Regimens, side effects, and support from others going through chemo.
Posted on: Jan 13, 2019 11:41AM - edited Mar 10, 2019 03:04PM by Mncteach
Hi all! Haven't seen a thread started yet for chemo starting in February. I actually start in January but January 31st so basically starting in February.
January 31- Mncteach AC 4x, Taxol 4x
February 1- Rozzy- Carboplatin and Taxotere 4x
Amf5484- TCHP for 6 rounds every 3 weeks, then Herceptin and Perjeta for the remainder of a year
PennyK- 12 weeks of Taxol and Herceptin, then Herceptin every three weeks to finish off a year
February 5 - Luckd -4x TCy
SamRuns- Carboplatin and Taxotere
Hazelhappy-AC 4x and Taxol 12
Boogirl- Taxol x12 , Herceptin
February 6- IdRatherbeBoatin- TCHP
February 7- jktampa- AC 4x, Taxol 4x
Roflute- AC 4x, Taxol 4x
February 8- Titsup - AC and T
February 12- Starbite711
February 14- notdefined- AC
February 18- LuluH- TCHPx6
February 19- Gonnabeatthis- TCHP x6
February 21- not giving up - carboplatin 4x
February 22- lets_do_this- Carboplatin and Taxol 12x
February 26- CSRoberts- Cytoxin and Taxoter
February 28- Toni S.- Cyclophosphamide and Taxotere
Hope012119- Acx4 Tx4
Addybear- ACx4 Taxol
KitKat8074- 12 Taxol, AC
Posts 1 - 30 (488 total)
Jan 31, 2019 02:07PM luckd wrote:
Hello! My first treatment is February 5, 2019. 4x TCy.
Jan 31, 2019 02:32PM - edited Feb 1, 2019 06:05AM by Mncteach
Welcome! Sorry you are here, but hope we can all support each other thru this time.
Just had my first treatment. Cried when they started bringing out all the stuff, but overall it went pretty smoothly. I did have a blood pressure drop at the end and got to stay an extra half hour to get more saline! Everyone was great and talked me through every step.
Jan 31, 2019 06:56PM jktampa wrote:
Hi, I have been reading all of the posts since being diagnosed in December. This is my first post. I am so happy to have found this community. I had a lumpectomy 1/14/19 and I am going back 2/4/19 for more surgery to get clearer margins. I will also be getting a port installed and starting chemo 2/7/19. I will be on 4 rounds each of AC & Taxol and then radiation.
Jan 31, 2019 07:18PM Mncteach wrote:
Welcome jktampa- sorry you have to join us but happy you found us! I too have found this site a wealth of information. I’ll add you to the list at the top.
Jan 31, 2019 09:25PM Moderators wrote:
Welcome, jktampa! You've come to the right place for support. Best of luck with your upcoming surgery and treatment, we're here for you every step of the way!
Feb 1, 2019 01:33AM Amf5484 wrote:
Hieveryone, I’ve been reading tons of helpful advice on this website since being diagnosed. My chemo starts tomorrow February 1st (originally planned for last week but delayed due to a liver biopsy which was found to be benign yay!) I am gonng to be doing TCHP for 6 rounds every 3 weeks, then Herceptin and Perjeta for the remainder of a year.
Feb 1, 2019 05:35AM Mncteach wrote:
Welcome to our group amf5484. I see you are from New Hampshire so not too far from me! Are you enjoying the horrid up and down weather! I hope today goes well for you and Rozzy.
I am not suffering from anything horrible today. Am doing anti nausea meds as I had a bit of an upset tummy last night. Also got up in night for some antacids. Hydrating drank a measured 84 ounces plus some other drinks! Here’s to minimal SE
Feb 1, 2019 05:55AM PennyK wrote:
I’m starting in just a couple of hours. 12 weeks of Taxol and Herceptin, then Herceptin every three weeks to finish off a year. I’ve bitten the bullet and decided to use the Dignicap. It adds 90 min to the time I have to be at the infusion center. I hope it’s worth it.
Feb 1, 2019 06:05AM Mncteach wrote:
Welcome PennyK and I hope everything goes well for you today
Feb 1, 2019 07:54AM Lets_do_this wrote:
PennyK - interested to hear how the weekly Taxol goes. I start the same 12 wk Taxol regimen but with Carboplatin every 3 weeks on 2/22. Wondering how it will affect my work schedule.
Feb 1, 2019 07:58AM Mncteach wrote:
Lets do This-- Great name! There is a great topic called Tiffany's Terrific Tips for TC chemo (or something similar) It was a great resource!! Glad you found us, sorry you are here. I am at work right now, but only planning on half day (started chemo yesterday). Don't feel great, but am trying.
Feb 1, 2019 06:29PM Hazelhappy wrote:
Hi, I'm glad to be joining this group. Looking forward to getting started and being done! I start 4 rounds of AC on Feb. 5 and 12 weekly Taxol. Positive thoughts to all of you!
Feb 1, 2019 08:07PM Amf5484 wrote:
Happy Friday everyone. Just got home from my first infusion of TCHP. What a long day. They also used my port for the first time since having it put in which was weird but not as bad as I thought. They did prescribe me lidocaine to put on the port about an hour before going in that way I won’t feel a thing. Figured why not give it a try. Nervous to see what my body has in store for me the next few days. Also I’ve read to stay on top of the anti nausea meds, should I take one before bed even though I feel ok? Thank you!
Feb 1, 2019 08:43PM Mncteach wrote:
I felt off so I took one before bed, but I’m also on different chemo, have heard of people doing it both ways. Glad things went well, my port was left accessed (was put in one day before chemo) but don’t have lidocaine for next time, we’ll see how that goes!
Feb 1, 2019 08:46PM Mncteach wrote:
Welcom Hazelhappy, sorry you are here but glad you found us. We are on similar regime so it will be interesting going through this together. No BRCA gene for me, but also triple negative. Hope everyone is doing ok
Feb 2, 2019 08:03AM - edited Feb 2, 2019 08:06AM by PennyK
Thank you all for the good wishes. Treatment today went fine. They gave me steroids and Benadryl orally and Pepcid by IV as my pre-meds. They told me the steroid would make me an insomniac the first couple of nights so they prescribed an anti-anxiety medication. I didn't fill it yet though and didn't sleep at all last night. My stomach has been burning all night. My face is hot and red this morning. I'm wondering if I'm having an allergic reaction
Also, the lidocaine cream on the port worked amazingly well. Didn’t feel a thing.
The Dignicap was very painful at first. Something in the meds made me need to pee frequently so they had to disconnect the cap a few times. I hope it didn’t hurt the effectiveness too much.
Feb 2, 2019 10:29AM santabarbarian wrote:
Hopping in from the August chemo group to tout the benefits of a brief fast or semi-fast alongside chemo to make the SEs a lot less intense. Fasting tells your healthy cells to go quiescent, and save energy, while also stressing your cancer cells and making them vulnerable. Your chemo day is in the middle of the fast. If doing fasting mimicking, you start 2 days before chemo day for 5 days, and if doing a water-only fast you go for 3 days w chemo day in the middle.
As the fast ends, and your appetite returns, you rebuild by eating nutrient dense foods. During the worst of your digestive system shutting down you basically have very little food in there so it is not uncomfortable.
This fasting plan was developed by a doctor -- Valter Longo at USC. You can look up info on google and youtube. Basically the fasting mimicking is 1,100 cals on day one, and 800 cals per day thereafter. You can eat about 100 cals of protein per day (egg, nuts, meat, etc) and the rest of the calories 50/50, above ground veggies and healthy fats (avocado, cocoanut oil, etc). Unlimited water, tea, bone broth.
There are other posts on this site about it. For me, it was the single biggest help to chemo side effects. My chemos actually got easier not harder as I got better at timing my fast. And I had a superb response to chemo. I think the cancer-killing assist of the fasting might have been important to me as I had a bad cancer (TNBC). But also the protection to healthy cells seems to have worked. I had no fingernail, skin, or mouth issues. Just fatigue.
I also applied heat to my palpable tumor and lymph node - several times per week, an hour+ each time, with a very hot hot water bottle - as heat also stresses/kills cancer cells and spares healthy cells. My boob is still pinkish from the mild burns I got applying all that heat. But I talked to a hyperthermia specialist who said that I surely did myself good by doing this. Again my tumor was easy to feel and near the surface where the heat could penetrate.
Last, exercise. It's counter intuitive but taking a walk when you feel like crap will make you feel a lot less crappy, faster. The integrative MD I consulted with emphasized how important it is for your lean muscle tissue and your heart to be in "building" mode not giving up mode. Your body should think you are in training. He proposed interval training which only takes 18 mins: 3 mins of 30 second intervals, alternating high intensity and moderate intensity (can be jog, bike, elliptical, etc), then a 3 minute rest. Do this three times total.
Feb 3, 2019 01:50AM WC3 wrote:
Dexamethasone (the steroids) withdrawal made my face turn red. It also made the back of my throat and esophagus tender.
Feb 3, 2019 04:27PM - edited Feb 3, 2019 04:27PM by roflute
Hello everyone! There is so much information on this site. A great resource. My first treatment will be Thursday, the 7th. Hoping the side effects won't be so terrible. I'm scheduled for 4 months of chemo every 2 weeks. The first half AC and then Taxol for the second half. After that will be surgery and then radiation. Good luck to all on this journey.
Feb 5, 2019 10:48PM - edited Feb 6, 2019 12:30AM by IdRatherBeBoatin
Hello new friends, thank you for offering up such helpful experiences. It is comforting knowing I am not alone in this journey! I am starting chemo tomorrow, Feb 6th. I am on the quad cocktail of TCHP and excited to get started so I can get finished! I found my tumor myself, have not reached the baseline MMG screening mark of my life yet. I'm ER/PR- and HER2+. I'm doing neoadjuvent treatment before surgery. I'm a medical provider myself, but boy am I a novice in the field of Oncology. I welcome and enjoy hearing about others experiences and any tips and tricks your can share. I will do the same to others.
Let the journey begin!!
Feb 6, 2019 06:19AM Mncteach wrote:
welcome boatin... sorry you had to join us but glad you found us. I hope all goes well for you tomorrow
Feb 6, 2019 10:46PM Glittertits wrote:
Hi all! I started TCHP on 2/5/19 with 10mg dex, 60mg benedryl and zofran I.V. as pre meds.
Last night I felt like I was on the front end of an epic hang over. You know, the “oooof mistakes were made why did I do that last shot” feeling? Yeah, that. I was dizzy and nauseous and then fell asleep.
Today, February 6, I’m exhausted. I’ve been off my RA meds so maybe that’s why the fatigue is so bad but I took a 5 hour nap and I’m still just....ugh.
I keep reading that side effects with this regimen can be staggered so I’m curious about what to expect
Feb 7, 2019 04:44PM Mncteach wrote:
Welcome Glittertits, love the name! I am not having same chemo so can’t shed a lot of light on SE. I hope we can help and support you and glad you found our little group
Feb 7, 2019 08:26PM Toni_S wrote:
Starting chemo Feb 28, for recurrence of lobular cancer in one lymph node in my axilla. Cyclophosphamide and Taxotere. Not looking forward to it but trying to focus on getting through it and getting treatment behind me. I'm hoping the side effects will not be too severe and am encouraged by a friend who has just been through it and was actually able to continue working throughout most of her chemo treatments. Curious if others are also getting Neulasta and whether they are tolerating it well, without the bone pain that is common.
Good to have a place to come for support and information, I thank all of the ladies here in advance for helping me through this!
Feb 7, 2019 10:11PM IdRatherBeBoatin wrote:
Hey Glitzy :)
I'm in the same boat. I started THCP Weds Feb 6th. I have been feeling great 24 hours post, but still have the pre-meds and taking oral Dexamethasone for another day. I suspect this is keeping my side effects supressed. Treadmill fast walk for an hour today :)
I'll update you over the weekend. Hang in there!
You are NOT ALONE!!
Feb 7, 2019 10:14PM - edited Feb 7, 2019 10:17PM by Lets_do_this
I’m also facing recurrent breast cancer. I was 11.5 years out when my mammogram showed a local recurrence in November. My mastectomy was 3.5 weeks ago and chemo starts for me on 2/22. I, too, hope that I will be able to work during my upcoming treatment. I did do neulasta back in 2007 and the bone pain was tough, but if I recall, it didn't last too long...aybe a day(?)
Feb 8, 2019 06:03AM Mncteach wrote:
Toni S-I am doing the Neulasta. Minor ache but nothing major by taking Claritin and Tylenol. Hope everything goes well for you!
Feb 8, 2019 06:42AM - edited Feb 8, 2019 06:43AM by Toni_S
Let’s-do -this,Recurrence has been more difficult for me to deal with than my original diagnosis. You must be particularly hit hard after 11 years. But one step at a time, we'll get through this!