Just Diagnosed? Start Here
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Hi @norah7 , welcome to the BCO community. We’re really glad you found us, though we’re so sorry for what you’re going through right now. Getting a new diagnosis can be overwhelming, but please don’t blame yourself. You’re doing the best you can for yourself and your family.
You might find this page from our main site helpful as you think about how to talk with your children:
We’re here for you, and you’ll find many others who understand and are ready to listen.
Best,
The Mods
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I have had a lump in my right breast since March of this year. I did not say anything because I was mourning the death of my mother (who died at the end of February), on top of still mourning my niece (who died 6 weeks earlier).
A couple of weeks ago, I finally had a mammogram. Or I tried to. Once I told the nurse that I had a lump and have had some minor pain on the other side of the same breast, I was immediately scheduled for a mammogram and ultrasound…
But once I had them done, the doctor noticed something funny under my arm and asked for a biopsy of the right breast and another for my right under arm to check a swollen lymph node.
The biopsy was last Thursday and after this – things moved VERY QUICKLY… The results were supposed to be ready the following week – 5 to 7 days or so. But to my surprise, My PCP called with the results on Monday. His nurse confirmed that I had cancer… It blew my mind, and I cried like a baby. He asked if we could meet on Tuesday – an appointment in which he scheduled me for an appointment with a breast surgeon, oncology and a check with my cardiologist since I have congestive heart failure and an implanted defibrillator.
On Wednesday, I met with the breast surgeon, who officially diagnosed it as stage 2 invasive ductal carcinoma. He explained to me about the options and scheduled more tests and surgery for a lumpectomy.
In the next two weeks, I have blood work to have done, a follow up with my cardiologist so that he can clear me for surgery; more imaging, and then surgery on Friday, 21 November…
Things have gone quite fast and I am still trying to wrap my head around it. I have a lot of support, but it is a bit stifling as I am trying to focus on my classes since we are close to finishing this semester. This is my new normal…
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Hi @magg1e972 , welcome to the community. We’re so sorry for the heartbreaking losses you’ve been through and for now facing a new diagnosis on top of all of that.
We’re really glad you found your way here. We’ll be here to support you as you navigate the upcoming tests, surgery prep and everything else you’re juggling. When you’re ready, please post an update and let us know if there's something we can do to help. We're here for you!
The Mods
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Hi everyone,
I was just diagnosed with Invasive Ductal Carcinoma. As you can imagine, i feel like i was gut punched and it doesn't seem real. I have my first appointment with my breast surgeon on Tuesday January 20th. I just received the pathology report and I am even more freaked out. My ER and PR Biomarkers came back negative and the HER2 came back weak to moderate. From what i have read this is not good, and is the type of cancer that is hard to treat and can spread fast. Has anyone had similar experiences?
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Hi @jas1971 , welcome to the BCO community. We’re so sorry you’re facing this diagnosis, but we’re really glad you found us.
It’s completely normal to feel shaken and frightened right now, especially while waiting for your first appointment and trying to make sense of pathology results on your own. This article might help: Understanding Your Pathology Report. And as you prepare for your visit with the breast surgeon, you might find this article helpful too: Questions to Ask Your Surgeon
When you’re ready, please keep us posted on how your appointment goes and let us know how we can support you.
Warmly,
The Mods
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Looks like my 3rd go-round with breast cancer. I'm 75. My first time was 25 years ago. The second 13 years ago. And here I am again. Chemo is a no-go. My last oncologist said that my body couldn't tolerate more chemo. I agree. Some would say, "But you don't know yet! You're waiting for your biopsy results!" Believe me, I know. The radiologist never once said to me, "It might be benign." She and I both knew it wasn't. So they'll chop another chunk off of me. I wish I'd had a double mastectomy 25 years ago with the first occurence, but I just did what was recommended at the time. I'd have a double mastectomy now if I thought my body could take such extensive surgery, but I doubt it could. I went pretty quickly through the stages of grief, jumping right over denial, but with a lot of anger (Can this really be happening to me again????), some depression, didn't bother with bargaining (with whom about what?) and went straight to acceptance. In one week. Now I just want to get to the best surgeon I can as soon as possible, but I will have to jump through whatever administrative hoops are required. Today I feel like my body and brain are shutting down. Anybody else out there over 70 dealing with cancer treatments? I'm pretty darn sure it will be estrogen positive HER2-. I'm unable to take hormone suppressing drugs because of devastating side effects. I guess it now comes down to quality of life versus quantity. I think I'm going back into the anger phase of grief. I'm also feeling brain dead.
I really would like to hear from older women dealing with breast cancer.
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Hi @bluesinthenight , welcome to Breastcancer.org. We’re really sorry you’re facing this again, especially after everything you’ve already been through.
There are many members here who understand the challenges of later-life breast cancer, so you are not alone. You may find it helpful to connect in our forum called:
Please know you’re very welcome to keep sharing here too, whether you need to vent, ask questions, or just be heard. We’re glad you found us, and we’re here to support you.
The Mods
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I was diagnosed with the BRCA2 gene in February and have already had the “risk reducing” surgery to remove my ovaries and fallopian tubes. In preparing for the risk reducing mastectomy, stage 2 Invasive Lobular carcinoma was discovered in my right breast. We’re waiting for the results of the MammaPrint test to judge my risk of recurrence elsewhere before meeting with oncology to determine a treatment plan. I am completely overwhelmed!
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HI @danad2026 and welcome to our Community!
We're so very sorry for the reasons that bring you here, but we're so glad you've found us. You're sure to find our community a wonderful source of advice, information, encouragement, and support — we're all here for you!
As you gather more information about your diagnosis and get a plan in place, we suggest you create a new post in this Just Diagnosed forum so your experience doesn't get too lost. We also have an Invasive Lobular Carcinoma forum where you can talk with others with a similar diagnosis.
Some more information that you might find helpful:
We hope this helps get you started. Please don't hesitate to reach out with any questions or other ways we can help.
—The Mods
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I went in for a routine mammogram last month, and within a week my life was flipped upside down. I'm still in the initial stages of treatment and just trying to keep my head above water. Diagnosed IDC, ER+/PR+, HER2-. It sounds like they caught it early, but I just went in for my genetics testing appointment today, and it sounds like chemotherapy is hinging on how that testing comes back. I don't "feel" bad, just exhausted for a few months and thought it was because I was pushing myself too hard at work. I'm finding it difficult dealing with day to day life without knowing what the future holds. I was really looking forward to gardening and working outside this summer, but now everything is on hold. I've always been the one to take care of everyone else, and it's difficult navigating being the one who needs taken care of. A few of the family members I've told either act like its no big deal, or ignore me altogether because they aren't sure what to say. I feel like a stranger in my own life. I'm happy I came across this site, however. Thank you to whoever keeps this organization going.
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Welcome to our group, @canijustbemary! We're so sorry for the reasons that've led you here. This period of waiting on how your treatment plan will be determined is one of the most overwhelming aspects of a new breast cancer diagnosis, because of the uncertainty of what to expect and worries about how your body may react to treatment. Take each day at a time, and know that you're not alone in this!
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Hi, I am age 60 and recently diagnosed with both invasive ductal and lobular breast cancer. I do not have a family history of breast cancer. I am shocked by this diagnosis. Next week, I am scheduled for a bilateral breast MRI and also have a surgical consult. I live in a rural area by myself. All of my family lives in another state. My youngest son, who is autistic and age 19, has been arrested for a crime he was not aware he committed. He is in jail awaiting a psychological evaluation. If he is charged, he is looking at many years in prison. He does not have the mentality to understand what is going on. I am completely overwhelmed and hoping to continue to work to avoid losing my home and car. I really do not know what to expect.
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Welcome @saxy60,
We're so very sorry to hear of your diagnosis and all the other things you're going through right now - we hope you find some relief soon and your son's situation gets ironed out for the better.
You're sure to find great support here — we're all here for you as you navigate your care. We'd suggest you join the June Surgery Support thread where you can talk with others about your upcoming surgery and recovery. In addition, here are some resources to help you prepare:
And, join our Virtual Support Groups to get additional support. We're all here for you!
—The Mods
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