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Premenopausal and Starting Tamoxifen -- Looking for an Ongoing Chat
I took my first dose of tamoxifen last night and am feeling so much dread around it. I put it off due to avoidance and confusion around the small impact that taking it has on my future recurrence rate (4% vs 8%). Looking to find peace in this journey and am wondering how others have figuratively 'swallowed the pill' of…
Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
Anyone on just Taxotere and Cytoxan?
I just started a regimen of taxotere and cytoxan for four rounds. I really need to talk to someone who has been on just this regimen. My first session did not go well. It dropped my sodium levels too low and I had a couple of seizures. They kept me in the hospital for two nights. I have been achey and weak since. Does it…
Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast…
Giredestrant Reduces Recurrence Risk More Than Tamoxifen, Aromatase Inhibitors
Giredestrant Reduces Recurrence Risk More Than Tamoxifen, Aromatase Inhibitors Dec 22, 2025 Results from the lidERA trial suggest that giredestrant could be a new standard of care for early-stage hormone receptor-positive breast cancer. Read more…
Post-tamoxifen and Lupron - Removing ovaries with hysterectomy or not? ER+/PR+/HER2-
I was diagnosed in 2020/age 40 with ER+, PR+, HER2- breast cancer. Unilateral mastectomy; no chemo/radiation; I finished my 5 years of Tamoxifen in September... and felt fine on it. When I stopped, I felt like I was on a crazy hormone rush with breast pain in my remaining side, which was scary. Then, I started having…
Options for New Atypical Findings After Treatment
Hi all, long post to give context but the TLDR is — what to do about a large lump with high-risk/atypical findings (but not necessarily malignant) and positive-margins in one breast five years after early stage cancer in the other breast? Five years ago, I had a lumpectomy and radiation for stage 1 ER/PR-negative cancer in…
Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
Tamoxifen, acne, and otherwise dry aging skin
Hi all, new to the forums and posting for the first time. I'm Medicare-aged and started my final treatment phase of 3 years of 5mg daily "baby" tamoxifen a few months ago, and I'm now dealing with new persistent pimples which I'm convinced are related. I've been post-menopausal for over a decade now, so my primary skin…
Aromatase inhibitors versus tamoxifen
I had a double mastectomy in October of 2023, radiation, fortunately no chemo. I began an aromatase inhibitor, Anastrozole, in January of 2024. At about five months in, I began to experience joint pain. It wasn't bad, just a little annoying. As the months passed, it got a bit worse, so my doctor switched me to another AI,…
Radiation & tamoxifen - necessary...?
Hi everyone, I’d really appreciate hearing from others in a similar situation. I’m in my early 40s, no kids, not close to menopause, and recently had a lumpectomy for a 12 mm, grade 1, ER+/PR+ HER2- IDC (plus a small area of DCIS). Margins were clear, and there was no lymph node involvement. My Ki-67 is low (10%), and I’ve…
Side effects of coming off Tamoxifen?
I finished my course of Tamoxifen and few weeks ago (yay!) and just ended my first post-Tamoxifen period. Now I'm having some abnormal discharge, and also there's what looks like a pimple in my healthy breast. I have a doctor appointment to get it checked out, but while I'm waiting has anyone had weird stuff happen while…
Tamoxifen side effects and your experiences
Hello I am Vanessa. I am 47 no menopause. I was diagnosed with LCIS in December (11 mm) + atypical ductal & lobular hyperplasia. Had my surgery in January 2025. No quimio nor radio therapy was needed. Just tamoxifen (20 mg). It has been a roller coaster in several ways. I had to take of mirena, change medication like…
TAMOXIFEN & CYMBALTA
I read that Tamoxifen should not be taken with Cymbalta as the Cymbalta can make the Tamoxifen ineffective as well as increase the side effects. Is this true and if so, can someone recommend a replacement for Cymbalta?
Tamoxifen and bleeding
I am 44 years old and premenopausal. I have been taking Tamoxifen for 8 months. I stopped getting my period in December right after starting the Tamoxifen and have not had a period for 8 months, not even spotting. This week I was at work and started what I thought was my period but after a couple hours turned into…
Stay on Tamoxifen after Hysterectomy?
My docs cannot give me a straight answer on this. Doctor said as long as I'm tolerating it I could stay on it. Then again, she said otherwise they could switch me to anastrozole. My thoughts are that if I don't have the main body parts that produce estrogen/progesterone then why keep taking anything? (I had a bilateral…
Tamoxifen withdrawal symptoms
I`m 38 years old and I have been on Tamoxifen for 5 years.Now has been a week without it and I`m not feeling too good.Does anyone know about withdrawal symptoms?
Did anybody get tinnitus from taking Tamoxifen?
I have been on Tamoxifen for 1 month and start to get tinnitus which occurs all the time (not occasionally), when it's night it's worse 'cause it's much more quiet; and at day time when it's not very noisy I can feel it as well. Tinnitus is not mentioned on the material about SEs from Tamoxifen I got from the clinic....but…
Winter 2025 Breast Cancer Research Round Up
Winter 2025 Breast Cancer Research Round Up Have you been diagnosed with metastatic hormone receptor-positive breast cancer or DCIS? Dr. Kevin Fox discusses the latest research. Apr 18, 2025 Can people diagnosed with metastatic hormone receptor-positive breast cancer avoid chemotherapy and take a CDK4/6 inhibitor instead?…
Gastrointestinal symptoms after finishing 10 years of Tamoxifen
After 10 years of Tamoxifen it was time to stop taking it. Just a couple of weeks after I stopped I got gastrointestinal issues. I am wondering if it is because I stopped the Tamoxifen. I have bloating, constipation/diarrohea, feeling a need to do but not doing, going often to the toilet. I had several tests and am waiting…

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From the team

In Treatment for Early Stage Disease (I-III)? Join us on Zoom, Tues & Thurs weekly!
Join our weekly virtual support group for all who are planning or going through active treatment for early stage disease (I-III). If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
Connect with others by creating your profile! Here's how.
We know this community is so important, so we’ve made it even easier for you to connect with others. With this update, you can: ✅ Share more about yourself so others can get to know you ✅ Find members with similar experiences using profile searches ✅ Get personalized support and resources from our community team How to…
How to use member profile search to find others like you
Using the information you and others share, you can find others based on: 📍Location (ex: lives in Philadelphia, Pennsylvania) 🌍Demographic (ex. is Black or African-American) 🧬Diagnosis (ex: diagnosed in the last year with stage II, ER+, PR+, HER2- breast cancer) 💊Treatment (ex: has been treated with a unilateral…
Were you diagnosed young (under 45) with breast cancer? We'd love to hear from you!
Were you diagnosed with breast cancer at age 45 or younger? Or are you caring for someone who was? Navigating this experience can be lonely — it can sometimes feel like no one gets it. What do you wish others knew about having breast cancer at a young age? What do you wish you had known? Your answers may help others. Click…
How has a nurse helped you through breast cancer?
At Breastcancer.org, we often hear how much nurses mean to people going through breast cancer. It’s the nurse who often explains the diagnosis and treatments to you in simple language, helps manage your side effects, offers you reassurance, and connects you with the care you need. Nurses are also a source of emotional…
What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
Poll: What's the one piece of advice you'd give to someone newly diagnosed with breast cancer?
Getting diagnosed with breast cancer can be scary. If you had a chance to share with a newbie one piece of advice to get them through, what would it be? Choose from the options below or add your own in the discussion to give new folks a sense of calm and understanding.
Your Voice Can Shape Clinical Trials | Participate for $100 gift card!
Researchers at Mass General Brigham, Dana-Farber, and Harvard Medical School are exploring how AI chatbots can make clinical trial consent easier to understand. They’re inviting adult cancer patients across the U.S. to join a virtual focus group and share their ideas. Participants will receive a $100 gift card. Spots are…
Managing the Holidays and Breast Cancer - how are you coping?
The holidays can bring lots of emotions — and lots of people. How do you handle gatherings, conversations, ongoing check-ins, or expectations from loved ones this time of year?
Poll: This time of year, what are you prioritizing?
The holidays can be overwhelming — what matters the most to you this year? Take a moment to answer our poll and elaborate in the thread below. Happy holidays to you each, no matter what or how you decide to celebrate!

Upcoming events

It’s OK To Ask: Breast Cancer and Breaking Taboos
Think back to a time in your doctor’s office when you really wanted to ask a question — but didn’t. Maybe you built up the courage and then changed your mind because it felt insignificant or you didn’t want to feel judged or be a burden. There are a lot of valid reasons why people hold back on asking for what they need. We…

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