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Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
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Suffocating in the waiting...
For the last 6 months I have been experiencing a strange shooting pain sensation on my left side, right between my armpit and my breast and it would radiate through my breast. I ended up going to the ER because I thought that I was having a heart attack. I am almost 37 years old. The ER told me I had inflammation in my…
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2017 BC Diagnosis…how are you doing?
Hello Friends:💐 It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing. I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support. I look forward…
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Options for New Atypical Findings After Treatment
Hi all, long post to give context but the TLDR is — what to do about a large lump with high-risk/atypical findings (but not necessarily malignant) and positive-margins in one breast five years after early stage cancer in the other breast? Five years ago, I had a lumpectomy and radiation for stage 1 ER/PR-negative cancer in…
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Prophylactic Mastectomy
Looking for anyone with shared experience. From my 1st mammogram 15 years ago at 40, I have had issues. Multiple biopsies and lumpectomies, tons of scar tissue as a result. I have extremely dense breast tissue, complex cysts, breast disease, multiple bilateral papillomas and just recently diagnosed with LCIS. I do not have…
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I'm looking for advice re: my lumpectomy on Monday next week
I'll try to keep the background as short as possible—unfortunately, it is a bit of a twisted tale. I had a screening breast MRI in Sept. last year. It came back BI-RADS 5 (greater than 95% likely cancer). The targeted US showed a rather benign-looking nodule that was presumed to be the one seen on the MRI. An US-guided…
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Radiation & tamoxifen - necessary...?
Hi everyone, I’d really appreciate hearing from others in a similar situation. I’m in my early 40s, no kids, not close to menopause, and recently had a lumpectomy for a 12 mm, grade 1, ER+/PR+ HER2- IDC (plus a small area of DCIS). Margins were clear, and there was no lymph node involvement. My Ki-67 is low (10%), and I’ve…
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Dealing with Lymphedema w/o surgery?
Hi community. I'm posting since I haven't found a similar case yet. I opted out on surgery and chemo (too late), and it's been a good run for 7 years. The LE came on slowly to rt arm, dr diagnosed. Now its in both feet, then the left breast just swelled in size. No real noticeable discoloration. Has anyone else had LE…
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Radial Scar
Hi All, Just looking to connect with people who may have had similar experiences or diagnosis. I went for my first breast check, age 32 due to a concern on my right side. This was clear on imaging, however the ultrasound found architectual distortion on the left. This lead to a mammogram, mri, core biopsy and lumpectomy.…
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US Biopsy Complete, Made to Delay Skin Biopsy
I’m 37, had a mammogram & ultrasound earlier this month due to changes in my right breast not responding to dermatological treatment (persistent itching, raised bump/rash, discharge). The 2 findings were Birads 4 (no letter): a small mass in the upper outer quadrant (10:00, U.S. biopsy), and the other a skin-related lump…
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PASH
Hi Just wondering if there is anyone that is dealing with PASH and would love to discuss whom they are seeing and what direction their surgeon is taking. If you know of other websites or physicians that deal with PASH in the Chicago or the NorthShore area would like if you could provide that info. Found lump two years ago,…
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Opinions on MRI, Biopsy and Overall Worry
I'm looking for opinions or similar situations. Every year I get my mammo and since cancer they appear hypervigilant. The first few years they wanted to biopsy everything they saw. I had a couple of bad experience with the first two biopsies so I later took charge and said no if it was something that could be watched.…
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Are you dealing with infections or bandaging during palliative care??
Hi everyone. I'm starting this topic because I haven't found a similar one to help answer questions and offer me advice. I know I'm a rare case managing my own palliative care, in Asia, while under the care of a great doctor who's using both eastern and western medical traditions. I'm on hormone therapy (Tamoxifen then…
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It feels like my whole life is crashing down
All my life I have tried to leave healthy , avoid junk food , exercise even if I do not enjoy it, do everything to support my immune system and all that shebang. I watched my mom die from breast cancer at the age of 40 and now here I am. Late October , I felt a dull ache in my right best that woke me up in the middle of…
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Breast surgeon recommendation
Can anyone recommend some top surgical oncologists for breast cancer in the NYC area? I appreciate it in advance.
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What should be my next step?
My biopsy confirms that I have Invasive Mammary Carcinoma in my right breast, which is hormone receptor-positive (HR+), HER2-negative, and a high Ki-67 proliferation rate of over 80%. Can someone tell me more about that Ki-67 number? Is it normal? Also the doctor initially said it was only one centimeter but the report…
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I cant stop thinking the worse
I cant stop thinking the worse. So in December I noticed I had some swelling and firmer breast tissue in the tail of spence area almost looked like axillary breast tissue. I had a baby a year ago so my boobs are not what they once were. Ever since becoming a Mom I have huge anxiety with my health and so booked in for an…
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Need help thinking through AI with ovarian suppression
My MO would like me to start an AI and ovarian suppression/removal. I am 42. Onc score was 31 for IDC with lobular component. No nodes. I understand that I do have a risk of recurrence but I also value an active lifestyle. I had no question mentally regarding the mastectomy and chemo. I do not feel peaceful about the…
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Architecture distortion with benign biopsy but sent to MRI and surgeon
Hi everyone, I am new here and just went through a roller coaster with my breast exams over the past week. Hoping to get some help and support from this group. I am 38 and just finished breastfeeding my 1 yr old. I did my first mammogram last Friday and got callback for diagnostic mammogram followed by ultrasound. I was…
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Adding MRI to 3D Mammograms May Save Lives of Women With Extremely Dense Breasts
Adding MRI to 3D Mammograms May Save Lives of Women With Extremely Dense Breasts Sep 25, 2024 While the benefits of supplemental screening are clear, the additional screenings may also lead to more false alarms, which can take a financial and emotional toll on people. Read more…