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Mar 13, 2018 01:44AM
Mar 13, 2018 01:49AM
Chowdog, I'm up late and see that you're a brand new Ibrance Dancer! Welcome to our little corner of the world. Let me tell you quickly about my friend, Judy, who like you has had MBC spread to her lungs, her bones and her brain. This was in the days before we even had the magic drugs we do now. She has been cancer-free and out of treatment for many years. I wish I could remember exactly how long but, trust me, we're talking 2 decades since the lung mets. I'm sure it's been at least ten for the others. She had Gamma Knife on her brain and not a single spot has ever returned. She had something show up on a scan of her brain the next year and insisted that they do a craniotomy to remove it. It was nothing but dead tissue! She runs a family business and no longer even gets scanned regularly.
I was diagnosed the first time in 1994 with IIA and have been around the block a time or two or three or four with BC, first metastatic in 2012 with a chest wall tumor (Taxol/Carboplatin=NED). The widespread bone mets showed in September of 2016 and I've been on Arimidex, Ibrance and XGeva since. First scan at 3 months showed a remarkable response and I have hardly any uptake on a PET/CT now! My doctor starts everyone on 100mg and I did that through 2017. I am now on 75mg and have much less fatigue.
I'm going to be praying for you as I do daily for our other friends here. We call ourselves Pioneers and many have done extremely well...either remaining stable or shrinking their tumors. You can do this and we'll be here for you all the way, Chowdog!
2/1994, IDC, Left, 4cm, Stage IIB, Grade 3, 0/15 nodes, ER-/PR-
3/2002, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2+ (FISH)
3/2012, Right, 1cm, ER+/PR+, HER2-
9/2016, IDC, 0/16 nodes, ER+/PR+, HER2-
10/1/2016 Ibrance (palbociclib)
Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap
Carboplatin (Paraplatin), Taxol (paclitaxel)
Lymph node removal; Mastectomy; Reconstruction (right): Tissue expander placement