Jul 10, 2019 01:22PM notdefined wrote:
HappyAnyway-I think I feel worse because I let myself be a couch potato. I am going to try an experiment next week and give myself a list of things I must do each day to see if it makes me feel less fatigue and neuropathy. I took today off work, so trying to regroup.
I feel so guilty for not having something planned for the kids. They didn't go to any summer camps, and have just been at home. They have had several playdates which is good, but that only covers so much of their free time. I have been ordering my groceries online and having them delivered, so they don't even get the exciting grocery store trip! I just keep hoping that I am able to beat this, put it behind me, and that the kids don't remember much of it.
ByUmom2-You are more than half way through! I hope the next few weeks fly by for you. It is so interesting how our treatments are slightly different. I only had to take the steroids for Taxol #1 and 2. Once the nurses saw that I didn't have a reaction, they said I no longer needed the steroids. Things really felt like they went faster after the half way point for me.
If there is a silver lining in all this, it is that it has given me 1 on 1 time with my sister and mom. They have been alternating taking me to my appointments. I haven't been needing to bring anything to make the time pass by, because we use the time to catch up. It is one of my silver linings. :)