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Trying out the new forum, checking in

meow13 Member Posts: 1,363
edited September 2023 in Mixed Type Breast Cancer

I am just checking in twelve years ago diagnosed stage 1 two one centimeter tumors ilc and idc er+ and pr- her2-. Numbers typing are are displaying double. Had left side mastectomy and DIEP reconstruction still looks fabulous and stomach scar hardly visible breast scars and skin look very good. I am a happy camper also and most importantly twelve years NED. When I type the number twelve it display 112.


  • moderators
    moderators Posts: 7,666
    edited November 2023

    Hi @meow13,

    Welcome back! 12 years NED is wonderful to hear and so many will be happy to hear this — thanks for coming back to share your good news.

    As far as the typing issue, we're not sure what's going on with that as we don't see any problems on our end. If you have a moment, could you fill out this technical report form so we can check things out?

    Thanks and looking forward to seeing you around the community once again!

    —The Mods

  • vlnrph
    vlnrph Member Posts: 468

    Hi Meow! Sounds like we have similar chronology and original diagnoses/treatment, although my Mx & DIEP were on the right side. Unfortunately, I became metastatic 5 years ago.

    With both IDC and ILC, was genetic counseling ever suggested to you?

  • meow13
    meow13 Member Posts: 1,363

    No genetic counseling was not pushed but my oncodx number was 34 chemo was recommended but I didn't do it just took AI drugs. Sorry to about your Mets I am keeping my fingers crossed hoping I stay NED.

  • dreaming
    dreaming Member Posts: 219

    I also had 2 different type of BC found in the same breast after I demanded a mastectomy, when I was diagnosed with an excitional biopsy that also I demanded after 4 months with sharp pain and several specialists I saw refused any biopsy due to a negative mamogram, ultrasound, no family history.

    The oncologist recommended no mastectomy because all cancer was removed, same with surgeon,I took a Dear Abby cut off from a newspaper where a woman with my symptoms was dying of non diagnosed breast cancer, my surgeon agreed ,my husband thought I was nuts to want a radical masectomy.

    Had slowed drip dense chemo, for a year, twice a month .

    I am 30 years survivor, my breast cancer was as a young mom and wife.

    After I went back to university to work in the medical field.

    We need to be our own advocate, get second opinion.

    At the time there was very little research, thanks to National Breast Cancer Coalition, that lobby for funds we have more options.

    I had twice removed benign cysts.

    Be positive, avoid negative people.

  • kaynotrealname
    kaynotrealname Member Posts: 343

    30 year survivor….I am in awe and so glad you posted. Thank you!!

  • rose312
    rose312 Member Posts: 4

    I am waiting for the results of the bone biopsy I had Friday. Sacral region.

  • moderators
    moderators Posts: 7,666

    Please keep us posted on what you find out, @rose312, we'll be thinking of you!

    The Mods

  • rose312
    rose312 Member Posts: 4

    Metastatic breast cancer. Triple positive. MY oncologist said he's never seen Hers go from negative in 2021 to positive in 2023. I'm in the middle of radiation. Three more to go. I start chemo 11/6.

  • moderators
    moderators Posts: 7,666

    We're so sorry to hear, @rose312! Keeping you in our thoughts and here to support you through this.

    If you want to meet others with MBC, click on this topic: Just Diagnosed With a Recurrence or Metastasis.

    Additionally, we'd like to inform you, in case you didn't know already, that we host free weekly virtual meet-ups with other mets BCO members in real-time. It's a great place to ask questions and chat live. Check them out here: Virtual Community Meetups.

    You might also consider hopping into these other conversations to connect with members who are currently undergoing treatment:

    Starting Chemo November 2023?

    Summer/Fall 2023 Radiation Thread

    We hope this helps! Please, stay connected. There's a lot of support and information here in this wonderful community!


    The Mods