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Topic: Life on aromasin

Forum: Hormonal Therapy - Before, During, and After —

Hormonal therapy medicines can be used to lower the risk of early-stage hormone-receptor-positive breast cancer from coming back, shrink or slow the growth of advanced-stage or metastatic hormone-receptor-positive breast cancers, and lower the risk of developing breast cancer in certain women who are at high risk. They work by lowering the amount of estrogen in the body or by blocking the effect of estrogen on breast cancer cells.

There are several hormonal therapy medicines, including, tamoxifen (Nolvadex, Soltamox), Arimidex (anastrozole), Aromasin (exemestane), and Femara (letrozole).

Hormonal therapy is usually prescribed for multiple years. Common side effects include hot flashes, joint pain, fatigue, and bone thinning.

Note: This is a safe place to share YOUR experience, not to be influenced or influence others. Please contact your doctor about any questions or concerns you may have if you are currently taking hormonal therapy.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Mar 6, 2012 08:31PM - edited Nov 15, 2017 01:03PM by Moderators

rayofsun wrote:

Just starting aromasin after being on tamoxifen for 1.5 years. I am also on effexor so did not experience hot flashes with tamoxifen and my other side effects were mild. Am curious how others have done on Aromasin.

Thanks ray

Edited by Mods to add content from our main Breastcancer.org site on Aromasin: Benefits, Side Effects and More

brca neg.SNB 10/09, bilateral mastectomy 4/10. DIEP , ooph and tubes removed 1/5.11.. started breast cancer vaccine study for her2 positive at hopkins on feb 2011. Dx 9/30/2009, IDC, 6cm+, Stage IIIC, Grade 2, 1/25 nodes, ER+/PR-, HER2+
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Sep 7, 2019 02:07AM - edited Sep 7, 2019 09:37AM by Pinkpinkturk

my back pain is too much. Herceptin ran out last May. I have been using Aromasin for 1 year. Side effects include back pain. I was in control last June and everything was fine. I am worried.

Age : 38

Surgery : 05/30/2017 low grade dcis lumpectomy

Hormon therapy: tamoksifen , not radiation

Age :39

Surgery : 02/14/2018 Mastectomy , IDC 5mm and DCIS 1,5 Cm . stage1a ,grade2 er/pr+ her2 positive node and margins are clear . Ki67 %30

Chemoterapy : 4AC + 4TAKSOL with herceptin

Hormon terapy : Aromasin

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Sep 7, 2019 02:23AM Murfy wrote:

Hi Capecod! I will occasionally 1/2 dose or not take until shoulder/back pain subsides. It works! When I go back on med, that particular pain rarely returns.

Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/14/2017 Mastectomy: Left Chemotherapy 1/13/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/31/2018 Aromasin (exemestane)
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Sep 7, 2019 09:40AM Pinkpinkturk wrote:

thank you Murfy . hopefully this is a side effect. metastasis scares me. Is there any diagnosis of stage 1 and metastasis?

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Sep 7, 2019 10:21AM Jaybird627 wrote:

Hi Everyone,

I'm doing okay on Anastrozole. I started on Exemestane but the cost was too high so my Dr. switched me. I did start out having back/spine pain which may have been from the Exemestane. Not sure. I've been on Anastrozole for maybe 9 months now? I take it most days, I occasionally forget. I take a lot of supplements to help counteract body/bone pain. I'm a flight attendant and 59 years old so some aches/pains may be a result of my age/job. Most day I feel good physically. I have really bad tightness in my chest from the mastectomy but nothing, not even constantly stretching, is helping with that issue!

Gaia brand Turmeric Supreme extra strength 1/day

Himalaya brand Joint Care herbal blend 2/day

Wobenzym N Joint Health 4/day

And a lot of other supplements such as calcium, tart cherry juice, probiotic, Vit. E, etc.

Most days I'm okay, some days simply suck and I cry a lot. I'm just trying to stay alive and healthy enough to see my teenaged daughter into her 20's, 30's. I don't talk about my breast cancer (2X) much in my everyday life as the more I talk about it the more I cry.

Janis

Jaybird. My hopes are not always realized, but I always hope - Ovid. Surgery 3/4/2005 Lumpectomy; Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Dx 3/5/2005, IDC, Right, Stage IIB, Grade 2, ER+/PR+, HER2-
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Sep 7, 2019 12:31PM Luwusu wrote:

aww, your post made me cry, Jaybird. You are really something strong to be still working, gone through this cancer party twice, and doing your best to take care of yourself with your daily supplements and all.

I have found a blog I love called Nancy’s Point that you may relate to. It helps with remembering that you and I are not alone, and isn’t cheerlead-y, if you know what I mean. And please know that we all cry at times when dealing with our cancer- whether it’s way behind us or not. It’s not forgotten. If we’re lucky we can often put it on a shelf, but it will always be a big part of our lives, and will come down from that shelf to deal with again from time to time.

I’m 65, exactly three years past my bc diagnosis. Stopped taking all AI’s 4 months ago.

Know that you’re not alone


Dx 9/27/2016, LCIS/DCIS/IDC, Left, Stage IIB, Grade 3, ER-/PR-, HER2+ (FISH) Surgery 4/17/2017 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Radiation Therapy 6/12/2017 Breast, Lymph nodes Targeted Therapy Perjeta (pertuzumab) Chemotherapy Taxol (paclitaxel)
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Sep 7, 2019 12:33PM - edited Sep 7, 2019 01:23PM by Bliss58

Pink, have you recently had or will you soon have a CT/bone scan? If your pain is from metastasis, it will show up on a scan. If you aren't scheduled for a scan, I would insist your MO order them to ease your mind. If the scans are clear, then you'll know the pain you're feeling is most likely a side effect from the Exemestane.

Janis, I feel for you and the pain you're experiencing. I was on Anastrozole first for seven months until I could no longer stand the joint pain it caused me and nothing seemed to help. I managed 17 mos. with Letrozole before switching to Exemestane. It is expensive, but after 19 mos. I'm doing the best on it. I don't know, but I wonder if there is a co-pay card with the drug company that manufactures Exemestance or if that kind of thing is only available for the brand name Aromasin? I need to investigate that for myself. Anyone else know?

Edited: I actually just checked into this and a savings card is available for Aromasin: https://www.aromasin.com/savings if in the U.S. whether you have insurance or not. I thought Exemestane was a generic of Aromasin, but in researching this, I now find that Aromasin Is Exemestane and not a generic I guess if manufactured by Pfizer. So, I'm guessing Exemestane is the chemical name of the brand Aromasin, but mine is manufactured by Cipla and is a generic. I think this copay card is only usable for brand name Aromasin. My generic is $396, so I can't imagine what Aromasin brand costs! I need to talk with my pharmacy about all this to better understand.


Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Sep 7, 2019 08:32PM Jaybird627 wrote:

Bliss58, it's weird how some do better on one A.I. than another. I do okay/good on Anastrozole. The Exemestane was a higher tier drug. I do mail order, 3 months at a time, and it's not expensive. Maybe $25? I've met my deductible ($3,500?) so all my meds are free until I start over again in 2020. :-/ My onc. wants me on this for 10 years (!) because I am BRCA2+, family history, my 2x BC, etc., so I need to be okay with taking an A.I. and so far my old bones are okay. Will need a bone density scan regularly I guess.

And thanks Luwusu. Had a melt-down this morning but I think I was just tired. When I think about BC killing me in the end I get over emotional. I do not plan on a 3rd BC dx nor do I plan on mets! Moving forward. Next step is more expander/implant surgeries. Fun stuff. lol.

BTW, my mom uses a Canadian mail order pharmacy from some of her meds.

J~

Jaybird. My hopes are not always realized, but I always hope - Ovid. Surgery 3/4/2005 Lumpectomy; Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Dx 3/5/2005, IDC, Right, Stage IIB, Grade 2, ER+/PR+, HER2-
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Sep 8, 2019 08:50AM Capecodgirl wrote:

Thanks for sharing your experiences Murfy. I have been taking the half pil for a few days now with no difference is side effects. I think I will take a complete break for a couple weeks and see where it takes me.

Bliss- I also take the Cipla brand and find it is the brand I tolerate the best. The extreme headaches I got on other brands are not so bad with this brand, so I ask for it with every refill.

Jay bird- hoping you have more good days than bad

Brca2+ Dx 5/24/2017, IDC, Right, 1cm, Stage IB, Grade 1, 1/2 nodes, ER+/PR+, HER2- Surgery 5/31/2017 Lumpectomy: Right Surgery 11/17/2017 Prophylactic ovary removal Hormonal Therapy 9/10/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes Hormonal Therapy Aromasin (exemestane)
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Sep 8, 2019 10:57AM Pinkpinkturk wrote:


  • I bought muscle relaxant medication and I'm more comfortable. Is there living bone metastasis at stage 1a?
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Sep 8, 2019 11:08AM Pinkpinkturk wrote:


  • I bought muscle relaxant medication and I'm more comfortable. Is there living bone metastasis at stage 1a?
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Sep 8, 2019 01:37PM - edited Sep 9, 2019 01:09PM by Bliss58

Pink, if you are dx Stage 1A then you don't have metastasis, but that's not to say you don't have a so far undetectable "living" metastasis site. My asymptomatic bone metastasis was found with a PET scan during initial dx, so I am Stage 4 de novo. Will you or have you had a PET? Glad to hear you're feeling better with the muscle relaxant.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Sep 8, 2019 04:10PM Pinkpinkturk wrote:

I have a Pet shoot in January last year. My most recent blood and USG tests were performed in June. I think the Aromasin I use makes bone pain. thank you lady.

Prayers for you . xxx

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Sep 9, 2019 01:34AM bennybear wrote:

make sure to have a bone density scan as well, these drugs can cause osteoporosis which can affect the bones. I have had to stop treatment because of this. All the best to each one struggling with side effects!

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Sep 9, 2019 03:57AM Pinkpinkturk wrote:

thanks bennybear . I will check

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Sep 11, 2019 10:51AM kcrd4766 wrote:

How are you doing with the Gaia turmeric? One other thing to mention about turmeric is that there are many challenges with absorption, and forms that are hydro-soluble absorb better.

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Sep 11, 2019 04:35PM Bliss58 wrote:

I've read the turmeric must also have black pepper to fully asorb. I've thought about trying Gaia brand. Is it a good one that works on pain?

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Sep 12, 2019 12:06AM Pinkpinkturk wrote:

Turmeric may contain estrogen. so it may be inconvenient to use it continuously.

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Sep 13, 2019 07:56PM Jaybird627 wrote:

Pinkpinkturk, I've read the opposite about turmeric. My onc is Indian so I'll ask him about it.

Bliss58, the Gaia brand is a liquid and it has black pepper. I'll assume it is water soluble.

I take a LOT of supplements. I don't get much sleep. I feel pretty good despite my hectic work schedule and my aches and pains are not really apparent unless I work too hard, pull too many weeds, or over exert myself physically. I wake up with no pain. I'm going to stay with my current course of supplements. As long as my tumor markers are low my onc is happy. I'll be on an AI for 9 more years.....

Jaybird. My hopes are not always realized, but I always hope - Ovid. Surgery 3/4/2005 Lumpectomy; Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Dx 3/5/2005, IDC, Right, Stage IIB, Grade 2, ER+/PR+, HER2-
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Sep 14, 2019 01:24PM kcrd4766 wrote:

Yes, turmeric that contains a black pepper extract does absorb better. However, forms that are hydro-soluble absorb even better than those with black pepper.

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Sep 14, 2019 11:34PM Bliss58 wrote:

Thanks for the additional info on turmeric, ladies. I've heard the opposite about turmeric being estrogenic, too. I checked on Memorial Sloan Kettering's integrative website (I look there often about herbs and supplements) and they say turmeric has a weak phytoestrogen component. I think the anti-inflammatory, anti-proliferation components outweigh the possible weak estrogenic effect and figure the AI is beating back any estrogen, right? Hugs to all.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Oct 6, 2019 10:20AM bennybear wrote:

My oncologist said no to pills but yes to the spice.

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Oct 8, 2019 04:17PM - edited Oct 8, 2019 04:17PM by Bliss58

Huh, it's funny how all these oncs are different. Mine had never said no to turmeric supplements, but did tell me no to ginseng because it is estrogenic. My MIL sent me an energy compound that contained it and onc told me to not take it. My energy seems better since taking Aromisin over Letrozole.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Oct 18, 2019 05:01PM Molly50 wrote:

Turmeric/curcumin is not estrogenic. It is safe to take. I take the Gaia brand extra strength too. It really helps my joint and bone pain.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Oct 19, 2019 11:28AM Bliss58 wrote:

Thanks, Molly50, for chiming in on the turmeric/curcumin. I think I'll give the Gaia a try.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Oct 30, 2019 02:08PM naiviv wrote:

Hello all,

Sharing....I have been on Exemestane (made by West-Ward) since 11/2014. I have been pretty consistent taking it, off for about 1 week prior to surgeries. I take it with a baby aspirin 81 mg. I do have joint pains, but have found that movement in swimming or walking very helpful. I also have found that hydration helps me . When I don't drink my water, I ache more. I will be meeting with my ONC in December and am hoping to stay on it. I have had no bone loss. Any concern you have about consistent pain should be ruled out. Once it is, you may find arthritic changes to joints or old injuries are acting up. If you have no evidence of anything but just continue to ache, ask your ONC about taking 1 month off and see if your pain goes away. If it does you can try some of the other AI's or look into different manufacturers of the generic, or try the original but get a discount card from the manufacturer (lowers price).

Wishing an end to all pain,

Vivian

Vivian....Bilateral DIEP flaps. Right survived, left failed and removed. 2nd flap for lefty is a latissmus dorsi flap (no TE or implant) Fat grafting for symmetry just happened and I am liking what I see.. Dx 7/5/2013, IDC, Left, <1cm, Stage IB, Grade 3, 1/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 9/2/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/1/2013 Reconstruction (left): Tissue expander placement Targeted Therapy 10/24/2013 Herceptin (trastuzumab) Chemotherapy 10/24/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/3/2013 Reconstruction (left) Hormonal Therapy 4/25/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 5/20/2014 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 5/20/2014 Prophylactic ovary removal Surgery 5/21/2014 Reconstruction (left) Surgery 8/5/2014 Reconstruction (left): Latissimus dorsi flap Surgery 8/5/2014 Reconstruction (right) Hormonal Therapy 8/22/2014 Arimidex (anastrozole) Surgery 10/19/2014 Reconstruction (left); Reconstruction (right) Hormonal Therapy 11/20/2014 Aromasin (exemestane)
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Nov 2, 2019 08:06AM Ingerp wrote:

I just wanted to pop in and say hi. I’ve been on anastrozole for about a year and tolerating it pretty well. I have struggled with fatigue, though. I’m going to try a month or two on Exemestane and see if I notice a difference. My MO also thinks if it’s not any better, at least I could tell my PCP that I’ve tried two different AIs and am still having issues. I know some women are using an ADD drug to help with fatigue.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 5/18/2018 Taxol (paclitaxel) Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Radiation Therapy 8/20/2018 Whole-breast: Breast
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Nov 6, 2019 07:15PM Bliss58 wrote:

Vivian, I agree about water. I've noticed recently that I ache more if I haven't kept up with hydration. Seems hydration is key through all these BC treatments, at least it has been for me. Hugs all.

Dx at 56 06/2015, IDC left, 4cm, de novo mets to bone; dx 04/2020 progression to liver. Dx 6/1/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 6/30/2015, Stage IV, metastasized to bone Radiation Therapy 12/16/2015 External: Bone Surgery 2/17/2016 Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy 5/9/2016 External: Lymph nodes, Chest wall Hormonal Therapy 2/1/2018 Aromasin (exemestane) Dx 4/2020, IDC, Stage IV, metastasized to liver, Grade 3, ER+/PR+, HER2+ (IHC)
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Nov 22, 2019 10:47PM Jaybird627 wrote:

Saw my oncologist today and he said turmeric/curcumin is just fine! My white blood cell count is down from my previous visit so not sure about that? Expect a full report on bloodwork next week. Will have a full ct scan later this year. He is OCD (his words) about being proactive. He's going to make up an excuse for the ct scan as they are not authorized unless mets is evident/expected. I guess it's a baseline more than anything else? I told him I have no issues on the Anastrozole. So 9 more years..... If it keep mets or recurrance at bay I'll do it.


Jaybird

Jaybird. My hopes are not always realized, but I always hope - Ovid. Surgery 3/4/2005 Lumpectomy; Lymph node removal; Mastectomy; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Dx 3/5/2005, IDC, Right, Stage IIB, Grade 2, ER+/PR+, HER2-
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Jan 18, 2020 10:15PM stephilosphy00 wrote:

Hi ladies, I have developed constant dry mouth and scratchy, phlegmy throat since last November (thank goodness no coughing and swollen lymph nodes). All these symptoms are not getting worse or better. I went to ENT doctor last week to have gastroscopy the doctor said my throat looked swollen and looked like it is from allergy. Can this be one of the side effects from my hormonal treatment (2.5 years of Lupron and Aromasin)? I saw somewhere online that Aromasin can cause sore throat. Thank you for all your input!!

Dx at 29. Original mass 2.5 cm. Biopsy MRI and PET/CT confirmed 1 node involved. Ki-67 score 7.5%. ER100% PR100%. Genetic testing negative. Restaged to stage IIA post surgery. Chose to do 6 cycles of Xeloda to prevent recurrence!! Dx 11/9/2016, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Chemotherapy 11/17/2016 AC + T (Taxol) Surgery 5/10/2017 Lymph node removal: Sentinel; Mastectomy: Left Hormonal Therapy 5/20/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/11/2017 Aromasin (exemestane) Radiation Therapy 7/12/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 4/3/2018 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Zoladex (goserelin)
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Jan 29, 2020 09:24AM - edited Jan 29, 2020 09:24AM by kale437

i hate aromasin but....lol! the joint and muscle pain are horriible and i feel like i am always tired! i run 3 miles a day and eat healthy and still feel like i have to fight weight gain. 😭 you???

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