My Husband, My Life, My Love, My Family, My Cancer
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Had a fairly light sleep, unsure why but had to get some sleep while vids played on my phone in background. I watch the facebook reels or just doom scroll posts. I make a point to tell facebook I am not interested in the political posts as they are draining. If something happens, I will find out myself.
I am doing laundry, wow what a shocker! Floors need doing and that is about it, need to take my blower, blow out some of fur that gathers in the radiator.
I will be putting stuff in the rice cooker I got yesterday, does not hold much, just a tiny guy but that is good. Will try out and post meals if they are significantly good.
Meal 1 is including rice and lentils in 2 cups of water. I put a bunch of the cheese seasoning, taco seasoning and sour cream and onion, plan is to cook and stir up to combine every few minutes, not sure how long I set to cook it but I will be keeping an eye on it as I am not too sure on settings to use. Fluffy stuff would good to come out of it. My plan is to put the excess in fridge because no way I can eat all that but can use for future meals.
PROS of the rice cooker, definitely makes rice fluffier, I only use white rice in there. Allowed for a filling meal and rest is in fridge for later. Fluffy rice is great. Easy to clean inner basket. It definitely works as it should. Might be good to use cooker to do just a cup of rice, keep the containers in the fridge for a day or two.
CON Main con for me is the length of time it takes to get fluffy rice. If I needed stuff quickly, would need to make ahead of a meal. Easy enough to do and need to make less of the rice. I am sticking with the water needed and less rice. Setting the cooker time etc is not easy to figure out but I will use enough to become accustomed to it. Planning to use for rice only for now, perhaps use it to make larger amounts of rice, save lentils and that for other meals and use rice as the side dish.
I hope everyone has a good day, in pockets for appointments, illness, pain or anything else for everyone.
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@mara51506 I’m glad youg getting some sleep even it is light sleep.I wante d to tell you that i love love love your idea of putting mayonnaise on egg. I’v e always doe that since being a teen. I always fry an egg in a dab of saved bacon grease and when th edges of he eg get crispy I put it on a plate spread Helman’s Mayonnaise on it and wil eat it plain like that. Or sometimes I eat it on toast or English muffin, it makes a nice small filling meal or snack for me instead of a big dinner.😉😋.
Good morning everyone, @norah2024 @cookie54 @tanya_djamila thinking of you @micmel, and @candy-678 I’ve been thinking of you because My Oncologist put me back on Verzenio yesterday.. AM & PM. So far so good. My body must be happily accepting it because my cells know it kicks cancer’s ass for me. So no Gi issues or SE’s.. I’m so glad to be back on it because i feel like I am back on my plan. I think I’ll go downstairs and feed the dogs a late breakfast,and make myself 2 fried eggs with Mayo on top. Have a great day everyone.. gonna try and check in tonight. Love you All and those not mentioned. 🌷🩵
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@shanagirl - So good to hear that you are feeling ok with the Verzenio back in your system. You sound so much better and more hopeful today! I'm really happy for you.
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@shanagirl I hope you enjoyed your eggs with mayo on top, yes mayo really does fill out an egg. I suck at frying eggs myself so putting the mayo and egg in a bowl and add cheese seasoning, either popcorn or Kraft Dinner seasoning makes the egg come out of mini griddle delicious.
Today will be eating up the rest of the rice and lentils made yesterday in the rice cooker. Apparently there are other things I can make up as well by putting stuff on top of rice like I used to when microwaving frozen pasta meals and doing up in microwave. Many possibilities I can do. With the Elpaso mexican rice, probably stick with the quick rice setting. If have more stuff in there, have it run longer. Post later on meals.
MEAL 1 Took a Great Value frozen lasagna, enough for one person, added bunch of lentils right on top, heated in microwave for 5 minutes. Once done scooped onto plate, took some cheese popcorn seasoning, little dash of salt and mayo, not too much. It was pleasant.
Laundry and floors to be done, may do blankets, at least the throw size ones and may wash my sock mops that I have attached to swiffer dusters, I use an elastic to fashion a better duster, they do a good job and I can toss in washer and spinner to clean them out. I will see. Using excess microfiber cloths as well as dish cloths when wiping down dishes. I do wish I had a dish washer but too expensive and definitely no room and no desire to spend the cost of a countertop model. Soaking for a big in hot water works well.
Not too much else to say, do have a phone appointment with MO instead of going to the cancer centre, I don't mind either one, nice I do not have to worry about Paratransit, waits or getting snacks together. Phone appointments mean jammies and other stuff.
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@mara51506 I love how you move thru your day getting things done😊💕
@threetree yes I do feel better that I’m back on my Verzenio, so far I’ve been fine on it. I’m still a little nervous it will trigger more coughing, so I’ll just wait and see. Have. A nice day everyone🌷🩵
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I’m so happy that you’ve gone back to treatment again. The periods when we have to stop treatment because of side effects or infections feel like a nightmare—we just keep waiting for them to be over.
I hope you enjoy your breakfast, which looks delicious. And I can assure you that taking care of animals brings us so much peace and comfort. 🧡🧡
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By the way, your detailed account of your experience with the virus and your hospitalization was very helpful to me. It contained a lot of useful information.Thank God you have recovered know.
As for me and my health situation, I had my CA 15-3 test, and it was higher than the previous month. To be honest, I was very optimistic a few months ago after seeing such a significant drop in this marker over several months. It had fallen from 300 to 68 over seven months.
However, two months ago it started rising again, which has left me confused and worried that my current treatment may have stopped working.
I’ll be seeing my oncologist within the next couple of days to see what they decide.
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Well, slept OK, some on the couch after watching a movie. If you want a funny movie which is surprisingly emotional look no further than The Sheep Detectives, it is fun and has a lot of humour. Hugh Jackman is at the core of the mystery they need to solve and he reads them mysteries and has given them all names. It really is a treat, on prime video streaming.
I have phone appointment with MO, must remember to ask for antu seizure prescription, nothing new, been taking since 2004.
Did a grocery shop, got a boatload of burritos, I just love them. I think they would go well with lentils and whatever rice I want. Do rice in the rice cooker, lentils as normal in the microwave. Did not buy any junk either, no chips or chocolate.
Meal Breakdowns will happen post meals as usual.
Laundry and regular mop will happen after the phone appointment and beyond that, nothing on tap.
EDIT 1 I did have phone appointment, just saying heart still healthy after all this Herceptin for the past 11 years and she filled a prescription for me. Nothing of note let her know the stomach issue I had previously a while ago is gone
I do hope all have a great day, in pockets supporting all.
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Thank you for this valuable information. I may have had this as well in October 2025. It was the first pneumonia I had ever had, it was so severe that I was hospitalized for five days and then continued the treatment at home for another five days.
I noticed from your signature that you were on this treatment:
6/20/2016–9/2020: Ibrance (palbociclib) + hormonal therapy — Femara (letrozole)
And then this one as well:
4/2022–3/2025: Verzenio (abemaciclib) + hormonal therapy — Faslodex (fulvestrant)
As far as I know, both drugs are CDK4/6 inhibitors. Is it possible for a doctor to use two drugs from the same class sequentially?
When I asked my doctor, after Kisqali stopped working, whether I could try Ibrance or Verzenio, he said that this wasn’t possible. According to him, the only situation in which a drug from the same class could be used again would be as part of a clinical trial.
Were you on a clinical trial?
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I slept decently enough, cannot complain about that, dreams came and went just the way I like them.
Will be doing laundry as usual, floors too. My method of keeping my cat's stomach feeling good has been working, meaning an hour between water and food. Tigger eats up his food then overfills with water leading to you know what so this method of time between water and food has so far eliminated all that and I am glad. Set timers so I do not forget.
As far as food, got a ridiculous amount of my favourite foods. I did get 14 burritos, only about 1.60 on average each. I am still using the rice cooker but it does take a LONG time. It does make for fluffy rice, I never minded rice from the pot but it was not quite so fluffy. So if need it quickly, will use the regular pot. I figure I can treat the rice cooker as a mini crock pot, put food in there to heat up gradually and no real danger of burning stuff. This morning, looking at leftovers from one of the boxes of mexican rice, perhaps add few more lentils to it with cheese, not sure yet. Later meals will be variants of the rice meal but include eggs, meat pies etc. If they are good will post later. Could also make up some quinoa and presoaked chia seeds cause they would not burn in rice cooker. Will suss it out.
MEAL 1 Got an egg mcmuffin meal, med tea and 2 hashbrowns. Should be good. Then I will look at other meals and chores. Quinoa is still sticking out in my mind to make in the rice cooker since nothing sticks in it.
EDIT 2 Decided to go through instacart walmart, minimum to shop with 0 dollar delivery is 10.00 so can get bits and bobs that way from many stores. I did do Walmart in the instacart, got more containers with lids, more frozen pasta, this time chicken penne with alfredo, 3 of those, got one frozen pasta beef and macaroni and finally cheezits cheddar and sourcream and onionflavour. I am still going to keep walmart + because a 50 dollar order can be paid by Klarna, 4 payments 1 for every 2 weeks and no interest. It will be a long time before I need a large order like that so might as well get the minimum needed.
MEAL 2 I had leftovers from mexican rice meal from yesterday so reheated it. It is still delicious.
I do hope all have a really good day, in pockets for important appointments in my own pocket to get chores done that I want to do.
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@norah2024 I have never been part of a clinical trial. Perhaps because it was so long ago the standard was to switch to a different CDK4 inhibitor at least that is what I thought at the time. But I also did not have any surgery or radiation because I was Stage IV de novo. Was that the difference? I don't know. I also never had IV chemo before now. My knowledge is limited. What I do know is what my onc tells me that in the ten years I have been doing this I have gone through all the oral meds that will work for me—so far. I have read where some studies have shown some effectiveness going back to a CDK4 inhibitor after moving onto something else for awhile or combining it with chemo. I have made the decision that I don't want to hit it hard anymore. There are a lot of people trying to keep me alive, and I appreciate all their efforts, but I am tired of being sick for so long, and I am 73 with grown children. I am not giving up, but QOL is becoming more important to me. I see the fatigue in my family and it hurts as I have always been the one to take care of them. You have to make this decision for yourself.
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I really appreciate your thoughtful response to my question, and I’m also saddened to hear that you’re feeling tired of this journey. I agree with you that it is a very difficult journey and requires a great deal of patience, but at some point in our lives, we can even become tired of being patient.
I am 65 years old, and I have been living with this disease for six years. I have spent the last two years in Stage IV, and I also feel that I have caused a lot of pain, sadness, and worry to the people closest to me.I can say that my greatest pain comes from knowing that I have caused pain to others, more than from the pain of the disease itself.
Please forgive me for asking about using a CDK4/6 inhibitor twice during your treatment. The reason I asked is that I’m afraid of having to move to IV chemotherapy again, because I suffered a lot with it during my initial treatment when the disease first appeared.
That’s why I’m looking for any evidence that going back to another CDK4/6 inhibitor might be possible, so that I can discuss it with my oncologist.
I’m sorry again, and I truly hope your treatment remains effective for many years to come.🧡🧡
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Norah- I am on my 2nd CDK 4/6 drug. I started on Ibrance. Was on it for 4 years before progression. Then, I went to a PARP, then IV chemo, and now back to another CDK 46 drug Verzenio. I will get my next PET on Sept 4 to see if the Verzenio is working. So, yes, you can use other CDK 4/6 drugs after using one of them.
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Thank you so much for this valuable information. You can’t imagine how much I needed to hear this, because I really don’t want my next line of treatment to be intravenous chemotherapy.
I’ve been searching everywhere for information showing that this might be possible. At least now I have some hope that chemotherapy isn’t the only path forward.
And I sincerely hope, from the bottom of my heart, that Verzenio works wonderfully for you, with zero side effects, for many years to come.🧡🧡
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Re using a CDK a second time around, I had read a year or two ago about someone on here who was doing that, but sadly, can't remember who. They had had a good run on a CDK and then went to something else for a while, and then went back on a CDK and at the time of their post had been fine for a few months when they posted. (I wish I could remember more of the details from that post, e.g. what other drug they had, time frames, etc.)
I mentioned this to my onc and asked him if it was possible to circle back to the CDK's when other things ran out and he said no. Then I told him aboout the person I read about here and he said that he thought that if it did happen, it would be a "fleeting" sort of thing and probably not work very well for very long. I think that @intolight 's experience here defies that notion, and I for one, am becoming more interested in that possibility.
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@threetree @candy-678 @norah2024 and anyone else I have missed, I know that everyone's experiences with these drugs are different. In my case, I did my CDK's all in a row instead of back and forth, and it started ten years ago when this stuff was newly released after clinical trials so I don't know if it makes a difference. In other words, the data was pretty new. I started off at Stage IV and went immediately to oral CDKs with no surgeries or radiation. I am on IV chemo now, for the first time in this 10 year journey, and I am debating stopping it after this past rough couple of days. I am on a reduced dose with only two weeks on with one week off, so a milder attack at my request. My onc and I discuss QOL every time. Every time I hit this second week on with my SEs I think about stopping, but then a couple of days later when I am feeling pretty good I change my mind. It is a roller coaster of emotions. So far I am stable with slight improvement, but the SEs are showing up mainly in my eyes and stomach. What is beginning to wear on me also is the fact I am mostly homebound and limited to when and where I can go. When the highlight of my week is a dr appointment with a lunch date afterwards, it is time to reconsider.
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@intolight I can empathize with needing QOL for sure. I will be 55 this year and things really have changed in my day to day life. Since I am 90 percent on my own, my choice, I decide what I see for myself, if I did have to change treatment, I probably would not take it as nobody is helping or able to help, long story and not mine to tell.
As usual, not much on agenda, washing throw blankets I think, other washer can take care of the regular cloths, I did find couple of delicates so used the small salad spinner to wash those up, dry mostly in spin dryer and hung over the shower rod. I have to use a step to reach up there since my toilet leak required layers of floor to be removed as part of the fix.
Laundry, floors and deciding what I want to eat. I have thoroughly filled up my fridge
MEAL 1 Decided to go all out and use rice cooker as a crockpot, just smaller. I put in 1/3 cup quinoa, added 2/3 cup water since instruction say 2 to 1 ratio of water to quinoa and 2 tbsp of chia seeds pre soaked, no water for them and finally 1/3 cup rice and another 1/3 of water. Added some queso crema, has bit of jalepeno and some sour cream and lime crema, just squirted them in. Will post if good. It will take long time but I don't really care.
RE MEAL 1 Learned that it is not great to add so much stuff to a dish. Not only does it take too long to heat up and that is not the fault of the device, it is working as it should but I found just too much food. It did taste alright but just too much to eat, chia seeds could have been the issue. Disposed of the rest after the first meal. In future, stick to 1/4 cup or less of just white rice and just put on the quick rice setting. I must also unplug it when need it powered down. I will use it, still non stick which is good. Could probably treat the mexican rice the same way, I will see.
I hope all have a good day and in pockets for all.
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Slept pretty good between restroom trips, it was an eventful evening for sure. Nearby my house, lightning struck one of the hydro poles knocking out power for quite a few people, not me fortunately but some of the videos of the flaming pole were quite a site to see.
Laundry, cat area, floors are among those things needing a good clean, all will be done. I happily report that Tigger is doing well with the sensitive stomach cat food and my giving water about an hour or 45 minutes after eating to avoid over filling. Ava is getting the kitten food now, she has no problem with that, when finished, will just buy the same food for her.
When it comes to the rice cooker, decided to add less ingredients at once, been adding ingredients and extra water for each which was unnecessary. Thinking it would be better to do a third of a cup of rice or other stuff and one third water, that is how I prepared in the pot. Today, I am eating some fettucine alfredo, 1/3 cup water and 1/3 cup of the pasta, set it on the half hour quick cook. Should be a good setting for that, get around 1/3 cup lentils and a mini pot pie separately, put in microwave maybe 3 min and add garlic to the microwave portion. I will see what I want to eat. Posting later. I will say that when I do like a meal, have thought of leftovers being put in the rice cooker for 30 mins or defrosting something from freezer.
I do hope all have a good day, I did the necessary booking of Paratransit for Herceptin Wednesday will be doing another booking on Tuesday, got usual CT scan for neck down on Friday. I am in pockets for all.
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Looks like everyone is busy, hope it is for more good reasons than appointments.
I slept decent, my new amt of sleep seems to be 6 hours and I am used to that.
Laundry, floors and awaiting delivery if comes today, they are using other delivery service and notorious about not being successfully delivered. Oh well, either come tomorrow or not at all.
Used rice cooker make some Knorr brand fettucine and used the rice cooker, turned out well. I may revisit the quinoa and chia seeds as a side but use less of each and less water as well, put on quick cook, I will see. Post meals if they turn out good.
I hope all have good day, in pockets for all.
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@intolight Sendng big hugs your way as you navigate through trying times❌⭕️
@mara51506 Sounds like you’re are busy bee as usual. In your pocket for all appointments this week. Hope you’re weather is cooler this week like ours in NJ!
Was a nice weekend had some family enjoy boating with us , was fun! Thinking of all here , continued prayers for all.❤️🤲
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BACK FROM THE HOSPITAL YESTEDAY AUG 24, I WAS ADMITTED LAST WEEK ON WEDNESDAY MORNING FOR A PNUEMONIA RELAPSE AND COMPLICATIONS FROM THAT IN MY BLOOD. I WAS SEEN AND TESTED BY ONCOLOGIST, NEPHROLOGIST INFECTIOUS DISEASE DR, PULMONOLOGIST HEMOTOLOGIST, AND SPEN THE WEEK HOOKED UP TO TO OXYGEN, TUBES, IVS AND IT WAS FRUSTRATING BECAUSE I WATNTED TO USE MY IPAD . SOOOO NOT FUN. THE LADY NEXT TO ME IN MY ROOM WAS VERY SICK AND COULDN’T WALK LIKE I CAN AND WAS CONSTANTLY HAVING THING GOING ON BHIND THE CURTAIN O MY ROOM WAS LIKE GRAND CENTRAL STATION. I’M SO GLAD TO BE BACK IN MY ON BED. I HAVEN’T READ ALONG YET BUT WILL CATCH UP WITH YOU ALL LATER.🌷🩵
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@shanagirl - Oh, Shana - you just cannot get a break - NOT FAIR! I'm just so glad though to hear that you were discharged and are back home. I am thinking of you big time and will continue to do so as you heal and get back to a more normal life again. Sending lots of good wishes, good luck, and many hugs! 💐
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@shanagirl So sorry to hear about your hospital stay. So glad you are home. I'm exhausted just hearing about your stay.
@tanya_djamila How are things going? I hope your husband's treatment is easy on him.
We have a beautiful day in Chicago. I'm going to run some errands. I've had a cold/sinus infection(?) for the past 10 days. I think my body is not fighting things off as well as it used to. My vision has deteriorated over the past several months so I saw a specialist yesterday and it's time for cataract surgery on at least one eye. I'll be glad to have better vision. I've had to have my prescription changed every three months recently so it is time. Wishing for a good day for all.
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@shanagirl I am so sorry to read about this set back and how sick you were again, but I am thankful you are now home. I was wondering where you were! Hospital stays are not restful at their best and a sick neighbor is the worse. We all probably have these stories…
I can't seem to get over these gut issues and wonder whether my onc (well, I see a new NP tomorrow) would agree to let me have another week off of the chemo to sort of reset everything. Or does anyone here have suggestions for the constant constipation that comes with Taxol? I have increased water, salt, and fiber although I know my nutrition is not great because my DH nor DD cooks so it is easy meals I can teach from the recliner. I also eat yogurt everyday. I welcome any suggestions.
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@shanagirl I am sorry about the hospital stay. I know that I would have been frustrated if could not watch videos on my phone. Thankful charger was right in the bed next to me. I am also sorry you did not get a chance to walk around, definitely glad you are home, more comfortable.
@cookie54 The weather is more reasonable, we are no longer hot and humid, warm and muggy some days but fall is soon going to be upon us. I do not mind. I do make an effort to stay busy since it is mostly at home, I do like the flatmop, I must use too much of it when I do a mop because it does not stay full for long. I make my own but need to use leftover WetJet cleaner. Will heat the lids and add some bit at a time. I do personally like mostly water and little squirt of dish detergent. Sometimes take a lovely smelling cleaner to fill as well.
Nothing on agenda today. Usual laundry floors, will be moving litter so I can vacuum and mop that area throughly, might take a few seconds who knows.
Meals may be done in the rice cooker. Not sure what I wish to have. I have a couple of frozen pastas to use up in fridge as no room in freezer. I went a bit crazy on the instacart for my no frills. I have also come to realize when it comes to making stuff or buying stuff on skip the dishes, I can easily make a small order on instacart since there is a 10.00 minimum instead of the 35 at Walmart. Those purchases would be comparable to skip the dishes. Oh well.
MEAL 1 Put a 1/3 cup of Knorr Fettucine Alfredo noodles, they require nothing extra and 1/3 cup of lentils. Seasoning won't be much more than salt and some mayo for creamy texture. Supper will be pasta with an egg cooked on top in microwave and garlic too, should be pretty good. It is on the quick rice setting. Post later how it turns out.
MEAL 1 review. I did do 1/3 cup knorr pasta, 1/3 water and 1 lentils on top. Quick rice 30 min cycle. When finished cycle, put stuff on plate, little bit of mayo to make creamy and just salt. It tasted really good.
MEAL 2 Proposed to myself, thinking I can take fetuccine chicken penne, whisk an egg with mayo and add either cheese seasoning or sour cream seasoning, thinking I will stick with cheese seasoning. Add some lentils to the egg and pour the egg into the penne, I usually heat stuff like that for 6 mins in the microwave. Will post review soon.
UPDATE I did whisk one egg with cheese seasoning and a bit of mayo, poured mixture on top of the penne, microwaved 5 mins on high, put on plate, only other stuff added was a little more mayo, not too much and salt. It was pretty good.
I do hope all have a good day and in pockets for all.
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@shanagirl Sheesh, I'm sorry you had a setback and had an awful hospital stay! You NEVER get any rest there and there's nothing like your own bed! Happy to hear you're back in your own comfy bed with your ipad. May your lungs totally clear this time so you can get back to your baseline…sending big hugs up the NJ coast to you🤗
@mara51506 I can smell the freshness of your cleaning all the way down here lol. Nothing like a fresh smelling living space after a good clean! Gald the weather is comfortable for you too.
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What you wrote touched my heart so deeply. ❤️ I can only imagine how painful it must be to love someone so completely and then have to face a future you never chose or imagined.
Please remember that you are not a placeholder. You are not simply someone waiting to be replaced. You are his wife, his best friend, his love, and the person with whom he has shared a life and built those dreams of growing old together. Nothing about what happens in the future can erase what the two of you have shared.
And I understand why the thought of another woman sitting in that chair, sharing his life, or even sharing his bed feels unbearable. That doesn't make you selfish or unloving. It makes you human. When we love someone with our whole heart, the idea of leaving them behind can hurt almost as much as the thought of leaving itself.
But please don't let the fear of what might happen after you're gone steal the time you still have with him now. You don't have to process the entire future today. Maybe today is just about loving him, holding his hand, laughing together, making memories, and letting yourself be loved.
And please don't give up on treatments or medicines because you believe the ending is already written. ❤️ You deserve every opportunity for more time, more memories, more ordinary mornings, more laughter, and maybe even that porch you've dreamed about together. None of us knows exactly how much time we have.
I hope this little living room becomes a place where you can put your feet up, cry when you need to, laugh when you can, and talk about everything without having to pretend you're okay.
Sending you so much love. ❤️ FU cancer. May you have more time, more love, and more beautiful moments than you ever imagined. 🫂
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Shana - so very sorry to read about another hospital stay. How frustrating for you! I despise those hospital beds - no comfort whatsoever. And on top of that having a roommate. At least the hospital I go to has private rooms. I 🙏🏻 that there are no more reoccurrences of the dreaded pneumonia.
Here for pocket duty for all in need.
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After some months, heard from DB, without breaking confidence they both, DB and SIL have been busy so have not had contact for a couple of months which was fine with me. I know what it is like to be overwhelmed with stuff. He wanted to do a mall walk today, told him would be away from 11 to 3ish for Herceptin, asked about tomorrow, I will post if we go.
Short cycles laundry, hoping to get load done before I have to go. Floors as always, I don't use my proper vacuums anymore, just the vacuum sweeper, it sounds ugly while using but works fine, use occasional broom when fans pick up fur etc then mop. Have to change the Ocedar mop, I seem to like using a lot of cleaner. It does not matter.
Breakfast will be simple, not too much rice but will do up rice and lentils in the rice cooker. I love the fluffier rice. It is slow but I do not burn as much stuff. As part of the meal, have one of my mini pot pies, got quite a few of them to have. If I remember will post about it later.
I hope all have a good day and in pockets for SE, appointments or just because I want to be.
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