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Topic: Ibrance (Palbociclib)

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Metastatic breast cancer (MBC; also called stage IV) is breast cancer that has spread to other parts of the body, most commonly the bones, liver, brain, or lungs. Metastatic breast cancer can be treated but not cured. Metastatic disease is NOT hopeless. There are a wide variety of treatment options for metastatic breast cancer, and new medicines are being tested every day. More and more people are living life to the fullest while being treated for metastatic breast cancer.

Note: Please contact your doctor for any specific concerns about symptoms you are experiencing or your course of treatment.

Learn more about living with MBC.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Feb 24, 2015 08:21PM - edited Dec 11, 2017 01:43PM by Moderators

Romansma wrote:

A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets. Anyone currently on Ibrance?

Edited by Mods to add Mod Note: Unfortunately, Romansma passed away in 2016. Our thoughts are with all who loved Hope.

Edited by Mods to add:

For more information on this medication, see the main Breastcancer.org site's section on Ibrance for information on how it works, who it's for, what to expect, and side effects. Also, read the latest research on the Research News on Ibrance pages.

Pfizer Oncology Together is a first-of-its-kind program for patients taking Pfizer Oncology medicines that offers dedicated social workers called 'Care Champions' to help navigate the complexities that accompany treatment, such as identifying resources to help find emotional support, and workplace transition, transportation and financial assistance.

For cancer patients taking a Pfizer Oncology medicine (e.g. Ibrance) or caregivers, please visit www.PfizerOncologyTogether.com.

For live support call: 1-877-744-5675

Hope Dx 10/22/2010, ILC, Right, 6cm+, Stage IIIB, Grade 2, 9/10 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 11/1/2010 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 4/1/2011 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Radiation Therapy 6/8/2011 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 11/29/2011 Prophylactic ovary removal Dx 8/2013, ILC, Stage IV, mets, ER+/PR-, HER2- (FISH) Hormonal Therapy 9/17/2013 Faslodex (fulvestrant) Targeted Therapy 1/25/2014 Afinitor (everolimus) Radiation Therapy 2/11/2014 External: Bone Chemotherapy 12/6/2014 Xeloda (capecitabine) Hormonal Therapy 2/20/2015 Femara (letrozole) Targeted Therapy 2/20/2015 Ibrance (palbociclib)
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Jan 6, 2021 01:04AM Cure-ious wrote:

Oh, absolutely, I would do that too! And consider adding in Celecoxib and Vitamin B3 as boosters.

Dx 10/2003, IDC, Stage IIB, ER+/PR+, HER2- Dx 7/2015, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Jan 6, 2021 10:19AM Tina2 wrote:

BevJen,

Lousy news. Can your MO can discuss your scan report with the person who read it and get a more definitive answer?

Fingers crossed for you!

Tina


Stage I, mastectomy, 1985.Stage I, mastectomy, 1995. Stage IV, lung mets treated with Faslodex 2011-/2018. Treatment hiatus 9/2018-3/2020. Ibrance and Faslodex 3/2020. Faslodex only 11/20. Dx Stage IV, mets, ER+/PR+
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Jan 6, 2021 10:30AM BevJen wrote:

Hi, Tina,

Thanks for your thoughts. I think the most important thing is to get my interventional radiologist and my MO talking to each other -- they are both at the same institution, and they've never talked. I find that odd. I mean, I understand size of an institution, but really? My IR thinks my liver looks good, but for the repeat ablation that I had Dec. 11th ( to be checked by MRI on Jan 14th). My MO doesn't really understand local liver treatments, I don't think, and is freaking out about the wording in my CT scan report. She did suggest perhaps having another nuclear bone scan to see what it shows now, but I had one in late May/early June, and also had an MRI of my skeleton in August -- I don't know what else they are going to see at this point -- I have extensive diffuse sclerotic mets in my spine. All of these scans have confirmed that. And I still have some sub centimeter lesions in my liver, that have repeatedly showed up on all scans that pick them up since May 2019 -- but they are doing nothing, so we've left them alone.

To be determined....


Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Jan 6, 2021 11:12AM - edited Jan 6, 2021 12:18PM by jaycee49

Bev, I wonder if doctors realize that a certain few words from them can cause your stomach to drop to your feet. Can cause you to lose sleep and feel really crazy. Not be able to concentrate on anything but their words. Do they know? I assume not. I wish they did. I even wish I could tell them but that would make me a "difficult patient" or, God forbid, "not compliant." Compliant. That's the word they use for patients who do what they are told and don't complain. I've never been compliant. Never will be. My last Pet report said, "concerning for progression." Concerning? I asked my nurse, "is that code? Is that a secret language?" She never really answered.

Doctors don't get paid to talk to each other.

Sorry, I am not helping. Just want you to know I understand how you feel. I'm trying to understand the whole game a little and that makes it easier somehow.

Janet (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/14/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/31/2016 Femara (letrozole) Targeted Therapy 3/31/2016 Ibrance (palbociclib)
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Jan 6, 2021 11:28AM BevJen wrote:

Jaycee,

I think I got a little dig from my MO as I was walking out of the exam room yesterday, re your comment about "compliant patients," She said -- "well, from what I can see, you do a pretty good job of researching and advocating for yourself." I don't think it was a compliment. I'm sure she thinks I'm a PITA, if you get my drift.

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Jan 6, 2021 12:39PM jaycee49 wrote:

The problem with your MO having that opinion is that they don't just think it, they write it in your file. My first MO thought that all my side effects were caused by my anxiety. He told me in a roundabout way many times. I didn't get it back then but he wrote it in my file, probably multiple times. Now any doctor I see in that system has seen that. I even had my NP from my palliative care team start talking to me about "anticipatory side effects" just a few months ago. After that discussion, I considered where that had come from. She must have seen MO#1's comments in my file. The idea of doctors telling woman "it's all in your head" is not dead. It lives on in "anticipatory side effects" and your doctor telling you your side effects are caused by your anxiety. Fine. My side effects are caused by my anxiety. Maybe they are. They offer NO SOLUTION. I guess they are saying, "try not to be so anxious." Now I have side effects from Faslodex and am gun shy about telling MO about them. I assume I won't be believed.

Sorry, Bev. I somehow got from your issues to mine. And BTW, my nurse did say that "concerning for progression" means you HAVE progression. Why not just say that? It's some kind of radiologist speak that MO's understand.

Janet (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/14/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/31/2016 Femara (letrozole) Targeted Therapy 3/31/2016 Ibrance (palbociclib)
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Jan 6, 2021 01:28PM Snow-drop wrote:

BevJen, I read your post last night and god knows how many times I erased my response... now Jaycee response inspired me...

I understand your feelings and frustration and “trust” to your MO and I am not going to upset that bonding. my former MO was an absolute narcissist. Whenever he felt not to answer my questions that needed information ( he probably thought that it was a waste of time), his answers were in the way I won’t see tomorrow morning! Only one example, for a while he kept repeating that my chest wall got involved with C, I must say that he was pro to make me scare of that while it was nothing on any of the reports. Once I told him show me on the reports, his response was funny: maybe radiologist saw something but didn’t report it yet! now I changed my MO, interesting that his last visit summary indicated that “chest wall now clean”. I mean really?!!!! especially in situations that other physicians were involved (neuro oncologist in my case) he led situation in the way he wanted.

I am sorry I know in such events the last thing ones want not to listen someone’s whining.

Jaycee, I got “difficult” tittle in the clinic too ;)

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
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Jan 6, 2021 01:34PM jaycee49 wrote:

snowdrop, I finally fired MO#1 when he said, "I think you want to have an infection." I could tell you stories about that guy that would curl your toes.

Janet (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/14/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/31/2016 Femara (letrozole) Targeted Therapy 3/31/2016 Ibrance (palbociclib)
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Jan 6, 2021 06:00PM JACK5IE wrote:

BevJen...wishing you the best for the 14th! Hugs sent to you!

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 8/1/2009 TAC Hormonal Therapy 1/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/1/2010 Lumpectomy: Left Radiation Therapy 5/1/2010 Whole-breast: Breast, Lymph nodes Surgery 7/1/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 8/1/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jan 7, 2021 01:37PM dutchiris wrote:

This is the third cycle in a row that my ANC is still too low after a week off ( .77, .67 , and .69). An extra week off got me over 1 in the past. This time however after an extra week off, I am only at .78. My next cycle will be reduced to 100mg but I now need to wait for a second additional week. This is the first time I have needed 3 weeks for my ANC to recover.

Dx 1/25/2013, IDC, Left, Stage IIIC, Grade 2, 19/24 nodes, ER+/PR+, HER2- Chemotherapy 2/21/2013 AC + T (Taxol) Surgery 6/18/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 7/1/2013 Radiation Therapy 7/14/2013 Dx 7/26/2019, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (IHC) Hormonal Therapy 8/9/2019 Femara (letrozole) Targeted Therapy 8/16/2019 Ibrance (palbociclib)
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Jan 7, 2021 01:40PM BevJen wrote:

Okay, folks, I am officially moving on from Ibrance. After a bunch of emails with my MO, we've decided that I should try keytruda as a single agent. I qualify for this because on my genomic tests, I have shown twice that I have tumor mutation burden high, and last May? June? the FDA approved keytruda for use with that specific test result. We are trying to get it set up to start either at the end of next week or the beginning of the following week.

I wish you all the best, and I certainly do appreciate all of your support since I started on Ibrance. I will check back from time to time to see how you are all doing.

Bev

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Jan 7, 2021 01:51PM Chico wrote:

BevJen sorry that you are moving on but what an exciting move you are making. Good luck and I shall be following you with great interest

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Jan 7, 2021 02:08PM candy-678 wrote:

BevJen- Good luck. Keep in touch. I know we talk on other Threads. It will be interesting how immunotherapy does for you. My F1 studies from diagnosis (2017) show a low tumor mutation burden. But would I get repeat studies when I have progression since those are from 3+ years ago?? It will be interesting to hear your reports of how it goes for you.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Also using Xgeva injections for bone mets Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Chemotherapy AC Surgery Lymph node removal: Sentinel; Mastectomy: Left
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Jan 7, 2021 02:57PM Rosie24 wrote:

BevJen, Wishing you great success with immunotherapy. I too will be anxious to hear how you’re doing and will be in your pocket when you get started in the next week or two

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- (FISH) Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/3/2019 Lumpectomy: Left Surgery 12/3/2019 Lymph node removal: Sentinel Radiation Therapy Whole-breast
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Jan 7, 2021 03:35PM ShetlandPony wrote:

Jaycee said, “Doctors don't get paid to talk to each other.“ That is chilling.

2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
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Jan 7, 2021 05:23PM jaycee49 wrote:

Shetland, I know some doctors do and to great benefit to their patients. But I have always had trouble getting mine to. You've probably heard this from me before but the only time two of my doctors spoke was when MO#1 called my therapist to see just how crazy I was. I know what I said is chilling but I think it is mostly true.

Janet (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/14/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/31/2016 Femara (letrozole) Targeted Therapy 3/31/2016 Ibrance (palbociclib)
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Jan 7, 2021 06:06PM KBL wrote:

Dutch, after just one cycle on 125, my doc immediately dropped me to 75mg. I still have low months and have had to take a week off here and there. Just wanted to let you know you’re not alone.

BevJen, I wish you luck. I definitely want to stay in touch, as you’ve been a great help to me.

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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Jan 7, 2021 07:09PM JACK5IE wrote:

BevJen...best wishes for you and please keep us posted.

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 8/1/2009 TAC Hormonal Therapy 1/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/1/2010 Lumpectomy: Left Radiation Therapy 5/1/2010 Whole-breast: Breast, Lymph nodes Surgery 7/1/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 8/1/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Jan 7, 2021 09:12PM RhosgobelRabbit wrote:

BevJen, let us know how things go on your new treatment :)

Mets @ Rads planning. Mets to Pelvis, Femurs, Shoulders, Ribs, T. Spine, L. Spine, Sternum, Sacrum/SI Joints. MyRisk neg. KEAP1 "Courage of the heart is very rare, there's a power when its there" 37yrs old @ IV DX. lifeandirises.home.blog/ Dx 7/30/2018, IDC, Right, 4cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 9/26/2018 AC + T (Taxol) Hormonal Therapy 9/26/2018 Zoladex (goserelin) Dx 4/19/2019, IDC, Right, 3cm, Stage IIB, Grade 2, 5/16 nodes, ER+/PR+, HER2- (IHC) Surgery 4/19/2019 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 5/13/2019 Zoladex (goserelin) Dx 5/17/2019, IDC, Right, Stage IV, metastasized to bone, ER+/PR+, HER2- (IHC) Surgery 10/1/2019 Prophylactic ovary removal Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Aromasin (exemestane)
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Jan 8, 2021 12:27AM SerenitySTAT wrote:

BevJen - Wishing you the best on your next treatment.

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 8, 2021 01:22AM ShetlandPony wrote:

Jaycee, yes, the truth of what you say is what makes me shiver. (Maybe I misused the word chilling?)

2011 Stage I ILC 1.5cm grade1 ITCs sn Lumpectomy,radiation,tamoxifen. 2014 Stage IV ILC mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD
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Jan 8, 2021 11:14AM Tina2 wrote:

BevJen,

Best of luck with your new treatment. I will be thinking of you; keep us posted.

Tina

Stage I, mastectomy, 1985.Stage I, mastectomy, 1995. Stage IV, lung mets treated with Faslodex 2011-/2018. Treatment hiatus 9/2018-3/2020. Ibrance and Faslodex 3/2020. Faslodex only 11/20. Dx Stage IV, mets, ER+/PR+
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Jan 8, 2021 11:18AM BevJen wrote:

Thanks, Tina.

This train has left the station. Just got the appointments through the patient portal for starting on Jan 19th. Fingers crossed that this is a good treatment for me. Just a little bit scared.... but isn't that the name of the game for all of us?

Microwave Ablations of the Liver: 7/2019; 10/2020; 12/2020 Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Jan 8, 2021 11:27AM Karenfizedbo15 wrote:

Best of luck BevJen. I still check in here and you’re clearly on other threads so will catch up on how you’re doing there. And it’s very very OK to be scared!

Surgery 9/7/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2- Dx 2021, Stage IV, metastasized to bone Chemotherapy 2/4/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Jan 8, 2021 12:10PM jaycee49 wrote:

Shetland, chilling is the exact right word. I just try to qualify my statements because I seem to be debbie downer all the time. People expect their doctors to talk to each other but in my experience, they don't.

Bev, good luck. I WILL be stalking you.

Janet (dx with MS at 41, slows me down some) Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/14/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/31/2016 Femara (letrozole) Targeted Therapy 3/31/2016 Ibrance (palbociclib)
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Jan 8, 2021 07:20PM Tanya_Djamila wrote:

Bevjen good luck moving on. I’ll look for you on some other boards too

Anyone heard from PatMgc yet this year

Tanya

Tanya Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Jan 9, 2021 12:06AM Snow-drop wrote:

Katrose, thinking of you, best of luck for your MRI. Keep us updated please.

BevJen, best wishes for your new treatment, I know you have done a deep research before accept it.


De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
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Jan 9, 2021 09:20AM Simone80 wrote:

BevJen, good luck with keytruda. Please let us know how that works for you.

Dx 7/2001, IDC, Right, 1cm, Stage IIIA, Grade 3, 7/13 nodes, ER+/PR+, HER2- Dx 1/2019, IDC, 1cm, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Jan 9, 2021 09:59AM Katrose wrote:

Hi Aprilgirl1,

Thanks for your good wishes on my upcoming scans! However, I had to switch the date because it took so long to get the PET approved; now both are scheduled for January 20th.


Life isn't about waiting for the storm to pass...It's about learning to dance in the rain. Dx 11/5/2009, ILC, Left, 6cm+, Stage IIIB, 9/18 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 12/2/2009 AC + T (Taxotere) Surgery 5/19/2010 Mastectomy: Left; Reconstruction (left): Tissue expander placement Radiation Therapy 8/5/2010 Whole-breast: Breast, Lymph nodes Hormonal Therapy 9/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 5/23/2011 Reconstruction (left): Pedicled TRAM flap, Saline implant; Reconstruction (right): Saline implant Hormonal Therapy 4/15/2012 Aromasin (exemestane) Dx 6/2/2020, ILC, Stage IV, metastasized to bone/liver, 0/0 nodes, ER+/PR-, HER2- (IHC) Hormonal Therapy 6/18/2020 Femara (letrozole) Targeted Therapy 6/18/2020 Ibrance (palbociclib)
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Jan 9, 2021 12:45PM JACK5IE wrote:

Katrose...best wishes for your upcoming scans. Keep us posted.

I am due for scans this month also but my MO is holding off until early March because of the high Covid rate right now.

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 8/1/2009 TAC Hormonal Therapy 1/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/1/2010 Lumpectomy: Left Radiation Therapy 5/1/2010 Whole-breast: Breast, Lymph nodes Surgery 7/1/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 8/1/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)

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