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HER2 Positive-anyone 10 years out?

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Comments

  • mistyeyes
    mistyeyes Posts: 586
    edited September 2020

    So happy to read these posts!

  • lkc
    lkc Posts: 186
    edited September 2020

    happy and grateful in my 16h year!

  • whitecotton
    whitecotton Posts: 3
    edited September 2020

    I was diagnosed in 2007

    stage 3 er pr - her + still kicking and doing well!!!!

  • margun
    margun Posts: 389
    edited September 2020

    Congrats to all my brave sisters for being cancer free. You are my inspiration and I am grateful you are taking time to post

  • cowgirl13
    cowgirl13 Posts: 822
    edited September 2020

    11 plus years!

  • denny123
    denny123 Posts: 1,773
    edited September 2020

    Yay for everyone!!!

  • sydneybased
    sydneybased Posts: 27
    edited October 2020

    Hi all,

    Just checking in. I'm 4 days away from reaching 10 years out. Can't quite believe it. May it last.

    Love to all xx


  • specialk
    specialk Posts: 9,303
    edited October 2020

    10 years this week - feel very fortunate to have had access to the treatment that allowed me to reach this milestone

  • margun
    margun Posts: 389
    edited October 2020

    congrats to all and thank you for posting to encourage.

    For Femara users- i am taking Letrozole for one year now. Some bone and muscle pain. Annoying sometimes worrisome when happens in liver area but manageable. Is the discomfort gets less or more with time.

    SpecialK. Is the note 2/14 on nodrs means there where 2 positive ones?

  • specialk
    specialk Posts: 9,303
    edited October 2020

    margun - I had bi-lateral SNB at the time of bi-lateral mastectomy. My cancer side SNB was declared clear in the operating room, but during the more extensive look at the sentinel in the lab later it was found to be positive. I had a separate surgery five weeks later and had an additional 12 nodes removed and there was quite a large positive node among them. My breast surgeon never found anything suspicious on physical exam, and ultrasound and MRI also failed to detect any issues even though the size threshold was definitely met. As much as I wish I didn’t need the additional surgery I am glad I had it otherwise that large positive node would have still been in there. Since it wasn’t known about before surgery nobody would have been monitoring it after chemo

  • mistyeyes
    mistyeyes Posts: 586
    edited October 2020

    So thankful that you all come in and share.

  • soccermom
    soccermom Posts: 55
    edited October 2020

    coming up on 17 years post DX! Last year had meningioma resection (brain surgery) and radiation, and recovered well from that with a few bumps after 3-4 month recovery. Now I want my reconstruction revised, because it has become more uneven over past 5 years with "good" side sagging more. I was about to do that 3 years ago when all the meningioma stuff started happening. Implants are 15 years old. I feel very out of the loop on the latest reconstruction techniques. Probably can't afford it anyhow. I'm on medicare now., with a Medicare supplement. Appearance is OK in clothes with a bra on, but I always want to look semi-"normal" without clothes too. One of those quality of life things. Hang in there everyone, keep the faith!

  • denny123
    denny123 Posts: 1,773
    edited October 2020

    soccermom--Yay for you!

    I had a DMX in 2005, but lost my left implant to a staph infection. So I had to get a lat flap on that side. That side is bigger and lower than my right saline side.

    So now I wear a sports bra with 2 hollow swim cups in the pockets and both sides look the same. I am too old to think about another surgery.

  • kimmh012
    kimmh012 Posts: 85
    edited October 2020

    margun, I have tried 3 different ones? Anastrozole, Aromasin, and now Arimidex, some people also have less side effects on name brands but all still rough for me. Maybe try the name brand Femara?

    My ONC suggested Faslodex to me yesterday, so I am just starting my research. Have you asked this question in the AI general forums, as there is more discussion on AI and side effects on them?

  • soccermom
    soccermom Posts: 55
    edited October 2020

    Thank you @Denny123- Looks like you're a long-term survivor too and one of the early Herceptin recipients. Congrats to all of us! We can do this!

  • denny123
    denny123 Posts: 1,773
    edited October 2020

    soccermom...thanks! Dec 12 will be the start of 19 years. So I will continue to hibernate since Covid19 would kill me quickly.

  • dogmomrunner
    dogmomrunner Posts: 502
    edited October 2020

    It's wonderful to see all of you here. Very inspiring to us newbies like myself, not even a year out from my last Herceptin.

  • margun
    margun Posts: 389
    edited November 2020

    to the ladies who took Letrozole. I am taking it fore a bit more than 1 year. In the beginning the bone joint paint were happening occasionally for a short period. Now they are more frequent and more aggressive. The effect is cumulative or perhaps it is due to the humid autumn? Could you share your experience with this medication? I know someone who takes it for over 3 years and has no side effects. My hope is that mine will not get worse. Th

  • margun
    margun Posts: 389
    edited December 2020

    DebbieB. Did you had anti hormone pills? If yes, for how many years? Any side effects? My understanding is you had just ac chemio with no following Taxol? I had Ac and taxol. I guess those combined with letrozole are giving foot hand stiffness and aches

  • margun
    margun Posts: 389
    edited December 2020

    i had done joint pain but was manageable. But a few days ago my thumb gets stack or snap to straighten. Something have to straighten my thumb with my other hand. It is trigger finger sign? It will go away by itself? I am scared because this affect my hand functions. I am taking letrozole for a bit more than a year and I hope this is not a sign that my joins will malfunction one after another. Any advice how make it better. There is anyone who's trigger finger got better over a short time?

  • minustwo
    minustwo Posts: 13,944
    edited December 2020

    Margun - Yes, and No and Yes, and I posted a detailed answer on the thread you started.

  • lfasano44
    lfasano44 Posts: 8
    edited December 2020

    Still here almost 13 years later from a very bad prognosis. Two reoccurrences but still here! Stay positive you are your own statistic.

  • mistyeyes
    mistyeyes Posts: 586
    edited December 2020

    lfasano44- I am glad your still here and I glad that you posted. thank-you

  • denny123
    denny123 Posts: 1,773
    edited December 2020

    ifasano..yay for you!

  • septembersong
    septembersong Posts: 153
    edited May 2021

    Just dropping by to say that today I'm 13 years out from a diagnosis of stage I HER-2 positive breast cancer. I had a lumpectomy, 12 infusions of Taxol/ Herceptin (continuing Herceptin infusions for a year), and radiation. It was a rough year, but I've been fine since! Wishing encouragement and good health to those of you in the struggle. Stay close to those who love and support you, don't bother with negative people, and don't be too hard on yourself. Wishing you all the best.

  • denny123
    denny123 Posts: 1,773
    edited May 2021

    September-YAY for you!

  • margun
    margun Posts: 389
    edited May 2021

    September. Congrats and I thank you for your post.

  • jduvallsmith
    jduvallsmith Posts: 2
    edited May 2021

    Hi ladies! (and maybe a few men) I am now 11 years out! I have not been on this forum for quite a while, though it was a life save for me as I navigated the process of dealing with breast cancer. When I was diagnosed, my boys were8 and 4 years old, and they went to the hospital with me for chemo. I had many positive experiences with volunteer groups who helped me and my boys deal with treatment. I have since separated from my husband (who "hijacked" my cancer to gain sympathy for himself) and am in a much better place now! I have a good job and am saving to buy a house, and am closer to family... God is amazing! I would love to hear stories of other people who have gone through this journey...

  • alwaysmec
    alwaysmec Posts: 107
    edited May 2021

    Thank you for the encouragement! Hope this new period in your life proves to be awesome.

  • mistyeyes
    mistyeyes Posts: 586
    edited May 2021

    love reading the wonderful posts on here

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