Topic: Looking for Her2 Positive survivor stories

Forum: HER2+ (Positive) Breast Cancer — Testing, treatment, side effects, and more.

Posted on: Nov 3, 2014 09:47AM

Posted on: Nov 3, 2014 09:47AM

Lovemyboysandlabs wrote:

Hello, I was dx in February with Her2+ BC. I went through the chemo, the mastectomy and now in the midst of radiation. I will finish that in December and will be on the Herceptin through March. 

I, like so many BC survivors, have a constant fear of metastisis. I can't shake it. I think what I need is to read stories of those with my type of BC that have survived for years with no recurrence. Please share your stories with those of us that are still in treatment or just finishing that are scared.

Thanks!

Dx 2/12/2014, IDC, Stage IIIA, Grade 3, ER-/PR-, HER2+ Targeted Therapy 3/3/2014 Herceptin (trastuzumab) Chemotherapy 3/3/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/15/2014 Breast, Lymph nodes
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Dec 27, 2021 04:11PM pipandor wrote:

I was diagnosed at the end of 2015 and my recent yearly MRI was good. My oncologist was keeping an eye on the fibroadenoma in my left breast but tells me our next appointment will be our last, although the yearly mammos will continue. A bit scary but a also a relief. I like to come back here to post the good news and it's great to see that many of the women here who underwent treatment around the same time are doing fine. Best wishes to all for 2022.

Dx 1/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 2/5/2016 Lumpectomy; Lumpectomy (Left) Chemotherapy 3/11/2016 Taxol (paclitaxel) Targeted Therapy 3/11/2016 Herceptin (trastuzumab) Radiation Therapy 8/30/2016 Whole breast: Breast
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Jan 5, 2022 02:19PM angieb92 wrote:

I love hearing these 7+ year numbers! I was diagnosed triple positive in 2019. I believe have made great strides in bc treatment and that we will see bc patients dying of old age. I hope we make more majorly breakthroughs in treating our stage 4 brothers and sisters soon. My cousins just marked 10 years with stage 4 bc and is living life. I think it is so important that we hear of people doing well years and years after diagnosis

Dx 8/8/2019, IDC, Left, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Targeted Therapy 9/17/2019 Perjeta (pertuzumab) Targeted Therapy 9/17/2019 Herceptin (trastuzumab) Surgery 3/3/2020 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Targeted Therapy 4/10/2020 Kadcyla (T-DM1, ado-trastuzumab)
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Jan 10, 2022 08:01PM margun wrote:

in July 2019 i had my last chemo. I am on Letrozole. My white and red cells were always low rang of normal. Today they come up lower than normal. White one 4 and red ones 3.88. I have some occasional lightheaded or dizzy situations so I do not know if it is the reason. I blamed letrozole but I do not know anymore. Do you have any explanation why my white and red cells are low than the normal considering that chimio was over 2 years ago.thank you

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Jan 10, 2022 11:31PM minustwo wrote:

Margun - I'd go ahead & call your doc.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jan 18, 2022 09:51AM raleighgirl wrote:

margun,


My red blood cell numbers were not in the normal range until three years post chemo. But they did finally return to normal!

Dx 12/23/2014, IDC, 4cm, Grade 3, ER-, HER2- Targeted Therapy 1/15/2015 Perjeta (pertuzumab) Targeted Therapy 1/15/2015 Herceptin (trastuzumab) Chemotherapy 1/15/2015 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 18, 2022 11:23AM margun wrote:

Raleighgirl- my red but also white cell count are slightly bellow normal. The white once were bothering me more because after the surgery they were in the normal range. However, I am also taking Letrozole which generated osteoporosis. It is possible that the Letrozole is doing this because apparently it is one of rare side effects of this drug.

Hopefully, first, we stay cancer free and, second our body resist to all drugs necessary to fight the damn disease. Wishing beautiful and healthy days to all.

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Jan 25, 2022 11:59AM kimm992 wrote:

My oncologist also confirmed that with my HR- and HER2+ status that my cancer will not recur after 5 years. He says statistically it just doesn't happen or is rare enough that they consider you cured after 5 years. He did say I could still get a new cancer though...but it eased my mind knowing that my recurrence risk now is almost nothing.

Dx 10/14/2015, IDC, Right, 1cm, Grade 3, ER-/PR-, HER2+, ISH Chemotherapy 11/3/2015 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Targeted Therapy 1/6/2016 Herceptin (trastuzumab) Chemotherapy 1/7/2016 Taxotere (docetaxel) Surgery 3/24/2016 Mastectomy; Mastectomy (Right) Radiation Therapy 4/30/2016 Lymph nodes, Chest wall
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Jan 25, 2022 01:41PM mcbaker wrote:

Same for mine. I am actually on a six-month schedule for seeing MO. I can talk statistics, so chances of re-occurrence are way off into the good tail of the distribution.


Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR-, HER2+ Dx 11/16/2018, IDC, Right, <1, Stage IA, Grade 1, ER-/PR-, HER2+, IHC Surgery 11/16/2018 Lymph node removal; Mastectomy; Mastectomy (Right); Reconstruction (Right): Tissue Expander Targeted Therapy 12/19/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Chemotherapy 12/24/2018 Taxol (paclitaxel) Targeted Therapy 12/28/2018 Herceptin (trastuzumab) Surgery 6/28/2019 Reconstruction (Right): Fat grafting, Saline implant Chemotherapy
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Jan 25, 2022 11:25PM margun wrote:

so statistically speaking what is the chance of recurrence for triple positives?

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Jan 26, 2022 07:58AM - edited Jan 26, 2022 08:32AM by mcbaker

You didn't get Herceptin?

"At this time, there's been no specific research on survival rates for HER2-positive breast cancer alone. Current studies on breast cancer survival rates apply to all types." https://www.healthline.com/health/breast-cancer/he... So the tables were not specific to HER2+.

"According to the National Cancer InstituteTrusted Source, these are the 5-year relative survival rates for women who received a breast cancer diagnosis between 2010 and 2016:

  • Localized: 98.9 percent
  • Regional: 85.7 percent
  • Distant (or metastatic): 28.1 percent
  • All stages combined: 90 percent

It's important to remember that these are overall statistics. They can't determine your personal outcome."

Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR-, HER2+ Dx 11/16/2018, IDC, Right, <1, Stage IA, Grade 1, ER-/PR-, HER2+, IHC Surgery 11/16/2018 Lymph node removal; Mastectomy; Mastectomy (Right); Reconstruction (Right): Tissue Expander Targeted Therapy 12/19/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Chemotherapy 12/24/2018 Taxol (paclitaxel) Targeted Therapy 12/28/2018 Herceptin (trastuzumab) Surgery 6/28/2019 Reconstruction (Right): Fat grafting, Saline implant Chemotherapy

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