Topic: Bottle 'o Tamoxifen

Forum: Hormonal Therapy - Before, During, and After — This is a safe place to share your experiences of others considering or on hormonal treatment.

Posted on: Nov 26, 2007 03:02PM - edited Nov 15, 2017 01:59PM by moderators

Posted on: Nov 26, 2007 03:02PM - edited Nov 15, 2017 01:59PM by moderators

ashaby wrote:

Dear All, (and Layne are you there?)

Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha

Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits, Side Effects and More

Dx 4/4/2007, DCIS, 6cm+, Stage 0, Grade 2, 0/0 nodes, ER+/PR-, HER2-
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Dec 2, 2007 05:16PM - edited Dec 2, 2007 05:17PM by nativemainer

I started tamoxifen in October.   I didn't have chemo(refused it), so any SE I develop will be from the tamoxifen.  So far, no SE.  NONE.  I do also take prozac and neurontin (prozac for years, neurontin for LE pain) both of which have been used for tamox SE, so maybe any SE are just being masked.  But I'm really, really scared the tamox isn't doing anything for me.  I'm even more scared of changing from prozac to another antidepressant since I went through so many to find one that works. i've already decided that if I have to chose between treating the bc and treating the depression, I'll treat the depression.  I see my onc early Jan and will find out about CYP2D6 and/or endoxifen level testing.  To answer someone's question, the tumor removed was classified stage 2, and I will be seeing the onc every 3 months. 

"I have come to believe that caring for myself is not self indulgent. Caring for myself is an act of survival." Audre Lorde Dx 3/9/2007, IDC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/15/2007 Lumpectomy; Lumpectomy (Right) Surgery 3/29/2007 Lumpectomy; Lumpectomy (Left) Radiation Therapy 4/10/2007 Breast Hormonal Therapy 10/5/2007 Hormonal Therapy 4/25/2008 Arimidex (anastrozole) Surgery 8/15/2008 Mastectomy; Mastectomy (Left) Surgery 6/21/2010 Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
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Dec 2, 2007 06:35PM jackiebrown wrote:

I have had achiness in my body too, went for a long walk yesterday and it seemed to improve, not sure if it's just a coincidence though.

Hot flashes/flushes so far are easier than they were during chemo.

I've been on tamox for 2 weeks now, is this enough time for symptoms to present?

Jacki - I'm in England too!!

x Jackie

Dx 5/29/2007, IDC, 2cm, Stage IIA, Grade 3, 2/8 nodes, ER+/PR+, HER2-
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Dec 2, 2007 06:45PM awb wrote:

Jackie--I do remember a horrible yeast infection within the first month on tamoxifen, but it never happened again.  I didn't really notice any hot flashes or insomnia for about 2 or 3 months and they were both really mild.  I had to have a total hysterectomy a few years ago, so now my oncologist feels that any SEs I have (alot of achiness) are more due to the loss of estrogen from not having any ovaries, but my gyn and pcp fel it is from the combination of the 2 (I tend to agree, it only makes sense).

"I don't know what the future holds, but I know who holds the future" Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes Surgery 9/16/2003 Lumpectomy: Right Hormonal Therapy 10/30/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/5/2005 Prophylactic ovary removal Hormonal Therapy 2/28/2009 Evista (raloxifene)
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Dec 2, 2007 06:47PM hlg2314 wrote:

Hello Everyone,

Can I join the train too?  I have been on the Tamox since May. I have to say that I gained a lot at first but I am on a water pill so I have maintained.  My OC said that I do have to exercise.  So I will be turning a new leaf at the first of year.  I never heard anything about losing weight though.  But, hey you never know.  Everyone is different.  I will have to say the hot flashes were awful.  But he put me on Effexor and that worked.  Other then that not too bad.  I did have a period though so he started me on the Zoladex shot too.

Other then that I will be on the train for 4.5 years.

WOOHOO!!!!

XOXO

Heather

Heather Dx 10/27/2006, DCIS, 1cm, Stage II, 1/17 nodes, ER+/PR-, HER2+
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Dec 2, 2007 06:49PM jackiebrown wrote:

Thanks awb, my symptoms so far have been really mild and I hope it continues this way. Achiness has been the worst of it but maybe that's left over from chemo too.

Dx 5/29/2007, IDC, 2cm, Stage IIA, Grade 3, 2/8 nodes, ER+/PR+, HER2-
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Dec 2, 2007 07:14PM honeygirl wrote:

Hi ladies , Heather , Jacki and Jackie , lovely to meet you. I think there is a connection between achey joints and tamox. I notice it too. Oh Jacki , I know what you mean about ripping you top off. I have taken off my nightgown when they hit , and after its over , I couldn't find my ng and I was cold!lol I'm on effexor too. I am still getting some , but not as bad. Well girls have a great evening.xxx Melody

Dx 2/20/2007, IDC, 2cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Dec 2, 2007 07:21PM Cynthia1962 wrote:

Harley - yes, I'm having achiness, but I had it before I started the Tamoxifen so it could still be from chemo.  My fingers are stiff and achy at night, but get better during the day.  I do think I may be developing insomnia, but I'm not sure if it's the Toprol or the Tamoxifen.  I'm leaning toward the Toprol because it was right around then that it started.  I'm having more of the RLS, too. 

Anyone feeling fatigue that they think is due to the Tamoxifen?  I just don't know what to attribute it to.  I seriously want to stop taking the Toprol, because I just don't know what side effects it's causing, but I suspect it's the insomnia and RLS.

Take care everyone and welcome aboard all our newcomers!

Cynthia 

Mets to bones Dx 1/3/2007, IDC, 2cm, Stage IIIA, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 2/16/2007 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 3/19/2007 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 9/6/2007 Breast, Lymph nodes Hormonal Therapy 11/9/2007 Hormonal Therapy 11/1/2010 Arimidex (anastrozole) Dx 11/11/2010, IDC, Stage IV, ER+/PR+, HER2- Chemotherapy 6/1/2012 Xeloda (capecitabine) Chemotherapy 11/14/2012 Navelbine (vinorelbine)
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Dec 2, 2007 07:23PM - edited Dec 2, 2007 07:25PM by jackiebrown

Hi Melody, I find I sleep with a pile of clothes under my pillow so I can strip/add when needed, also easy to find there! I always have my knit cap and socks handy. Also, during chemo I used to carry a paper fan in my bag when I went out and it really helped cool me off. It was a fabulous red paper one, may have looked a bit eccentric but really did the trick. Hot flashes for me now are milder, it may help that the weather is colder! I can't seem to get rid of achy ankles though ...
xJackie

Dx 5/29/2007, IDC, 2cm, Stage IIA, Grade 3, 2/8 nodes, ER+/PR+, HER2-
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Dec 2, 2007 07:25PM honeygirl wrote:

Hi Cynthia , you know , about a month after my last tx of chemo , my energy level was back as good as new. But after I started tamox. I noticed I felt fatigued. Its not real bad , but not as energenic as I was. Is fatigue listed as a SE?

Dx 2/20/2007, IDC, 2cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Dec 2, 2007 08:16PM Cynthia1962 wrote:

Honeygirl - yes, fatigue is listed as a side effect, but I don't think it's one of the more common ones.  Like you, my fatigue isn't bad, but it's enough that I'm spending more time sitting on the couch than I'd like.

Cynthia 

Mets to bones Dx 1/3/2007, IDC, 2cm, Stage IIIA, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 2/16/2007 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 3/19/2007 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 9/6/2007 Breast, Lymph nodes Hormonal Therapy 11/9/2007 Hormonal Therapy 11/1/2010 Arimidex (anastrozole) Dx 11/11/2010, IDC, Stage IV, ER+/PR+, HER2- Chemotherapy 6/1/2012 Xeloda (capecitabine) Chemotherapy 11/14/2012 Navelbine (vinorelbine)

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