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Suffocating in the waiting...
For the last 6 months I have been experiencing a strange shooting pain sensation on my left side, right between my armpit and my breast and it would radiate through my breast. I ended up going to the ER because I thought that I was having a heart attack. I am almost 37 years old. The ER told me I had inflammation in my…
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Lymph node removed but pathology says no evidence of lymphatic tissue found!
Has anybody had masectomy with sentinel lymph node removed but pathology says no lymphatic tissue found? I’m seeing breast surgeon tomorrow and oncologist next week. Will I need another procedure? I’m not sure I’m comfortable not having lymph node tested as this is my second time having breast cancer!
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Just dignosed
Hi my name is Deanna and I am 48 I recently went to the ER for a lump that is really hurting. So I got an biopsy and a CT scan done , and went a couple of weeks ago to the surgical oncologist for the results. He went over the results with me and my family explaining different tests like the Hormone receptors and said that…
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Have you experienced PTS or PTSD following a breast cancer diagnosis?
Please share below your experiences with PTS (post-traumatic stress) or PTSD (post-traumatic stress disorder). How has this affected your life, the way you feel, your relationships, activities? And how are you managing?
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2017 BC Diagnosis…how are you doing?
Hello Friends:💐 It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing. I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support. I look forward…
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October & Where do I fit?
November 11, 2024 I had a routine Mammogram. December 4th they did a diagnostic mammogram and ultrasound. December 30th I had a biopsy and was diagnosed with intermediate DCIS. January 21 2025 I had a lumpectomy but they didn’t get clear margins so I had a re-excision on February 5th. After healing I had radiation 5 days a…
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Post bilateral mastectomy hypersensitivity nerve pain in chest and axilla
Hi, I am new here. Recent dx of R sided ER+, PR+, HER2 - breast cancer at 40 years old. Chose B mastectomy and immediate reconstruction. Just had drains removed at nearly 4 weeks post (sx was 8/12/25). I have been dealing with a lot of hypersensitivity to my chest/axilla region. I am a physical therapist by trade and plan…
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I'm looking for advice re: my lumpectomy on Monday next week
I'll try to keep the background as short as possible—unfortunately, it is a bit of a twisted tale. I had a screening breast MRI in Sept. last year. It came back BI-RADS 5 (greater than 95% likely cancer). The targeted US showed a rather benign-looking nodule that was presumed to be the one seen on the MRI. An US-guided…
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Radiation & tamoxifen - necessary...?
Hi everyone, I’d really appreciate hearing from others in a similar situation. I’m in my early 40s, no kids, not close to menopause, and recently had a lumpectomy for a 12 mm, grade 1, ER+/PR+ HER2- IDC (plus a small area of DCIS). Margins were clear, and there was no lymph node involvement. My Ki-67 is low (10%), and I’ve…
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Lung Nodule Incidental Finding
UPDATE - most likely benign - see below for details and cautions of how one scan leads to another…to another…to… Had a cardiac CT due to elevated LDL cholesterol. All clear so no statin - 0 calcium score. BUT a pulmonary nodule, partly solid, "measuring up to 9 mm" was found on the lower lobe of my right lung. No…
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Radial Scar
Hi All, Just looking to connect with people who may have had similar experiences or diagnosis. I went for my first breast check, age 32 due to a concern on my right side. This was clear on imaging, however the ultrasound found architectual distortion on the left. This lead to a mammogram, mri, core biopsy and lumpectomy.…
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US Biopsy Complete, Made to Delay Skin Biopsy
I’m 37, had a mammogram & ultrasound earlier this month due to changes in my right breast not responding to dermatological treatment (persistent itching, raised bump/rash, discharge). The 2 findings were Birads 4 (no letter): a small mass in the upper outer quadrant (10:00, U.S. biopsy), and the other a skin-related lump…
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SSDI review with metastatic breast cancer - lose benefits?
I just got a packet of mail from my state disability determination services office, saying that they are reviewing my disability status. I was diagnosed with unnumberable bone-only mets in Feb 2020. I was on Kiquali/letrozole for about 4 years, and now I've sped through Orserdu, piqray, and now, Truqap just in this year.…
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Help! Scanxiety & stress over watching my sister in pain.
My sister has MBC, stage IV, mets to the lungs & bones. Originally diagnosed Stage 2-A, IDC, underwent radical right breast mastectomy in 2020. In 2022, metastasis to the bones & lungs. Her 2nd line of treatments, Capecitabine & Lapatinib, poisoned her system resulting in stomach issues (diarrhea, gastritis, etc. She has…
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Newly diagnosed, sort of
Hi - I’m new here, 56 years old, terrified and frustrated with the long timeline for my diagnosis. Since my mammogram on Nov 22, 2024, I’ve been sinking deeply into paralyzing despair with each new waiting period followed by a new piece of bad news. (1) calcifications on right breast mammogram, (2) magnified mammogram…
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Waiting for Surgery
Hello, I'm 48 and I was recently diagnosed with Invasive Lobular cancer of my left breast after a long journey. It started in December of 2023 when on a MRI they saw a spot that they wanted to recheck in six months. I was not super concerned as this had happened before on the right-hand side and it turned out to be…
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Lower back pain fear
Hello everyone, sorry for my not very good english. I have been reading this forum for a long time and I thank you because here I have often found answers to many of my questions and also a lot of hope. I am 39 years old. I got diagnosed with IDC in february 2024 : 2.5 cm T2N0M0 no LVI, + - - (ER 50% PR 5% Her2 1+).…
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What should be my next step?
My biopsy confirms that I have Invasive Mammary Carcinoma in my right breast, which is hormone receptor-positive (HR+), HER2-negative, and a high Ki-67 proliferation rate of over 80%. Can someone tell me more about that Ki-67 number? Is it normal? Also the doctor initially said it was only one centimeter but the report…
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Psychological reactions to aromatase inhibitors.
I'm sure this has been discussed on other pages but I want to start a thread specifically for this discussion. For the second time, I have had a severe neurological response to Aromatase inhibitors. The first time I was told there is nothing that would help so I quit taking the meds That was 6.5 years ago. I recently had a…
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IDC and Mental Health
Hello, I've been recently Dx with IDC Grade 2, ER+, PR+, HER2+ as well as DCIS on left breast and also managing Major Depression Disorder, Generalized Anxiety Disorder, and PTSD. I've had my crying episodes and everyone I have talked with says to have a positive attitude. In my experience having a positive attitude is…
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Exercises to Relieve Side Effects
Nearly all breast cancer treatments cause side effects, including joint pain, fatigue, and anxiety. Exercise may seem like the last thing you want to do when you’re having serious side effects, but research shows that it can help ease all these side effects and more. It can also reduce the risk of recurrence, give you more…
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MRI Anxiety
Not sure if I'm posting to the right place. I'm scheduled for an MRI on Monday and I'm concerned they will find additional things which may or may not be important. I have an appointment with a breast surgeon on Wed, so doubt the results will be ready by then. Also wondering if I will be able to work that day after or ride…
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MRI Radiologist Has Me Terrified
I was recently diagnosed via an unconventional route, dermatology, due to spots on my nipples. I've since seen a surgical oncologist and a medical oncologist. Initial thoughts were likely stage one as they could feel no swelling in my lymph nodes and my mammogram and ultrasound were clear. But my MRI came back a couple…
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MRI Radiologist Has Me Terrified
I was recently diagnosed via an unconventional route, dermatology, due to spots on my nipples. I've since seen a surgical oncologist and a medical oncologist. Initial thoughts were likely stage one as they could feel no swelling in my lymph nodes and my mammogram and ultrasound were clear. But my MRI came back a couple…
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Financial planning after diagnosis at 40
I was recently diagnosed at 40 with IDC, Stage IA, ER+/PR+/HER2-, Grade 2, and completed a bilateral mastectomy. I met with my MO this week and started tamoxifen, and I have a pleural effusion I’m still getting checked out (aware that that has revealed lung mets for other women, so I may not be out of the woods just yet).…
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How to Ease Stress
How to Ease Stress Apr 12, 2024 Dr. Pamela Ginsberg offers tools and tips on how to ease stress and anxiety after a breast cancer diagnosis. That being diagnosed with breast cancer is stressful is an understatement. It may be difficult to accept the diagnosis. You may feel overwhelmed by making so many decisions at once:…
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Panic attack, sadness and breathing exercise
Hi everybody I'm usually happy and try to have my normal life, but sometimes I just feel like I'm going deeper snd deeper in to sadness, or having a strong panic attack . Especially now that I fpund out my cancer is back in my liver, after only an year of Ribociclib. I tough it was supposed to last 5 or 6 year, but not for…
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Anxiety about coming off Tamoxifen
Hello! I haven’t posted in a while, but I have been on Tamoxifen for almost 5 years (May of 2024 will be 5 years) and my oncologist has talked about me coming off in May, and all of the sudden, the anxiety is real….. I feel like this drug has been like a security blanket for the last five years. I also understand that…
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Stressing out about Elevated ALT levels (things other than liver mets?)
Wow, I have been gone from this site for so long I had a hard time figuring out where things were! This place was a godsend, and every time I start to worry about something, the ladies here have always helped, and I tried to do the same. History - I was diagnosed with Stage IIB back in 2009, had bmx, ACT chemo, radiation,…
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I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…