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Sep 7, 2019 12:33PM
Sep 7, 2019 01:23PM
Pink, have you recently had or will you soon have a CT/bone scan? If your pain is from metastasis, it will show up on a scan. If you aren't scheduled for a scan, I would insist your MO order them to ease your mind. If the scans are clear, then you'll know the pain you're feeling is most likely a side effect from the Exemestane.
Janis, I feel for you and the pain you're experiencing. I was on Anastrozole first for seven months until I could no longer stand the joint pain it caused me and nothing seemed to help. I managed 17 mos. with Letrozole before switching to Exemestane. It is expensive, but after 19 mos. I'm doing the best on it. I don't know, but I wonder if there is a co-pay card with the drug company that manufactures Exemestance or if that kind of thing is only available for the brand name Aromasin? I need to investigate that for myself. Anyone else know?
Edited: I actually just checked into this and a savings card is available for Aromasin: https://www.aromasin.com/savings if in the U.S. whether you have insurance or not. I thought Exemestane was a generic of Aromasin, but in researching this, I now find that Aromasin Is Exemestane and not a generic I guess if manufactured by Pfizer. So, I'm guessing Exemestane is the chemical name of the brand Aromasin, but mine is manufactured by Cipla and is a generic. I think this copay card is only usable for brand name Aromasin. My generic is $396, so I can't imagine what Aromasin brand costs! I need to talk with my pharmacy about all this to better understand.
Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver.
6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH)
6/30/2015, Stage IV, metastasized to bone
12/16/2015 External: Bone
2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left
5/9/2016 External: Lymph nodes, Chest wall
2/1/2018 Aromasin (exemestane)
4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)