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Zoom Meet-up for Those With MBC: Place to keep chatting

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Comments

  • moderators
    moderators Posts: 10,109

    Hi @temerarious - Cheryl,

    We’re so sorry for the loss of your friend, that's so sad, and also sorry you’re facing progression and delays in your care. It’s a lot to carry at once. Please take the time you need. The group will be here whenever you’re ready to return.

    Warmly,
    The Mods

  • chocomousse
    chocomousse Posts: 109

    Hi @illimae What dose of Enhertu are you currently on?

  • illimae
    illimae Posts: 5,933

    @chocomousse I think 80% amounts to 4.4. I am currently dealing with increasing neuropathy in my feet mainly, so of mg scans on Monday are good, I’ll ask for another reduction. We’ll see.

  • Rosebessie
    Rosebessie Posts: 177
    edited April 14

    @moderators Hi there everyone, Just dropping in to say ive had a rough last 2 weeks although things are kind of starting to settle. I wasn't able to join last week because of yhe trauma of hematoma build up around the surgical site. It was drained that day and again last Thursday and yesterday, Monday. However, I've also been suffering from mind blowing insomnia, accompanied, or most likely caused by horrendous night sweats and hot flashes (are they the same thing??). Not a wink of sleep since Munday Thursday 🥹🥹😭😭. I was going crazy. So i took myself off Arimidex temporarily just to get some sleep. I couldn't help it. So yesterday, for tge 1st time in over one week, sleep hit me early and i woke up at 3am to realise id missed the meeting. I miss you all. I hope to make it next Monday. Love and hugs ❤️💕🫂

  • moderators
    moderators Posts: 10,109

    Hi @Rosebessie, we certainly missed you at meetup, but at the same time, it's important that you were finally able to catch up on some much-needed sleep! What a rough recovery you've been experiencing. Sending gentle hugs to you. We hope to see you at next Monday's meeting. ❤️

  • Rosebessie
    Rosebessie Posts: 177

    Thank You @moderators it was good to finally make it and catch up with everyone yesterday. Love and hugs 🫂🤗❤️

  • silviah
    silviah Posts: 36

    Hi Everyone - I haven't been around for a little over 3 years - but I'm going to try to attend each group and see what time fits best for me.

    I appreciate being around people who understand - I think it will help.

    I enjoyed being a part of yesterday's group. Thank you for having me!!

    Asemo

    💗

  • moderators
    moderators Posts: 10,109

    Hi @silviah , we’re so glad you joined yesterday’s group and that it felt helpful for you. It’s wonderful to have you back, and we hope you continue finding support and connection here. Big hug!

    The Mods