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Apr 18, 2018 04:48PM
Re: the PET/CT scan. I've been told not to exercise within the 24 hours before the scan (Not a problem! Ha!) because you can get a false positive in muscles. No intake except water after midnight. I'm a tough stick so I do get my port accessed. After the first injection I'm put into a dark room in a reclining position with music for one hour. No reading and no phone. It's delightful! They provide bottled water and I get to go to the restroom right before the scan. Whatever they inject while I'm on the table gives the sensation that I'm peeing on myself...so weird. My hospital posts the results a couple of days later in my online chart or I can wait to see the oncologist.
Re: Indigestion. I certainly have less of that on the 75mg but it was sometimes rough on the 100mg. Over the Counter Pepcid after dinner (when I take the Ibrance) is helpful. I take Tums right before sleeping and again in the morning. I find that the more I eat Gluten-free, the better I do. Also drinking lots of water makes things better. (Powdered Sugar Donettes are the worst thing for indigestion but sometimes a girl's gotta' do what a girl's gotta' do! They may also shorten my life but again, a girl's gotta' do..........)
Hooray for all the good scans and for those of you able to return to this Ibrance dance. I'm thankful to have received Co-Pay grants which will see me through another 5 cycles. One foundation paid to get me through the Medicare Donut-Hole and then denied the rest of the grant but another stepped in to cover 8 more cycles. My co-pay is over $600 a month so I'm really happy. I'm thankful for the free year Pfizer gave me and for all this other assistance. It's staggering to imagine having to pay for Ibrance and XGeva each month (over $20,000!). Private supplementary healthcare, Mututal of Omaha pays for the XGeva in the doctor's office and Pharmacy Supplement, United Healthcare pays the whopping $7 for the Arimidex. Wouldn't it be funny if the Arimidex is actually what has caused the remarkable response?!
Have a happy day, friends! Spring has finally sprung in Memphis and I'm making an art piece called "Itty Bitty Elvis & the Band....What You See When You're Up a Tree and Straight-Up Crazy...on a Tuesday...in America". (Tiny Elvis is performing in a nest with Hummingbirds backed up by Abe Lincoln on guitar! All this with no illicit drugs!) It's for the LRoss Gallery Elvis Show in August. You should all come and we could do the Ibrance Dance together!
Love to all of you!
2/1994, IDC, Left, 4cm, Stage IIB, Grade 3, 0/15 nodes, ER-/PR-
3/2002, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2+ (FISH)
3/2012, IDC, Right, 4cm, Grade 3, ER+/PR+, HER2-
9/2016, IDC, 0/16 nodes, ER+/PR+, HER2-
10/1/2016 Ibrance (palbociclib)
Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap
Carboplatin (Paraplatin), Taxol (paclitaxel)
Lymph node removal; Mastectomy; Reconstruction (right): Tissue expander placement