’s related to all the drugs and chemo we are putting in our bodies.

    Log home55– hope all goes well. It really depends on how you feel. I had issues and biopsies before my BC diagnosis so went mastectomy route. The doctor was supportive of lumpectomy too if that was my decision. The good news is you have time to talk to people and do your own research and make the decision that feels good for you

  • Kathy03
    Kathy03 Member Posts: 44

    Mangun, chemo cough is not unusual, hopefully that's all it is. It's good that you're seeing your doctor tomorrow, hope he confirms and puts your mind at ease.

    Loghome, good luck tomorrow! You may be getting some pre-meds as part of your infusion to help with side effects. I take steroid pills starting day before, but get the anti nausea meds through IV before the chemo drugs.

    I had a lumpectomy first (small tumor, no nodes involved), now chemo, followed by radiation. I think there are lots of factors to consider.... not only your specific DX, also your personal feelings, risk level, etc.

  • paloma1211
    paloma1211 Member Posts: 95

    imageI feel you laurencl. My head is starting to look like a mangy dog. Lol

    And I'm sorry, I do not remember who told me, but sucking on ice during taxotere seems to really have kept the mouth sores at bay. So thank you!

    image

  • santabarbarian
    santabarbarian Member Posts: 2,311

    "mangy dog" does not do you justice-- you look beautiful!!


  • paloma1211
    paloma1211 Member Posts: 95

    Thank you, santabarbarian. :) It’s really starting to get patchy on top. But, not much to do about it, I guess.

    I’m on rd 2 day 9 of tchp & my belly is in knots. I’m drinking tea, eating mostly BRAT, hitting the pepto & still my stomach hurts. Anyone have tips or ideas?

  • Gonnabeatthis
    Gonnabeatthis Member Posts: 57

    Paloma,

    You look great! I still have about 40% of my buzz cut, but it’s mostly grey! I’m on TCHP as well and round 2 left me feeling sick for about 12 days! Finally feeling good, other than fatigue and round 3 is next Tuesday. Here’s hoping for a better round!

  • notdefined
    notdefined Member Posts: 267

    Paloma1211-you look great!  You definitely have more hair left then I do.

    loghome55-It will depend on what you want.  I am having a mastectomy on my right side, but was given the option to do lumpectomy with radiation as well.  It really is a personal choice. 

    I met with my surgeon yesterday, and he gave me an ultra sound.  He said he couldn't see the tumor!  Round 3 took me an extra day to bounce back from.  I am having a little trouble sleeping as well, but will try melatonin tonight. 

    Hope you all are doing okay with SE.  

  • margun
    margun Member Posts: 385

    thanks Kathy for replying about cough. Yesterday in the evening I had 378c graver which then dropped to 37.1. Dr listen to my lung and he said sounds fine and if my graver does not go up again(hopefully) I am on for ac this Friday. I am relatively weak and still coughing compared to the 1st time. I do not know how my body will react in 3rd time when I am frail from the start. However the bid gear is the graver. So if I have not it, i have no choice but put my faith on Gods and drs hands.

    I do not know the ac becomes progressively word or gets better

  • Kathy03
    Kathy03 Member Posts: 44

    Paloma, you are rocking the buzz cut! I wish mine looked like that! And no one but you sees the top 😄. You have much more hair than me. I lost most of mine about 2 weeks after round 1 and buzzed it short. Then I think my 6 week chemo pause messed things up. 6 days into round 3 and I still haven't lost it all. Seems to be a mix of stubborn short gray hairs holding on, and maybe even new fuzzy hairs coming back. I call it my “chia pet" look.

    Notdefined... awesome news on the tumor!!

  • paloma1211
    paloma1211 Member Posts: 95

    You guys are the best! Thank you for the buzz cut love.

    I’m a week behind you, Gonnabeatthis. Are you doing any exercising to combat the fatigue? I do a 20 minute QiGong video everyday, and it really seems to help. I just googled QiGong for cancer, and a nice one came up

    Great news about the tumor, notdefined. I’m scheduled for a ct scan after rd3, due to a strange mass (possibly a lymph node, possibly the remnants of my thymus gland) in my chest. I’m hoping my breast tumor will be undetectable too!

    Also want to share a good eyebrow product. If your brows are thinning, Maybelline makes a product called “Tattoo Studio Brow Tint Pen” that helps fill them in. It looks good! The applicator is little pen with comb shaped bristles, so it applies in brush strokes.

  • laurencl
    laurencl Member Posts: 203

    You are not mangy! You are lovely

  • Gonnabeatthis
    Gonnabeatthis Member Posts: 57

    pretty much just walking. I’m trying to get at least 20 minutes of walking a day. Now that spring has arrived I’m hoping I can go outside more to get this done. Walking around the house is boring! Today we went to Freeport and walked around for about an hour. I came home and crashed but it was great to get outside for fresh air and sunshine