May 7, 2014 08:05AM GatorGal wrote:

Have been away from the boards for a while, but for good reasons.  Vacationing with my husband, sister, brother and their spouses in Florida!  Had a great time but now back to reality.  Chemo today!  This is my 2nd on carboplatin and white counts are borderline but I need it today because of my daughter's wedding on the 17th.  Chanah and I will be celebrating together!  Onc agreed to chemo today if I get the neulasta tomorrow.  Jean, hope you regain your strength soon and  that the navelbine does help with your side effects.  Carol sue, love your picture.  You look tall and proud and bald looks great on you.  I was told I would lose my hair but so far still have a full head.  Have been bald a couple of times and I sure don't look as good as you!!  Susan, hope the rads don't wear you out too much and that the tamoxifen combo will keep you away from chemo for a long time!  Brenda, yes, dark moments are normal.  I'm usually the Pollyanna type but had some tearful nights after my last treatment.  Sometimes I just get tired of the whole process!!  For anyone in the thread that I've missed, hope that the springtime has finally come for those in the states and that everyone has good days to enjoy!

May 8, 2014 07:45AM tryn2staycalm wrote:

Hi Ladies,

Unfortunately I have recently been dx with stage 4 with mets to lungs.  Going threw the omg rush of dread feelings I'm sure you all know about.  Meeting with my new medical oncologist next Tues.  to get back into treatment.  I did tamoxifen for 2 years but could no longer tolerate it  because of the extreme side effects.  HOT all the time and extreme hot flashes and sweats sometimes every 20 mins but it was doing the job as the "spots on my lungs" were not growing for 2 years.  At that time it was unknown if it was cancer or scaring and they did not want to biopsy due to the possible side effects. 

May 9, 2014 06:26AM - edited May 9, 2014 01:25PM by tryn2staycalm

Thanks Brenda.. yes my rads oncologist that has been following my spots on my lungs thought the same thing (another AI).  I just hope its not one that gives me as severe s/e as tamoxifen did.  Anyone ever try this I-cool (for severe hot flashes)?  I'm going to call the 1-800 number and get a list of the ingredients and as long as it does not have Estrogen then I will ask my doctor about it. 

May 13, 2014 08:38PM Adnerb wrote:

I have results of my lymph node biopsy: Er+ (50%), Pr-, Her2-. Does this mean that my lung met has the same pathology? There's no way to say, says my oncologist. My lung biopsy yielded no hormone status information. Is this a good thing? I always thought my cancer was triple negative.

I still want to have the liquid biopsy done. My doctor is requesting it but he is sure my insurance company will not pay for it.

We flew to Indiana last week. The flights (AA) and travel agency (Expedia.com) were awful. First flight was delayed, then cancelled. Hotel cancelled our reservation because we "did not show up". What a nightmare. But a big celebration was had by all when my son and his girlfriend graduated with their JD's. We are so proud!!!

Hugs to all,

Brenda

May 14, 2014 08:38AM - edited May 14, 2014 08:39AM by tryn2staycalm

Met my new oncologist and he is sending me for more of the usual scans to check for more mets. 

He will be putting me on a new AI as soon as he gets the results of the scans.  He also asked me if I be interested in a new drug trial.  The drug is so new it has not been named but a number PD-0332991.  66% will receive this drug and Letrozole versus placebo plus Letrozole.  Neither my doctor nor I will know which I am receiving.  He did say that this study shows promising results so far.  Praying that I am the 66% and it does help.