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Topic: Thinning Hair -

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Mar 1, 2016 02:24PM

rozem wrote:

Hello Ladies

Well after 4 years on Tam and 3 of those on Ovarian Suppression (so menopause since the age of 42) I am really starting to notice hair loss/thinning. I first noticed a lot of hair on my brush but now my front hairline is so thin you can see through it. I started Biotin and going to make an appointment with a derm. Apparently you can go on female rogaine? ugh

this is honestly so depressing...losing my boobs wasn't this hard for me. Im going to have to master the comb over soon

any suggestions/input/comments welcome

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2+
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Posts 361 - 380 (380 total)

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Apr 20, 2019 09:46AM Lisey wrote:

HI Everyone, checking in.  I"m so GLAD to see you guys are seeing results.  Honestly, it fixed so many issues for me, and is so easy to use.  I almost want to start a thread called iRestore just to help people see this and not have to go through pages and pages of despair first.  If I do would you all add your photos and results?  

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/7/2016 Mastectomy: Left, Right Hormonal Therapy 7/15/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 20, 2019 09:51AM Lisey wrote:

Here is the link... if you could post your feelings on the iRestore over there, it may help others see what a miracle device this thing is.

https://community.breastcancer.org/forum/6/topics/871124?page=1#idx_1


Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/7/2016 Mastectomy: Left, Right Hormonal Therapy 7/15/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 20, 2019 10:54AM anotherNYCGirl wrote:

Hi All,

I am so jealous of the full heads of hair!!

Today will be 5 months (minus 1 week that I was away) of faithful I Restore use. I never noticed actual 'sprouts', but I do think that my hair is a little better, and my part is a bit less awful. However, it is still not enough for me to be comfortable without my hat or top piece on :(

So my question for all of the I Restore users here is if you think it will help to continue or if I should return it before the 6 months are up?

If I can figure out how to post photos, I will!

Thanks for your thoughts!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 20, 2019 06:17PM Lisey wrote:

I returned mine only to find my hair falling out again in huge clumps and itching like crazy  a month later....   I had to order another one under my neighbors name I was so embarrassed.  That's just my experience.  Now that I'm using it the last 6 months, may hair is not falling out anymore or itching. 

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/7/2016 Mastectomy: Left, Right Hormonal Therapy 7/15/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 21, 2019 12:36AM Chemokaze wrote:

Thanks lisey for starting the new irestore thread. I just copied my post from yesterday with my “before” pictures.

10/2018: NEAD; 7/2018: Onward to Verzenio, Zometa, Faslodex, & CyberKnife to single met to L4 spine. Dx 9/1996, IDC, Left, Stage IB, Grade 3, 0/21 nodes, ER+/PR+ Dx 5/2016, IDC, Right, Stage IIIC, Grade 2, 14/21 nodes, ER+/PR+, HER2- Dx 6/2018, Stage IV, metastasized to bone
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Apr 21, 2019 10:42PM Pamela23 wrote:

I bought iRestore at Christmas but didn't start until early Feb. I noticed this week that my hairline is actually worsening (only I would know so not severe, but I've been watching this area for a long time). Did it get worse before better for others?


9/15/2016, IDC, Left, 3mm, Stage IA, Grade 3, ER+/PR+, HER2- Dx 9/15/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/6/2016 Lumpectomy: Left Chemotherapy 11/15/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/20/2017
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Apr 22, 2019 01:43PM anotherNYCGirl wrote:

I am debating about returning the helmet. I didnt have itching or anything before, and I dont think I see a change in my hairline or quality of my hair. :(

On another note, I received a VERY spooky e mail , supposedly from I Restore! It knows my name and that I have the helmet and claimed to know that I opened the e mail and went on to say scary things , with a picture of some masked man underneath. I closed it quickly and didnt finish reading it. What should I do? =/

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 22, 2019 01:50PM CaliKelly wrote:

omg! I think you should forward that email to iRestore company! Also if it's not working, get your money back. Others have said the return is simple and money refunded in full. That email cannot be from the company, but forward it to them so they can look into it! That's horrible! I'm sad it didn't help you😕,but at least get your money back!

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 22, 2019 01:54PM CaliKelly wrote:

Pamela, my hair did not get worse but I think they say sometimes that is the case before it gets better, so I'd give it a little more time. If it doesn't start to improve, get your $$ back within 6 months!🤞🤞🤞🤞

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 22, 2019 01:56PM CaliKelly wrote:

Pamela, my hair did not get worse but I think they say sometimes that is the case before it gets better, so I'd give it a little more time. If it doesn't start to improve, get your $ back within 6 months!🤞🤞🤞🤞

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 22, 2019 03:53PM anotherNYCGirl wrote:

Thanks. I'll keep you updated.

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 23, 2019 03:59PM anotherNYCGirl wrote:

I Restore promptly responded saying "Our management team is currently investigating the matter with the spam emails that have been using our domain name. As long as you do not reply or click any links in the email it should be fine. "

Also, that I can use the helmet for the full 6 months and still have a few days to return it if I opt to.

I am still hoping that I see more/better hair, and want to keep it!!

They are a very nice company to do business with!

Thank you, again, Cali, for your help!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 23, 2019 04:12PM CaliKelly wrote:

Dear NYC, good news, I'm still hoping you will get some sprouts soon!!! I have noticed the company is very responsive and helpful. Finger crossed!, Keep trying till the last day🤞🤞💕💕

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Jun 29, 2019 10:31AM beloussvetlan wrote:


Hello!

My name is Svetlana. One of my friend recommended me write you about getting an irestore helmet. I had 2 courses of chemo, the last was Taxotere, Perjetta, Herceptine. Now I am on Anastrozol for 5 years. I feel like I’m losing hairs which is the last thing I want. They are getting thinner. I’d love to buy a helmet but it’s expensive. My friend told me you could help with a discount. Could you? My email is svetab7400@yahoo.com. Thank you

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Jul 3, 2019 07:14PM Lisey wrote:

HI Svetlana, did CaliKelly get ahold of you? Let me know if she hasn't and I'll try to track her down.

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/7/2016 Mastectomy: Left, Right Hormonal Therapy 7/15/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 6, 2021 04:30PM Springdaisy wrote:

I am starting femara/letrozole this week. I hope I don’t lose my hair but if I do, have you found that it’s just thinning or are there actual spots of hair that are missing? Thanks

Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Radiation Therapy Hormonal Therapy
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Jan 6, 2021 08:35PM anotherNYCGirl wrote:

Springdaisy, - mine thinned while on femara, - no actual bald spots. It was very gradual. You may be just fine, and not even thin out!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Jan 26, 2021 09:32AM Ingerp wrote:

Just chiming in because this topic has been on my mind. I've been on anastrozole for almost 2.5 years now and hadn't really noticed any hair impacts but I think now it is thinner. However, I also recently stopped taking Biotin, which I'd taken for years. I doubt there's any direct correlation but I am going back on the Biotin.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/18/2018 Taxol (paclitaxel) Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Radiation Therapy 8/20/2018 Whole-breast: Breast
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Jan 26, 2021 10:20AM ctmbsikia wrote:

I have this side affect and funny enough, it did not start until I was well into the 2nd year of taking anastrozole. I'd like to think it's leveling off, or at least I tell myself that. Makes it easier to take. I tried the Biotin supplement and didn't work (except my for nails), I am using Biotin in my shampoo and conditioner. Also try to keep it from getting to long, as fresher hair cuts make it look fuller. It I let my hair go (thanks to covid), it was horrid how long and strung out old mess of a hag I looked like. I just got a cut a few weeks ago, so that's my plan, try and keep going every 8-10 weeks.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Jan 28, 2021 08:14PM Meow0369 wrote:

Hi ladies, I wanted to know if anyone has tried Bioidentical hormones to help with hair loss, I am triple negative and my onc has left it up to me to decide. A second opinion said it's recommended to do so if menopausal symptoms were difficult Needless to say I have been debating this since I had a hysterotomy three years ago. Now that my hair has become extremely thin I'm researching my options. I am looking into hair treatment devices for regrowth. Any suggestions would be great!

Dx 3/1/2016, DCIS/IDC, Both breasts, <1cm, Stage IB, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 4/26/2016 Lumpectomy: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/20/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery

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