Posted on:
Jan 6, 2012 10:53AM
- edited
Oct 12, 2013 09:32AM
by
bhd1
B
telford, PA
Joined:
Apr 2011
Posts:
3,838
Latest activity:
Jul 15, 2015
Posted on:
Jan 6, 2012 10:53AM
- edited
Oct 12, 2013 09:32AM
by
bhd1
bhd1
wrote:
hello. i got scan rusults yesterday. looks like abraxane is not working, since cancer is spreading. i am going on navelbine now. any words of encouragement? thanks. i am new to the boards, happy to find you all
barb
barb
Dx
9/22/2011, IDC, 3cm, Stage IV, Grade 3, ER-/PR-, HER2+
Log in to post a reply
A
Adnerb
Joined:
Aug 2005
Posts:
1,759
Latest activity:
Oct 5, 2015
Log in to post a reply
Jun 12, 2014 01:09AM
Adnerb
wrote:
SusaninSF and Susan3,
What great news from 2 Susan"s!!! Hope the rest of us get equally wonderful news...eventually!
Brenda
Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas
Dx
7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Chemotherapy
10/1/2005 AC
Radiation Therapy
3/14/2006 Breast
Dx
7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2-
Chemotherapy
10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Dx
9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2-
Chemotherapy
10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Hormonal Therapy
11/7/2014 Faslodex (fulvestrant)
Chemotherapy
3/1/2015 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
7/7/2015 Ixempra (ixabepilone)
T
tryn2staycalm
Joined:
Jun 2010
Posts:
755
Latest activity:
Oct 3, 2015
Log in to post a reply
Jun 12, 2014 10:06AM
tryn2staycalm
wrote:
SusaninSF - so glad to hear that my metster friend! Great news.. happy for you! Hugs!
Sunsan3 - welcome to this thread. Amusing post (Waldo). I guess we have to use our sense of humor when we can. Glad to hear you had good news too!
Tarhee - NO down for me, I usually take off comforter too. I sleep under a sheet and one light blanket usually. Good news for your son.. a job and a drivers licence! Here's hoping you do get great results stable or yes some regression!
Hi Brenda - hope your doing well!
Cathy
A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone
Dx
7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2-
Radiation Therapy
3/1/2011 Breast, Lymph nodes
Dx
5/2012, IDC, Left, Grade 3
Hormonal Therapy
3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Dx
3/26/2015, Stage IV
Chemotherapy
6/12/2015 Taxol (paclitaxel)
Hormonal Therapy
Femara (letrozole)
Hormonal Therapy
Chemotherapy
Taxotere (docetaxel)
A
Adnerb
Joined:
Aug 2005
Posts:
1,759
Latest activity:
Oct 5, 2015
Log in to post a reply
Jun 12, 2014 01:25PM
Adnerb
wrote:
Thanks, Cathy. I hope you are also doing well. I am patiently awaiting the result of my LiquidBiopsy. I will share them with everyone here as soon as I get them. Not all oncologists will recommend this procedure. Mine needed some convincing.
Hugs to everyone!
Brenda
Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas
Dx
7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Chemotherapy
10/1/2005 AC
Radiation Therapy
3/14/2006 Breast
Dx
7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2-
Chemotherapy
10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Dx
9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2-
Chemotherapy
10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Hormonal Therapy
11/7/2014 Faslodex (fulvestrant)
Chemotherapy
3/1/2015 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
7/7/2015 Ixempra (ixabepilone)
T
tryn2staycalm
Joined:
Jun 2010
Posts:
755
Latest activity:
Oct 3, 2015
Log in to post a reply
Jun 12, 2014 08:33PM
- edited
Jun 12, 2014 08:34PM
by
tryn2staycalm
Brenda - the old waiting game.. wait for test .. wait for results.. wait for treatment .. wait to see if its working.... seems to be part of life with mets huh? I see my onco and lady who sets up the drug trials Tues. Get my ECG's (3) and blood work and then its all sent in and as long as it all is ok start Thursday with drug trial. Finally!
Cathy
A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone
Dx
7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2-
Radiation Therapy
3/1/2011 Breast, Lymph nodes
Dx
5/2012, IDC, Left, Grade 3
Hormonal Therapy
3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Dx
3/26/2015, Stage IV
Chemotherapy
6/12/2015 Taxol (paclitaxel)
Hormonal Therapy
Femara (letrozole)
Hormonal Therapy
Chemotherapy
Taxotere (docetaxel)
S
skylotus
Joined:
Aug 2013
Posts:
304
Latest activity:
Feb 11, 2016
Log in to post a reply
Jun 13, 2014 01:31AM
skylotus
wrote:
Hi ladies! Just had my once a month check in and my tumor markers jumped 120 points in one month to 360something. They were 30something last Sept. Will get scans in a few weeks and see doc again in July. I know tumor markers are not the final word, but that seems like a big jump? Lessons in patience. More waiting...
Mets to hips, spine, pelvis, ribs, femurs, skull, lungs, liver and brain. Somedays, I'm a swashbucklin, goddess warrior princess with two blogs: earthandskylotus.wordpress.com and another at www.caringbridge.org under the name sky lotus
Dx
8/18/1998, Stage IIB, 0/19 nodes, ER+
Dx
8/2013, Stage IV, mets, ER+
Hormonal Therapy
9/3/2013 Aromasin (exemestane)
Targeted Therapy
9/3/2013 Afinitor (everolimus)
Hormonal Therapy
7/8/2014 Faslodex (fulvestrant)
Radiation Therapy
7/29/2014 External: Bone, Brain
Chemotherapy
Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex), Taxol (paclitaxel), Xeloda (capecitabine)
T
tryn2staycalm
Joined:
Jun 2010
Posts:
755
Latest activity:
Oct 3, 2015
Log in to post a reply
Jun 13, 2014 08:51AM
tryn2staycalm
wrote:
Skylotus - sorry to hear that! However it wouldn't be the first time they were wrong. Hope that is the case for you. And if not your doctor will start you on another line of treatment that may knock 'em back down.. good luck!
A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone
Dx
7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2-
Radiation Therapy
3/1/2011 Breast, Lymph nodes
Dx
5/2012, IDC, Left, Grade 3
Hormonal Therapy
3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Dx
3/26/2015, Stage IV
Chemotherapy
6/12/2015 Taxol (paclitaxel)
Hormonal Therapy
Femara (letrozole)
Hormonal Therapy
Chemotherapy
Taxotere (docetaxel)
A
Adnerb
Joined:
Aug 2005
Posts:
1,759
Latest activity:
Oct 5, 2015
Log in to post a reply
Jun 13, 2014 06:43PM
Adnerb
wrote:
Skylotus: I echo Cathy's sentiments plus: For me tumors markers do not mean anything. My onc said they appeared normal even when I was actively growing tumors.
Cathy: Have you shared with us the result of your latest scan? Just curious. Anyway, I do hope you get the drug and not the placebo. Also I hope that letrozole will work even better than tamoxifen. Your team seems to be doing a good job of taking care of you.
Brenda
Brenda S. "Do not go gentle into that good night...Rage, rage against the dying of the light!" ~Dylan Thomas
Dx
7/16/2005, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2-
Chemotherapy
10/1/2005 AC
Radiation Therapy
3/14/2006 Breast
Dx
7/28/2009, IDC, 3cm, Stage IIB, Grade 3, 0/6 nodes, HER2-
Chemotherapy
10/1/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Dx
9/11/2013, IDC, Stage IV, 1/0 nodes, mets, ER+/PR-, HER2-
Chemotherapy
10/1/2013 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Chemotherapy
3/7/2014 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Hormonal Therapy
11/7/2014 Faslodex (fulvestrant)
Chemotherapy
3/1/2015 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
7/7/2015 Ixempra (ixabepilone)
T
tryn2staycalm
Joined:
Jun 2010
Posts:
755
Latest activity:
Oct 3, 2015
Log in to post a reply
Jun 13, 2014 07:23PM
tryn2staycalm
wrote:
Thanks Brenda, I have not yet got the results for my latest scans but will on Tuesday. I spoke to the lady that works in clinical trials and if I pass the ECG's and bloodwork and I get accepted to the study (which I believe is a go so far) then I should start the drug trial on Thursday! I do like my new onco and loved how he had to look at the chest cat scan himself (just not taking someone's word for it) and how he got on the phone and told radiology he wanted my scans STAT! It does seem he is doing his best to get the ball rolling.
Cathy
A strong woman won't let anyone get the best of her, but a woman of strength gives the best of herself to everyone
Dx
7/27/2010, IDC, 5cm, Stage IIIC, Grade 3, 1/5 nodes, ER+/PR-, HER2-
Radiation Therapy
3/1/2011 Breast, Lymph nodes
Dx
5/2012, IDC, Left, Grade 3
Hormonal Therapy
3/23/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Dx
3/26/2015, Stage IV
Chemotherapy
6/12/2015 Taxol (paclitaxel)
Hormonal Therapy
Femara (letrozole)
Hormonal Therapy
Chemotherapy
Taxotere (docetaxel)
G
GatorGal
Joined:
Aug 2011
Posts:
2,601
Latest activity:
Oct 24, 2016
Log in to post a reply
Jun 17, 2014 10:22PM
GatorGal
wrote:
Hi all,
I've been away from BCO for a while ... Having fun at the beach with some relatives from Ohio, then had our grandson over the weekend. Will get some r and r this week since I have chemo tomorrow. Hurrah for all the good news that has been posted. Love hearing the words stable and NO progression. That is what I wish for all of us. Welcome, sky lotus and susan3. My onc very rarely does my tumor markers. He thinks they are not always reliable. Cathy, I sure hope you get the real thing! Sounds like you've got a great onc. Ronda, I also have a lot of pain that seems to be in my ribs. My onc believes it's the cancer in the pleura. I think this is how he described it: He likened it to the pain you get from a paper cut. Not a big cut, but hurts like the dickens. He said there's not a lot of cancer in the pleura but because of nerve endings it hurts a lot. I take more pain meds now than ever before. I guess it's because I do like to get a good night's sleep. I like the idea of communicating by text and email so that we can remember what has been said. I'm going to try to do that more!! Brenda, you are always so encouraging to everyone! Thanks for that!
When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople)
Dx
5/2008, IDC, Right, Stage IV, metastasized to bone/liver/lungs, 11/27 nodes, ER+/PR+, HER2-
Chemotherapy
4/10/2011 Taxotere (docetaxel)
Chemotherapy
8/13/2011 Gemzar (gemcitabine)
Chemotherapy
6/12/2012 Doxil (doxorubicin)
Chemotherapy
12/11/2012 Taxol (paclitaxel)
Chemotherapy
9/10/2013 CMF
Chemotherapy
4/15/2014 Carboplatin (Paraplatin)
Chemotherapy
12/16/2014 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
9/8/2015 Navelbine (vinorelbine)
Chemotherapy
12/22/2015 Halaven (eribulin)
Chemotherapy
4/12/2016 Abraxane (albumin-bound or nab-paclitaxel)
Chemotherapy
6/14/2016 Ixempra (ixabepilone)
Hormonal Therapy
7/26/2016 Arimidex (anastrozole)
M
MameMe
Joined:
Jan 2013
Posts:
422
Latest activity:
Apr 8, 2019
Log in to post a reply
Jun 18, 2014 07:26AM
MameMe
wrote:
Cathy, Did you get scan results yesterday? Hope things are still on for the trial.
Widespread, low volume mets to eye, lungs, chest wall and bones, dx 4/14/14. "There's gotta be a pony in this s--t somewhere..."
Dx
2/2003, IDC, Right, 2cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2-
Dx
12/2012, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2-
Dx
4/4/2014, IDC, Left, 2cm, Stage IV, metastasized to bone/lungs/other, Grade 2, 0/1 nodes, ER+/PR-, HER2-,
Chemotherapy
4/30/2017 Doxil (doxorubicin)
Chemotherapy
2/28/2018 Halaven (eribulin)
Targeted Therapy
Afinitor (everolimus)
Chemotherapy
Taxol (paclitaxel)
Hormonal Therapy
Aromasin (exemestane)
Chemotherapy
Gemzar (gemcitabine)
Hormonal Therapy
Faslodex (fulvestrant)
Targeted Therapy
Ibrance (palbociclib)
Chemotherapy
Xeloda (capecitabine)