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12 Years of multiple callbacks
Twelve years ago I had spontaneous nipple discharge from my right breast. Following a mammogram, ultrasound, and biopsy, I ended up having a lumpectomy to remove an intraductal papilloma. All was good until 6 month after the surgery and the spontaneous discharge started again and continues still now, 12 years later. No…
Architecture distortion with benign biopsy but sent to MRI and surgeon
Hi everyone, I am new here and just went through a roller coaster with my breast exams over the past week. Hoping to get some help and support from this group. I am 38 and just finished breastfeeding my 1 yr old. I did my first mammogram last Friday and got callback for diagnostic mammogram followed by ultrasound. I was…
Fearful of Gadolinium Breast MRI
Hello, My dr. wants me to get a breast MRI which uses gadolinium. I am very afraid of this as my dad had a cardiac arrest during contrast and also in addition to BC in my family there's a lot of Parkinsons. I also have autoimmune issues! Basically…I don't need any more problems. The dr will not allow me to have it without…
Options for New Atypical Findings After Treatment
Hi all, long post to give context but the TLDR is — what to do about a large lump with high-risk/atypical findings (but not necessarily malignant) and positive-margins in one breast five years after early stage cancer in the other breast? Five years ago, I had a lumpectomy and radiation for stage 1 ER/PR-negative cancer in…
Going for a diagnostic mammogram
Since mid September I have been having sensitive nipples and my breasts seem to have fallen. I am 75 years old so fallen breasts are bound to happen. I can’t seem to get comfortable because of how my nipples are feeling. What I want to ask is are sensitive/tender nipples a symptom of breast cancer? I don’t have any…
Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
Suffocating in the waiting...
For the last 6 months I have been experiencing a strange shooting pain sensation on my left side, right between my armpit and my breast and it would radiate through my breast. I ended up going to the ER because I thought that I was having a heart attack. I am almost 37 years old. The ER told me I had inflammation in my…
2017 BC Diagnosis…how are you doing?
Hello Friends:💐 It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing. I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support. I look forward…
Prophylactic Mastectomy
Looking for anyone with shared experience. From my 1st mammogram 15 years ago at 40, I have had issues. Multiple biopsies and lumpectomies, tons of scar tissue as a result. I have extremely dense breast tissue, complex cysts, breast disease, multiple bilateral papillomas and just recently diagnosed with LCIS. I do not have…
I'm looking for advice re: my lumpectomy on Monday next week
I'll try to keep the background as short as possible—unfortunately, it is a bit of a twisted tale. I had a screening breast MRI in Sept. last year. It came back BI-RADS 5 (greater than 95% likely cancer). The targeted US showed a rather benign-looking nodule that was presumed to be the one seen on the MRI. An US-guided…
Radiation & tamoxifen - necessary...?
Hi everyone, I’d really appreciate hearing from others in a similar situation. I’m in my early 40s, no kids, not close to menopause, and recently had a lumpectomy for a 12 mm, grade 1, ER+/PR+ HER2- IDC (plus a small area of DCIS). Margins were clear, and there was no lymph node involvement. My Ki-67 is low (10%), and I’ve…
Dealing with Lymphedema w/o surgery?
Hi community. I'm posting since I haven't found a similar case yet. I opted out on surgery and chemo (too late), and it's been a good run for 7 years. The LE came on slowly to rt arm, dr diagnosed. Now its in both feet, then the left breast just swelled in size. No real noticeable discoloration. Has anyone else had LE…
Radial Scar
Hi All, Just looking to connect with people who may have had similar experiences or diagnosis. I went for my first breast check, age 32 due to a concern on my right side. This was clear on imaging, however the ultrasound found architectual distortion on the left. This lead to a mammogram, mri, core biopsy and lumpectomy.…
Asymmetry on first screening mammogram. Scared. Please help.
I'm 40 and got my first screening mammogram (3D) a few days ago. They found a "small lateral asymmetry best seen on CC tomosynthesis" on my left breast. They didn't see any microcalcifications. They captured a few extra images, so I'm guessing they saw it on multiple ones. The BIRADS score is 0, which means they need…
US Biopsy Complete, Made to Delay Skin Biopsy
I’m 37, had a mammogram & ultrasound earlier this month due to changes in my right breast not responding to dermatological treatment (persistent itching, raised bump/rash, discharge). The 2 findings were Birads 4 (no letter): a small mass in the upper outer quadrant (10:00, U.S. biopsy), and the other a skin-related lump…
PASH
Hi Just wondering if there is anyone that is dealing with PASH and would love to discuss whom they are seeing and what direction their surgeon is taking. If you know of other websites or physicians that deal with PASH in the Chicago or the NorthShore area would like if you could provide that info. Found lump two years ago,…
Opinions on MRI, Biopsy and Overall Worry
I'm looking for opinions or similar situations. Every year I get my mammo and since cancer they appear hypervigilant. The first few years they wanted to biopsy everything they saw. I had a couple of bad experience with the first two biopsies so I later took charge and said no if it was something that could be watched.…
Are you dealing with infections or bandaging during palliative care??
Hi everyone. I'm starting this topic because I haven't found a similar one to help answer questions and offer me advice. I know I'm a rare case managing my own palliative care, in Asia, while under the care of a great doctor who's using both eastern and western medical traditions. I'm on hormone therapy (Tamoxifen then…
It feels like my whole life is crashing down
All my life I have tried to leave healthy , avoid junk food , exercise even if I do not enjoy it, do everything to support my immune system and all that shebang. I watched my mom die from breast cancer at the age of 40 and now here I am. Late October , I felt a dull ache in my right best that woke me up in the middle of…
Breast surgeon recommendation
Can anyone recommend some top surgical oncologists for breast cancer in the NYC area? I appreciate it in advance.

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From the team

In Treatment for Early Stage Disease (I-III)? Join us on Zoom, Tues & Thurs weekly!
Join our weekly virtual support group for all who are planning or going through active treatment for early stage disease (I-III). If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
Connect with others by creating your profile! Here's how.
We know this community is so important, so we’ve made it even easier for you to connect with others. With this update, you can: ✅ Share more about yourself so others can get to know you ✅ Find members with similar experiences using profile searches ✅ Get personalized support and resources from our community team How to…
How to use member profile search to find others like you
Using the information you and others share, you can find others based on: 📍Location (ex: lives in Philadelphia, Pennsylvania) 🌍Demographic (ex. is Black or African-American) 🧬Diagnosis (ex: diagnosed in the last year with stage II, ER+, PR+, HER2- breast cancer) 💊Treatment (ex: has been treated with a unilateral…
Were you diagnosed young (under 45) with breast cancer? We'd love to hear from you!
Were you diagnosed with breast cancer at age 45 or younger? Or are you caring for someone who was? Navigating this experience can be lonely — it can sometimes feel like no one gets it. What do you wish others knew about having breast cancer at a young age? What do you wish you had known? Your answers may help others. Click…
How has a nurse helped you through breast cancer?
At Breastcancer.org, we often hear how much nurses mean to people going through breast cancer. It’s the nurse who often explains the diagnosis and treatments to you in simple language, helps manage your side effects, offers you reassurance, and connects you with the care you need. Nurses are also a source of emotional…
What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
Poll: What's the one piece of advice you'd give to someone newly diagnosed with breast cancer?
Getting diagnosed with breast cancer can be scary. If you had a chance to share with a newbie one piece of advice to get them through, what would it be? Choose from the options below or add your own in the discussion to give new folks a sense of calm and understanding.
Your Voice Can Shape Clinical Trials | Participate for $100 gift card!
Researchers at Mass General Brigham, Dana-Farber, and Harvard Medical School are exploring how AI chatbots can make clinical trial consent easier to understand. They’re inviting adult cancer patients across the U.S. to join a virtual focus group and share their ideas. Participants will receive a $100 gift card. Spots are…
Managing the Holidays and Breast Cancer - how are you coping?
The holidays can bring lots of emotions — and lots of people. How do you handle gatherings, conversations, ongoing check-ins, or expectations from loved ones this time of year?
Poll: This time of year, what are you prioritizing?
The holidays can be overwhelming — what matters the most to you this year? Take a moment to answer our poll and elaborate in the thread below. Happy holidays to you each, no matter what or how you decide to celebrate!

Upcoming events

It’s OK To Ask: Breast Cancer and Breaking Taboos
Think back to a time in your doctor’s office when you really wanted to ask a question — but didn’t. Maybe you built up the courage and then changed your mind because it felt insignificant or you didn’t want to feel judged or be a burden. There are a lot of valid reasons why people hold back on asking for what they need. We…

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