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SSDI review with metastatic breast cancer - lose benefits?

kkcita
kkcita Member Posts: 25
in Stage IV/Metastatic Breast Cancer, Open to All To Contribute

I just got a packet of mail from my state disability determination services office, saying that they are reviewing my disability status. I was diagnosed with unnumberable bone-only mets in Feb 2020. I was on Kiquali/letrozole for about 4 years, and now I've sped through Orserdu, piqray, and now, Truqap just in this year. My tumor markers are down, so that's great. Scan coming up this week.

Has anyone with metastatic breast cancer lost their SSDI benefit and been expected to go back to work? I've never been NEAD, or NED. just stable. I have a lot of fatigue, panic attacks, anxiety, aches and pains, diarrhea, stomach pain etc. I can't walk a far way, I can't stand for too long. Anyhoo, let me know if you have been in this situation. Routine? Nothing to worry about? Please share. Thanks.

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Comments

  • wren44
    wren44 Member Posts: 7,967

    Others have mentioned the review so it may be standard. Make sure your doctor documents your symptoms

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