Topic: mets to lung

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jan 6, 2012 08:53AM - edited Oct 12, 2013 07:32AM by bhd1

Posted on: Jan 6, 2012 08:53AM - edited Oct 12, 2013 07:32AM by bhd1

bhd1 wrote:

hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all

barb

barb Dx 9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
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May 5, 2014 02:43PM Padiddle wrote:

Weddings and grandbabies.....great happenings on the thread.  Congratulations to those of you with such wonderful milestones approaching.  Take care of yourselves as you get through each step and enjoy your families.

I've had my second dose of navelbine today, so I am hoping this is one that will knock down some of the symptoms I've been dealing with.  I have reached out for Home Health care help.  They are going to help me try to regain some strength and gain back some of what I lost over the past few months of not feeling well.  My latest trouble are with my stomach so I need to get reading on a thread I saw recently about mets to stomach and colon.  Not sure if it applies to me as I have mets in the peritoneum which is outside those areas but in-between and affecting them greatly.  My 02 sats have been better since the second tapping but I still have great effort needed to get those breaths in. 

I love the relay pic!  I remember the advice when I did radiation therapy was to rest when you need it.  Take care all.   Jean

Mets to sternum, ribs, thoracic and lumbar spine, femur, pelvis, lungs, skin, peritoneum, adrenal glands Dx 8/2000, IDC, 1cm, Stage IIB, 10/13 nodes, ER+/PR+, HER2- Surgery 9/9/2000 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 11/16/2000 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/19/2001 Breast Dx 10/5/2009, IDC, 2cm, Stage IV, 1/1 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 2/28/2010 Femara (letrozole) Surgery 11/29/2011 Mastectomy: Left Chemotherapy 4/3/2012 Taxol (paclitaxel) Chemotherapy 11/25/2012 Gemzar (gemcitabine) Chemotherapy 2/3/2013 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 1/5/2014 Halaven (eribulin) Chemotherapy 4/27/2014 Navelbine (vinorelbine)
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May 7, 2014 08:05AM GatorGal wrote:

Have been away from the boards for a while, but for good reasons.  Vacationing with my husband, sister, brother and their spouses in Florida!  Had a great time but now back to reality.  Chemo today!  This is my 2nd on carboplatin and white counts are borderline but I need it today because of my daughter's wedding on the 17th.  Chanah and I will be celebrating together!  Onc agreed to chemo today if I get the neulasta tomorrow.  Jean, hope you regain your strength soon and  that the navelbine does help with your side effects.  Carol sue, love your picture.  You look tall and proud and bald looks great on you.  I was told I would lose my hair but so far still have a full head.  Have been bald a couple of times and I sure don't look as good as you!!  Susan, hope the rads don't wear you out too much and that the tamoxifen combo will keep you away from chemo for a long time!  Brenda, yes, dark moments are normal.  I'm usually the Pollyanna type but had some tearful nights after my last treatment.  Sometimes I just get tired of the whole process!!  For anyone in the thread that I've missed, hope that the springtime has finally come for those in the states and that everyone has good days to enjoy!

When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople) Dx 5/2008, IDC, Right, Stage IV, metastasized to bone/liver/lungs, 11/27 nodes, ER+/PR+, HER2- Chemotherapy 4/10/2011 Taxotere (docetaxel) Chemotherapy 8/13/2011 Gemzar (gemcitabine) Chemotherapy 6/12/2012 Doxil (doxorubicin) Chemotherapy 12/11/2012 Taxol (paclitaxel) Chemotherapy 9/10/2013 CMF Chemotherapy 4/15/2014 Carboplatin (Paraplatin) Chemotherapy 12/16/2014 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 9/8/2015 Navelbine (vinorelbine) Chemotherapy 12/22/2015 Halaven (eribulin) Chemotherapy 4/12/2016 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/14/2016 Ixempra (ixabepilone) Hormonal Therapy 7/26/2016 Arimidex (anastrozole)
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May 7, 2014 08:17PM DeliriumPie wrote:

Glenna, "tired" is spot on for 99% of my breakdown moments. Tired of this or that and a lot of times just tired of being tired. Maintaining Pollyanna for everyone is pretty tiring in itself!

I have a CT tomorrow to take a look at the state of me following my lung resection 7 weeks ago. Trying to be nonchalant about it and pretending not to be anxious about the results...

"She's been everybody else's girl. Maybe one day she'll be her own" Tori Amos Dx 3/11/2013, IDC, 4cm, Stage IIB, Grade 3, 3/30 nodes, ER-/PR-, HER2- Chemotherapy 4/9/2013 AC + T (Taxol) Surgery 8/11/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/1/2013 Halaven (eribulin) Radiation Therapy 10/8/2013 Breast, Lymph nodes Dx 3/14/2014, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2- Radiation Therapy 9/2/2014 Brain Chemotherapy 9/25/2014 Ixempra (ixabepilone), Xeloda (capecitabine)
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May 8, 2014 07:45AM tryn2staycalm wrote:


Hi Ladies,

Unfortunately I have recently been dx with stage 4 with mets to lungs.  Going threw the omg rush of dread feelings I'm sure you all know about.  Meeting with my new medical oncologist next Tues.  to get back into treatment.  I did tamoxifen for 2 years but could no longer tolerate it  because of the extreme side effects.  HOT all the time and extreme hot flashes and sweats sometimes every 20 mins but it was doing the job as the "spots on my lungs" were not growing for 2 years.  At that time it was unknown if it was cancer or scaring and they did not want to biopsy due to the possible side effects. 

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/11/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)
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May 8, 2014 06:22PM Adnerb wrote:

Hi Tryn2staycalm,

When I was hospitalized for pleural effusion I thought I was going to die.  That was in September, so it's been 9 months.  

Since tamoxifen seemed to be doing its job maybe your doctor could have you take an AI.  It's worth a try, I think.

Welcome to the "mets to lung" group.  I wish you great days ahead.

Hugs to everyone,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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May 9, 2014 06:26AM - edited May 9, 2014 01:25PM by tryn2staycalm


Thanks Brenda.. yes my rads oncologist that has been following my spots on my lungs thought the same thing (another AI).  I just hope its not one that gives me as severe s/e as tamoxifen did.  Anyone ever try this I-cool (for severe hot flashes)?  I'm going to call the 1-800 number and get a list of the ingredients and as long as it does not have Estrogen then I will ask my doctor about it. 

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/11/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)
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May 9, 2014 01:32PM tryn2staycalm wrote:


I called about the I-Cool and got a list of ingredients and NO Estrogen.   It's suggested retail price is 19.98 for a box of 30 which is a months supply.  They say it is available in Shoppers Drug Mart and getting it into Walmart.  Wouldn't it be nice if it worked?  There were several testimonials saying how it cut down on the amount of hot flashes and not nearly as severe.  If it clears my onco I will certainly give it a shot.  The site also said it may take 2 weeks to feel a difference.  Anyone interested in it also www.i-cool.ca

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/11/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)
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May 13, 2014 08:38PM Adnerb wrote:

I have results of my lymph node biopsy: Er+ (50%), Pr-, Her2-. Does this mean that my lung met has the same pathology? There's no way to say, says my oncologist. My lung biopsy yielded no hormone status information. Is this a good thing? I always thought my cancer was triple negative.

I still want to have the liquid biopsy done. My doctor is requesting it but he is sure my insurance company will not pay for it.

We flew to Indiana last week. The flights (AA) and travel agency (Expedia.com) were awful. First flight was delayed, then cancelled. Hotel cancelled our reservation because we "did not show up". What a nightmare. But a big celebration was had by all when my son and his girlfriend graduated with their JD's. We are so proud!!!

Hugs to all,

Brenda

Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas Dx 7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 10/1/2005 AC Radiation Therapy 3/14/2006 Breast Dx 7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2- Chemotherapy 10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2- Chemotherapy 10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy 11/7/2014 Faslodex (fulvestrant) Chemotherapy 3/1/2015 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/7/2015 Ixempra (ixabepilone)
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May 14, 2014 07:02AM tryn2staycalm wrote:


Here is what my sis wrote for me

Thought maybe it can help others find strength and hope too

For my sister

Never Give Up

They told me it's hopeless
It wouldn't be long
My body was dying
I'd sing my last song

I wasn't a quitter
Just what did they know
For I am a fighter
I'm running the show

Consumed with a faith
That will fuel a great drive
To pass all the hurdles
And know I'll survive

My body is weakened
my heart leads the way
To walk bravely onward
Towards a new day

Never give up
"Hopeless" doesn't exist
For Love lives within me
And I'm truly blessed.

 

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/11/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)
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May 14, 2014 08:38AM - edited May 14, 2014 08:39AM by tryn2staycalm


Met my new oncologist and he is sending me for more of the usual scans to check for more mets. 

He will be putting me on a new AI as soon as he gets the results of the scans.  He also asked me if I be interested in a new drug trial.  The drug is so new it has not been named but a number PD-0332991.  66% will receive this drug and Letrozole versus placebo plus Letrozole.  Neither my doctor nor I will know which I am receiving.  He did say that this study shows promising results so far.  Praying that I am the 66% and it does help.

 

A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone Dx 7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2- Radiation Therapy 3/1/2011 Breast, Lymph nodes Dx 5/2012, IDC, Left, Grade 3 Hormonal Therapy 3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/26/2015, Stage IV Chemotherapy 6/11/2015 Taxol (paclitaxel) Hormonal Therapy Femara (letrozole) Hormonal Therapy Chemotherapy Taxotere (docetaxel)

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