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My Husband, My Life, My Love, My Family, My Cancer

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  • threetree
    threetree Posts: 2,793

    @shanagirl - So, so very happy for you, and fingers crossed for continued success!

  • threetree
    threetree Posts: 2,793

    @irishlove - Just saying hello, and hope you are doing well and continuing to enjoy the remains of the summer.

  • goldensrbest
    goldensrbest Posts: 880

    Shana - 🎉🎉 for some good news!

    Mara - hope your herceptin treatment went as planned and hope your DB can do a walkabout with you soon!

  • threetree
    threetree Posts: 2,793

    @irishlove - Oh what a wonderful thing to go to your husband's old childhood restaurant. That will be so great! Thinking of you, and a very happy 80th birthday to your husband. May your whole family have the best time!

  • mara51506
    mara51506 Posts: 7,585
    edited August 28

    @shanagirl After all the pneumonia stuff, hearing you are NED is great to hear. I am still NED from neck down and am glad that I have that peace.

    Nothing to do today, will of course hit laundry, floors and putting extra boxes out back til recycle day.

    Probably gonna try some quinoa and chia seeds in the rice cooker with some lentils and possible chicken. Season with some of the popcorn cheese flavour. I will see and post later. Smaller amounts as do not need it to go all day. I did find out lost about 15 lbs. Not sure why, not doing as much junk or chocolate but meals are full and good.

    MEAL 1 Changed mind and made a full on egg, whisked with bit of mayo and cheese seasoning, cooked in the mini griddle, took it out, took 1/2 english muffin with garlic, toasted on same griddle then mini hashbrowns done in the mini griddle, put all together, put bit of mayo again and some salt, really pretty good.

    MEAL 2 will be a Tina's cheese and bean burrito, will sprinkle some more cheese seasoning, and a bit of mayo.I am sure this will taste pretty good. It was good.

    Been debating how to handle eating for tomorrow, mostly because my eating cut off for the CT scan is about 3 to 4 hours before the appointment. I want to eat because I just don't like being without food that long. Will probably set an early alarm that gives me a couple of hours to be hungry enough to eat. I will see. My body sometimes withholds on sleep

    @shanagirl hope you have had a chance to celebrate NED, notice you have been at this longer than me, my goodness. I do hope everyone has a good day and in pockets for all.

  • tanya_djamila
    tanya_djamila Posts: 1,651

    congratulations on NED @shanagirl .
    Irish love Enjoy your DH birthday.

    @intolight i hope your dental appointment goes well. I’ve been neglecting the dentist bc now I go to a jaw specialist for my osteonecrosis. I’m quite scared to go for a cleaning etc bc I do t want anyone to accidentally touch that sensitive area.
    Going out for dinner with my DD and Gd.
    Tanya

  • irishlove
    irishlove Posts: 800

    Milk shakes?? Who had a shake and didn't invite me? LOL @intolight I don't think I could handle one after dental work, so you are truly brave. Boy what I'd give for a true milkshake. Wendy's has a special on their Frosty brand, and I enjoy the chocolate. When I started working at 15, it was at a restaurant where I made sundaes and shakes. Our big seller was malted shakes and dusty roads. I bet @shanagirl knows those items. Big following out of Phila/NJ back in the day. Not saying you are old shanagirl. I hear you and feel you when you speak about trusting different doctors. It's difficult for me every since the surgeon that did my dbl. mastectomy told me the cancer would not return, based on this, that and the other thing. There have been errors at the hospitals since then, that also leads me to distrust some of the care givers.

    @mara51506 Thought of you day before yesterday as I was making a meatloaf. Had to do some substituting and it came out so good. Roseanne showed us on her TV s

    how that you can spread meatloaf with corn flakes. I use that story every time I'm short or missing an ingredient.

    Thank you everyone for support regarding our Minnie Mouse. Buddy, the newly adopted rescue gives her some attention, like trying to steal her treats. Hey any attention is good attention otherwise she'd sleep her life away. She is still a sweet girl, but the weight is too much and we have no idea how to get it off her. She eats very little, but slowed down so much and doesn't chase tennis balls any longer. So the weight went on quickly after Pigeon's passing. Buddy is a hoot. I hide treats behind my back and he picks which hand by staring at the correct side and woofing. Not use to a boy dog, who pees on my planters out front, even though he's fixed. Well I guess that's what they make hoses for.

    I had bragged about a cooler day a few days back and then had to fuss about the heat that returned. It's been in the 90's again. Today we had a hilatious storm, but I don't mind as it gives me a break from watering plants and flowers. I can only get about 10 minutes out of my back and then the pain is too much. I talked MO into letting me see RO about this. My appt. is about 2 weeks from now.

    Anyone else holding their breath to see if their Humana Medicare Advantage Plan is being cancelled? I can't imagine losing my MO and Primary. Plus how on earth am I gonna pick up Medigap with so many preexisting conditions? I know I'd be eligible for another insurers Medicare Advantage Plan without having to qualify, but last check Unitedhealth bailed last year and don't know of anyone else in our area. I was scheduled for women's health clinic appt. yesterday down in Daytona Beach. I waited 6 weeks for the approval and then the appt. They called me one hour before I left for the appt., to tell me they do not accept my insurance. No suggestions for who or whom does. I think I'll let it go till after September passes, which is the deadline for insurers to notify those policies being cancelled. No use stirring Humana up.

    Please be well my sweet friends an.d I'll be in your pockets.

    Laurel

  • cure-ious
    cure-ious Posts: 3,163
    edited August 28

    Chicagoan, I was surprised to learn from a friend who is an agent that when you leave a former employer 's Medicare Advantage plan, you have a "one-time only" option to enroll in Original Medicare. She also let me know that even with MBC I could get a Group G Medicare supplement plan from AARP, and that the best drug plan for getting drugs like Verzenio was also the one offered by AARP- these have worked out great so far.

  • mara51506
    mara51506 Posts: 7,585
    edited August 28

    @intolight Glad after the dental stuff happening and app't, you got to enjoy milkshakes with you DH.

    Well, my body would not fully sleep. Originally had a CT scan and assumed as had happened with others for years before, could not eat 4 hours before appointment so body woke me up early. I did eat in the original timeframe I thought I needed. Well the CT machine is broken so cancelled Paratransit and was rescheduled Monday, but while I was on with the hospital worker, she said I can eat before my appointment, no fast required. Ok then. No big deal, just have a weekend off.

    Nothing on agenda for now, I did have lentils and a couple of mini pot pies. Nothing huge but some nutrition and they were quick. Later I will see what happens. Will most likely have some quinoa, chia seeds, rice and lentils, small portions of each and would start them early since it would take a long time.

    Hope all have good day and in pockets for all. Kind of sad about losing Dolly Parton, Tim Curry and Peter Cullen, he did voices on a lot of animated stuff I watched including Optimus prime on the Transformers. A cluster of losses.

    I did pull out the rice cooker. It is all about the quinoa, some chia seeds, an egg and some lentils. Got 1/4 cup of quinoa, water, chia seeds first. Put a pat of garlic, been using like butter lately, put in egg and stirred it round since yolk would either pop or just be gross. Put it on the brown rice setting, just a bit of a longer cook. About an hour, just wanted quinoa not stuck to the bottom of a pot which always happened before. If there is shredded cheese in fridge, will put that in later, I will see. Post about taste later.

  • intolight
    intolight Posts: 3,159

    @mara51506 Don't forget to add losing Shelley Faberes on Aug 22. Dolly's death kingd of overshadowed hers.

  • chicagoan
    chicagoan Posts: 1,519

    @cure-ious Thank you. That is such helpful information. I am most nervous about drug costs b/c most other things I could pay out of pocket.

  • shanagirl
    shanagirl Posts: 709

    @mara51506 Do you need to change the battery?

  • cookie54
    cookie54 Posts: 1,436

    @mara51506 Sheesh how annoying, poor DB that can be very scary. Was thinking the same thing Barb said , possibly the battery? Hope it’s an uneventful day for 🤞🏻Sorry about the CT debacle but glad you don’t have to fast now!

  • mara51506
    mara51506 Posts: 7,585
    edited August 29

    @shanagirl @cookie54 I think battery is fine, found that when I opened jars, they would press the button. I shortened the pendant a bit and flipped it backwards, seems like that could solve the butt dial type problem for me, I will see. Debated turning off whilst cooking, decided that would be a silly thing to do. Having it backwards would keep it from being pushed easily and now I know how to turnoff the flashing help button. Just turn it off from back for a moment, turn back on.

    Nothing on agenda for today of course that I know about, seems nice enough outside. Laundry, floors, cat area to be cleaned. May whip out the shop vac and give a thorough clean, I will see what I feel like doing.

    Meal one was weird, took a meat pie and put on top of frozen meal penne with chicken. Heated in the rice cooker, added some sour cream and onion seasoning and a dollop of mayo. It tasted alright and was filling. tasted alright but cannot say was really good. Still trying to find stuff I enjoy having most of the time.

    MEAL2 Got a meal from the burger joint, Harveys, got a snack size cheese burger with cheese and bacon, tomato, onions and olives. Onion rings, pepsi and 4 cinnamon donuts. I love all of it.

    Spending today trying to fix my oldest phone, got it charged by holding in place with bit of tape but screen no longer working. Thankfully my Mom had the same phone so swapped out the SD crard. Will see if I can fix it. Watch some videos to see if I can do it.

    Have a good day all and in everybody's pockets.

  • tanya_djamila
    tanya_djamila Posts: 1,651

    Hey ladies happy Saturday . Committed to walking with a few much younger people on Saturday mornings so far it’s been nice. It’s a nature walk so I can go slow and everyone’s nice.

    @mara51506 i do use the neck fan you suggested. It is very nice. Too bad your DB had to be notified. It’s still a good idea for your safety. Hopefully turning it around does the trick.

    @intolight thats an amazing dentist. I haven’t had a milkshake since I lived in NY (carvel) 20 years ago. I want one now of course.

    DH treatment is giving him nausea se’s and fatigue. Durvalamub (sp). Hopefully it’s shrinking the tumor.
    Have a wonderful day.

    Tanya

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