Join Us

We are 225,723 members in 83 forums discussing 164,194 topics.

Help with Abbreviations

Topic: Thinning Hair -

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Mar 2, 2016 08:24AM

rozem wrote:

Hello Ladies

Well after 4 years on Tam and 3 of those on Ovarian Suppression (so menopause since the age of 42) I am really starting to notice hair loss/thinning. I first noticed a lot of hair on my brush but now my front hairline is so thin you can see through it. I started Biotin and going to make an appointment with a derm. Apparently you can go on female rogaine? ugh

this is honestly so depressing...losing my boobs wasn't this hard for me. Im going to have to master the comb over soon

any suggestions/input/comments welcome

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2+
Log in to post a reply

Page 13 of 14 (400 results)

Posts 361 - 390 (400 total)

Log in to post a reply

Apr 21, 2019 01:46AM Lisey wrote:

HI Everyone, checking in.  I"m so GLAD to see you guys are seeing results.  Honestly, it fixed so many issues for me, and is so easy to use.  I almost want to start a thread called iRestore just to help people see this and not have to go through pages and pages of despair first.  If I do would you all add your photos and results?  

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/7/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 21, 2019 01:51AM Lisey wrote:

Here is the link... if you could post your feelings on the iRestore over there, it may help others see what a miracle device this thing is.

https://community.breastcancer.org/forum/6/topics/871124?page=1#idx_1


Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/7/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 21, 2019 02:54AM anotherNYCGirl wrote:

Hi All,

I am so jealous of the full heads of hair!!

Today will be 5 months (minus 1 week that I was away) of faithful I Restore use. I never noticed actual 'sprouts', but I do think that my hair is a little better, and my part is a bit less awful. However, it is still not enough for me to be comfortable without my hat or top piece on :(

So my question for all of the I Restore users here is if you think it will help to continue or if I should return it before the 6 months are up?

If I can figure out how to post photos, I will!

Thanks for your thoughts!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
Log in to post a reply

Apr 21, 2019 10:17AM Lisey wrote:

I returned mine only to find my hair falling out again in huge clumps and itching like crazy  a month later....   I had to order another one under my neighbors name I was so embarrassed.  That's just my experience.  Now that I'm using it the last 6 months, may hair is not falling out anymore or itching. 

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/7/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 21, 2019 04:36PM Chemokaze wrote:

Thanks lisey for starting the new irestore thread. I just copied my post from yesterday with my “before” pictures.

10/2018: NEAD; 7/2018: Onward to Verzenio, Zometa, Faslodex, & CyberKnife to single met to L4 spine. Dx 9/1996, IDC, Left, Stage IB, Grade 3, 0/21 nodes, ER+/PR+ Dx 5/2016, IDC, Right, Stage IIIC, Grade 2, 14/21 nodes, ER+/PR+, HER2- Dx 6/2018, Stage IV, metastasized to bone
Log in to post a reply

Apr 22, 2019 02:42PM Pamela23 wrote:

I bought iRestore at Christmas but didn't start until early Feb. I noticed this week that my hairline is actually worsening (only I would know so not severe, but I've been watching this area for a long time). Did it get worse before better for others?


9/15/2016, IDC, Left, 3mm, Stage IA, Grade 3, ER+/PR+, HER2- Dx 9/15/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/5/2016 Lumpectomy: Left Chemotherapy 11/15/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/19/2017
Log in to post a reply

Apr 23, 2019 05:43AM anotherNYCGirl wrote:

I am debating about returning the helmet. I didnt have itching or anything before, and I dont think I see a change in my hairline or quality of my hair. :(

On another note, I received a VERY spooky e mail , supposedly from I Restore! It knows my name and that I have the helmet and claimed to know that I opened the e mail and went on to say scary things , with a picture of some masked man underneath. I closed it quickly and didnt finish reading it. What should I do? =/

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
Log in to post a reply

Apr 23, 2019 05:50AM CaliKelly wrote:

omg! I think you should forward that email to iRestore company! Also if it's not working, get your money back. Others have said the return is simple and money refunded in full. That email cannot be from the company, but forward it to them so they can look into it! That's horrible! I'm sad it didn't help you😕,but at least get your money back!

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Apr 23, 2019 05:54AM CaliKelly wrote:

Pamela, my hair did not get worse but I think they say sometimes that is the case before it gets better, so I'd give it a little more time. If it doesn't start to improve, get your $$ back within 6 months!🤞🤞🤞🤞

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Apr 23, 2019 05:56AM CaliKelly wrote:

Pamela, my hair did not get worse but I think they say sometimes that is the case before it gets better, so I'd give it a little more time. If it doesn't start to improve, get your $ back within 6 months!🤞🤞🤞🤞

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Apr 23, 2019 07:53AM anotherNYCGirl wrote:

Thanks. I'll keep you updated.

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
Log in to post a reply

Apr 24, 2019 07:59AM anotherNYCGirl wrote:

I Restore promptly responded saying "Our management team is currently investigating the matter with the spam emails that have been using our domain name. As long as you do not reply or click any links in the email it should be fine. "

Also, that I can use the helmet for the full 6 months and still have a few days to return it if I opt to.

I am still hoping that I see more/better hair, and want to keep it!!

They are a very nice company to do business with!

Thank you, again, Cali, for your help!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
Log in to post a reply

Apr 24, 2019 08:12AM CaliKelly wrote:

Dear NYC, good news, I'm still hoping you will get some sprouts soon!!! I have noticed the company is very responsive and helpful. Finger crossed!, Keep trying till the last day🤞🤞💕💕

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Jun 30, 2019 02:31AM beloussvetlan wrote:


Hello!

My name is Svetlana. One of my friend recommended me write you about getting an irestore helmet. I had 2 courses of chemo, the last was Taxotere, Perjetta, Herceptine. Now I am on Anastrozol for 5 years. I feel like I’m losing hairs which is the last thing I want. They are getting thinner. I’d love to buy a helmet but it’s expensive. My friend told me you could help with a discount. Could you? My email is svetab7400@yahoo.com. Thank you

Log in to post a reply

Jul 4, 2019 11:14AM Lisey wrote:

HI Svetlana, did CaliKelly get ahold of you? Let me know if she hasn't and I'll try to track her down.

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/7/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jan 7, 2021 10:30AM Springdaisy wrote:

I am starting femara/letrozole this week. I hope I don’t lose my hair but if I do, have you found that it’s just thinning or are there actual spots of hair that are missing? Thanks

Dx 9/2020, ILC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy Radiation Therapy Surgery Lumpectomy: Right
Log in to post a reply

Jan 7, 2021 02:35PM anotherNYCGirl wrote:

Springdaisy, - mine thinned while on femara, - no actual bald spots. It was very gradual. You may be just fine, and not even thin out!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
Log in to post a reply

Jan 27, 2021 03:32AM Ingerp wrote:

Just chiming in because this topic has been on my mind. I've been on anastrozole for almost 2.5 years now and hadn't really noticed any hair impacts but I think now it is thinner. However, I also recently stopped taking Biotin, which I'd taken for years. I doubt there's any direct correlation but I am going back on the Biotin.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/18/2018 Taxol (paclitaxel) Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Radiation Therapy 8/20/2018 Whole-breast: Breast
Log in to post a reply

Jan 27, 2021 04:20AM ctmbsikia wrote:

I have this side affect and funny enough, it did not start until I was well into the 2nd year of taking anastrozole. I'd like to think it's leveling off, or at least I tell myself that. Makes it easier to take. I tried the Biotin supplement and didn't work (except my for nails), I am using Biotin in my shampoo and conditioner. Also try to keep it from getting to long, as fresher hair cuts make it look fuller. It I let my hair go (thanks to covid), it was horrid how long and strung out old mess of a hag I looked like. I just got a cut a few weeks ago, so that's my plan, try and keep going every 8-10 weeks.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
Log in to post a reply

Jan 29, 2021 02:14PM Meow0369 wrote:

Hi ladies, I wanted to know if anyone has tried Bioidentical hormones to help with hair loss, I am triple negative and my onc has left it up to me to decide. A second opinion said it's recommended to do so if menopausal symptoms were difficult Needless to say I have been debating this since I had a hysterotomy three years ago. Now that my hair has become extremely thin I'm researching my options. I am looking into hair treatment devices for regrowth. Any suggestions would be great!

Dx 3/1/2016, DCIS/IDC, Both breasts, <1cm, Stage IB, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 4/26/2016 Lumpectomy: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/20/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery
Log in to post a reply

Sep 13, 2021 07:29AM VmTexas wrote:

I am 72 and had my left breast lumpdectomy and two lymph nodes under my arm removed on December 27, 2018. I went thru 4 chemo treatments and 32 radiation treatments. Lost all my hair 2 weeks after the 2nd chemo. I went on tamoxifen just before starting radiation. My hair started growing back slowly after radiation and actually felt thicker than before. I was so happy. Fatigue was my only side effect on tamoxifen but it kept getting worse. So my oncologist put me on Anastrozole December 2019. She said it was better for post menopausal women to be on an AI. AIs cause your bones to thin and I already had osteoporosis. So I was really concerned. To make my bones stronger she started me on an infusion of Zometa which is done twice a year. Zometa had side effects too including thinning hair. I noticed after several months on the AI and 2 infusions, my hair felt a lot thinner and when I brushed it lots of hair was in my brush. Lost hair when I washed it in the shower. Just putting my fingers thru my hair I lost more hairs. I called my doctor and she suggested taking biotin and trying Nioxin. I tried the biotin. My nails did great but it didn’t affect my hair.

I’m hairdresser told me about It Works! Hair Skin and Nails supplement has lots of good natural ingredients plus biotin. I ordered it on the “It Works!” website. I do think it has helped.

I was on a crusade to save my hair. I decided to change my shampoo to Moroccan Oil shampoo along with their root lifter and their hair thickener. I use just a little of the thickener and the root lifter on the top area. I use Moroccan oil dry shampoo so I only wash my hair twice a week now. I also invested in a 100% pure wild boar soft bristle hair brush from Germany bought thru Amazon and a Blissy pillow case. The brush is so gentle on my fragile hair. It has now been almost 3 months with my new routine and I can actually see the new little hair growth on my head, my part is filling in. The shedding has slowed down a whole lot. It’s going to take a while to get thicker but in the meantime the hair products are helping to give me volume that actually lasts 2-3 days.

My doctor thinks my body has adjusted to the estrogen blocker meds and so hair loss has stabilized. I still deal with side effects of bone pain and fatigue. The fatigue is the worst.

Log in to post a reply

Oct 16, 2021 02:23PM - edited Oct 16, 2021 03:44PM by Olma61

I want to post my experience with the Hairmax laser band so far.

I went bald from taxol in 2017-18. I stopped chemo and went on Anastrozole in mid 2018 and continued on Herceptin and Perjeta.

My hair did begin growing back but the crown and front hairline grew very slowly and came in thin, and my hairline seemed further back than I remembered. My hair was also limp, no curl and very fly away. .I had it cut very short in early 2020 to try to give it a chance to even out and maybe come in thicker.


Well it grew quite a bit but still very thin and flyaway. August 2021 I started using the laser band. I got it for about 400 from the Hairmax company itself on EBay. Supposedly a “refurbished “ unit , it looked brand new to me. Could be they refurbish the returned units...not sure, but this one was pristine and looked new.

So, they say to give it four to six months but I feel like I'm seeing results already, I see a lot of new hair “baby hair" at the hairline, and the rest of my head has a lot more body. Not sure it's actually thicker or more plentiful beyond those baby hairs, but it's definitely less flyaway and looks more voluminous whether or not it actually is. And, easier to manage.

They say something about “waking up" the hair follicles in their ad and my hair does look a little more awake!

I bought their shampoo, conditioner and leave-in in travel size because ai really think it's too pricey. I used the conditioner and the leave-in only once and, they did leave my hair feeling nice and not too heavy and “overconditioned".

I don't take any extra B vitamins or any “hair supplements “ just doing the laser band and I do feel like I'm getting results.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
Log in to post a reply

Oct 17, 2021 12:52AM cm2020 wrote:

Olma61... It is awesome that you are already getting results!! I just bought the iRestore laser helmet and have been using it for just over a week. Like you, my hairline is receding and the hair around my face is thinning quite a bit. My hair texture is very different too and it sounds like the changes you have seen in your hair are what I am experiencing. Mine is fly away, frizzy, just overall a hot mess when it used to be super curly and manageable. I hope that I will see results soon with the laser I am using too.

Dx 3/20/2020, IDC, Right, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC) Dx 4/2/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 4/5/2020 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 4/24/2020 Femara (letrozole) Radiation Therapy 6/10/2020 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Oct 17, 2021 05:17AM Olma61 wrote:

Wish you luck with the iRestore!

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
Log in to post a reply

Oct 17, 2021 06:21AM SerenitySTAT wrote:

I haven't been using my iRestore helmet in at least a year. Not because it wasn't working, but I just got tired of doing it. My crown and hairline did thin.

I've stumbled on to something else that's been working. Earlier this year I had a severe rash on my face that prompted a break in my meds. Along with prescription ointments I used aloe gel from the plant on my face. I barely had eyelashes before, but now they're back. My eyebrows are full, and I seriously need to find my tweezers. My hairline is filling in. It couldn't be the med break because my crown didn't change. So I've started applying an aloe solution on my crown. It helps with the itchiness, and my hair feels better. I've been back on my meds for a couple of months and haven't noticed more hair loss.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Oct 17, 2021 06:53AM cm2020 wrote:

SerenitySTAT....Do you have the specific info on the aloe gel you are using? If you are getting it directly from an aloe plant then I am out of luck! I am throwing any and everything at this hair loss problem.

Dx 3/20/2020, IDC, Right, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC) Dx 4/2/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 4/5/2020 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 4/24/2020 Femara (letrozole) Radiation Therapy 6/10/2020 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Oct 17, 2021 07:03AM SerenitySTAT wrote:

I use the plants. You can buy them from the grocery store. I don't know if it would work with the gel, but I did use store-bought aloe gel on my scalp when bald from chemo. Make sure the gel doesn't contain alcohol. If using the plant, let the yellow latex drain out and rinse the leaf.


"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Oct 17, 2021 07:18AM - edited Oct 17, 2021 07:20AM by Olma61

I'm sure gel direct from the plant is fresher / more potent but as for pure aloe gel that is packaged, I've been using “Fruit of the Earth Pure Aloe Gel" for moisturizer, sun burns, etc ever since I was a teen. It is low priced, huge bottle, and available at chain drugstores as well as some health food stores. I see it on Vitacost.com right now.

Had no idea aloe could help with hair growth, but worth a try. If it gives me back some length in my lashes, I will be forever grateful to Serenity for this tip! I have Fruit of the Earth in my cabinet and I'll try using it first.


ps I tried castor oil on my brows lashes and hair line. Got no results with that, plus bad smel. I like coconut oil for conditioning and protecting but I have to thoroughly wash it after or else my hair gets even more stringy. Doesn’t promote growth but helps protect and prevent breakage.



10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
Log in to post a reply

Oct 17, 2021 07:33AM Olma61 wrote:

now that I look at fruit of the earth again, I see it has a lot of preservatives added. That must be new...and it also says avoid contact with eyes.

Here’s a food grade aloe gel on Vitacost with better ingredients. But citric acid seems like a badthing for the eyes too.


.https://www.vitacost.com/real-aloe-inc-aloe-vera-gel

Maybe finding the leaves in the produce aisle is the best thing


10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
Log in to post a reply

Oct 17, 2021 07:54AM SerenitySTAT wrote:

The leaves that are sold in the produce aisle are ok, but I worry about keeping it fresh once at home.

I cut a small piece from a leaf on my plant. Drain and rinse it. Then I scoop out the gel and apply to my face. I have several plants now.

I hope it works for you. I was surprised when I noticed all the new growth in my lashes and eyebrows. Hope my aloe spray works on my scalp.


"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva

Page 13 of 14 (400 results)