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My Husband, My Life, My Love, My Family, My Cancer

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  • intolight
    intolight Posts: 3,051

    @shanagirl How frightening for you to go through this. You have been on my mind lately and now I know why. I had no idea the algae in the air could affect a person like that. I will continue to hold you up in prayer.

    My onc thought I had the beginnings of a UTI so my DD took me to the lab this morning. My peripheral neuropathy would only let me give them a very small sample even though I have been drinking water like crazy starting last night, but apparently it was enough. And nope, no UTI, at least according to the results. I will see what my PA messages me about it. My DH is at the skin doc having a MOHS done on a cancer spot on his nose. He has been there three hours already and I am a little concerned. I agree with @candy-678 that all this medicine stuff is weighing me down. My left eye has been getting gradually more blurry so I have got to figure that out now. SIGH I get to see my son and his family next week and fortunately it is my chemo off week so I should feel decent.

  • threetree
    threetree Posts: 2,637

    @intolight - So nice to see and hear from you! Shana's been on your mind, and you have been on mine. I just wanted to make a quick comment about the concern you having re the amount of time your husband has spent at his appointment.

    I had Mohs surgery on my nose, granted it was 20 years ago, but it was a longer appointment than many. It was because they need time for the initial procedure of course, but then in my case I had to sit in a waiting room and wait quite a while , as they sent samples to a lab (in another location), and waited for it to be examined under a microscope, so they would know if they got everything or if they'd have to take more. If they have to take more, you have to go back to the procedure room, and take more time getting the additional area removed.

    This was all 20 years ago, but maybe will provide some insight, even in today's world.

    I hope this helps in some way, and that all goes well for both of you with this.

  • threetree
    threetree Posts: 2,637

    @intolight - Hi again; I meant to ask how is chemo is going?

  • mara51506
    mara51506 Posts: 7,463

    @irishlove hoping today finds you in less pain. I confess I myself have stopped using escalators as I no longer can tell when to get on and off. Either needs to be an elevator or slow steps down or up the stairs.

    Short post of the day since I got distracted from hitting the post comment this morning. Laundry done and in dryer, need floors tomorrow, had to order kitten wet food for tigger and more cat litter. Damn that stuff is expensive, oh well. Need to phone Paratransit, regular Herceptin on Wednesday as well. Next week will also contact SIL, see if she comes to the court house with me. We will see.

    Food was good and bad. Burned a hashbrown, not black but dark brown, tried saving by chopping with the beans and cheese, it did become edible but not what I would have wanted. If using breville oven, need to keep closer eye. This evening, just had my leftover cheeseburger. I did enjoy it, added a mac sauce to it.Not getting fast food delivery, finding that cheaper to get a few groceries that last longer and are cheaper even with a 7.97 charge for under 35 dollars. Got bunch of new hash browns, burrito and another pasta meal. Discovering that I can use just part of a p ackage of kraft dinner or knorr together with rice and the red lentils and has a really nice combo of flavours. Oh well, no eating now.

    I hope everyone had a good day, in pockets for everyone even if have not posted as well.

  • threetree
    threetree Posts: 2,637

    @shanagirl - Thanks so much for the update. I continue to keep you in my thoughts and continue to have my fingers crossed 🤞for your speedier and complete recovery. I can so understand your wishing you could recover and bounce back as quickly as you have from things in the past. It's so hard getting to these ages we are and having to accept things like slower recovery and not being our old selves. I really sympathize, and you are so lucky to have your husband and all that help. I'm so glad you have such a present and caring family. As before, please know that I am thinking of you and wishing you all the best. Sending a big hug too!

  • mara51506
    mara51506 Posts: 7,463

    Well, had a nightmare last night. It was generated because I did not turn on the rain stuff I usually listen too. Involved me being pursued by someone who thought I caused sister to OD and then wanted me to do it too. I kept trying to show a video of who did it and then was interrupted all the time. I am thinking the video repeatedly playing and then thoughts of not being listened to put that in my head. I went to bathroom put the music on and resolved the dream, showed pursuer I was innocent and promptly went to sleep, need to be careful to swap to nighttime rain hypnosis.

    Nothing on agenda today, receiving some cat litter and and got Tigger some kitten wet food. Dry food as of late has bothered his tummy but he can handle the wet food. Supposed to be coming 2pm to 6pm today. Tigger is a slim cat but would like him to fill out a bit, giving very small portions of the dry food too. It does not always agree so small amounts are best. I do not leave food out all day. Prefer a bit at a time. Got Herceptin Wednesday so already booked Paratransit I already figured out Paratransit during court, I have to be there by 10am, SIL is there meeting me at 945. I figure will give 4 hours to be at court and will simply ask for an earlier ride home.

    I am thinking of making an egg, just in the mini griddle and an english muffin with ham and cheese toasted in breville on english. I could do my version of an egg mcmuffinMay also make a dish of dry lentils, mixed with canned lentils and rice OR mix the dry lentils in with some of the packaged noodles I choose to use. Not saving them because I cannot buy them but because when I have them, feeling no need to eat whole thing, just put in an airtight container. I will post later as the day goes on what I have and if good or bad.

    EDIT, no eggs this morning, but did take english muffin, add butter, garlic spread and bit of mac sauce and put shred cheese on top. Toasted in breville, it was really good and filling. Not sure about supper but I may do an egg with few lentils, canned variety and a couple of hashbrowns, not burned variety.

    Hope everyone has a good day and in pockets for all on or off the board.

    .

  • aj
    aj Posts: 438

    @shanagirl , what a scary experience! I’m glad you’re home and recovering. I think your DH is happy to do the chores. I’m sure he just wants you to get better.

  • cookie54
    cookie54 Posts: 1,365

    @shanagirl Your DH sounds like a loving dedicated husband as I'm sure you are as his wife! Nevertheless as wives we are typically the nurturer and I can only imagine how it makes you feel not being able to do things as you used too. I know if the situation was reversed you would be doing the same for him.It's definitely not easy and I'm holding out hope that you recover from this and can get back in your garden again. Big hugs your way❤️

    @irishlove Oh no what a horrible experience, I'm so sorry to hear this! I would have thought it was safe also. I hope your able to get your pain under control this week. Healing vibes and wishes for a better week ahead.

    @intolight Sheesh ..I'm so glad you weren't injured on your fall! This is not the best week on here with everyone having mishaps..smart thinking to call out to Alexa. Glad your son and family are visiting but I understand the sad thoughts that come along with it. There are so many times that those type of "what if" "will this be my last" thoughts run through my head sometimes too. I had them all this past year leading up to my DD wedding and I know the majority of us here do too. You're not alone we always understand and I hope you enjoy the visit the best way you know how.

    @mara51506 Ugh what a scary dream…I can't wait until your courthouse trip is over with so you can relax a bit! Hoping your sil is able to go with you as I know that will feel some relief having her there..fingers crossed.

    Hi to all here, your always in my thoughts and daily prayers. Wishing everyone a better week ahead!🌞

  • threetree
    threetree Posts: 2,637

    @micmel - Hi Mel, just saying hello and that you are in my thoughts. I hope that you and yours are doing well and able to enjoy some of the warmer seasonal weather. Hugs 🤗 to you.

  • seeq
    seeq Posts: 1,283

    I was traveling earlier last month and was sick for most of the rest of it, so I'm struggling to catch up. I wanted you all to see this article the mods posted, if you haven't already. It relreally resonated with me, and I think most of us will relate to at least part of it.

    Hugs and prayers for those that are struggling.

    https://community.breastcancer.org/en/discussion/888249/the-long-middle-does-the-idea-of-the-long-middle-reflect-your-experience
  • cookie54
    cookie54 Posts: 1,365

    @seeq Sorry you've been having a rough time also. I hope you keep moving forward and feel better each day. Thanks for linking article, don't think I read this, will definitely take a look.

    @shanagirl In your pocket for appt , hope you get encouraging info🤞

    @micmel Geez life is just filled with peaks and valleys', so sorry to hear of your gf's loss as well as yours. Glad Gabby has her implants now and hope she continues to work her way back to some "normalcy". We all understand what PTSD and challenges go along with this crappy disease. Sending strength and good vibes .

    In all pockets for healing and strength💕

  • keywestfan
    keywestfan Posts: 376
  • mara51506
    mara51506 Posts: 7,463
    edited June 2

    @shanagirl In your pockets for upcoming appointments for sure.

    Mel, I am sorry to hear about your friends brother, sympathies to you, his family and friends. Glad Gabby is well.

    Irishlove, share your cancer and MS here, we can be listeners as well if you feel you want to take a step back. I myself tend to keep my issues to myself as well.

    Laundry, floors, break down couple boxes full of Cat food and litter. Tigger is a hungry boy but upping calories as he is a skinny boy. Feeding Ava her age appropriate food. Lot more wet food and less of the dry. I also have to watch her because he eats the dry faster than her but she hoovers the wet stuff faster than him. I do break up the pate for him and it is better but need to keep her out of his stuff.

    Got more Paratransit money on my card. T'his week only need 2 trips on Wednesday for Herceptin but who knows how many needed next week. Figure if I need to be there multi times, will prebook rides. If turns out only need one trip to court, can just cancel extras that were booked since need booking 3 days before need trip.

    Unsure what to have, am thinking lentils and one meat pie, bigger, egg done in mini griddle, toast up couple hashbrowns and possibly some lentils done in middle. We will see, do not need much shopping this week. I treat it like Mcdonalds, I am OK spending same amount getting a few things. EDIT Already ordered items, 2 of the french onion dip and two burritos. Figure I can stretch those easily. A meal at Mcdonalds is same price, does not last long.

    EDIT 2 Overpaid one of my cards, not on purpose but left enough to order a meal from Mcdonalds. Got mcdouble, got extra mac sauce, free ketchup and peanut butter as condiments as well. Use the mac sauce in other stuff too.

    I hope all have good day and in pockets for all.

  • mara51506
    mara51506 Posts: 7,463
    edited June 3

    Well, I am up surprisingly early BUT did go to bed before 10, was tired and know I would have fallen asleep on couch. Set alarm for 9 am but woke at 6 am. Got the cats noshing on wet food and I am cuddled in a blanket as it was cold this morning. Not yet overly humid but are getting there. Herceptin today, pick up at 1 pm and requested pickup at 4pm to go home.

    I want to crisp up some lentils to go with my burritos, unsure if want one or two as I could eat two meals before having to leave. Got plenty of meat pies too and could eat up on beans as well. I will have to decide what I want and will post about what I have.

    EDIT First meal was perhaps 1/2 cup canned lentils, put them on plate and in microwave for 4 mins, just wanted a full cook. Once out of the microwave, added couple slices of ham, tore those up and added croutons. Put a bit of the caesar dressing, did add water so it could come out and ranch, seasoned also with bit of salt and the sour cream and onion stuff, mixed up and ate. I ate a similar meal yesterday but today did not put the ham in the microwave, think it tasted better to me.

    I do hope everyone has a great day, in pockets for all as well.

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