-
Tubular cancer - hormone blockers?
Hi, I am so happy to find this group. There don't seem to be many places for us to connect about tubular cancer! Like many of you, I am trying to figure out if tamoxifen is worth the risk. I am 55, peri-menopausal and had a single mastectomy (with DIEP) 2 months ago. My diagnosis was large volume DCIS (hence the mastectomy…
-
How do you track and communicate treatment side effects?
Hi ladies! ❤️ I'd love to hear from my fellow breast cancer survivors. I was diagnosed in December 2019 with Stage 1 ER+,Her2+ breast cancer. I had a bilateral mastectomy, chemo, Herceptin, and Tamoxifen for 6 years. During my own treatment, I became very aware of how difficult it can be to track, understand, communicate,…
-
Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
-
After Tamoxifen.. does collagen production turn back ON?
I have 2.5 more years left of this ghastly medication. My dermatologist has confirmed it is responsible for my skin thinning and looking more crepey. Also losing elasticity everywhere (I’ve lost 75 lbs since my last week of chemo/IV steroids.. Ladies it IS possible if you start lifting dumbells and eating 125-135 gums of…
-
Tamoxifen Reoccurrence Prevention
I didn't see anything recent in the Bottle of Tamoxifen discussion so I came here to vent and ask for feedback. My bottle's still at the pharmacy and, after reading the PDF that the oncologist's office helpfully provided, I'm inclined to leave it there. Besides the handling instructions which makes tamoxifen sound as toxic…
-
Liver Nodules
Hello :) I was diagnosed on 4/10 and had a double mastectomy on 5/18. I have a DIEP reconstruction scheduled for 9/2. I had to have a CT Abdomen to map out my veins and make sure everything looked fine for surgical planning. They found a 4 mm liver nodule. I have been taking Tamoxifen and over the last 6 weeks have lost…
-
Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
-
Premenopausal and Starting Tamoxifen -- Looking for an Ongoing Chat
I took my first dose of tamoxifen last night and am feeling so much dread around it. I put it off due to avoidance and confusion around the small impact that taking it has on my future recurrence rate (4% vs 8%). Looking to find peace in this journey and am wondering how others have figuratively 'swallowed the pill' of…
-
Anyone on just Taxotere and Cytoxan?
I just started a regimen of taxotere and cytoxan for four rounds. I really need to talk to someone who has been on just this regimen. My first session did not go well. It dropped my sodium levels too low and I had a couple of seizures. They kept me in the hospital for two nights. I have been achey and weak since. Does it…
-
Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast…
-
Giredestrant Reduces Recurrence Risk More Than Tamoxifen, Aromatase Inhibitors
Giredestrant Reduces Recurrence Risk More Than Tamoxifen, Aromatase Inhibitors Dec 22, 2025 Results from the lidERA trial suggest that giredestrant could be a new standard of care for early-stage hormone receptor-positive breast cancer. Read more…
-
Post-tamoxifen and Lupron - Removing ovaries with hysterectomy or not? ER+/PR+/HER2-
I was diagnosed in 2020/age 40 with ER+, PR+, HER2- breast cancer. Unilateral mastectomy; no chemo/radiation; I finished my 5 years of Tamoxifen in September... and felt fine on it. When I stopped, I felt like I was on a crazy hormone rush with breast pain in my remaining side, which was scary. Then, I started having…
-
Options for New Atypical Findings After Treatment
Hi all, long post to give context but the TLDR is — what to do about a large lump with high-risk/atypical findings (but not necessarily malignant) and positive-margins in one breast five years after early stage cancer in the other breast? Five years ago, I had a lumpectomy and radiation for stage 1 ER/PR-negative cancer in…
-
Tamoxifen, acne, and otherwise dry aging skin
Hi all, new to the forums and posting for the first time. I'm Medicare-aged and started my final treatment phase of 3 years of 5mg daily "baby" tamoxifen a few months ago, and I'm now dealing with new persistent pimples which I'm convinced are related. I've been post-menopausal for over a decade now, so my primary skin…
-
Aromatase inhibitors versus tamoxifen
I had a double mastectomy in October of 2023, radiation, fortunately no chemo. I began an aromatase inhibitor, Anastrozole, in January of 2024. At about five months in, I began to experience joint pain. It wasn't bad, just a little annoying. As the months passed, it got a bit worse, so my doctor switched me to another AI,…
-
Radiation & tamoxifen - necessary...?
Hi everyone, I’d really appreciate hearing from others in a similar situation. I’m in my early 40s, no kids, not close to menopause, and recently had a lumpectomy for a 12 mm, grade 1, ER+/PR+ HER2- IDC (plus a small area of DCIS). Margins were clear, and there was no lymph node involvement. My Ki-67 is low (10%), and I’ve…
-
Side effects of coming off Tamoxifen?
I finished my course of Tamoxifen and few weeks ago (yay!) and just ended my first post-Tamoxifen period. Now I'm having some abnormal discharge, and also there's what looks like a pimple in my healthy breast. I have a doctor appointment to get it checked out, but while I'm waiting has anyone had weird stuff happen while…
-
Tamoxifen side effects and your experiences
Hello I am Vanessa. I am 47 no menopause. I was diagnosed with LCIS in December (11 mm) + atypical ductal & lobular hyperplasia. Had my surgery in January 2025. No quimio nor radio therapy was needed. Just tamoxifen (20 mg). It has been a roller coaster in several ways. I had to take of mirena, change medication like…
-
TAMOXIFEN & CYMBALTA
I read that Tamoxifen should not be taken with Cymbalta as the Cymbalta can make the Tamoxifen ineffective as well as increase the side effects. Is this true and if so, can someone recommend a replacement for Cymbalta?
-
Tamoxifen and bleeding
I am 44 years old and premenopausal. I have been taking Tamoxifen for 8 months. I stopped getting my period in December right after starting the Tamoxifen and have not had a period for 8 months, not even spotting. This week I was at work and started what I thought was my period but after a couple hours turned into…