Topic: Starting Radiation October 2019

Forum: Radiation Therapy - Before, During, and After — What to expect from treatment and ways to cope with side effects.

Posted on: Sep 30, 2019 07:08PM

Posted on: Sep 30, 2019 07:08PM

kamboka wrote:

Is anyone else starting radiation in October? I was supposed to start today but it took them so long to do the x-rays and more markings that they mercifully postponed the treatment until tomorrow--which is October. I will be having 30 treatments over six weeks.

Dx 1/4/2019, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/7 nodes, ER+/PR+, HER2-, FISHISHCISH Chemotherapy 3/15/2019 AC + T (Taxol) Surgery 7/8/2019 Lumpectomy; Lumpectomy (Left); Lymph node removal Dx 7/9/2019, DCIS, Left, Stage 0, Grade 3 Surgery 7/23/2019 Lumpectomy; Lymph node removal Radiation Therapy 10/2/2019 Whole breast: Breast, Lymph nodes Hormonal Therapy 11/22/2019 Arimidex (anastrozole), Femara (letrozole)
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Sep 7, 2022 07:29PM mocame wrote:

Petite - That sounds awful! I can't imagine how tired you were. I know we have staff that stay over at work for 24-48 hours if we have a big snowstorm of something. If there is a storm coming, they tell them to pack clothes and stuff for a day or two.

Kamboka - Welcome home! You are just getting back from overseas and now a cross country trip?! Wow.

Also, is this the first time you had Reclast? Have you heard about any good or bad things about it? The reason I am asking is because I just saw my oncologist today and she wants to switch me to something else. I've been taking Prolia for almost 3 years and have no side effects from it and my osteopenia has been stable for the past 2 years. In August I had went to the dentist because my teeth were bothering me for a few days and they saw a shadow of a cavity and want to fix it and put some crowns on 2 other teeth as preventative. About four times in the past month, I have experienced tingling or numbness in my face around my mouth and my oncologist seemed to indicate it may be from the Prolia. I never heard of that before. She mentioned putting me on either Fosamax or Reclast. Fosamax causes acid reflux in a lot of people so I probably can't take that (I already get acid reflux) and I just read that you shouldn't take a water pill (I take every day) and have Reclast too because of possible kidney damage since they both can affect the kidneys. I'm not sure what to do but I need to do it within the next couple of weeks.

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/6/2019 Whole breast: Breast Hormonal Therapy 11/28/2019 Zoladex (goserelin) Hormonal Therapy 12/5/2019 Arimidex (anastrozole)
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Sep 7, 2022 07:41PM kamboka wrote:

I'm all packed and ready to go at 6:15 but I still don't have confirmation from Uber that someone will be here. That is stressful. I hope I don't have to do an emergency 'drive myself' to the airport and pay for three weeks of parking. I'm tired already as I've been busy trying to regroup from being away so long, changing projects at work so I have to end one contract and start another and the paperwork for both need to be done this month. Anyways, I'm hoping to have fun. I will have some problems staying awake late. I'm adjusting to my five hour time difference from Africa and now I'll have to go to mountain time which makes it seven hours. I'll be ready for bed by 2pm. :)

mocame: I had the Reclast last Friday and luckily did not have any immediate reactions. They say you can have a flu-like response. One thing that I have noticed is that I'm having hot flashes. I am taking Celexa to stop them and it usually works but not in the last few days. I really hope this will pass. It's not fun when I'm working overseas and it's hot to start having hot flashes as well. I think this drug can also cause jaw necrosis but I'm hoping for the best.

I went to the pain clinic today wanting them to try the new capsaicin 8% patch on my foot neuropathy. The PA said that he would research and let me know if he can find a doc to give it to me. I think my feet are getting worse.

Dx 1/4/2019, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/7 nodes, ER+/PR+, HER2-, FISHISHCISH Chemotherapy 3/15/2019 AC + T (Taxol) Surgery 7/8/2019 Lumpectomy; Lumpectomy (Left); Lymph node removal Dx 7/9/2019, DCIS, Left, Stage 0, Grade 3 Surgery 7/23/2019 Lumpectomy; Lymph node removal Radiation Therapy 10/2/2019 Whole breast: Breast, Lymph nodes Hormonal Therapy 11/22/2019 Arimidex (anastrozole), Femara (letrozole)
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Sep 8, 2022 05:31AM petite1 wrote:

mocame, Since I have been on Prolia 1 week, my back has been bothering me. I am not sure if it is the Prolia or I did something to injure myself. It was better yesterday, but woke me up at 4:00 this morning. Hopefully it goes away soon.

Storm alert this morning. I hear thunder in the distance and radar shows a storm rolling in off the gulf.

petite Dx 8/23/2019, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR-, HER2- Radiation Therapy 10/20/2019 Whole breast: Breast Hormonal Therapy 12/19/2019 Arimidex (anastrozole)
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Sep 8, 2022 04:53PM mocame wrote:

Petite - I hope your back feels better soon and that it's not from the Prolia.

Kamboka - I hope you got off on your trip on time and everything is going well!

I went to the dentist today to get my cavity taken care of. I asked her a lot of questions about these medications we are all on and how they affect our teeth. She said these meds will last in our system for a long time. I asked her how long after going off the meds would they be comfortable doing an extraction or more advanced dental care. She used the example of me. I am on Prolia almost 3 years. If I went off of it right now, I would have to be off of it for 9 years before I would be able to have a tooth extraction! If I was on it for 5 years, it would be 15 years before they would be able to do it!! That's crazy! My dentist does root canals and even extractions, but she said she won't touch anyone that is on those drugs and needs an extraction. She said she has an older lady that was on those meds and had an extraction and it's been tough trying to get it to heal. The dentist also said that the IV meds are a lot worse than the oral meds, so that was good to know too. I wish the doctors would tell you that stuff. So scary. I would consider weaning off of the Prolia and any of these meds and try and combat my bones with diet and weight bearing exercise. The dentist even mentioned doing those. My diet is pretty good now that I'm about 80% whole foods plant based and my lab work came back yesterday and everything is in great shape.

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/6/2019 Whole breast: Breast Hormonal Therapy 11/28/2019 Zoladex (goserelin) Hormonal Therapy 12/5/2019 Arimidex (anastrozole)
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Sep 13, 2022 10:59AM petite1 wrote:

mocame, My MO said the dentist would have to wait to do any dental work until the end of the 6 month time frame. I wish this doctors would all have the same information. My back is healing, I think it was muscle related. I had increased my exercise program to Silversneakers classic B. I was doing A. I think it may have been too much for me. I also had cleaned the 6 French doors and all the windows leading to the lanai. Also too much for me. I have started doing some walking and slow exercises. (I made them up). Now my varicose veins are acting up. I wonder if Prolia has anything to do with that.

One of my long term renters moved out. He lived there for 6 years, long enough to get married, have a child and get divorced. Now he is moving out to the woods in a tiny house off the grid. It has solar with back up generators, composting toilet, well water and rain barrels. Unfortunately, he left a giant mess and we want to sell. We had thought we would do HG, but the cost was greater than the house. So we are doing just basics, so someone could move right in and anything extra, it is on the new buyer.

I have more labs tomorrow. I never did get the final results on my mamo & ultrasound, but I guess that is a good thing.

Ebay sales are still going, but not as high. I think it will pick up next month and November is usually my best month.

petite Dx 8/23/2019, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR-, HER2- Radiation Therapy 10/20/2019 Whole breast: Breast Hormonal Therapy 12/19/2019 Arimidex (anastrozole)
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Sep 16, 2022 04:13AM mocame wrote:

Petite - How did your labs go? My ebay sales have been okay but not great.

My MO said she doesn't agree with the dentist about how bad the side effects are from Prolia and the other drugs. She said that isn't what she is seeing/hearing from her patients. That was good news. She is referring me to the osteoporosis clinic in the hospital talk to and figure out my new meds. She wants me on the new meds to wean off the Prolia and take a year break. I plan on continuing to eat plant based and exercise but also start including more weight bearing exercises for my bones too.

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/6/2019 Whole breast: Breast Hormonal Therapy 11/28/2019 Zoladex (goserelin) Hormonal Therapy 12/5/2019 Arimidex (anastrozole)
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Sep 16, 2022 08:07AM petite1 wrote:

mocame, I found a video on YouTube for bone density exercises. I am dealing with a no-pay ebay person. I will give them a couple more days. My labs from this week showed my thyroid low and BUN low. Thyroid has been a problem most of my life.

My veins have been bothering me for over a week. The compression hose help the ones on my legs, but I have one behind my knee and a very uncomfortable one on my ankle. I went to a cardiovascular surgeon before BC and had 2 ablation procedures done. I guess I have to get a referral to go back. The compression hose wrinkle over the ankle and hurt the vein and my walking shoes bother it. Plus jeggings bother it.

petite Dx 8/23/2019, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR-, HER2- Radiation Therapy 10/20/2019 Whole breast: Breast Hormonal Therapy 12/19/2019 Arimidex (anastrozole)
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Sep 16, 2022 09:15PM kamboka wrote:

Just doing a quick check in. Things are going well with the road trip. I think we are on day 9. This country is so beautiful. Tonight we are in our first local hotel. It's a log cabin. We head to Yellowstone tomorrow for the day only and then the next day down to Jackson Hole.

I'm trying not to think of all the thinks I need to be doing in preparation for my contract change at the end of this month and the new job immediately afterwards.

Dx 1/4/2019, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/7 nodes, ER+/PR+, HER2-, FISHISHCISH Chemotherapy 3/15/2019 AC + T (Taxol) Surgery 7/8/2019 Lumpectomy; Lumpectomy (Left); Lymph node removal Dx 7/9/2019, DCIS, Left, Stage 0, Grade 3 Surgery 7/23/2019 Lumpectomy; Lymph node removal Radiation Therapy 10/2/2019 Whole breast: Breast, Lymph nodes Hormonal Therapy 11/22/2019 Arimidex (anastrozole), Femara (letrozole)
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Sep 21, 2022 06:38AM petite1 wrote:

Kamboka, Good to hear from you. My husband was just talking about Jackson Hole. He says it is beautiful up there. Stay safe and enjoy your trip.

petite Dx 8/23/2019, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/7 nodes, ER+/PR-, HER2- Radiation Therapy 10/20/2019 Whole breast: Breast Hormonal Therapy 12/19/2019 Arimidex (anastrozole)
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Sep 21, 2022 06:51PM mocame wrote:

Kamboka - My sister-in-law just got back last night from traveling out there. She loved it! I'm glad you are having a great trip!

Petite - I hope you got the no-pay ebayer straightened out. No fun. I've been selling a few things a week. I need to get stuff out of my life so I'm not so stressed out. I'm donating a bunch of my inventory and offering some of my listngs with big discounts.

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/6/2019 Whole breast: Breast Hormonal Therapy 11/28/2019 Zoladex (goserelin) Hormonal Therapy 12/5/2019 Arimidex (anastrozole)

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