Join Us

We are 220,438 members in 84 forums discussing 161,930 topics.

Help with Abbreviations

Topic: Ibrance (Palbociclib)

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Metastatic breast cancer (MBC; also called stage IV) is breast cancer that has spread to other parts of the body, most commonly the bones, liver, brain, or lungs. Metastatic breast cancer can be treated but not cured. Metastatic disease is NOT hopeless. There are a wide variety of treatment options for metastatic breast cancer, and new medicines are being tested every day. More and more people are living life to the fullest while being treated for metastatic breast cancer.

Note: Please contact your doctor for any specific concerns about symptoms you are experiencing or your course of treatment.

Learn more about living with MBC.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Feb 24, 2015 08:21PM - edited Dec 11, 2017 01:43PM by Moderators

Romansma wrote:

A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets. Anyone currently on Ibrance?

Edited by Mods to add Mod Note: Unfortunately, Romansma passed away in 2016. Our thoughts are with all who loved Hope.

Edited by Mods to add:

For more information on this medication, see the main Breastcancer.org site's section on Ibrance for information on how it works, who it's for, what to expect, and side effects. Also, read the latest research on the Research News on Ibrance pages.

Pfizer Oncology Together is a first-of-its-kind program for patients taking Pfizer Oncology medicines that offers dedicated social workers called 'Care Champions' to help navigate the complexities that accompany treatment, such as identifying resources to help find emotional support, and workplace transition, transportation and financial assistance.

For cancer patients taking a Pfizer Oncology medicine (e.g. Ibrance) or caregivers, please visit www.PfizerOncologyTogether.com.

For live support call: 1-877-744-5675

Hope Dx 10/22/2010, ILC, Right, 6cm+, Stage IIIB, Grade 2, 9/10 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 11/1/2010 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 4/1/2011 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Radiation Therapy 6/8/2011 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 11/29/2011 Prophylactic ovary removal Dx 8/2013, ILC, Stage IV, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 9/17/2013 Faslodex (fulvestrant) Targeted Therapy 1/25/2014 Afinitor (everolimus) Radiation Therapy 2/11/2014 External: Bone Chemotherapy 12/6/2014 Xeloda (capecitabine) Hormonal Therapy 2/20/2015 Femara (letrozole) Targeted Therapy 2/20/2015 Ibrance (palbociclib)
Log in to post a reply

Page 792 of 814 (24,400 results)

Posts 23731 - 23760 (24,400 total)

Log in to post a reply

Nov 17, 2020 10:37PM jendunn1977 wrote:

Hello! New to this thread, recently diagnosed with stage 4 IDC, mets to bone (spine, hip, rib). I am starting on Ibrance, Faslodex/Lupron, and Zoledronic acid on 12/3. I am a teacher and hope to keep teaching remotely...seems like the side effects are not super terrible? Thanks!

Dx 7/11/2014, IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 11/4/2020, IDC, Right, <1cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Radiation Therapy 11/19/2020 Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Radiation Therapy Surgery Lumpectomy: Right
Log in to post a reply

Nov 17, 2020 11:10PM aprilgirl1 wrote:

Hi JenDunn, I have been in Ibrance/Fulvestrant for 1 year and have found it easy to tolerate. I also work full time and have been able to work without feeling fatigued. I did have low white blood counts at the end of a few cycles so my dose was reduced from 125 mg to 100mg which has kept my WBC a bit higher at the end of a cycle. There are women on here doing great on 75mg as well. This is a common side effect and many women on Ibrance have dose reductions. The fulvestrant shots haven't been an issue for me. I have less joint pain on fulvestrant compared to femara which I took for 7 years. Let us know if you have questions about the fulvestrant shot. I have not had Zoledronic acid so can't give you any info on that one.

recurrence in lymph nodes (superclavicle/mediastinal)"You can do it like it's a great weight on you, or you can do it like it's part of the dance." Ram Dass Dx 11/7/2008, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 11/13/2019, IDC, Left, Stage IV, metastasized to other, ER+/PR+, HER2-
Log in to post a reply

Nov 17, 2020 11:42PM - edited Nov 17, 2020 11:43PM by Cure-ious

JenDunn, For me I had a lot of fatigue in the first couple of months, which eased up a lot as my body got used to it. After 4 years I did have to go down to 100mg from the 125mg, due to low white blood cell counts I was getting every cycle, but I worked the whole time and my worst problem was thinning hair. Fatigue is noticably less on the lower dose, but I also did the 5 days on, 2 days off schedule for about six months and the fatigue was much less just with that change (ie, leaving the dose high)

Dx 10/2003, IDC, Stage IIB, ER+/PR+, HER2- Dx 7/2015, Stage IV, metastasized to bone, ER+/PR-, HER2-
Log in to post a reply

Nov 17, 2020 11:47PM Snow-drop wrote:

Hi Jen, these medications are standard protocol for MBC, ibrance capsule better take with food 500+ calories, you will feel fatigue in first few months, here is my tip I take ibrance early evening to avoid fatigue lower my daily activities! I also went for lower dose. Zolederic acid or zometa is given through iv, also good if you get infusion over 30 minutes, it helps to reduce side effects such as bone pain. ask your MO for calcium and vitamin D supplements. You may want to read this: https://www.breastcancer.org/treatment/druglist/zometa

Ladies here are so nice and supportive, you will find many good information here.

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Nov 18, 2020 10:05AM jendunn1977 wrote:

Thank you I-beat-it, Cure-ious, and April! Not happy to be part of this club but glad to have a plan in place. Have a great Thanksgiving!

Dx 7/11/2014, IDC, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 11/4/2020, IDC, Right, <1cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Radiation Therapy 11/19/2020 Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Radiation Therapy Surgery Lumpectomy: Right
Log in to post a reply

Nov 18, 2020 10:49AM Karenfizedbo15 wrote:

Jen, welcome...you will find your own way and the people here are very knowledgeable as well as supportive - you might want to check out this thread too, if you haven’t already. It’s called “Life does not end with a stage IV diagnosis”. It’s aimed at inserting a little normality.

https://community.breastcancer.org/forum/8/topics/818931?page=111#idx_3312

Surgery 9/7/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2- Dx 2021, Stage IV, metastasized to bone Chemotherapy 2/4/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Nov 18, 2020 12:03PM lsharvey822 wrote:

I've been reading this thread on and off since I was diagnosed stage IV in January of this year but wanted to jump in and say hi to everyone and ask a question. I'd completed 2 rounds of Ibrance when I was diagnosed with pneumonia. I stopped Ibrance while I went on antibiotics which seemed to clear up the pneumonia but MO was still concerned so I had a bronchascapy? last week which does show a small amount of inflammation still but no infection or cancer cells in that lung (I have mets in the other lung). I've just been informed by MOs office that they don't want me to continue with Ibrance. That was a major gut punch for me since I got thru I don't even know how many rounds of Taxol and Taxotere this year with the idea that eventually I'd switch to Ibrance and life would go back to "normal" at least to some degree! Now I feel like the rug has been pulled out from under me! Has anyone else had pneumonia and then continued with Ibrance? I haven't met with MO yet to see what she's suggesting I do instead of Ibrance.

Dx 2/28/2012, IDC, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2- Surgery 3/9/2012 Lumpectomy: Right Chemotherapy 5/7/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 1/3/2020, IDC, Right, 2cm, Stage IV, metastasized to brain/bone/liver/lungs, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/23/2020 Taxol (paclitaxel), Taxotere (docetaxel) Hormonal Therapy 9/1/2020 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Nov 18, 2020 12:15PM BlueGirlRedState wrote:

JennDunn - fatigue was the SE that I noticed, but usually I was able to continue activities I wanted to. Staying active, hydrated, and stretching keep me going. I started at 125mg, and a couple of cycles ago, was dropped to 100 because of low WBC, and because the oncologist said that studies have shown the 100mg is just as effective. After 2 cycles 100mg, WB did not rebound as she expected, and she talked about dropping to 75mg. She might be concerned about covid, because the low WBC has been low for a long time. I am still on cycle 15 and already got the cycle 16 box of 100mg. At the cost, it might be another cycle before I could go to a lower dose. Also expecting to get scheduled for a CT soon and want to know what it shows

Log in to post a reply

Nov 18, 2020 12:27PM candy-678 wrote:

Isharvey822- At first when I read your post I thought "why not resume Ibrance after the pneumonia cleared up". But then I thought about how Ibrance, and all the CDK 4/6 inhibitors, can cause pneumonitis. So maybe in your case, your doc is seeing something in the bronchoscopy and thinks Ibrance can cause you more harm than good. See what your MO has to say for their reasoning and what they recommend next for you. Post back with your results. When do you see your MO?

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
Log in to post a reply

Nov 18, 2020 01:51PM lsharvey822 wrote:

Candy-678 - I'm hoping tomorrow.

Dx 2/28/2012, IDC, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2- Surgery 3/9/2012 Lumpectomy: Right Chemotherapy 5/7/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 1/3/2020, IDC, Right, 2cm, Stage IV, metastasized to brain/bone/liver/lungs, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/23/2020 Taxol (paclitaxel), Taxotere (docetaxel) Hormonal Therapy 9/1/2020 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Nov 18, 2020 05:53PM RhosgobelRabbit wrote:

Hello ladies, just a brief check in, I'm still in the middle of scanxiety. Just had my CT this afternoon. Good news is I got ahold of my bone scan report. MO was refusing to mail or update to portal either scan and that we would "discuss them at my dec 3 appointment" was the message relayed to me by her nurse. Really ticked me off because I rarely bother my MO. So instead of arguing I just asserted my rights and went to medical records after my CT and got a copy myself of my bone scan report. While there I signed a release for my CT to be mailed to me as well. I may be a sourpuss sometimes when it comes to this disease, especially when talking about it generally, because let's be honest it sucks, but I'm a grown woman, I can handle reading a medical report and digesting it. How can one ask questions unless you see the report before the appointment? Oh well, I'm ranting.

Anywho, bone scan came back stable. Unchanged uptake in all noted areas. Now I need to wait for the CT to come back, that's the one I am most concerned about.

Welcome newbies :) Jenn etc.

I'm scheduled for Zometa too on Dec 3rd. Zometa can make you achy your first time or two for the first few days after the infusion. After the 3rd time or so it felt like my body adjusted to it and I've found now it milder in terms of the aches after an infusion. As far as Ibrance, I had a terrible build up and anticipation of how Ibrance would feel based of the concoctions I had previously but I have found Ibrance overall very tolerable. I start lucky cycle 13 soon. 3rd cycle at 100mg, the others were at 125mg and I asked to reduce myself due to fatigue. So have a go at 125, if you need to drop no worries, Ibrance is a very tolerable drug and effective even at lowest dose.

Welcome to the thread, you are not alone :)

Mets @ Rads planning. Mets to Pelvis, Femurs, Shoulders, Ribs, T. Spine, L. Spine, Sternum, Sacrum/SI Joints. MyRisk neg. KEAP1 "Courage of the heart is very rare, there's a power when its there" 37yrs old @ IV DX. lifeandirises.home.blog/ Dx 7/30/2018, IDC, Right, 4cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 9/26/2018 AC + T (Taxol) Hormonal Therapy 9/26/2018 Zoladex (goserelin) Dx 4/19/2019, IDC, Right, 3cm, Stage IIB, Grade 2, 5/16 nodes, ER+/PR+, HER2- (IHC) Surgery 4/19/2019 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 5/13/2019 Zoladex (goserelin) Dx 5/17/2019, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- (IHC) Surgery 10/1/2019 Prophylactic ovary removal Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Aromasin (exemestane)
Log in to post a reply

Nov 18, 2020 07:01PM BevJen wrote:

Rabbit,

Good for you for getting your report and signing the release for the second one. I do not understand this paternalistic attitude among some medical professionals that we need to wait for them before we can see our reports. That does not make for a productive visit with a doctor, especially if they are pulling up a report on a computer that we cannot see and haven't read.

I switched to 100 mg of Ibrance this cycle. I know that at one point, you said it took a cycle or two to feel better, but I am already feeling a difference. Of course, I'm not yet through a full cycle, so we'll see how it gets as the cycle continues, but this seems much better than the 125mg.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
Log in to post a reply

Nov 18, 2020 07:46PM JACK5IE wrote:

Miss Rabbit..great news about the bone scan!

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 8/1/2009 TAC Hormonal Therapy 1/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/1/2010 Lumpectomy: Left Radiation Therapy 5/1/2010 Whole-breast: Breast, Lymph nodes Surgery 7/1/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 8/1/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Nov 18, 2020 07:58PM - edited Nov 18, 2020 07:59PM by RhosgobelRabbit

BevJen, I don't get it either and I totally agree. Plus, I'd rather breakdown if i need to alone whether it be of happiness or sadness instead of in front of my MO. I kinda feel like reading my reports is a sacred time in a way, not that the reports themselves are sacred, but my time to privately react to them. I like to digest things privately and celebrate, scream, kick, cry or breakdance in my own way. I find that is easier without a pair of eyes watching me with a clipboard.

Yes yes yes to 100mg feeling better than 125mg. This 3rd cycle is where I've noticed the biggest difference tho I noticed very happy improvements by cycle 2 at 100mg.. And I am rebounding now at the end of my cycles a bit better than I did towards the end of me on 125mg so i'm getting back my energy a bit. Mouthsores are MUCH better this go around, very slight on the tongue when I used to have lots of little ones. I like 100mg. Woo! :)

Thank you Jackie! :)


Mets @ Rads planning. Mets to Pelvis, Femurs, Shoulders, Ribs, T. Spine, L. Spine, Sternum, Sacrum/SI Joints. MyRisk neg. KEAP1 "Courage of the heart is very rare, there's a power when its there" 37yrs old @ IV DX. lifeandirises.home.blog/ Dx 7/30/2018, IDC, Right, 4cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 9/26/2018 AC + T (Taxol) Hormonal Therapy 9/26/2018 Zoladex (goserelin) Dx 4/19/2019, IDC, Right, 3cm, Stage IIB, Grade 2, 5/16 nodes, ER+/PR+, HER2- (IHC) Surgery 4/19/2019 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 5/13/2019 Zoladex (goserelin) Dx 5/17/2019, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- (IHC) Surgery 10/1/2019 Prophylactic ovary removal Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Aromasin (exemestane)
Log in to post a reply

Nov 18, 2020 08:03PM Sunshine99 wrote:

Glad to hear this, Rabbit. I'm halfway through my second cycle of 100 after having 4 cycles of 125. I'm looking forward to the fatigue abating a bit. Lately, I've been noticing blood in the tissue after blow my nose. No bloody noses, though. I also seem to have more trouble "catching my breath", - like when you're trying to yawn, but can't get enough air in. I have a pulse oximeter, and my O2 sats are fine. It's just weird and a little annoying. My next appointment with my MO is December 2nd and my next scans are at the end of December.

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
Log in to post a reply

Nov 18, 2020 08:31PM tangandchris wrote:

Hi Ladies

Well dh tested positive for covid. DD and I will go tomorrow to be tested. I'm still in limbo waiting to start treatment, so this is probably gonna really throw things off. I'm not having any symptoms at this point.

Any clue how this might affect things?

Honestly this has me feeling quite defeated. We will be spending Thanksgiving alone thanks to this crap. We really needed to be around family too.

My reconstruction with TE's failed...had them removed because of infection. I am still unsure of if or when I will try again. Dx 10/24/2013, IDC, 2cm, Stage IIIA, Grade 2, 6/25 nodes, ER+/PR+, HER2- Surgery 11/23/2013 Lymph node removal: Left; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 2/13/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 10/2020, Stage IV, metastasized to other, ER+/PR-, HER2-
Log in to post a reply

Nov 18, 2020 09:38PM SerenitySTAT wrote:

tangandchris - I'm sorry that you have this additional stress. Let your MO know. Your treatment will likely be delayed. For Thanksgiving you could do it virtually. I know it's not the same. Hope your tests are negative and your DH is OK.

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
Log in to post a reply

Nov 18, 2020 10:06PM - edited Nov 18, 2020 10:08PM by Rosie24

Sunshine, I had the blood in the tissue happen too, when I was on 125 mg. It wasn't all the time but it was kind of unpleasant, obviously. I hope it goes away or at least lessens for you.

Tangandchris, Sorry about the positive test for DH. Please let us know how you're doing, hope you can be lucky and not get it. Maybe Thanksgiving can still happen when things settle down for you or as Serenity said, on zoom? In my area we just got an advisory (not a mandate) to stay home except for essential outings like jobs and medical appointments. Some will do it, others won't. DH and I are concerned and will not be out if we don't have to be. Best wishes to you.

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
Log in to post a reply

Nov 19, 2020 09:30AM candy-678 wrote:

Way to go RRabbit. Yes, I feel the same way about scan reports. With my new MO, we do the scan the same day as the office visit-- couple hour wait between for rad to read scan. So my MO discusses results with me before I have had a chance to prepare. I do not like this, but that is the way it is. I travel to get to my new MO. But at old MO I would sign for a copy of the results, just as you did, so I could be prepared. It is a sacred time.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
Log in to post a reply

Nov 19, 2020 11:16AM BlueGirlRedState wrote:

Sunshine - occssionally I had traces of blood after blowing my nose when first starting Ibrance. I got a humidifier since it tends to be rather dry around here. I think it helped. But one problem is the hard water here and flim it left . Also it never got to the humidity promised. Maybe room larger than I thought. I got one with a "chimney". If you do not plan on moving it from room to room, that style is fine, otherwise I do not recommend, I like to move between upstairs bedroom and downstairs living room. Getting dry again with the heat on, maybe time to get it going again

Log in to post a reply

Nov 19, 2020 11:42AM Spookiesmom wrote:

When we lived up north, we had a humidifier put on the forced air furnace. Really helped.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
Log in to post a reply

Nov 19, 2020 12:06PM JACK5IE wrote:

Bloody tissues here too.

I've also been noticing drier skin around my nails and cuticles to the point of peeling. I bought some Beekman 1802 Goat Milk Hand Cream and it has helped a lot.

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 8/1/2009 TAC Hormonal Therapy 1/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/1/2010 Lumpectomy: Left Radiation Therapy 5/1/2010 Whole-breast: Breast, Lymph nodes Surgery 7/1/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 8/1/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Nov 19, 2020 05:01PM Snow-drop wrote:

Rabbit, same here it is so annoying, once I asked why I can’t have reports before seeing onc, they replied because we don’t want our patients get panicked!!!! My answer: What is more than stage 4, a couple more tumors don’t scare me more, huh?!!

I am struggling to understand “Baseline hepatic activity” and “Baseline mediastinal blood pool activity” in pet scan, I couldn’t find good information from dr Google! I appreciate it if you can explain them, any information would be helpful.

I hope everyone is doing well.

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Nov 19, 2020 08:59PM lsharvey822 wrote:

Saw the MO today and it looks like she's switching me to Xeloda. In small part because of concern that it could have contributed to my pneumonia but apparently they are also concerned that it may not be working for me. Apparently one of my lung lesions looks larger.

Dx 2/28/2012, IDC, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2- Surgery 3/9/2012 Lumpectomy: Right Chemotherapy 5/7/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 1/3/2020, IDC, Right, 2cm, Stage IV, metastasized to brain/bone/liver/lungs, 0/4 nodes, ER+/PR+, HER2- Chemotherapy 1/23/2020 Taxol (paclitaxel), Taxotere (docetaxel) Hormonal Therapy 9/1/2020 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Nov 20, 2020 02:03PM candy-678 wrote:

Cross post----

Was thinking today, about the Covid vaccine.

Have any of you mention the vaccine to your MO? Should we get it while on Ibrance?

I messaged my MO nurse today. She said they have not discussed it yet.

Just wondering. Hopefully it will be available to the high risk people in the next few months.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
Log in to post a reply

Nov 20, 2020 02:27PM SondraF wrote:

Candy - they are gearing up here and I would be in line from mid-January, so I imagine my MO may mention it at my early December appt. I can at least ask if they have considered what is going on for cancer patients and how this stuff works with the cocktail of drugs we are all on. I mean cripes, I had a reaction of Zoladex + flu shot, so a little nervous.

Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Targeted Therapy 11/29/2019 Ibrance (palbociclib) Hormonal Therapy 11/29/2019 Femara (letrozole), Zoladex (goserelin)
Log in to post a reply

Nov 20, 2020 03:44PM Tanya_Djamila wrote:

Rabbit congrats on stable scans!


Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
Log in to post a reply

Nov 20, 2020 04:06PM RhosgobelRabbit wrote:

I beat it - totally agree :)

Tanya - stable bones sound good to me. CT isn't back yet so still waiting and I need to wait to receive it in the mail. I hate hate hate the wating :(

Candy - concerning the vaccine. MO offered flu shot so far. I declined. Will be declining covid vaccine if offered. Uninterested in it.

Mets @ Rads planning. Mets to Pelvis, Femurs, Shoulders, Ribs, T. Spine, L. Spine, Sternum, Sacrum/SI Joints. MyRisk neg. KEAP1 "Courage of the heart is very rare, there's a power when its there" 37yrs old @ IV DX. lifeandirises.home.blog/ Dx 7/30/2018, IDC, Right, 4cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 9/26/2018 AC + T (Taxol) Hormonal Therapy 9/26/2018 Zoladex (goserelin) Dx 4/19/2019, IDC, Right, 3cm, Stage IIB, Grade 2, 5/16 nodes, ER+/PR+, HER2- (IHC) Surgery 4/19/2019 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 5/13/2019 Zoladex (goserelin) Dx 5/17/2019, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- (IHC) Surgery 10/1/2019 Prophylactic ovary removal Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Aromasin (exemestane)
Log in to post a reply

Nov 20, 2020 06:10PM Chicagoan wrote:

Candy,

I didn't get picked but I volunteered to be in a clinical trial for the Covid vaccine. I ran it by my MO first and she had no problem with me volunteering. I plan to get the Covid vaccine as soon as I am allowed-I don't want the one that has the live virus (J&J) but I would take the Pfizer or Moderna one. I'd prefer Pfizer because I have a lot of confidence in them after my experience with Ibrance! There's risk with anything but this is a risk I am willing to take.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/26/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/26/2016 Ibrance (palbociclib)
Log in to post a reply

Nov 20, 2020 06:15PM Spookiesmom wrote:

I got flu shot late September, no problem. I will get the covid shot, eventually. It’s just too new, don’t think they’ve figured out what’s best. Don’t see my pcp stocking all 3 either

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3

Page 792 of 814 (24,400 results)